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I Waited Until the Pain Was Unbearable: Taylor’s Story

I Waited Until the Pain Was Unbearable: Taylor’s Story

It started on a Tuesday with mild lower back pain. I assumed that I’d strained something somehow. By Wednesday, the pain was slightly worse, and I felt weak, short of breath, and dizzy when standing—something definitely wasn’t right.

By Friday, the pain spread to my left groin and down my left thigh. I convinced myself it must be a severe back injury, maybe a herniated disc.

Later that night, the pain was so excruciating that I couldn’t walk and had to be wheeled into the ER. The pain felt like a tourniquet was tied around my thigh, like I wasn’t getting any blood flow. I told the ER doctor that I suspected a back injury, but I also mentioned a possible blood clot, since I’d started estrogen-based hormone therapy about eight weeks earlier for endometriosis.

Imaging revealed a massive DVT—completely occluding my left femoral vein, iliac vein, and extending into my inferior vena cava. On top of that, I had multiple small pulmonary emboli scattered throughout both lungs.

I underwent two emergency procedures to remove the clots, discontinued hormone therapy, and later tested positive for factor V Leiden (heterozygous) —a genetic clotting disorder — and May-Thurner syndrome, a condition where the left iliac vein gets compressed by the right iliac artery. At 25 years old, I’ll likely be on anticoagulants for life.

As a nurse, I knew the signs—but I didn’t recognize them in myself. Like many medical professionals, I didn’t want to be “that” patient who overreacts or wastes an ER visit. I waited until the pain was unbearable.

I share my story to remind fellow medical professionals: You are not immune. Listen to your body. Don’t delay treatment out of fear of seeming “dramatic.” It could save your life.

Resources

Women and Blood Clots
Factor V Leiden
Know Your Risk

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The personal story is intended for informational purposes only. The National Blood Clot Alliance (NBCA) holds the rights to all content that appears on its website. The use by another organization or online group of any content on NBCA’s website, including patient stories that appear here, does not imply that NBCA is connected to these other organizations or groups or condones or endorses their work. Please contact info@stoptheclot.org with questions about this matter.

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