In February 2022, when I was 16 years old, I woke up with intense chest pain, shortness of breath, and pain in my left leg. At first, I thought I had COVID-19, as I had no idea what a blood clot was. However, after visiting my pediatrician, I was told to go to the emergency room immediately because she suspected blood clots in both my leg and lungs.
I was admitted to the hospital, but it remained a mystery why an otherwise healthy and active teenager would develop blood clots. After further testing, I was diagnosed with May-Thurner syndrome and triple-positive antiphospholipid syndrome. I later underwent a procedure to place a stent in my left iliac vein, resolving the compression caused by May-Thurner syndrome.
I was also started on twice-daily enoxaparin injections, which I continue to take today, as I require lifelong anticoagulation due to my antiphospholipid syndrome.
I am extremely grateful that nearly four years later, I have remained blood clot–free thanks to the excellent care I have received and continue to receive from my healthcare team.
I have had to avoid participating in contact sports and other risky activities, but still participate in the sports that I love with necessary modifications.
I have learned that anybody can get a blood clot, as blood clots do not discriminate. NBCA has helped in my recovery process, as I have been able to read about blood clot survivors who share similar stories to mine. NBCA has also provided resources to help share the signs of blood clots.
Everyone’s recovery process looks different. My advice is to be patient with yourself and listen to what your body needs.
Resources
Children and Blood Clots
May-Thurner Syndrome
Antiphospholipid Syndrome
