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I Could Never Have Imagined a Diagnosis Like This: Carlie’s Story

I Could Never Have Imagined a Diagnosis Like This: Carlie’s Story

In May 2024, a few days after delivering my first child via C-section, I began to feel heavy-chested and winded after doing very little, like walking and showering.

I had already been discharged as a patient, but my son was in the NICU, so we were staying across the hall in the hospital. I really didn’t think much of it at first. I thought that these were just normal post-C-section symptoms, until I brought them up to a friend of mine who is a labor and delivery nurse. She encouraged me to get checked out at triage down the hall, so later that night, I did.

I’m a type 1 diabetic as well, so I had concerns that I was experiencing pre-eclampsia, as I’m high risk for developing it. They did bloodwork and told me that they’d send me for more testing in the morning.

That night, I couldn’t lie on my back in bed. It felt like an elephant was sitting on my chest, making it impossible to sleep, so I slept upright in a chair instead. The next morning, I went for a chest X-ray, an ultrasound of my legs, and a CT scan.

Shortly after, I was told that I had a bilateral pulmonary embolism, a clot that had likely started in my legs, travelled into my lungs, and then broke up into both sides of my lungs, caused either by pregnancy or the C-section. Being a diabetic put me at an even greater risk.

I knew absolutely nothing about blood clots at the time, and I was terrified. I thought I was going to die and leave behind my newborn and my husband. I was 28 years old and relatively healthy. I could never have imagined a diagnosis like this.

I spent 24 hours on IV blood thinners and endured twice-daily blood thinner injections for six months, which was physically and mentally challenging. I’ve made a full recovery since and am so grateful to be alive today!

I’ve learned to trust my body and instincts when something feels wrong. I have used NBCA resources to keep myself informed and to also read other survivors’ stories. It’s brought me comfort knowing I was not alone in this experience.

Resources

Pregnancy
Know Your Risk
Facebook Support Group

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The personal story is intended for informational purposes only. The National Blood Clot Alliance (NBCA) holds the rights to all content that appears on its website. The use by another organization or online group of any content on NBCA’s website, including patient stories that appear here, does not imply that NBCA is connected to these other organizations or groups or condones or endorses their work. Please contact info@stoptheclot.org with questions about this matter.

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