My Clot Started 10 Years Before It Was Found: Jana’s Story
…keep my left iliac vein open. We learned my clots were caused by four things: factor II prothrombin deficiency clotting disorder, 14 years on birth control, May-Thurner syndrome, and a…
The Hematologist Told Me to Buy a Lottery Ticket For How Lucky I’d Been: McKenna’s Story
…let any pain go unnoticed. I’m thankful for NBCA for allowing survivors to share their own stories like mine. Resources May-Thurner Syndrome Factor II Prothrombin Deficiency Women and Blood Clots…
Direct Oral Anticoagulants (DOACs)
…DOACs on the market betrixaban (BevyxXa®) and edoxaban …
I Saw Five Doctors Before I was Diagnosed: Sherrye’s Story
…disorders, factor V Leiden and protrombin gene mutation (factor II). We will both be taking anticoagulants for the rest of our lives and will always have to mitigate our increased…
Blood Clots Were My Greatest Fear: Ashlee’s Story
…oral anticoagulant, and I am waiting to do genetic testing to see if I have any underlying risk factors. I have the MTHFR gene mutation, but I am not sure…
10 Years After My Factor V Leiden Diagnosis: Deirdre’s Story
…I have a blood clotting condition called Factor V Leiden — the gene mutation was only discovered a year or two earlier. The doctor in the hospital told me I…
Every Fundraiser is a Lifesaver: Sarah Henley’s Candles Raise Blood Clot Awareness
…by the combination of increased estrogen from hormonal birth control and postpartum, as well as obesity. Blood tests later showed she also has factor V Leiden, a genetic mutation that…
A Family Affair: Kathy’s Story
…mutation on to my daughter, Elizabeth Varga, who did her master’s thesis on the topic as she completed her degree in genetic counseling. She later served on the executive board…
My Saving Grace: De’Shawn’s Story
…I have a blood clotting disorder called Factor V Leiden, which I had never heard of. It’s a gene mutation you inherit from one or both of your parents. Needless…
Cancer Was My Main Risk Factor for Blood Clots: Heidi’s Story
…genomic testing, I found I had a pik3ca mutation, which has been treated with an oral chemotherapy drug for over a year now. Shortly after starting the drug, I flew…