My APS Diagnosis Got Lost: Dione’s Story
In 1994, I had my son prematurely at 24 weeks. They did a bunch of testing and found out that I had antiphospholipid syndrome (APS). I had another preterm baby…
Newsletters
…The Clot Trot: Mike Beamesderfer’s Story An Opportunity to …
Take Advantage of the Support Available: Tammillia’s Story
…I have answers. I’m currently awaiting blood test results to find out if I have lupus anticoagulant / antiphospholipid syndrome. I feel like my youth and confidence have been taken…
I Was Blown Away By the PTSD I Felt: Donna’s Story
…three-month visit with my hematologist. I insisted on a cardiac echo which was normal, and genetic studies. My genetic testing showed that I have antiphospholipid syndrome (APS). My hematologist is…
Patient Input Needed for New Study Involving APS
…persons with antiphospholipid syndrome. The team …
If You Aren’t Happy With the Answers, Keep Pushing: Ria’s Story
…antiphospholipid syndrome (APS), and have recently begun on lifelong warfarin. This has changed my life and my lifestyle hugely. It took me months to breathe somewhat normally, I couldn’t be…
Volunteer Spotlight: Megan and Doug Sloyer
About 12 years ago, Megan was diagnosed with a pulmonary embolism (PE) and two clotting disorders – factor V Leiden (FVL) and antiphospholipid syndrome (APS). Since then, she has experienced…
June e-Newsletter | Summer Months, Summer Fun
…add blood clot prevention to the list of things to do before …
I Live with Both APS and Factor V Leiden: Eloise’s Story
…a test for antiphospholipid syndrome (APS), which came back positive. I now live with both APS and factor V Leiden two things I had never heard of before, and my…
My Teen Suffered a PE After Surgery: An Anonymous Parent
…positive for antiphospholipid syndrome (APS). Advocating for a medically complex teen gets easier after a near-miss event, but that shouldn’t have to be the case. NBCA has been extremely helpful,…