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Recovery is Not Linear: Desiree’s Story

Recovery is Not Linear: Desiree’s Story

In April 2021, I was diagnosed with a cerebral venous sinus thrombosis. I was fortunate enough to have been diagnosed quickly following three days of headache, nausea, and vomiting. My risk factor was estrogen based oral contraceptives.

This diagnosis has taken a physical and emotional toll, but I am thankful for where I am. I want to raise awareness of all blood clots because this condition can happen to anyone regardless of age, gender, or health status.

I especially want to raise awareness of CVST. Symptoms often mimic more benign conditions, and diagnosis is often delayed, resulting in poorer outcomes.

My advice to others is to know your risk factors, make educated decisions regarding your health, and be patient and kind to yourself.

Recovery is not linear. It does get better with time.

Resources

Know Your Risk
About Blood Clots
Facebook Support Group

Share your story
The personal story is intended for informational purposes only. The National Blood Clot Alliance (NBCA) holds the rights to all content that appears on its website. The use by another organization or online group of any content on NBCA’s website, including patient stories that appear here, does not imply that NBCA is connected to these other organizations or groups or condones or endorses their work. Please contact info@stoptheclot.org with questions about this matter.

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