My Children Will Have Education About Blood Clots: Katelyn’s Story
…positive for three blood clotting disorders, factor V Leiden (heterozygous), plasminogen deficiency, and prothombrin gene mutation (factor II). My other risk factors were estrogen-based birth control and a plane flight….
They Couldn’t Figure Out What Was Wrong: Shantelle’s Story
…groin. After I was diagnosed, it took three months to recover, as I couldn’t walk. I was diagnosed with factor II deficiency and factor V Leiden. The blood clot was…
Her Death Taught Us Lessons: Deborah’s Story As Told By Her Twin Sister, Mary
…positive for the blood clotting disorder heterozygous (one copy) Factor V Leiden (FVL). Deborah became anxious and depressed in the months following her DVT, but I saw her as a…
Spent the Night Googling My Symptoms: Lauren’s Story
…wasn’t until August 2011 that I learned I had Factor V Leiden and Factor II blood clotting disorders. I will now take blood thinners for the rest of my life….
To Test or Not to Test: Perspectives on Guidelines Opposing Routine Testing Under Certain Circumstances
The Evaluation of Genomic Applications in Practice and Prevention …
I Didn’t Have the Typical Symptoms: Victoria’s Story
…thinner or anti-clotting medication), a pressure stocking and warfarin for 3 months. As I did not test positive for Factor V Leiden, I visited two GP’s (general practitioners) and a…
Trust Your Instincts and Advocate For Your Loved Ones: Christian and Leah’s Story
…rebuild his lung strength. Genetic tests revealed he has factor V Leiden and two copies of the factor II prothrombin gene mutation. They also found a clot in his upper…
My Symptoms Were Dismissed: Sophee’s Story
…for a couple of weeks. Months later, I visited my gynecologist to discuss new options for birth control and she ran some blood work, which revealed I had factor V…
I Had Run 16 Miles the Day My Clot Was Discovered: David’s Story (with an update)
…stayed in the hospital for a couple of days. Tests showed that I have the factor V Leiden clotting disorder and I would need to be on blood thinners indefinitely….
IVs Have Provoked All of My Blood Clots: Jillian’s Story
…heterozygous factor V Leiden. My other risk factors were hormonal birth control and surgery. I have since had thrombophlebitis again following an IV placed for a MRI this past September….