Fight For Yourself: Sarah’s Story
After two long months of debilitating headaches and vision problems, I was finally diagnosed in July 2025 with a cerebral venous sinus thrombosis (CVST), a rare and dangerous clot in…
Resource Center
…Vein Thrombosis (DVT), Pulmonary Embolism (PE), and Cerebral …
A Constant Headache Was a Sign of Something Serious: Marjorie’s Story
…I had something called cerebral venous sinus thrombosis, or CVST. After talking to the doctor, we were able to put all of the information together, and realized the weekend was…
This Experience Cracked my Heart Open: Diane’s Story
…fatigue became a common occurrence. I’m now one-year post-CVST, still healing but optimistic and thankful I’m still here. I later tested positive for factor II prothrombin G20210A gene mutation, which…
I’m Living My Days to the Fullest: Elizabeth’s Story
…system in my brain, known as cerebral venous sinus thrombosis (CVST), which caused a stroke. I’d had a headache for six days and thought it was a migraine from stress….
World Thrombosis Day (October 13)
World Thrombosis Day shines a spotlight on blood clots—deep …
They Didn’t Believe My Pain: Meagan’s Story
…bleed” and transferred me to a larger hospital. There, we found that it was not a brain bleed but cerebral venous sinus thrombosis (CVST). I had multiple large clusters of…
The Last Thing I Remember Was Trying to Say, ‘Help me:’ Heather’s Story
…More precisely, I had CVST, or cerebral venous sinuous thrombosis. A blood thinner was immediately administered. After a few weeks of inpatient care, I was discharged and thrust into a…
Recovery is Not Linear: Desiree’s Story
…all blood clots because this condition can happen to anyone regardless of age, gender, or health status. I especially want to raise awareness of CVST. Symptoms often mimic more benign…
A Severe Migraine That Turned Out to Be Much More: Lindsey’s Postpartum Story
…— knowing that the tingling and vomiting were not good, even when another doctor said it was just a migraine. Resources CVST Patient Stories Psychological Impact of Blood Clots…