I Continue to be Gaslit: Stephanie’s Story
…me to hematology after five years of being ignored. I was diagnosed with factor V Leiden and I have essential thrombocythemia, a rare form of blood cancer where my bone…
Resource Center
…for Diagnosis Clotting Conditions (Genetic) Antithrombin …
My Saving Grace: De’Shawn’s Story
…people who have experienced a blood clot, please click here. To learn more about Factor V Leiden, please click here. To learn more about risk factors for blood clots, please…
My Lifelong Experience with FVL: Gemma’s Story
I was diagnosed with the genetic clotting disorder factor V Leiden when I was 15 years old. My aunty (my dad’s sister) had a blood clot during pregnancy and she…
I Thought I Was Having a Heart Attack While Holding My Newborn: Megan’s Story
…of the Factor V Leiden mutation and one copy of the prothrombin gene mutation. I was placed on blood thinning injections twice daily for nine months, then switched to an…
We Need More Voices, But Too Many of Us Aren’t Lucky Enough to Share Our Stories: Kyra’s Story
…diagnosed with a dural venous sinus thrombosis (DVST). My blood was tested for genetic factors and I was positive for heterozygous factor V Leiden. I was not offered any testing…
I Waited Until the Pain Was Unbearable: Taylor’s Story
…and later tested positive for factor V Leiden (heterozygous) —a genetic clotting disorder — and May-Thurner syndrome, a condition where the left iliac vein gets compressed by the right iliac…
With Gratitude, Optimism is Sustainable: Todd’s Story
…my moms death. I was factor V Leiden positive and homozygous. I had not only inherited it from my mother, but my “never around” father also. This made me very…
I Still Can’t Bend My Left Foot: Marjorie’s Story
…control is a risk for blood clots and the risk increases if you also have a genetic clotting disorder, such as Factor V Leiden. If you’ve had a blood clot,…
I Never Thought it Could Happen to Me: Mariah’s Story
…days for testing and observation. I was immediately prescribed Coumadin® (Blood thinner or anti-clotting medication) and compression stockings. I found out that I have the Factor V Leiden mutation (a…