Staying Positive Through My Experience with CVST: Maddie’s Story
…week later, when the pain reached its peak, that I returned to the ER and finally received a scan. I was diagnosed with Cerebral Venous Sinus Thrombosis, or CVST, which…
Many Doctors Aren’t Familiar with CVST: Abigail’s Story
…two scans, suddenly I had a whole team of people telling me I had CVST, a severe blood clot in the brain. They said that this condition is rare, especially…
My CVST Was Caught Just In Time: Naomi’s Story
…my newborn I was told I had an extensive blood clot in my brain known as a cerebral venous sinus thrombosis or CVST. I asked if I was going to…
Birth Control for Fertility Treatments Caused My Stroke and CVST: Antonella’s Story
…Venous Sinus Thrombosis (CVST). They explained that, although I was bleeding on my brain, they had to put me on a heparin blood thinner drip because the main priority was…
My Baby Had a CVST: Ivanna and Giovanna’s Story
My name is Giovanna, and I am the mother of baby Ivanna. We are from Mexico, and I want you to share our story. My family has a history of…
If You Feel Like Something is Wrong, Please Advocate for Yourself: Nicole’s Story
On October 27, 2024, I was diagnosed with cerebral venous sinus thrombosis (CVST). There was a large blood clot taking up the transverse and sigmoid portion of the venous sinus…
I Had Three Large Blood Clots in my Brain: Jessica’s Story
…a condition known as cerebral venous sinus thrombosis, or CVST. Two of them were in the sinuses of my brain. The sinuses of the brain are large veins that receive…
Life is a Gift and it’s Fragile: Cara’s Story
…very wrong, a CT with contrast and an MR venogram were performed. I had a massive cerebral venous sinus thrombosis (CVST) blood clot in the venous system of my brain…
Fight For Yourself: Sarah’s Story
After two long months of debilitating headaches and vision problems, I was finally diagnosed in July 2025 with a cerebral venous sinus thrombosis (CVST), a rare and dangerous clot in…
A Constant Headache Was a Sign of Something Serious: Marjorie’s Story
…I had something called cerebral venous sinus thrombosis, or CVST. After talking to the doctor, we were able to put all of the information together, and realized the weekend was…