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If you have news or information important to people affected by blood clots or clotting disorders, please email info@stoptheclot.org.

2025

 

 

News & Updates for the Blood Clot Community

June 2025 | Issue 12

UPCOMING EVENT

July PEP Talk | Compression

For the third year in a row, Dr. Suman Wasan of UNC Chapel Hill joins us for a PEP Talk on blood clots and compression on Tuesday, July 8 at 7 p.m. ET. Don’t miss this chance to hear the latest updates on managing symptoms after a blood clot.

By the way, Business Insider says compression socks are cool now. Read about it!
Register: July PEP Talk

If you missed our June PEP Talk on navigating a new blood clot diagnosis, watch it here.

NEWS

Sage Canaday Coaching Team Stop the Clot for the ’25 NYC Marathon

Professional runner and PE survivor Sage Canaday is coaching Team Stop the Clot participants for the NYC Marathon! With top-20 finishes in both the Boston and NYC Marathons, we’re thrilled to have him lead and inspire this year’s marathon team as they train for the November race.
Learn More

Sage was a guest on our podcast in March. Listen.

FEATURED RESOURCE

Preventing Travel-Related Clots

If you’re traveling more than 4 hours, it’s important to protect yourself from dangerous blood clots. Check out NBCA’s Passport to Safety, a guide to staying safe on the go.
Get the Guide

Blood clot risk is 4x higher in the two weeks following a long-haul flight (typically 4+ hours). Read stories of patients whose blood clots were linked to travel here.

FACES OF BLOOD CLOTS

Blood clots are invisible, but we are not: Maarib’s Story

After surviving blood clots twice, Maarib turned his experience into action by launching his country’s first thrombosis awareness initiative. His message: Trust your instincts, speak up, and never ignore your symptoms.
Read More

In Memoriam: ‘House Party’ Actor Eugene Allen Dies of a PE. Read his story.

PODCAST

A Dallas Cowboys Cheerleader’s Blood Clot Experience

Charly Barby was a few days away from auditioning for the Dallas Cowboys Cheerleaders team when she was diagnosed with a PE. She shares how this traumatic experience inspired her to spread awareness. (P.S.: She still made the team!) Watch Charly on Netflix’s “America’s Sweethearts.”
Listen

SUPPORT OUR MISSION

Double Your Impact to Stop the Clot

Right now, your gift can go twice as far. All donations made before Sept. 30 will be matched — up to $100,000 — thanks to a generous pledge from NBCA Volunteer President Leslie Lake.

Leslie survived a pulmonary embolism and found support through NBCA. Now she’s giving back to help others find hope and answers.

With federal funding for education eliminated, your support is more critical than ever. Help us provide life-saving resources, advocacy, and awareness. Give today and your gift will be doubled.
Double Your Impact

YOUR VOICE MATTERS

Help Us Plan Future Events!

Please tell us which activity you would be most likely to join.
Take Survey

 

 

 

 

News & Updates for the Blood Clot Community

May 2025 | Issue 11

Hello Stop The Clot,

May is Women’s Health Month — a time to raise awareness about the serious risk blood clots pose to women while using birth control, during pregnancy, after childbirth, and with hormone therapy. These risks are often overlooked. With women’s health rights under increased scrutiny, it’s vital to stay informed and empowered.

This month, NBCA is sharing tools and resources to help women understand and manage their risk, including our Women’s Health Month Toolkit and our May PEP Talk.

UPCOMING EVENT

May PEP Talk | Women and Blood Clots

In honor of Women’s Health Month, learn about women’s blood clot risk factors, prevention and treatment strategies, managing side effects, self-advocacy, the latest research, and more. Join us Tuesday, May 13 at 7 p.m. with clinical guest, Dr. Anna Parks – back by popular demand. 
Register: May PEP Talk

If you missed our April PEP Talk on weight, blood clots, and GLP-1 drugs, watch it here.

FEATURED RESOURCE

Women’s Health Month Toolkit

We invite you to use our Women’s Health Month social media toolkit to help raise awareness of women’s clotting risks.

Get the Toolkit

NEWS

Historic Win: Florida Approves First-in-the-Nation Blood Clot Legislation

(Pictured: NBCA’s Leslie Lake, Florida Rep. Dean Black, Janet Adkins, Doug Adkins, and Doug Adkins Jr.)

Florida has officially passed the Emily Adkins Family Protection Act — the first measure in the U.S. aimed at improving the detection, treatment, and tracking of blood clots. Gov. Ron DeSantis is expected to sign the bill by June 30.

Named for 23-year-old Emily Adkins, who died of a pulmonary embolism following an ankle fracture in 2022, the law will improve screening, training, and education, and create the nation’s first system to collect anonymous data on blood clot cases. This data will help healthcare providers and policymakers better understand blood clot trends, improve care, and ultimately save lives.
Read More

FACES OF BLOOD CLOTS

Awareness Could Have Saved Her Life: Brenda’s Story

Brenda experienced classic symptoms of DVT and PE, but no one was able to identify them as being life-threatening. Brenda lost her life to a PE in January at 36 years old.
Read More

SURVIVOR SPOTLIGHT

AARP Features NBCA’s Leslie Lake


In an interview with AARP, NBCA Volunteer President Leslie Lake shares her story of survival after a pulmonary embolism, highlighting the urgent need for awareness, early detection, and advocacy.
Watch Now

PODCAST

A Mother’s Fight to Stay Alive

In our latest episode of Taking a Breath: A Stop the Clot Podcast, Aaliyah and Brady describe how Aaliyah came back from the brink of death after experiencing a pulmonary embolism immediately after giving birth to twins.
Listen

VTE CENTERS OF EXCELLENCE

Florida’s Ascension Sacred Heart Receives Designation

Recognizing their commitment to providing exceptional patient-centered care in preventing, diagnosing, and treating blood clots, NBCA recently designated Ascension Sacred Heart in Pensacola, FL as the newest NBCA VTE Center of Excellence.
Learn More

SUPPORT OUR MISSION

Be a Stop the Clot Superhero

This spring, help us grow awareness and support for blood clot education and prevention by becoming a Stop the Clot Superhero! Whether you’re celebrating a special occasion, honoring a loved one, or simply want to make a difference, our DIY fundraising platform makes it easy to create your own personalized fundraising page.

Your efforts will help fund critical NBCA programs that educate, support, and save lives.
Start Planning

 

 

 

News & Updates for the Blood Clot Community

March 2025 | Issue 10

Hello Stop The Clot,

We’re feeling accomplished, grateful, and inspired as we reflect on the first two weeks of Blood Clot Awareness Month! This year’s theme, ‘Do Your Part to Stop the Clot,’ underscores the power of collective action in making a difference.

Thank you to everyone who has contributed by contacting their Congressional representatives to advocate for blood clot awareness and education funding, sharing our educational materials on social media, submitting your blood clot stories, and joining our 100,000 Reasons Challenge.

We’re especially inspired by the creative ways that our community members are raising awareness (details below!) Our momentum is palpable, and we couldn’t do it without all of you!

As we approach the final week of BCAM, let’s keep the momentum going! If you haven’t already joined the Challenge, it’s not too late! Sign up to help raise awareness and critical funds in honor of the 100,000 lives lost each year to blood clots.
Join the Challenge

Explore our BCAM 2025 toolkit for essential messaging and information on blood clots. Together, we can Stop the Clot®!

UPCOMING EVENTS

April PEP Talk | Weight, Blood Clots, and GLP-1 Medications

Excess weight is a well-known risk factor for blood clots—but recent research suggests that GLP-1 medications (like Ozempic, Wegovy, and Mounjaro) may help reduce the risk.

Join us Tuesday, April 14 at 7 p.m. ET for our next PEP Talk with Dr. Rushad Patell, hematologist at Beth Israel Deaconess Medical Center and co-chair of NBCA’s Council of Emerging Researchers in Thrombosis, as we explore the link between weight and blood clots, the latest research on GLP-1 drugs and clot risk, and what these findings could mean for people with a history of blood clots.
Register: April PEP Talk

Check out our 2025 PEP Talk schedule for and register: 2025 PEP Talk Schedule

Blood Clots & Public Health Webinar

Blood clots are closely tied to cancer, chronic illness, and major public health challenges. Understanding these connections is key to improving prevention and care. Join NBCA experts on Thursday, March 20, at 2 p.m. ET for a free webinar on the latest research and strategies for managing VTE. A must-attend for healthcare providers, pharmacists, and public health researchers—but open to all!
Learn More

Spreading Awareness Among Interventional Radiologists

Are you attending the Society of Interventional Radiologists’ Annual Scientific Meeting in Nashville starting on March 29? Come by booth #1215 to discover resources that help clinicians better understand the needs of patients and improve diagnosis and treatment outcomes, plus programs like our VTE Centers of Excellence™. 

5 Boro Bike Tour|Ride a Bike in NYC on Car-Free Streets

If you love bike riding, the TD Five Boro Bike Tour on Sunday, May 4 is the perfect event to add to your calendar. Imagine cycling through all five boroughs of New York City on car-free streets, soaking in iconic views and vibrant energy — an experience like no other. As a charity partner, NBCA has 14 bibs up for grabs!
Learn More

NEWS

Blood Clot Awareness Month Recognized Across the U.S.

Sixteen states and four cities have officially recognized March as Blood Clot Awareness Month!

Thank you to the advocates who ‘Did Their Part to Stop the Clot’ and helped make these proclamations a reality.
Read  More

BLOOD CLOT AWARENESS MONTH

Share our Resources

So far, our blood clot awareness content has reached more than 245,000 people on social media alone, thanks to you! We’re grateful for every action our community has taken to amplify our messaging.

Continue ‘Doing Your Part to Stop the Clot’ by sharing materials from our toolkit.
Get the Toolkit

A email from one of our bus tour partners in Charlotte.

BUS TOUR UPDATE

B.L.A.C.K. Church Bus Tour—Black Lives Advocating for Clot Knowledge

So far, our bus tour has raised blood clot awareness across Charlotte, NC; Atlanta, GA; and Birmingham, AL. Our next scheduled stop was Memphis, TN, but we had a change in plans for a very exciting reason!

We’re now headed to Pensacola, FL. Stay tuned for more details on this detour. After this, we’ll be headed up north to Memphis!

Follow along with @stoptheclot on social media using #StoptheClotBusTour.

Thank you to Grifols, Bristol-Myers Squibb-Pfizer Alliance, Inari Medical, and The Wawa Foundation for their generous support of this program!

ADVOCACY

NBCA’s Third Year of In-Person Meetings on Capitol Hill

Some issues can’t be ignored, even in tight budget times. Thank you to everyone who has contacted their Congressional reps and urged them to make blood clot awareness and education funding a priority in the next budget cycle. Hawaii is the only state remaining!

Your efforts have primed our next action. On March 25, blood clot survivors, caregivers, advocates, and health care providers meet with Congressional offices on Capitol Hill to share their stories, educate, and urge lawmakers to take action.
Learn More

BLOOD CLOT AWARENESS MONTH

‘Do Your Part to Stop the Clot’ in Action

We’re so inspired by the creative ways that our community has taken our theme and run with it! Do you know of any other blood clot awareness advocates who are ‘Doing Their Part to Stop the Clot’? Tell us about it: info@stoptheclot.org.

Baseball and Blood Clot Awareness in Texas

NBCA proudly attended the Texas Youth World Baseball Classic in League City, TX from March 13-16. More than 25,000 attendees received Stop the Clot wristbands and vital blood clot awareness resources. Adding to the special moment, NBCA’s Development & Outreach Coordinator and 2x blood clot survivor, Stephanie Martinez, was invited to sing the National Anthem.

Keychains for Awareness

Chelsey Rice, blood clot survivor and NBCA Thrombassador from Michigan, is turning creativity into advocacy! Through the end of March, she’s donating proceeds from her survivor-themed resin keychains and pins—available in her Etsy shop—to support NBCA’s mission.

Seeing Red in Buffalo

Denise and Paul Englert of New York lost their 19-year-old son, Paul, to a pulmonary embolism in 2013. In his memory, their advocacy has led to a vital public awareness campaign at Buffalo Niagara International Airport, educating travelers about blood clot prevention.

Last week, the Peace Bridge connecting New York and Canada was illuminated in red, shining a powerful light on blood clot awareness.

Reaching Gamers on Twitch

Nicole, a gamer known as SparklyGamerGurl, lost her mother to a pulmonary embolism and used her platform to raise awareness while streaming over the weekend. With more than 1,000 Twitch followers, she shared life-saving blood clot information and rallied her community to raise more than $1,300 for NBCA!

Want to plan your own awareness event?

If you’re eager to contribute to NBCA by raising awareness or funds but don’t know where to begin, use our guide to help you turn your event ideas into reality.

Get Our Event Guide

 

 

News & Updates for the Blood Clot Community

February 2025 | Issue 9

Hello Stop The Clot,

March is Blood Clot Awareness Month—a time for the blood clot patient community, health care community, and broader public to take center stage and share life-saving information about blood clot risks, signs and symptoms, and prevention. While we work year-round to build awareness, this month puts a national spotlight on the urgent need for education, prevention, and action. Join us as we share stories, spread lifesaving information, and empower communities to ‘Do Your Part to Stop The Clot’ and save lives. 

NEWS

Your Blood Clot Awareness Month Toolkit

Blood Clot Awareness Month (BCAM) kicks off on Saturday! Our 2025 BCAM toolkit is filled with essential messaging, digital tools, and resources to take action and Do Your Part to Stop the Clot.

Learn more about BCAM and how we’re recognizing it: stoptheclot.org/bcam
Get the Toolkit

UPCOMING EVENT

Register for the 100,000 Reasons Challenge

Join us for the 5th Annual 100,000 Reasons Challenge, established to honor the 100,000 Americans who tragically lose their lives to blood clots each year, raise funds to support critical education and awareness, and promote the increase of daily active minutes, which can help to prevent blood clots. 

The Challenge launches March 1—but you can set up your page and start fundraising any time. Prices increase Friday, so register now! 
Learn More & Register

UPCOMING EVENT

March PEP Talk | Support for the Newly Diagnosed

A blood clot diagnosis can be overwhelming, but you don’t have to face it alone.

 

Join us for a special PEP Talk on March 11 at 7 p.m. ET. Building on the safe, supportive space of NBCA’s Facebook Support Group, this session kicks off our quarterly PEP Talk series dedicated to anyone who is just beginning their journey with blood clots. Get started on the right path with the guidance, resources, and support to help you regain control of your physical and mental health.
Register: March PEP Talk

If you missed our February PEP Talk on medical procedures and blood clots, watch the recording here.

Check out all of our upcoming events.

SUPPORT OUR MISSION

 B.L.A.C.K. Church Bus Tour—Black Lives Advocating for Clot Knowledge

Blood clots affect Black populations at a higher rate than any other race, and awareness is key. Throughout March, NBCA is visiting six Southern cities, home to 55% of the Black population in the U.S. If you believe in this work, please support NBCA’s health equity programs with a donation to our bus tour—every dollar counts! Follow along with @stoptheclot on social media using #StoptheClotBusTour.

Support the Bus Tour

FACES OF BLOOD CLOTS

Blood Thinners Need to be Available at a Lower Cost: Lydia’s Story

Lydia’s story shows how blood clot treatment has evolved since 1989. While treatments have improved, high costs remain a challenge, underscoring the need for better access and awareness.
Read More

VOLUNTEER SPOTLIGHT

Heartbreak Fuels Teri’s Fight to Stop the Clot

Since losing her son, Bryce, to a pulmonary embolism at 21, Teri Stanfield has channeled her grief into advocacy for blood clot awareness. 
Read More

PODCAST

Entrepreneur Shares Her Story of Loss

Season 2, Episode 6 of Taking a Breath: A Stop the Clot Podcast features Loren Ridinger, co-founder of Market America and shop.com. She describes how her husband JR suffered a pulmonary embolism while sailing in Croatia, her grief journey, and the importance of spreading awareness.
Listen
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News & Updates for the Blood Clot Community

January 2025 | Issue 8

Hello Stop The Clot,

As we begin the new year, the National Blood Clot Alliance (NBCA) is excited to continue its mission of raising awareness about blood clot prevention, providing support for those impacted, and advocating for better diagnosis and treatment. Thank you for being here.

NEWS

B.L.A.C.K Church Bus Tour Launching in March

NBCA proudly announces the launch of our first-ever B.L.A.C.K. Church Bus Tour—Black Lives Advocating for Clot Knowledge.

This groundbreaking initiative will take place during Blood Clot Awareness Month in March 2025, visiting Black churches in six key cities across the Southern U.S., home to over 55% of the Black population.
Learn More

UPCOMING EVENT

February PEP Talk | Medical Procedures and Blood Clots

Undergoing medical procedures like LASIK, dental work, biopsies, or colonoscopies can be routine, but for individuals at risk of blood clots or on anticoagulation, these procedures may require extra precautions.

Join us Tuesday, Feb. 11 at 7 p.m. ET to understand how medical interventions can influence clotting risks and learn practical strategies to navigate them safely.
Register: Feb. PEP Talk

If you missed our January PEP Talk on the genetics of blood clots, watch the recording here.

SUPPORT OUR MISSION

Register for the 100,000 Reasons Challenge

Blood Clot Awareness Month (March) is fast approaching, and it’s time to take action! Join us for our 5th Annual 100,000 Reasons Challenge and honor the 100,000 lives lost to blood clots each year.

Register today to lock in discounted pricing, set your activity goals, and begin fundraising to support blood clot education and awareness.
Learn More & Register

FEATURED RESOURCE

Shared Decision-Making Guide for Thrombophilia Testing

Take control of your health decisions with our Shared Decision-Making Guide for Thrombophilia Testing. Inside, you’ll find a clear explanation of inherited and acquired thrombophilia, key testing guidelines, and the benefits and risks involved. This guide also answers many of the important questions raised during our January PEP Talk.
Get the Guide

PODCAST

Las Vegas News Anchor Shares his Blood Clot Story

Season 2, Episode 5 of Taking a Breath: A Stop the Clot Podcast features Dave Hall, morning news anchor for Fox 5 Las Vegas. After a pickleball injury in 2023 led to a life-threatening saddle pulmonary embolism, Dave underwent mechanical thrombectomy and shared his experience on air, inspiring an incredible response from viewers.
Listen

FACES OF BLOOD CLOTS

Christian

“On January 19, 2024, my 13-year-old son Christian called, struggling to breathe after weeks of illness that began with a virus and progressed to pneumonia. At the ER, they treated him for pneumonia again … I mentioned our family’s history of blood clots, but the doctor dismissed it, noting clots are rare in children…”
Read More

RESEARCH

AZALEA Study Highlights Promise of FXI Inhibition

The New England Journal of Medicine recently published the AZALEA Study, showcasing a groundbreaking reduction in bleeding compared to rivaroxaban. This landmark study highlights the transformative potential of FXI inhibitor abelacimab in preventing strokes in atrial fibrillation and venous thrombotic events in cancer patients. Accompanied by an insightful editorial, the publication underscores abelacimab’s promise to revolutionize care for millions worldwide requiring anticoagulation therapy.
Read More

NEWS

2024: A Year of Impact

As we reflect on 2024, we are proud to share the incredible strides we’ve made together in raising awareness, advancing education, and supporting those impacted by blood clots and clotting disorders. 
Read the 2024 Impact Report

 

2024

News & Updates for the Blood Clot Community

December 2024 | Issue 7

Hello Stop The Clot,

 

As we reflect on the past year at the National Blood Clot Alliance (NBCA), I’m filled with gratitude and pride for the incredible progress we’ve achieved together. None of it would have been possible without the unwavering support of our community.

 

Reading our 2024 impact report, I hope you share in the sense of accomplishment, knowing that your dedication and contributions have been at the heart of our mission.

 

As a blood clot survivor, it’s an honor to champion the patient voice — your voice — as we forge ahead in 2025, building on our progress and creating even greater impact. Together, we are saving lives and shaping the future.

 

From all of us at NBCA, we wish you a joyful holiday season and a happy, healthy New Year!

 

With sincere gratitude,

Leslie Lake

NBCA Volunteer President

UPCOMING EVENTS

January PEP Talk | Uncovering Your Family Health History

Did you know blood clots often run in families? If someone in your family has experienced a blood clot, your own risk may be higher too. Understanding your family history and genetic risks is key to preventing dangerous blood clots.
Register: Jan. PEP Talk

If you missed our December PEP Talk on Understanding Bleeding Risks for Patients on Anticoagulants with Dr. Jacob Cogan of the University of Minnesota, watch the recording here.

FACES OF BLOOD CLOTS

Courtney

“At five days postnatal, I started having pain in my right calf. I rang maternity at the hospital, who ran through the clot checklist. Apart from the pain, there were no other symptoms. I was told to ring back if the pain got worse.” – Courtney, West Yorkshire, UK 
Read More

NEWS

GLP-1 Medications May Reduce Risk of Blood Clots

A recent study led by Dr. Rushad Patell, chair of NBCA’s Council on Emerging Researchers in Thrombosis, suggests that GLP-1 medications, used for diabetes and obesity, may reduce blood clot risk by 48%. While further research is needed, this finding could offer new prevention strategies for DVT and PE.
Read More

SUPPORT OUR MISSION

Triple Your Impact: Every Gift Matched 2:1

Until December 31!

An anonymous donor is matching every gift 2:1 from now until December 31—TRIPLING your impact, up to $30,000! That means for every $1 you give, an additional $2 will be contributed to the fight against blood clots.
Donate

Want your donation to go even further?

Many employers will match charitable contributions made by their employees. Find out if your gift is eligible for matching by clicking the link below and typing your employer’s name in the search field.
Matching Gift Search

FEATURED RESOURCE

Preventing blood clots during holiday travel

As we pack our bags and hit the roads or skies for the holidays, it’s important to remember that prolonged sitting—whether on a plane, train, or car—can increase the risk of blood clots.

Most people travel safely, but factors like recent surgery, pregnancy, cancer, or a family history of blood clots can increase your risk.

Check out our resource for guidance!
Passport to Safety Resource

RESEARCH UPDATE

Breaking the Silence on Heavy Menstrual Bleeding: Survey Reveals Key Insights for Women on Anticoagulants

Thank you to everyone who took our patient survey earlier this year on heavy menstrual bleeding while on anticoagulants. According to the results, 86% of respondents reported that heavy menstrual bleeding negatively affected their quality of life, yet less than half received treatment to help relieve it.
Read the Findings

 

News & Updates for the Blood Clot Community

November 2024 | Issue 6

Hello Stop The Clot,

 

As the season of gratitude approaches, we want to take a moment to thank you for your continued support in the fight against blood clots. Your commitment to raising awareness and promoting education is making a lifesaving impact, and we are truly grateful to have you as part of our community.

 

In this month’s newsletter, we’re excited to share upcoming educational events, opportunities to get more involved and give back, and resources to engage with loved ones about your family health history.

 

Together, we are stronger in our mission to Stop the Clot and we look forward to continuing this important work with you.

 

Wishing you all a warm and joyful Thanksgiving,

The NBCA Team

UPCOMING EVENTS

December PEP Talk | Bleeding Risks for Anticoagulant Users: Differentiating Nuisances From Emergencies

Anticoagulants are essential for preventing and treating blood clots, but they also come with an increased risk of bleeding. We’ll discuss nuisance or “patient-relevant” bleeding, how it differs from emergency bleeding, and how patients can protect themselves.

Register: Dec. PEP Talk

If you missed our November PEP Talk on post-thrombotic syndrome, CTED and CTEPH with Dr. Timothy Fernandes of UC San Diego Health, watch the recording here.

DID YOU KNOW?

Thanksgiving is Family Health History Day

This Thanksgiving, start a conversation about your family’s health history, including any blood clots or genetic conditions like clotting disorders. Discussing these risks and considering genetic testing can lead to life-saving preventive care. Take the first step—it could save a life!
Learn More: Family Testing for Clotting Disorders

FACES OF BLOOD CLOTS

Rakeisha

“My gynecologist put me on a contraceptive ring and I wasn’t even on it a full 30 days before it almost killed me. —Rakeisha, Chicago, IL
Read More

Giving Tuesday: Support our Mission
Giving Tuesday: Launch a FB Fundraiser

Save the Date: Giving Tuesday is two weeks away!

Giving Tuesday is an opportunity for people around the world to use their individual power of generosity to give back and support their communities in meaningful ways — whether through acts of kindness, or contributions of voice, time, talent, or treasure.

If you’ve benefited from NBCA’s resources, such as our PEP Talks, New Patient Resource Guide, or patient support groups, please consider giving back to NBCA this Giving Tuesday!

Get Involved: Upcoming Dates

Join the NBCA Advocacy Institute

Want to learn how to advocate for blood clot education/awareness initiatives and influence state and federal public policy? Sign up for our next training on Wednesday, Dec. 4 at 7 p.m. ET.
Learn More: Advocacy Institute

NBCA Community Thrombassador Training

Named for the medical term for a blood clot, thrombus, our Thrombassador program is a network of patients and caregivers committed to spreading blood clot awareness. Want to get involved? Attend our next training on Saturday, Dec. 14 from 11 a.m. to 2 p.m. ET.
Learn More: Thrombassador Training

NYC Half Marathon

Start in Brooklyn, cross the Manhattan Bridge, zip through Times Square, and end in Central Park. We have 5 bibs for this 13.1-mile race taking place on March 16, 2025.
Register: NYC Half Marathon

5 Boro Bike Tour

Explore Manhattan, Brooklyn, Queens, The Bronx, and Staten Island by bike on streets free of cars! We have 25 bibs for this event taking place on May 4, 2025.
Register: 5 Boro Bike Tour

YOUR VOICE MATTERS

Tell Us About Yourself!

Please take a moment to answer this quick survey question so we can better serve our community.
Do you plan to participate in Giving Tuesday (Dec 3)?
Yes
No

 

News & Updates for the Blood Clot Community

October 2024 | Issue 5

UPCOMING EVENTS

November PEP Talk: Navigating Post-Thrombotic Syndrome, CTEPH and CTED

Post-thrombotic syndrome (PTS) is estimated to affect up to 60% of individuals with DVT. On Tuesday, Nov. 12 at 7 p.m. ET, we’ll look at PTS and other complications that can arise after a blood clot, including chronic thromboembolic pulmonary hypertension (CTEPH) and chronic thromboembolic disease (CTED), as well as new treatment options.
Register: Nov. PEP Talk

EVENT

Race to Stop the Clot Virtual Fun Run: Oct. 11-14

World Thrombosis Day takes place on October 13 every year to turn the world’s attention to blood clots.

Blood clots can be fatal, but they are also preventable. Help us spread awareness by participating in NBCA’s 5th Annual Virtual Fun Run between October 11-14 to commemorate World Thrombosis Day. It’s not too late to register!
Register: Fun Run

View the Full Event Calendar

EVENT

NBCA Community Thrombassador Training

Named for the medical term for a blood clot, thrombus, our Community Thrombassador program is a network of patients and caregivers committed to spreading blood clot awareness in their communities on a volunteer basis. In just the past two months, our 120 Thrombassadors have organized more than a dozen outreach events across the country. Want to get involved? Attend our next Thrombassador training on Thursday, Oct. 17 from 10 a.m. to 2 p.m.
Learn More

FACES OF BLOOD CLOTS

Kourtney

“The doctor had to cut my pants off because my leg was so swollen. He looked at me and said, ‘I didn’t take you seriously at first but, I am taking you seriously now.’” —Kourtney, Hollis, NY
Read More

ADVOCACY

NBCA Joins Partner Organizations in the Get Out the Clot Campaign to Improve Patient Care

NBCA and partner orgs announced the Get Out the Clot campaign in advance of World Thrombosis Day (October 13) to identify gaps in blood clot patient care, standardize care, and expand access to the latest innovations to improve patient outcomes.
Learn More

CLINICAL TRIAL

Now Enrolling: Afib Patients Not Currently Taking a Blood Thinner 

Afib patients may be interested in a new class of anticoagulants (blood thinners) currently being evaluated.
Learn More

FEATURED RESOURCE

Children and Blood Clots Resources

Thanks to Dr. Neil Goldenberg of Johns Hopkins Medicine, who is also on our Medical and Scientific Advisory Board, we’ve updated our resources on pediatric blood clots.
Learn More

SUPPORT OUR MISSION

Organize a Blood Clot Awareness Event

Did you know that you don’t need to be a Thrombassador to plan a blood clot awareness event? We’ve prepared this guide to help you turn your awareness event ideas into reality.

Get the Guide

YOUR VOICE MATTERS

Tell Us About Yourself!

Please take a moment to answer this quick survey question so we can better serve our community.
Have you ever listened to our podcast, Taking a Breath?
Yes
No

Season 2 of our podcast starts soon! Listen here:

Listen

News & Updates for the Blood Clot Community

September 2024 | Issue 4

UPCOMING EVENTS

September PEP Talk: Blood Clots Across Diverse Identities

Did you know that blood clot risk factors are as diverse as the populations they affect?

From genetics to environmental conditions, social determinants of health, and even climate change — each factor plays a role in determining blood clot risks, but they don’t affect everyone the same way.

On Tuesday, Sept. 10 at 7 p.m. we discuss how these factors influence blood clot risks. Whether you’re personally affected or simply want to learn more, this PEP Talk is a must-attend!
Register: Sept. PEP Talk

EVENT

Race to Stop the Clot Virtual Fun Run: Oct. 11-14

World Thrombosis Day takes place on October 13 every year to turn the world’s attention to blood clots.

Blood clots can be fatal, but they are also preventable. Help us spread awareness by participating in NBCA’s 5th Annual Virtual Fun Run between October 11-14 to commemorate World Thrombosis Day.
Register: Fun Run

EVENT

Train to Become an NBCA Community Thrombassador

Last month, we trained 23 new Thrombassadors who now have the tools and knowledge to spread blood clot awareness in their communities. Congratulations!

Inspired to join the blood clot awareness movement? Our next Thrombassador training is October 17.

Register: Thrombassador Training

View the Full Event Calendar

FACES OF BLOOD CLOTS

Mickey

“After two days of struggling to breathe, I seemed to be getting worse. My boss at the time was a pulmonologist. I explained that my chest hurt and I was having difficulty breathing and asked him if he would listen to my chest. He refused and said there was nothing wrong with me.” – Mickey, Vail, AZ
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Blood clot survivors: Let’s hear your story

By sharing your blood clot story, you help to raise awareness, provide support, inspire others, build community, and heal. Every story matters!
Share Your Story

ADVOCACY

Erin VanDyke Leading NBCA’s Centers of Excellence Program

Our patient advocacy efforts took a leap forward last month with the appointment of Erin VanDyke, PA-C as VP of NBCA’s newly formed Centers of Excellence program. Erin is leading our work in recognizing hospitals and medical centers that show excellence in clinical outcomes, patient education, and post-hospitalization care.
Learn More

SUPPORT OUR MISSION

NEW ITEM: Stop the Clot Backpack!

Spread blood clot awareness wherever you go with this roomy, durable backpack! It features a diagram of the signs and symptoms of blood clots along with our signature polka dots.
Order Your Backpack

YOUR VOICE MATTERS

Tell Us About Yourself!

Please take a moment to answer this quick survey question so we can better serve our community.
Would you participate in an in-person blood clot awareness event in your community?
Yes
No
Maybe

 

News & Updates for the Blood Clot Community

August 2024 | Issue 3

BLOOD CLOT SURVIVORS IN THE NEWS

Survivors Competing in the Olympics and Paralympics

We’re so proud of these survivors — both American and international — who’ve overcome blood clots and and are now competing in the Paris 2024 Olympics and Paralympics. We’ve been tracking the progress of the blood clot survivors who’ve competed so far.
View results

New England Patriots Player Sidelined with Blood Clots

The latest pro athlete to be diagnosed with blood clots is Christian Barmore, defensive lineman for the New England Patriots. Last week, the team announced that Barmore is hospitalized and would be out of the game indefinitely.
Read more

UPCOMING EVENT

August PEP Talk: The Role of PCPs in Blood Clot Diagnosis, Treatment and Care

Primary care physicians (PCPs) and specialists such as hematologists both play important roles in the diagnosis, treatment, and management of blood clots, but their roles differ in scope and specificity. Our next PEP Talk on Tuesday, Aug. 13 at 7 p.m. ET will focus on the role of PCPs in the diagnosis, treatment, and long-term care of blood clot patients.
Register

View the Full Event Calendar

NYC: Attend the Black Health Matters Health Summit & Expo on Aug. 15!

RESEARCH

A History of Anxiety and Depression Increases Risk for DVT

The results of a new study published in the American Journal of Hematology shows that anxiety and depression are associated with a heightened risk of DVT.
Learn more

FEATURED RESOURCES

Listen to our Award-Winning Podcast

The latest episode of Taking a Breath features Bonnie Bernstein, blood clot survivor and former sports journalist with ESPN and CBS Sports.
Listen

How to Safely Return to Exercise After a Blood Clot

US News & World Report recently published a must-read article on how to safely return to exercise after a blood clot. It’s packed with expert advice and tips to help you get back on track.
Read it

FACES OF BLOOD CLOTS

Dan

“On July 31, 2021, after being misdiagnosed and sent home almost a week prior, I finally received a diagnosis that would forever change my life: sub-massive pulmonary emboli and pulmonary infarction. I call it ‘the back pain that saved my life.'”
Read more

Billie, Kempner, TX

Read her full story

GET SUPPORT

Join our Facebook Support Group

“After a long car trip, I began having pain in my right calf. My doctor ordered an ultrasound that came back negative for DVT. It didn’t get better, so I went to urgent care, where I was diagnosed with DVTs in both legs. The leg pain seemed to improve, but the pain in my right thigh and back worsened. I then found a story in the Stop the Clot Facebook group about May-Thurner Syndrome. I made an appointment with a vascular specialist and I asked if I could be tested for MTS. This was the correct diagnosis. I had a four-hour surgery and woke up feeling like a new person. I am thankful I found this group!”
Join

YOUR VOICE MATTERS

Tell Us About Yourself!
Did your health care provider give you guidance on exercising after your blood clot?
No, I did not receive any guidance on exercise
Yes, I received adequate information on this
Yes, but the information was not adequate
Yes, but I had to initiate the conversation

News & Updates for the Blood Clot Community

July 2024 | Issue 2

UPCOMING EVENTS

August PEP Talk: The Role of PCPs in Blood Clot Diagnosis, Treatment and Care

Primary care physicians (PCPs) and specialists such as hematologists both play important roles in the diagnosis, treatment, and management of blood clots, but their roles differ in scope and specificity. Our next PEP Talk on Tuesday, Aug. 13 at 7 p.m. ET will focus on the role of PCPs in the diagnosis, treatment, and long-term care of blood clot patients.
Register

View the Full Event Calendar

SUPPORTER SPOTLIGHT

NYC Marathon runner Patrick Mingey of Boston, MA

“My mother and my best friend have both experienced near-fatal blood clots. My best friend and I are honored to be running the NYC Marathon together on Team Stop the Clot. It’s a terrifying condition and I am honored to raise awareness.”
Read More

ADVOCACY

Introducing the NBCA

Advocacy Institute

To put an end to the 100,000 deaths each year to blood clots, we’re accelerating our advocacy efforts by launching the NBCA Advocacy Institute.
Learn more

FACES OF

BLOOD CLOTS

Betsy

“I told the ER doctor I was concerned because of the contraceptive ring, and he told me that he’d never heard of that causing PEs.” – Betsy, Champaign, IL
Read More

FEATURED RESOURCES

Watch our July PEP Talk on Compression

In case you missed it, here is the recording of our most recent PEP Talk on compression with Dr. Suman Wasan of UNC Chapel Hill.

Watch

Plan a Blood Clot Awareness Event This Summer!

Awareness of the signs and symptoms of blood clots is unacceptably low among the general public. If you’d like to help change this but don’t know where to start, we have ideas!
Plan an Event

SUPPORT OUR MISSION

NEW ITEM: Stop the Clot Beach Towel!

With summer in full swing, it’s time to spread blood clot awareness when you spread out your towel at the beach or pool! We just added this thick, high-quality towel to our online store.

Order Today

YOUR VOICE MATTERS

Tell Us About Yourself!

Please take a moment to answer this quick survey question so we can better serve our community.
How long ago did you discover NBCA?
Within the past three months
Within the past six months
Within the past year
More than one year ago
More than five years ago

HEALTH TIPS

Forgot Your Blood Thinner While Traveling? Here’s What to Do!

First, contact your usual pharmacy and let them know your situation. They may be able to advance you a refill to your current location, or even transfer your prescription to a new pharmacy.

Or, you can call your doctor’s office. They may be able to send you a new prescription to a local pharmacy.

Also, be sure to stay hydrated and active to help reduce your blood clot risk. Wearing compression can also help improve circulation and blood flow.
Travel Tips

News & Updates for the Blood Clot Community

June 2024 | Issue 1

Hello Stop The Clot,

Welcome to the first issue of our newly revamped newsletter! Each month, we aim to update you on resources, events, news, advocacy, and much more. As we step into June, we’re spotlighting Men’s Health Month with a special PEP Talk and sharing tips on how to prevent blood clots during summer travel.

UPCOMING EVENTS

VTE & He: Unpacking the Male Blood Clot Experience

Did you know that the overall risk of blood clots is slightly higher in men than in women? Many athletes, such as 2x Super Bowl winner Trey Smith, have had bloods clots. Join our June PEP Talk on Tuesday, June 11 at 7 p.m. ET to learn more and protect yourself and your family.
Register

View the Full Event Calendar

SUPPORTER SPOTLIGHT

Gretchen Piller

“Five years ago, my dearest friend survived a PE, but many others are not as fortunate. I donate to NBCA because I believe in patient advocacy, the strength of community, and the importance of making the STOP CLOT acronym part of our everyday language.” 
Read More

PATIENT RESEARCH

Heavy Menstrual Bleeding Survey

If you’ve dealt with heavy menstrual bleeding while taking a blood thinner, please help educate the health care community about your experience.
Take the Survey

FACES OF

BLOOD CLOTS

Remembering Taylor

“I’ve done a lot of research and I found that blood clots are often misdiagnosed as pneumonia.” – Taylor’s father
Read More

FEATURED RESOURCES

Taking a Breath Podcast

Listen to episode 10 featuring oncologist and blood clot and cancer survivor, Dr. Mark Lewis in “A Conversation on Resilience and Kindness.”
Listen Here

SUPPORT OUR MISSION

Who wants a Stop the Clot® tote bag?

Donate at least $25 in June and receive a Stop the Clot tote bag! Use #GlobeTrotDontClot on social media to show us where the bag travels with you this summer and help spread awareness about blood clots.

Donate

YOUR VOICE MATTERS

Tell us about yourself!

Please take a moment to answer our one-question survey!
How would you best describe your connection to blood clots?
A blood clot survivor
A loved one or caregiver of a survivor
A loved one of a person lost to blood clots
A health care provider
An industry member
Other

HEALTH TIPS

Preventing Blood Clots During Summer Travel

Traveling more than four hours carries

an increased risk for blood clots. The risk is greater for people who have had a clot previously. Prevention tips include:

  • Move your legs and feet
  • Get up and walk every hour or so
  • Drink plenty of fluids
  • Do not cross your legs
  • Wear loose clothing
  • Avoid caffeine and alcohol
  • Know the signs/symptoms of blood clots
Read More

 

2021

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Current News

NL (2500 x 900 px) (3)

Pro Runner Sage Canaday Named Coach of Team Stop the Clot® for 2025 NYC Marathon

The National Blood Clot Alliance (NBCA) is thrilled to welcome professional runner and pulmonary embolism survivor Sage Canaday as Coach…
Get the full story »
MyMichigan Medical Center-Midland

NBCA Designates a Michigan Hospital as First DVT Center of Excellence™ in the U.S.

NBCA is honored to announce MyMichigan Medical Center Midland as the first hospital in the U.S. to be designated a…
Get the full story »
Get more news »