On October 27, 2024, I was diagnosed with cerebral venous sinus thrombosis (CVST). There was a large blood clot taking up the transverse and sigmoid portion of the venous sinus of my brain. I am still dealing with some neurological deficits.
My symptoms started while I was working. Looking at the computer screen, numbers and letters were all distorted. I could not communicate effectively with my colleagues about what was wrong. Luckily, I am a nurse and work in a hospital. A stroke alert was called, and I was immediately taken to the ER.
Unfortunately, I was sent home with a diagnosis of a migraine. The next day, my husband could tell something was still off. He took me to another hospital where I was finally diagnosed with a CVST. My symptoms were the same: aphasia, headache, and left-sided weakness. An EEG showed seizure-like activity. My blood pressure upon arrival was 220/120 from the intracranial pressure.
I was treated with heparin and blood pressure medication while I stayed in the hospital for three days. After many MRIs and follow-up visits, my blood clot is now resolved, but I still deal with headaches and depression/anxiety.
My life has changed in many ways. I have not dealt with this type of debilitating depression prior to my CVST. Depression is a side effect I feel get often overlooked by the medical community. Being active, keeping up with my three daughters, and reading have helped to cope.
If you feel like something is wrong, please advocate for yourself. You know yourself better than anyone else.
Resources
CVST Patient Stories
Birth Control
Psychological Impact of Blood Clots
