The personal story below is intended for informational purposes only. The National Blood Clot Alliance (NBCA) holds the rights to all content that appears on its website. The use by another organization or online group of any content on NBCA’s website, including the patient stories that appear here, does not imply that NBCA is connected to these other organizations or groups or condones or endorses their work. Please contact with questions about this matter.

Anna Frutiger Anna Frutigerembodied brains, beauty, compassion, athleticism, and as such, seemed the picture of health while she was living her dream of becoming a dentist. No one expected that a blood clot would end her dream, and it seemed beyond belief that Anna died on May 20th, 2010 from a pulmonary embolism (PE) due to an undiagnosed deep vein thrombosis (DVT), a month after her 23rd birthday.

Anna felt pain behind her knee and in her calf four months before she died, and she attributed her pain to the stress and strain of training for a half marathon or a muscle pull.  Her friends at dental school noted that she limped, and Anna was aware of becoming short of breath whenever she ran.

When her leg pain persisted, Anna saw an orthopedic surgeon who found no injury to suggest a muscle pull. After a thorough physical and review of her medical history, her doctor suspected a blood clot in her lower leg. Anna’s only known risk factor was that she was taking a third generation birth control pill.  Results of an Ultrasound/Doppler of her leg were negative for DVT.  At a follow-up to that exam 3 weeks later, her leg was normal shape and size, and she no longer felt any leg pain.  As a result, her doctor discharged her.

After her first year finals at the University of Pittsburgh School of Dental Medicine, Anna traveled quite a bit, and flew for six hours over two consecutive weekends, then went to see friends in New York City the next two weekends which involved an eight hour bus trip with one ten minute stop.  Anna complained of not being able to breathe easily when she carried groceries up to her apartment right after the bus trip.  She told her parents that her symptoms were probably stress–related, since vacation was over, and the demands of school were resuming.

The next morning, Anna called her best friend to drive her to school because she felt extremely weak and didn’t think she could walk on her own.  She wanted to push herself to class, because she had two quizzes that day.  Anna collapsed on the lawn outside her apartment after walking downstairs, and blacked out for several seconds.  Her friend called 911 and an ambulance arrived within minutes. Anna was conscious at that point, and asked her friends to call her parents in Michigan.

Anna made it to the Emergency Room, but had a cardiopulmonary arrest a few minutes after she arrived.  She was immediately taken to surgery to try to dislodge the huge blood clot that caused her massive PE.  Over the next two days, a team of doctors and nurses worked round the clock to keep Anna alive in hopes that a miracle would happen, something her family and friends wished for with all their hearts.  Her family was euphoric two days later, because she moved her arms during the night, and their hope was that she would awake from her coma.  Their hopes were dashed almost immediately when the neurological tests showed that she no longer had brain activity.  Anna’s family had to make the agonizing decision to remove life support.

Despite their grief, they chose to donate Anna’s organs. Anna gave life to another, so continues to be life-giving even after her death.

Her doctors immediately tested her family and found no genetic blood clotting disorders.  Her autopsy determined that Anna was not predisposed to blood clots.  It seems that the birth control pill and her concentrated travel in one month were her major clotting risks.

Although Anna tuned in to her health status, 23 year olds do not suspect that anything fatal is brewing, and she probably did not link her birth control to her leg pain, or the possibility of a DVT.  Although her doctor suspected a blood clot, he saw her as a low risk.   Moreover, the Ultrasound/Doppler testing is effective for DVT diagnosis only 3 out of 10 times.  Her family believes strongly that had Anna and they had the awareness and knowledge of the risks factors and signs of DVT in the months before Anna died that she might be alive today.

Anna loved her friends and family with every ounce of her being and always gave 110% to others, no matter what was at stake.  Two of her closest friends, Sally Vitez and Michael Ratajczyk, fundraised for the NBCA/ Stop The Clot® by running a marathon and half marathon respectively in Anna’s memory.

They have raised more than 7,000 to promote awareness of DVT.   Anna’s family is sharing her story to show that a blood clot can happen to anyone, at any age, and at any time, and that awareness of signs and symptoms of DVT and PE helps save lives.  Anna’s story has already saved the lives of several individuals who had similar symptoms and sought medical care for blood clots or testing for clotting disorders. Her story prompted them to seek care immediately for similar symptoms, and because of the impact of Anna’s story, lives were saved.

The Frutiger family is committed to doing everything in their power to support public awareness efforts of National Blood Clot Alliance to Stop The Clot®.

Take Home Messages

  • Blood clots can happen to young, seemingly healthy people
  • Birth control pills increase risk for blood clots
  • Tell family and friends the symptoms of DVT and PE so they know that a “muscle pull” may be a blood clot in the leg, and unusual shortness of breath may be a symptom of a PE
  • Organ donation help a loved one live on
  • Fundraising in memory of a loved one is a positive channel for grief to support public health messaging



Author: admin

84 Responses to "In Memory of Anna Frutiger: Her Blood Clot Story"

  1. Cynthia Sparks
    Cynthia Sparks Posted on August 1, 2013 at 5:00 am

    Oh my God! I just started on The Yasmin bc pill and 3 days later starting having a bad pain in the back of my knee. Even my vein seem very green and visibleI am training for a half of marathon and for these past two days I ve shortness of breath and chest pain.. I thought I might had pulled a muscle but the pain behinds knee started after two days of resting from running and it started along with shortness of breath, today I could run my normal short 3 miles as usual, i felt really sick afterwards. Thank you for sharing her story , I am going to see my doctor first thing tomorrow

    • beth
      beth Posted on October 7, 2014 at 6:12 pm

      Such an important and bittersweet story to share. I am will to volunteer and donate to Anna’s cause. I was recently diagnosised w DVT, out of the blue, hormones to blame, and I am grateful to be alive.
      I’ve found that there’s info out there but not enough. We definitely need to spread awareness.

    • Zara Raymond
      Zara Raymond Posted on October 20, 2015 at 12:10 pm

      Hello is your leg? what did the doc say? i have just developed an aching pain on my lower calf muscle and am worried..

    • Jeffrey
      Jeffrey Posted on September 18, 2016 at 5:52 pm

      I just had my ith arm surgery, 4th rt a d m surgery at home healing then my left ca l f one day swelled up and pain from mid back down to toes. Now the pain I s rright at my ca m f 2+ weeks gotta walk with a can d. N I fell repeatedly then one n u ght I coughed abd right where the end of my ribs are on rt side to baCK I couldn’t breathe couch nor inhale without it hurting, it wasnt b outside muscle pain but inside b pain I justsaw my surgeon and both him and his nurse both suggested a blood clot it’s the same symptoms as written. Feels like a pulled muscle, can’t put weight on it nor can I walk he said their ER dept could take a look at me ( hospItalian is 8 hrs away from home plus it was 4pm om a Friday so I’m hoping my dr here at home listens to him and does testes I have an appt the 23rd but don’t wanna wait that long because I’ve gotta have #41 surgery on elbow and was diagnosed with cancer so having surgery with that too so just to much shit on my plate and I’m singke and thank god my mom’s alI’ve still ( she’s u2 but her driving scares rhe shit out of me especialy in mass hole so been researching bloodclot sense both my surgeon and his nurse syspectvit. I’ll see what my PCP says!! Probl will say it’s nothing

  2. Mercy Mathiba
    Mercy Mathiba Posted on October 15, 2013 at 1:33 pm

    I have been on the pill for about a month now and I have also been experiencing a mild, bearable pain on my right leg. I don’t really do much exercising but i walk a lot, no breathlessness. I don’t really know what to do, i feel like somehow the pain is all in my head. I get the pills from a public clinic and they don’t really say much about it. In fact, I only came across this article because I have been feeling very nauseous and sleepy lately and wanted to find out if the pills could be the cause. Please advise as to how i should go about this,are there any other symptoms of PE that I should be aware of and whether I should just stop taking the pills all together.

  3. Paul Glassen
    Paul Glassen Posted on January 9, 2014 at 10:22 pm

    This all sounds very familiar, just like the symptoms before my deep vein thrombosis (DVT) and subsequent pulmonary embolism (PE). I too dismissed the pain in my calf as a result of exercise, I am a cyclist. After several days of it I began to have shortness of breath, climbing stairs, then just standing up. Foolishly, I endured that for 3 or 4 days before I went to my doctor. He sent me immediately to emergency where, within a few hours, I was diagnosed with DVT and PE. Treatment was begun and I spent five days in hospital. Because no cause was found and my only risk factor was age, I had just turned 65, the doctor has had me continue anticoagulant medication (warfarin) indefinitely. Now for the last three months I have had a pain in the other calf. Both my doctor and the emergency room doctor dismissed it saying I can’t have a blood clot while taking anticoagulant medication. And yet, the website if full of medical articles that describe just such “recurrent DVT”. Don’t know what to do. Wait and hope I don’t have a second pulmonary embolism?

    • Jimmy Q.
      Jimmy Q. Posted on July 29, 2014 at 1:48 am

      Anna’s story is so sad since she was you so young and had her whole life in front of her, my condolences to the family.

      Paul, like you I’m a cyclist, 2 years ago at the age of 50 I had a slight pain behind my knee then swelling in my calf and pain in my thigh. This happened over about 5 days getting worse everyday. I finally called my doctor and the nurse told me to go to the nearest ER. They did an ultrasound and found several clots, and that’s the first time I ever heard about DVT. I Spent 11 days in the hospital. At times it felt like my leg was going to explode. They found several small embolisms in my lungs that didn’t affect my breathing. I was on Warfarin for 15 months and now I just take a couple aspirins a day. I was off the bike for about 4 weeks but started back slowly and within a couple months I was back to normal other than taking the warfarin. I didn’t have the gene that tells whether you have a predisposition for DVT and the doctor told my I’m one of a very few people that get it for no apparent reason. Sounds like several of the people telling their story here have issues with birth control which wouldn’t be an issue for my since I’m a man. I feel for them as well.

    • Mary Brewer
      Mary Brewer Posted on September 21, 2014 at 2:15 am

      I was walking to church January 9, 2011, then noticed extreme difficultly breathing and chest pressure. I blamed it on rushing in the weather, seeing it was so cold out, and I was trying to rush. As I got inside the church, it seems to subside some, but left me feeling rather lethargic and just real tired. I sat through the whole church service, while people around me are staring at me, asking if I was alright. After an hour had passed, I was taken to the hospital ER right away. My sats had dropped below 80%, and I was rushed back to trauma. Immediately I had all tests done; Labs, EKG, CT, and Chest X-Rays. Once the D-Dimer came back, I knew it was bad. Normal high was 200; Mine was 1964. My CT showed Bilateral Clots in in both lungs, and a massive PE in my chest, between my Heart and Pulmonary Arteries; A Saddle Clot. I had at least a dozen clots in my lungs and a large DVT in my left leg, which showed no symptoms prior to the PE I had,. The ER Dr.told me, he could not believe I survived it. He went on to say that most would not have lived through such a bad PE. I was put on Lovanox Injections twice daily for 9 days, and then on Warfarin. I was in ICU for 1 night due to Pneumonia I developed, and then 9 days in IMC. They put me on strict Bed Rest and I was on O2, continuously. I know what they say about symptoms of DVT, but had none whatsoever. Mine was in my left leg for over a month and was very large. I had been walking a lot, going here and there, without any problems. The only thing I did notice, was the extreme tiredness, and found myself falling asleep very quickly as though I would pass out. This is serious and most people are lucky to survive such a trauma. If you notice anything different or out of the ordinarily. don’t hesitate going go the ER to be checked.. Now I have “Post Thrombotic Syndrome”, which is similar to Phlebitis, in my leg, along with multiple, small clots. It took over 3 yrs. for my Warfarin to regulate, and am having to check it every week at home. God bless those who have lost their life to this, I pray for all those who have also had this happen to them as well.

  4. Yazmin
    Yazmin Posted on January 16, 2014 at 5:15 am

    I’ve been on the look out for dvt I have had behind the knee, thigh, and groin pain. Lately I’ve been having shortness of breath I’m 25 with for little ones no birth control or history in the family. My doctors did blood tests and X-ray’s ultrasound of the pelvic and groin and they say everything is good no chance of dvt yet I have these symptoms and I feel as if I may drop dead any minute. Doctors keep playing the your to young card and no family history crap. Come on I’ve seen a total of three different docs all saying the same but they haven’t checked my veins in the leg or d dimer test 🙁 what do you do then? Insist when they refuse??

    • Bonnie
      Bonnie Posted on March 22, 2015 at 6:11 am

      My daughter had her first 1 at 18 and was put into hospital,for 3 days, the Dr said it was gone and her dx was she was to healthy.2 days later she was in the hospital because the same clot went to her lungs she was in there 4 days and there dx was your just unlucky,therefore I ask them to transfer her to a big hospital,they refused,said they could dissolve it,the next day I found a hemotogolists and she was in the hospital at the age of 18 for 6 weeks,IF YOU THINK YOU HAVE A CLOT PLS GO TO A HEMOTOGOLISTS,THIS IS THEIR CAREER,thanks, my daughter have 11 stores because some Dr took her off her blood clot medicine,she is stable now back on blood thinner,thanks,Bonnie

    • Millie
      Millie Posted on February 14, 2016 at 3:05 pm

      Yazmin, be persitant, tell them that you want a dimmer test done. They aren’t paying for this test, your insurance is.

    • Carla
      Carla Posted on April 9, 2016 at 2:47 pm

      You most definitely insist. You are in a partnership with your dr and should express freely your concerns. I have had to go to the extreme of requesting to see my patient “chart” to verify that the physician has denied any requests that I have made and made sure the details of why I was asking for such requests. In both instances that this happened, it was a short time later that the orders were put in for my requests. In one case, it turned out to be a dvt in my left leg when the dr had sternly said “I have evaluated your leg and am fully confident there is no need for ultrasound”. Hhhmmmm…he didn’t have much to say after the results came back and definitely did not apologize.
      YOU are your own advocate for your health and there is nothing wrong with letting the dr know that you do not feel safe with his/her denial of any additional tests.
      Best of luck…and remember that Drs are people too…they would not settle for anything less for their own care so you shouldn’t either.

    • Elizabeth
      Elizabeth Posted on April 27, 2016 at 7:11 am

      You can speak with your doctor about taking otc aspirin, wear compression stockings & stay active!

  5. Travis Newville
    Travis Newville Posted on March 2, 2014 at 4:23 pm

    I went to school with Anna for the better part of our lives, and I am deeply saddened by this story. She was such a nice person, and she did not deserve to leave so soon. RIP Anna, your memory lives on. I will do my part to educate.

  6. Tom Moore
    Tom Moore Posted on March 3, 2014 at 3:31 pm

    I was just diagnosed with a blood clot in the bottom of my 75% dead heart from an August, 16 hour long heart attack. I’m told that if it moves, I’m dead. Blood clots are max scary and nothing to mess around with.

  7. Kim
    Kim Posted on March 3, 2014 at 6:53 pm

    Paul, you may be a good candidate for a Greenfield filter. Check out the following website for info:
    Another big risk factor for DVT is surgery, especially Total Knee Replacement.

  8. Kim
    Kim Posted on March 3, 2014 at 6:56 pm

    And yes, recurrent DVT is very possible, even with supposedly adequate anticoagulant therapy. In the article I posted above, up to a third of patients can have it.

    • Carla
      Carla Posted on April 9, 2016 at 2:53 pm

      I have just been diagnosed with my 3rd dvt two days ago. The only difference this time is that I am on daily Coumadin and STILL developed the dvt. I get my INR checked weekly due to some irregularity but for the past 2 weeks it was 2.7 which is great! So to anyone that thinks you are not susceptible to a dvt while on anti coagulants…you are most definitely wrong.

  9. kami
    kami Posted on March 5, 2014 at 2:35 am

    Hello. I wanted to share that calf cramps are also a sign of DVT and that birth control is not the only culprit. I found out the hard way. While pregnant with my first child I had cal cramps every night. Not uncommon. I had also been experiencing breathlessness. I have asthma so i cobtributed it to the pregnancy irritating the asthma and my doctors agreed after a check up. One morning while getting ready for work I had a sharp stabbing pain from my sternum through to my back (I can only liken it to be staked like a vampire. That’s what it felt like) I thought it was heart burn at first. But it hurt to breath. When my husband saw my lips turning blue he took me to ER. I couldn’t even walk the 15 feet from the car to the door. At first they thought I was having a really bad asthma attack. The respiratory therapist determined it was not and suggested xrays and a ct scan. 45 minutes later I was being transfered to a heart specialty hospital. I was diagnosed with bi lateral pulmonary embolisms at 23 weeks pregnant. I have no history of blood clots. All the tests came back negative. They finally determined with an educated guess that it was my pregnancy. I now must be on blood thinners during my pregnancies. I truly had no major out the norm symptoms. The thing that saved me? Size of the clots. They weee too big to pass the pulmonary artery.

  10. Ali
    Ali Posted on March 6, 2014 at 5:29 pm

    Hello, I’m so sorry for the loss. I had the same thing happen to me when I was 20 except my pain was in my shoulder. I also had a pulmonary embolism due to birth control pills. I warn all my friends about it now. It didn’t even cross my mind to consider the complications when I started the pill. I was on it for only a month and the PE occurred. I didn’t know there was a stop the clot foundation. I will join the cause. Again I’m sorry for the loss and I will work towards spreading the word.

    • Aurora
      Aurora Posted on April 29, 2015 at 6:59 am

      Hi, I Also have a blood clot on my shoulder. My arm hurts all the time.what did they tell you and how long did it go away. Is there anything I should be doing besides taking a blood thinner.

  11. Jessica
    Jessica Posted on March 14, 2014 at 4:49 pm

    Yasmin and other pills in the same class continue to take young lives. I am so sorry for this girl. Another healthy girl gone too soon. I was 20 when I had my life altering DVT due to this poison and 10 years later I continue to suffer. However, I realize that I am lucky to be here. I am so sorry for her family’s loss. I wish the FDA would get a clue and quit letting big pharma call the shots. Not to be radical, but the system is corrupt and I’m tired of being quiet about it.

  12. nick altman
    nick altman Posted on March 25, 2014 at 4:19 pm

    I read this page yesterday evening. For two days I was having trouble taking deep breaths. A week or more ago I had pulled a ligament in my leg, or so I thought. It turns out that the pain in my foot and calf was a DVT, and I had several pulmonary embolisms. I went to the hospital, and am posting from my room. Because it was caught in time I should make a full (or mostly full) recovery. Thanks for the site, it probably saved my life.

  13. Sheryl
    Sheryl Posted on March 30, 2014 at 3:23 pm

    I truly feel bad for Anna’s family. I have been suffering from two clotting disorders since 2006. My first occurrence was when I was 20 weeks pregnant I lost my second baby due blood clotting of the placenta. The doctor told me this only happened because I was pregnant. Four years later I got a large DVT and small PE’s in both lungs. Last year I got another DVT while being on blood thinners. Also twice last year I was hospitalized for coughing up large volumes of blood. The thing I struggle the most is knowing when to contact my doctor. Pains in the calf and behind the knee are common with patients who had DVT’s.

  14. Sheryl
    Sheryl Posted on March 30, 2014 at 3:26 pm

    Be aware that the green filter is not always the best solution for everyone. With the types of blood clotting disorders I have it is not recommended for me.

  15. Susan Zimmerman
    Susan Zimmerman Posted on May 14, 2014 at 4:39 pm

    Thank you for this resource. We’d never heard of this until … Our son’s “one and only” died of PE from an undiagnosed DVT at age 24. She went to the doctor two different times the week before she passed away, with classic DVT symptoms. But one doctor diagnosed a mild ankle sprain, the 2nd one diagnosed pluracy. She was young and fit and we think that worked against her. I’m a therapist and ended up writing a gift book to help people with grief, dedicated to Jessie. It’s called Rays of Hope in Times of Loss: Courage and Comfort for Grieving Hearts. “So much ahead, so much to come, That future gone makes our hearts numb.” We need to keep educating others to prevent unnecessary losses.

    • Sara
      Sara Posted on February 3, 2015 at 6:20 pm

      Dear Susan,
      I am Anna’s mom and your story made my heart ache for your loss and that of your son. Our family’s goal is that no one else will die from an undiagnosed DVT. I would love a copy of your book- what a wonderful way to honor Jessie.
      Keep doing your work to spread awareness.
      Best, Sara Wassenaar (Anna Frutiger’s mom)

      • Isabel
        Isabel Posted on July 28, 2016 at 4:01 am

        I’m really sorry for Anna’s family and thanks for spread the word, we need lot of information. May God bless all of you.

  16. Terri
    Terri Posted on September 5, 2014 at 8:30 pm

    I’m so sorry for the loss of this beautiful young lady! I am a 45 year old mother of 4 (boys). I had already had my tubes tied, so no birth control was necessary! I was awakened at 4 am on August 11th with severe chest pain and difficulty breathing! I waited 5 hours to wake my husband, who then took me to Urgent Care. They diagnosed me with Tietze Syndrome and sent me home. I suffered for 3 days and I began coughing up blood! My husband took me to the ER and I was finally given a CT scan, which showed multiple Pulmonary Emboli in both lungs! I was admitted and put on lovenox and Warfarin! I am off of the lovenox now! I found out that I have Factor V Leiden!

  17. Tammy
    Tammy Posted on September 22, 2014 at 3:24 am

    My heart breaks for this family. Three years ago at the age of 49 I had a pulmonary infarction. I had no symptoms of a blood clot but had ACL surgery 2 weeks prior. I awoke at 4 am feeling as though I had been stabbed in the back and could not take a deep breath. I waited until 4 pm to go to the emergency room and was in very bad shape when I arrived. Apparently, I had developed a blood clot after surgery which then traveled to my lungs and exploded in my lower left lung. The doctor likened it to fireworks going off in my lung which killed the bottom portion of my left lung. It was a long recovery and they found I have a protein S Deficiency.. Today I found out that my 23 year old son has a blood clot in his calf. Because of what I have been through, he went to the doctor on Friday as he was having a pain in his calf. Thank goodness the doctor sent him for an ultrasound and it showed a clot. However it was at the end of the day and the doctor had left to go home by the time the ultrasound was complete. So it was the nurse who told him and said the doctor would be calling. He has yet to hear anything. This really bothers me. He should have been given instructions over the weekend.. A blood clot, no matter what size, should not be taken lightly.

    • shanda
      shanda Posted on September 5, 2015 at 3:59 am

      Hey Tammy I had acl surgery a week ago and I was wondering if you had any other symptoms of a blood clot before that 2 week period my ankle is really swollen but Dr says fluid but nothing is making it go down if you could assist in any way I would appreciate it I’m just wondering if I should go to er ,im 38 He also told me to start a baby aspirin,thanks

  18. Megan
    Megan Posted on September 23, 2014 at 3:51 am

    Looking for some advice- I’m female, 24 years old and I just got off Ocella about 4 months ago. I can not remember getting pain in my calf or knees, BUT I have had some serious throbbing pain in my thighs…. Mainly the right thigh. I’m not very “active” so I know it’s no strained muscles. Anyway the pain started about a month ago. For the past 5-6 days I have been experiencing a stabbing/throbbing pain on the top of my left breast. The pain seems to radiate toward my armpit and sometimes to my back. It comes and goes…. But gets worse when I lie down. I don’t have difficulty breathing (that I notice) but I do have dizzy spells. These dizzy spells have been going on for sometime now though. Could this be PE’s? Should I bring this to my doctor’s attention? Thanks!

  19. CathyB
    CathyB Posted on September 28, 2014 at 6:14 pm

    So sorry to hear of this young lady. In 1977 I was put on the pill (for gynae problems) and within 10 days I was in hospital with a DVT. Two and a half years ago I developed a cough, a year and 4 diagnoses later I was sent to A&E with suspected pulmonary embolism (I was looking a bit grey!). Diagosis: multiple pulmunary emboli in both lungs and a DVT in upper leg (same side as before). This April I was coughing badly with shortness of breath, was sent to hospital but now I have chronic bronchitis! I sprained my left ankle a week ago, strapped it up, then got stabbing pains in my left groin. Stopped using strapping but seeing haematologist on wednesday and will have it checked. BTW it is on my records with my GP I am a very anxious patient after I went to see him about coughing up blood and bleeding gums whilst on Warfarin! Can’t win.

  20. Beth A.
    Beth A. Posted on October 3, 2014 at 4:49 am

    I was 28 yrs old with no risk factors for blood clots. I was not on birth control, I do not smoke, I don’t sit for long periods of time, I had no leg pain whatsoever, I do not fly and the list can go on. I have asthma, and have had it all my life. I never wheeze or need to use rescue inhalers. I awoke one morning with a horrible cough and just could not seem to catch my breath. Throughout the day I started using my asthma rescue inhaler….hourly and decided I should get checked out. I went to the ER they told me I had a cold, they did no chest X-ray or anything and sent me home. 2 days later the severity of not being able to breathe right was overwhelming. I could not walk more that five feet without having to sit to catch my breath. I decided to go back to the ER. The first doctor who saw me said you probably just have a bad cold and said he would be back in to check on me. He came back two hours later with a doctor who was here from Nigeria and that doctor was immediately alamed. He said ” she has a blood clot”…..the regular ER doctor said I don’t think so. And this Nigerian doctor said “yes she has a pulmonary embolism, I guarantee it” other doctor shakes his head and says ” we can do a CT Scan if it makes you feel better” very wisely to the Nigerian doctor. I didn’t even know what a PE was. They did the CT scan and found several pulmonary emboli in my lungs. They Nigerian doctor had me taken to the ICU immediately. They told me that they could give me a medicine called a clot buster but, the side effects are very severe and can cause bleeding in the brain and other areas. He decided that they would wait and see what happened. I also found out that I had pneumococcal pneumonia, and that could have been the reason the clots were slowed down. Wow lucky freaking me. A hospice nurse comes in and tells me she will be with me over the next couple of days or however long it takes and that I won’t be alone…”holy crap I going to die”….I was only 28 and could not believe it…. Well I was lucky enough to beat the odds and came home two weeks later. I have to take Warfarin for the rest of my life. I am not complaining. I thank god every day for my amazing husband who through all of this made me feel that it was going to be okay. I feel for the family of this poor girl. It is such a quick thing to come over a person with very little warning. It is very easy to get tested for a clotting disorder and do not ignore the warning signs or your own common sense….it can happen to anyone at anytime.

  21. Jess
    Jess Posted on October 7, 2014 at 11:04 pm

    I am so sorry for Anna’s loss…. I know more about her sitatuon more than most. I too was on a birth control at only age 18 and I woke up to a massive blood clot in my left leg. I would’ve died had I not listened to the promptings of the spirit to go to the hospital and not go back to bed. I’m so sorry for Anna’s loss. People do not educate young women ENOUGH on the harmful side effects of estrogen birth control. People need to be more informed. Rest in peace Anna

  22. Megan V.
    Megan V. Posted on October 8, 2014 at 6:59 pm

    I’m so glad I’m not alone in this. Back in June of this year, I was diagnosed with a blood clot, just as all of you and I’m 28. I was taking birth control, but had been for a good half of my life. I had a massive knee surgery the year before, but other than that I was a healthy busy typical mom of 3. Well I started feeling these crazy pains in my leg and no one seemed to have an idea of what it was and I went away. But I had the same symptoms as you all did. I was dizzy, light headed, my chest hurt like crazy and I could barley breathe and my heart rate was through the roof! When I went to the ER they did every stinking test, there was something on my CT scan, but wasn’t sure what. My blood test came back as I had a blood clot, but they doctor didn’t think I did and wanted to send me home with antibiotics. I was lucky and my nurse was my aunt and she wouldn’t let them send me home. So I stayed and for three days and had a number of doctors looking after me. Because it turns out there’s a blood clot in my lung. 🙁 it’s 6 months later and I still don’t feel back to normal. I’ve been on xarelto that long, and I swear it’s still there. I go back the end of the month to see what’s going on. I no longer take birth control, but I take xarelto everyday and will be for a while. But please trust your gut. If you think there’s something going on, go get looked at. I feel so bad for this family and others who have gone through this.

  23. noralee9
    noralee9 Posted on October 27, 2014 at 12:06 am

    This is an awful tragedy. I suffer from antiphospholipid antibody syndrome, which makes me susceptible to DVTs. I had 6 miscarriages before I was diagnosed. I would like to recommend to all young women to avoid chemical birth control. NFP has the same success rate as the pill. Once you learn how to monitor your fertility, you will be much more Iin control of it. You’ll understand how your body is working, so much better Try nfp You don’t have to be religious to get yourself off this poison. Don’t let yourself become a pawn for the pharmaceutical companies.

  24. Ron
    Ron Posted on November 10, 2014 at 2:16 am

    What a tragedy ?
    I think of my two beautiful daughters of very similar age and just how precious they are to me.
    From now on I will relate Anna’s story wherever I can and maybe help to save a life.
    God Bless you Anna and your Mum and Dad.

  25. Emily
    Emily Posted on November 24, 2014 at 1:57 pm

    Hi all – I’m not sure what to do. I’m 27 and have been feeling a very mild ache behind my left knee for the last four months. It hasn’t really gotten worse, per say, but the quality of the pain has changed: it started out as a throbbing pain and changed to a dull ache that comes and goes. I’m modeatery active but I do sit at a desk all day and have been on birth control for over 10 years. No other symptoms, no family history, and no insurance until January. Should I get this checked out immediately?

    • Russell
      Russell Posted on January 12, 2015 at 7:28 pm

      Emily, Don’t hesitate. Go get it checked out. There is a blood test that shows if you have a clot. I’ve had small clots and big clots in my leg. The small ones you can recover from. The big ones screw up your circulation forever. I’m 20 years out and the effects of that big clot still plague me.

      Unfortunately, I have another big clot right now, from last week.

      Don’t play with this, it’s serious. Beyond death is the permanent damage to your circulatory system you then have to live with.

  26. patty
    patty Posted on December 16, 2014 at 7:13 am

    I found your site while looking for information on blood clots which took my mothers life at only 46 years of age! I had no idea that so many people are effected by this that are much younger than my mother was! I also did not know that there could be genetic blood clotting disorders which I will look into and get tested for!

    I can not imagine the pain you must feel at the loss of what anyone would have considered your bright, motivated and healthy young daughter! t is easy to see how important your work has been just by reading the posts here from people your story has helped! Your selflessness and dedication to bringing awareness in light of your pain says so much about you as people! May your work bringing awareness bring you peace at some point from the loss of your beautiful daughter!

  27. mary
    mary Posted on December 29, 2014 at 4:17 am

    Emily, I strongly suggest that you get your symptoms checked out if you haven’t already. Go to an ER if you must and insist on a CT scan as Doppler’s are not very reliable below the knee. Good luck.

  28. lilia
    lilia Posted on December 31, 2014 at 6:08 am

    hi im 26 and i get this pain like something big is trying to go thru the back of my knee well my right knee and i have told my dr. and she said its nothing its normal but i been feeling it more often

  29. Billy Sweeney
    Billy Sweeney Posted on January 9, 2015 at 11:28 pm

    Thank You Anna you may just have saved my life. I am a 47yo male. I have DVT in my left leg that was diagnosed a week before Thanksgiving of 2014. Several major spine operations have led to battles with cellulitis and infection in both legs. I also had 2 surgeries on the same leg as the DVT due to severe fractures caused in an automobile accident. My last surgeries were on my leg and that was over 7 years ago. After my 2nd back surgery I have always had some sort of swelling in both legs but primarily in my right. So when my left leg ballooned just below the knee with a peculiar pain I went for a ultrasound and ran out the door when the provider told me I had a blood clot. My previous medical history has left me with some sort of PTSD. I hate saying that I am afraid and maybe I’m not but my brain and body go into a deep panic when i get anywhere near a hospital. My doctor assured me i didn’t need a hospital just a blood thinner and follow up appointments wit a specialist. At this moment I am having chest pains…. Because of the shortness of breath and coughing up some blood another test was done, CT scan with nuclear meds i had to inhale. INSANITY!!! It came back negative for PE’s. Good, right?? My family Dr. gave me about 6 months worth of the blood thinner Xcrelto. It was waiting at his office. He called in the ultrasound and he has never physically examined my leg. My initial ultrasound at the specialist’s office was done by staff and showed a shift in the clot. It could have been caused by medicine or could have traveled to my lungs. The CT was ordered STAT. When I informed them that I was allergic to contrast dye the STAT slipped to the way side… i contacted my doctor and had him prescribe a steroid and Benadryll. This is how i always prepare for MRI’s and/or CT mylograms concerning my back which requires yearly monitoring. This was not good enough for specialist since HE ordered the test. So it was suggested i go to the ER…. I tried to tell them about my irrational condition and panic but it fell on deaf ears. I made it to the ER but left before my results came back. I called the specialist to get the results & received a call back stating that they tried to call me and forwarded the information to my family Dr. The nurse said no PE was found but that was it. i do not return to the specialist until the 27th of this January, 2015. I had a ton of blood work and no one will discuss the results with me. Both Dr’s nurses said a doctor had to discuss them with me… (?) This has NEVER happened before. Especially at my family Dr. So it is late on a Friday afternoon and i have to go all weekend thinking the worst… My chest has constant pain on my right side and there is a new pain on the inside thigh of my DVT leg. I do not know what to do…… I have a wife and 2 kids… The house is paid off but I do have a 6 year, 30k loan, now just a lil over 5, & the house is my collateral… I must WILL myself to survive this! It was my health that made me pay off all of my debt in the first place. Just when I feel safe enough to do some home improvements BOOM this hits!!!! The doctors are poor to useless at best and the internet has provided me with more information than any healthcare professional has. Okay, I am going to say it… I am afraid. Not of death. I am afraid to leave my wife in debt. Health, smoking, and necessary pain medications leave me with very little life insurance. My daughter turned 18 just 10 days before Christmas Eve but still needs her daddy. My boy, 13, is tough cookie but come on,,,,,, that lil guy has a date tonight, lol, he so needs his dad. I only wish you could have heard our conversation just a moment or so ago… Well, it is now after 6pm. My son has left for his date and my dog is crying. He preys on my wife’s kind heart as I watch her break off pieces of her hamburger for him. Looks like a cold, quiet, movie night for my wife, daughter, and self. While they enjoy the movie i will enjoy their company. We will be married 20 years this June. Wow. I am a lucky man, yet I remain selfish. Anna, any time i see a young person die I always wonder why my sorry ass is still here.. Before my wife I was involved in all types of, well, not good things… Your story, face, and smile now seared into my mind, will remain with me as I battle my latest predicament. I guess waiting is all i can do. In the mean time? I will share your story and the dangers of the ailment we share. Thank You again ANNA. I promise to enjoy every second with my girls tonight. I will be extra grateful and I’ll even say my prayers….. I will return here to try and keep any reader updated. good night

    • Turykim
      Turykim Posted on March 24, 2015 at 3:56 pm

      You have been through so much, your honesty and strong convictions toward your family, while making no excuses, hit home for me. Thank you for your story. Guess I’m setting an appointment for myself this morning, after all. Keep pushing forward. By the way, are you a writer? If not, you should consider it. 🙂 Best wishes.

  30. Brooke
    Brooke Posted on January 14, 2015 at 10:13 pm

    Dear Frutiger family, I am so sorry for your loss and to hear of what happened to your daughter. I was 25 when I had my first clotting episode and like your daughter I was fit, healthy and active, with no history of clotting or knowledge that I would have a DVT. As I was exercising when the pain started I thought I must have hurt my leg – no other cause ever occurred to me. The severe pain in my calf was diagnosed as a torn calf muscle. Over the next two weeks I received treatment for that muscle but my leg got worse, not better and I felt very unwell. Finally I went to see a doctor and he suspected DVT. Over that two weeks the clot had grown from my ankle to my groin and I had multiple clots that had travelled through my body to my lungs. I was admitted to hospital immediately and I was extremely lucky to be alive. I had a recurrent episode at the age of 29. The only connecting factor in both cases is that I was on the Yasmin Pill. My specialists now can not believe that I was ever allowed to continue taking the Pill after my first episode, but I was. At the time I did not know it was the cause but now I suspect it was. No other known cause for my condition can be found. Whilst unfortunately the severity of that first clotting episode irreparably damaged my leg and I have been on medications and injections since the age of 25, I am grateful every day that I still have both my legs and that I am alive. I am 34 now and have been blessed with a healthy son and another baby is due in 8 weeks. My heart goes out to you and your daughter. I am truly sorry that your daughters situation did not have a happy ending and I praise you for bringing awareness to the situation.

    • shirley
      shirley Posted on February 21, 2015 at 7:40 am

      Hi I’m Shirley and have been having right leg pain on back of leg to my knee. For one month and once in awhile on left front calf. I better go get a test done for DVT. Thank u.

  31. Jenna
    Jenna Posted on January 20, 2015 at 4:38 am

    It is so good to see a community of people that are going through the same thing! Although this is unfortunate, it is good to see that there is a support group out there!

    I am starting a blog about my experience of surviving a DVT blood clot at the age of 19 and would really appreciate it if you could check it out! I want to give people more insight on this by sharing my own personal experience and I want to be able to help others deal with this issue.
    Please do not hesitate to comment/leave feedback

    Thank you so much!!!

  32. Keri
    Keri Posted on January 21, 2015 at 3:14 am

    Hi, I’ve had calf pain for about 2-3 weeks now. Developed bronchitis and my NP casually mentioned clot/PE when I told her about my leg pain. I waited 3 days and decided last night to go to the ER (better safe than sorry) The pain is achy, calf feels tight, no redness or warmth to touch. At the ER they did an ultrasound, which came back clear, but after reading all these stories I’m still freaking out. Only risk factor I would have is taking HRT for three months.


  33. Justin
    Justin Posted on January 29, 2015 at 3:11 am

    This is so tragic. The same thing almost exactly just happened to my wife just after Christmas. Same tragic ending. I am still in shock and struggling with it. I think I am going to try and put together a run here in Pittsburgh for my wife Erica to spread the word about he relationship between birth control and blood clots. The pharmaceutical industry doesn’t like to talk about this “rare” side effect and expound on how safe the drugs are rather than explain the real risks. It’s incredibly frustrating. I am part of a couple groups that I think can spread the word and help organize the run. I’m thinking a 10k. Maybe at one of the Pittsburgh parks or in Southside.

    • Sara
      Sara Posted on February 3, 2015 at 6:25 pm

      Dear Justin,
      I am so sorry for the loss of your wife, Erica. The National Blood Clot Alliance is available to help with your event to honor your wife and to spread awareness. I am Anna’s mom and as you may know, Anna was a student at Universit of Pittsburgh Dental School and was treated at UPShadyside- where the team of doctors and nurses still share her story. Please know that your work to share awareness is so important. Please know that I ache for your loss.
      Sincerely, Sara Wassenaar ( Anna Frutiger’s mom)

  34. Jenny
    Jenny Posted on February 10, 2015 at 3:09 pm

    I am a survivor of both a DVT and a PE. I had a PE in 2006 while on birth control. I had also just been released from the hospital after having pneumonia. During this time, I found out that I was allergic to Heparin and Lovenox!! I later had a full work-up for clotting disorders and everything came back negative for any clotting problems. I took Coumadin for 9 months and was then told to stop. I stopped taking birth control pills. In 2009 after a short, 2 hour drive I started having pain in my legs and severe swelling. I went to the ER and was told that I had a DVT!! I couldn’t believe it!! I had already survived a PE!!! I was admitted to the hospital and put on Arixtra and Coumadin (the only blood thinners I can take) and remained there for almost 2 weeks! I am still required to take Coumadin because of having recurrent blood clots. I have had several scares where I thought I had another DVT despite being on Coumadin. I am a DVT and PE survivor!!!!

  35. Mike
    Mike Posted on February 26, 2015 at 4:53 am

    I am not sure if Anna’s family reads these responses but if they do I just wanted to extend my condolences and express my sympathy. I am 36 years old and had my first DVT around 28. I have a PE and was in ICU for 12 days. I was put on blood thinners for 3 years and then the doctors took me off of them. I was good for 2 years and recently took a sedentary job where I sit 6 days a week. Unfortunately, after 2 years off of blood thinners I had another DVT and I am back on meds again. I am not writing all this about me to get attention but I am writing this to show that yes young people that are otherwise healthy can get DVT’s. I am scared everyday but I keep my faith and take my meds and just take it one day at a time. I can related to Anna’s issues with DVT and also to her family feelings toward this. I just wanted to day that I am very sorry that Anna had been a causality of this and I really so mean it from my heart that I think both Anna and her family are very brave and courageous to have been educating others about this disorder and giving a fighting chance to others. Anna will always live on and reading her story has touched my heart and as odd as it sounds I feel a connection to her and her family. Maybe its because we have similar issues but it is more or less a feeling of a beautiful soul that will always have enteral greatness. I am more enriched from reading Anna story and want to thank the family for sharing this with me and others. I wish there was something I could do to help alleviate you pain for your loss and all I can say is that I am very sorry that this has happened to such a bright and young woman and to what I am sure is a very loving family,

  36. Diane Clark
    Diane Clark Posted on March 5, 2015 at 4:20 pm

    Sorry for your loss. I wished I would of known about this page before my daughter started taking the pill. I didn’t think it would be a problem. I was on the pill for 8 years and smoked. She was only 21 and never smoked. We noticed that she was having shortness of breath every now and then so we had her go to the doctors who diagnosed her having seasonal allergies. She was supposed to get a chest X-ray and asthma test but developed a cold over the weekend and called the doctors office on Monday who told her to wait until Friday to have the tests done. She passed away on that Tuesday. It breaks my heart to think she could of been saved. Please get the awareness out there so no other families have to go through this pain.

  37. Celia Z.
    Celia Z. Posted on March 9, 2015 at 3:19 pm

    First I would like to say I’m so sorry for your loss of your beautiful daughter.
    I couldn’t sleep last night, I was having excruciating pain in the back of my knee. I couldn’t even rollover the pain was so bad. It was all of a sudden I couldn’t understand why or what I did to be hurting like this, and then I figured I must have overdid it today, so I just left it at that. this morning when I woke the pain was still there its not getting any better its only getting worse, so I googled “pain in the back of my knee” your story popped up and as I’m reading all your daughter’s symptom, i’m saying to myself oh my hosh these are all my symptoms. I can’t even walk up my stairs when bringing in the groceries without having to stop to catch my breath, and by the time I get in my Apartment I’m so out of breath it feels like I ran five miles and I’m not kidding. I do have spider veins on the back of my legs some are thicker so I’m assuming those are varicose veins. lately I’ve been feeling exhausted and lifeless, I have absolutely no energy and I associated that with stress with not being able to find work and wondering how I will pay my rent and my bills. now that I read your story about Anna, I will be making a doctors appointment today. thank you for sharing your story about Anna.
    God Bless.


  38. Leah S.
    Leah S. Posted on March 24, 2015 at 6:02 am

    I’m a week out from surviving a DVT in my leg and bilateral PE. I am so very sorry for your loss. The most important information is being on birth control and if you think you have a “muscle pull” DO NOT hesitate. That’s what I said to myself because it’s winter here and we had ice on the ground and I thought I pulled my leg walking my dog and went two weeks in pain before I found out what it was. Now I will never be able to take estrogen again and I needed it because I have PCOS and that’s what I took birth control for in the first place. I had just finished my 2nd pack of Gildess. The first kind my OB/Gyn wanted to give me the insurance denied so now I think to myself, would that have given me a blood clot? I’ve been on different birth controls years before and never had a problem, why now? Why this one? They put me on Xarelto for the blood thinner. I don’t know how I like it. I’ve been having constant chest pain and I’ve developed headaches, I’ve been back to the ER since I was released and they did an EKG and my heart is fine and still ignore my headaches like they’ve always done in the past that I’ve been suffering from since 2012. So, who knows where it will go from here, but I hope you make a different with Anna’s story! It’s very touching.

  39. Karen
    Karen Posted on April 3, 2015 at 7:55 am

    I’ve been surfing on-line ore than three hours as oof late, but I never discovered any interesting article like yours.
    It is lovely value enough for me. Personally, if all web owners and bloggers made just right content as you probably did, the intdrnet will probably be a lot
    more useful than ever before.

  40. Diane
    Diane Posted on April 8, 2015 at 8:33 pm

    I have been experiencing pain in my right leg behind my knee, for about 2 weeks. Finally went to the dr and had a sonogram, which said no clots. But I’m still having a lot of pain. Can’t hardly walk! The dr saying arthritis and wants me to have an x-Ray of the knee and ankle. I was experiencing dizziness a few weeks ago and also developed a chest cold that went away. I can feel a knot on the back of my leg that is very sore. Don’t know what to do!

  41. beverley
    beverley Posted on May 6, 2015 at 11:49 am

    I am so glad to see how much is being done to share this vital knowledge. My clot entered my lungs on Saturday afternoon. I went to the doctors next day, he said it was emotional, and the breathlessness would pass. I believed him. It was not till Tuesday afternoon I went to my GP. He sent me immediately to the Bentley hospital where they discovered the clot in my lungs. By the time I was taken to the RPH in Perth I was dying. Now I take blood thinners and stay vigilant. I get so angry at family members who ignore me when I tell them to get tested for the prothrombin gene. My niece died at 23 from a clot that caused a stroke. My father and grandfather had massive strokes and clots in their heart, but no one knew of the gene until it was discovered in me. Keep speaking up. So many people die of PE’s. Beverley.

  42. Debbie Boardman (nee Rumney)
    Debbie Boardman (nee Rumney) Posted on May 21, 2015 at 11:45 am

    22 March 2015 my 25 year old daughter Kim suddenly collapsed and died. We live in South Africa and she was in her final year studying Pharmacy at the Nelson Mandela Metropole University Port Elizabeth when she died. She had been on the pill – Yaz since she was 17 (for period problems) She had a sore leg for at least 6 weeks before she died and went to the doctor on two occasions and was not sent for a scan. She died of a saddle pulmonary embolism.
    It could so easily have been avoided. I think the medical profession are very casual about prescribing the pill and even my daughter a final year pharmacy student wasn’t fully alerted to the dangers and she was exceptionally aware of all things pertaining to her health because she had battled with it since she had been at university. Kim was the cleverest person I ever met, and also one of the kindest and most loyal, she was my best friend and her
    boyfriend of 8 years is completely devastated. So young, so unnecessary, so tragic. What a waste.

  43. david
    david Posted on June 5, 2015 at 1:05 am

    In 2014 I suffered from a PE after suffering similar circumstances. Tests prior to the PE revealed nothing and the endless visits to GP, ER, Vascular, podiatrist, and orthopedic revealed zero. For the initial chest pain a heart stress test was conducted and revealed nothing but health. Next up was an EGD that was clear. Two ultrasounds showed nothing. A chest xray revealled nothing. Finally I was on the floo inable to breathe and in dire pain. A nurse finally suggested a cat scan that located the clot. While on blood thinners the calf pain subsided. I’ve since been off blood thinners for 6 months and the pain is back in all its glory. The same practitioners tell me I’m fine but I know it’s a matter of time Before the next unlocked clot kills me. It seems my only illness to these pathetic medical providers is I have health insurance. They can’t fix it but they will treat for it until I’m dead. I have no faith in Healthcare professionals and was seen at johns hopkins and mayo plus other regional providers before my near demise. I’ve given up. If I go I go. I just hope that the next clot doesn’t cause me to strike out and be vegetative for years and all I want is to go without the hell of this 24 X 7 pain.

  44. Elisabeth
    Elisabeth Posted on June 18, 2015 at 1:23 am

    what a sad story. My condolencesfor you all. I have been having a dull aching pain in my right leg, behind my knee and in my calf. Dr. Told me it is a Bakers cyst. But are there differences in symptoms for DVT or Bakers cyst? I am 48 and sit still a lot. I am also on meds for high bloodpressure. All these stories are really scary. I have a husband and two young kids and still have many things on my bucket list.

  45. Tamara
    Tamara Posted on September 10, 2015 at 12:36 am

    I have heard of blood clots before but always thought it effected older people or people who travel alot or someone who might have has a major surgery. I recently as of a week ago was diagnosed with 2 DVT in the right leg after a outpatient procedure. I have been having shortness of breath and a racing heart not to mention recently diagnosed with Anemia. My heart doctor wanted to go in and take a look at my heart. I have the fear of everything so took me months to agree to it. I did it and everything came back good on my heart. I went back to work a couple days later and everything was good. A week later I started experiencing the leg pain in my thigh. People would say not red or hot not blood clot. Finally while at a Gyno appointment I told them about it. They looked at it and said doesn’t look like blood clot but I will send you to imaging place for ultrasound. When I got there I was sure they would say muscle but instead told me don’t move or go anywhere…it was 2 dvt in groin area. I went straight to hospital and was admitted. Because of anemia couldn’t take thinners so was told I had to have a filter put in. We’ll I am allergic to iodine so they couldn’t do anything until they pumped me with steroids and benadryl all night and watched me. The doctor said that night I was a sitting anytime I could of died if that clot tried to move. The next day they inserted a filter. I went home 4 days ago and yesterday back at hospital scared that I have a clot in my lung. Once again couldn’t have ct so they did a nuclear test and it came back that everything looked okay. Now back at home. As I research dvt I am just so shocked in how common this is and how this causes sudden death in so many or how it seems once you have a dvt you end up scared forever and they seem to come back. I am scared of the dvt and now the filter to. I haven’t found many people who have the filter and does it work. I have only found comments of people who have had problems with the filter. I was told they will leave the filter in me for 9 months. I am still in shock how I was good one day and now worried that now the rest of my life will never be the same. I did make a promise that when I get through all of this I will help others learn more about DVT and the dangers of this. Like I said before I had heard of them but never realized what a killer this can be. After reading so many articles of people who have lost loved ones, it really makes me so sad. I just hope that mine will go away and I will have time to help spread the word and bring more awareness to Dvt. I am only 43 and I hope one day to be a grandmother or even see my children get married. The doctor told me in the hospital last week 95% chance of dying if no filter …most stories I read people are on thinners…so this scared me to because I can’t take thinners..I hope with technology to that more can be done in the future to help with DVT.Until then I made myself a promise to get better…live life…and spread the word.

    • Jane
      Jane Posted on November 12, 2015 at 10:51 pm

      It cannot help to have a physician present you with miserable odds. I hope you can find a less frightening physician.

  46. Charlene
    Charlene Posted on October 14, 2015 at 3:33 am

    Please respond by email if you know anything about freak all of a sudden blod clot (2.5 inches long) in the hip and what I can do to prevent this from happening again. I lost my right leg below the knee because of it. In subject bar type Charley/blood clot. Thank you. God bless.

  47. Ricki
    Ricki Posted on November 14, 2015 at 1:35 pm

    This is so scary as I was discharged this week on lovenox and warfarin. Prior to bring admittef, I suspected a DVT and had an order written by my daughter in law. Yep, admitted and home now. I had a fall that injured my left side. My clot is in my left leg. I noticed that I get out of breath easily but attribute this to my resting during this time. I am very active and this about kills me. My question is ” what activity can I safely do?” I feel pretty good other than not sleeping and I do get tired. I would love to work out every other day like I had been. Is anyone familiar with this? I also ride horses regularly and wonder who else does and have gone through this. I was discharged with no restrictions but prolonged standing, is this normal? Any suggestions?

  48. Brittany
    Brittany Posted on January 4, 2016 at 4:34 am

    Hello everyone my name is Brittany.. I was at work last year in March I did a lot of walking one day I went to work and was walking to my place if work when I just hit the grown for no reason I went home and rested went to get up and couldn’t feel my foot at all went to the ER and had them look to tell me what was wrong within the next hour or so the where rushing to icu I had 3 blood clots in my foot and they where moving I stayed in and out the hospital for next 2 years. I have burgers disease which is from smoking I have stop smoking for two years now… Me and my boyfriend went fishing last night for a over night fishing trip I know I didn’t do anything to my knee nothing at all last night I woke up crying it hurt so bad I couldn’t get up to go to the bathroom I woke my boy friend up so he could help me to the bathroom when I was done I had to sit in my butt and pull my self back to the bedroom where I woke him up again to help me get into the bed I’m still in really bad pain my foot looks black and blue and really red in some areas I can’t walk it hurts that bad I have to use my right leg to put as much prusher on it as I can…. I don’t wanna go back to the er cause I know they’ll keep me… Do u think I might have more blood clots in my foot and knee in in so much pain I can’t really do anything

    • L F
      L F Posted on January 6, 2016 at 1:20 am

      Brittany…Since you previously experienced a blood clot, you really should contact your doctor or go to the ER to make sure everything is okay. Blood clots can be dangerous and you need to make sure you are okay and rule out any serious problems.

  49. nanji
    nanji Posted on January 22, 2016 at 8:04 pm

    I am laying in hospital right now.I have DVT and I’m really scared..

    • Kevin
      Kevin Posted on June 8, 2016 at 6:15 am

      I hope everything worked out and that you’re not scared anymore

  50. Diana
    Diana Posted on January 23, 2016 at 1:08 am

    Hi my name is Diana, I just want to say much I appreciate everyone sharing their information as it is invaluable to so many. Anna, I’m so sorry to hear of the loss of your daughter, and others of you who have lost loved ones. I was looking up this information for my husband as he has many health issues and has had a sore right leg for a week and a half. Coincidentally just getting over a bad cold and not doing his usual walking and exercise. He went to the Dr to check it out today and we are just waiting to hear back about the tests that were done.
    I totally forgot about myself and realized I had googled my own symptoms and that is how I came across this site. I have bad knees but still walk and exercise because I’m afraid if I don’t it will really get bad. I work out on the elliptical machine and walk on the treadmill several times a week, do the weights for strength etc. Here’s the thing About two weeks ago I had to drive for about 45 minutes, when I went to get out of the car I could barely stand up, my right leg behind the knee, pain was so bad I could not move. I chalked it up to overworking my knee, too much housework etc. since that time my leg hurts in the same place. I have a sit down job, sometimes don’t get up for an hour or so. That pain is so intense I can hardly put weight on my leg. Once I move around though it is less sore. After reading everyone’s experiences I think I need to check this out. I don’t have shortness of breath and I did have an ok workout the last time, still in pain but trying to push through it.
    Got a little long winded here but I’m going to check this out to rule this out, I’m used to just letting things clear up, but this does not seem to be resolving. I will get back with results. Thanks!

  51. linda
    linda Posted on March 5, 2016 at 7:29 pm

    This is a teriffic page, RIP Anna! thanks for hosting this page.

    I have not gone to a doctor to even ask about the pain behind my leg, or in the top of my thigh,
    it changes, I am lethargic, chalking that up to not as much activity in the winter months, I have smoked a long time, not even a half a pack a day, and its all in the evening when I smoke, all alone, watching TV, sitting. TV

    Ive been thinking I have some clot going on for months, but, the stories I read here, seem to be life threaghtening,
    and as long as Ive had the pain, not much has changed, going on a trip, driving to florida, long drive
    we will see how bad the leg throbs then? but ILl be walking once in the warm lands, outside,
    so shortness of breath, extreme shortness of breath is my signal is seems, get to the ER
    demand sonogram? if that show nothing demand cat scan? seems like the docs. dont want to use the big machines.. Is it that difficult to get someone into one of those machines in a timely manner?is there rubbing on the spot to be done, perhaps putting something that will remove some inflamation?
    no self help techniques, ILl take a baby asparin right now, for good measure, and one tomorrow and the next,, etc.

  52. maryanne
    maryanne Posted on April 15, 2016 at 6:08 pm

    Thank goodness for sites like this so sad a lovely person had to die for me to find any information beyond the doctors standard statements. Im actually looking for some advice i fractured my ankle in an extreme trauma incident so huge bruising & swelling. Initially i was half plastered but 8 days later had such extreme calf pain i cldnt sleep even with morphine. Obvious dvt risk i have had blood test only slightly elevated and a scan. Alll clear but as a precaution now injecting fragmmin. Spent 48 hours in boot & pain greatly improved but consultant insisted the break too bad & i must go back in plaster that was 4 hours ago i can feel the calf pain ramping up (fracture pain pails against it) im worried but not sure what i shld do. Should i still be concerned calf is much bigger han other leg cld they have missed dvt?

  53. Karen
    Karen Posted on May 15, 2016 at 12:58 am

    First, I will say I am sorry for your loss of such a wonderful young women. We do not what we don’t know. We seem healthy and other will assume , not the patient, more the medical be so quick : If it does not ‘look broke -its NOT broke”. it always seemed to be my left left more so..and broken red circle shaps under the skin. That went away eventually with the edema\I was relatively healthy my whole life . Always moving, never sick..The last 2 years I have been to Neuro surgeon, endocrinologist and many different docs. It took Edema swelling to go to vascular surgeon. He out of all the docs did not find anything.
    The anachroid cyst and 4 benign nodules where just coincidental finding..-but its not the root of my edema. which began 08/2015. Always seemed to come and go. can be linked to the heart. .
    March, another bout of edema, this time it was two weeks -it hadnt gone down and it was effecting day to day living.Sharp direct pains. catch me off guard. I call my cardiologist group, as I also started having mild chest pain and very tired, out of it, dizzy, confused. I was able to get in that day..I am unsure of why they didnt schedule me with the vascular doc. as before.
    I go in to what ended up being a waste of time. The swelling has diminshed because I lay in bed all day for 7 hours rather than going to work. Luckily, I had pics on my phone. Doc. didn’t seem concerned. I also brought all my lab results from the Endo. . He didn’t bother to look at the labs… yet wanted to order some…
    He said my broken capillaries or what ever blotches UNDER the skin….were a Dermatologist issue. I said, ” What??Are you kidding me? No , it is not”
    I told him look, something is going on. they didn’t find any thing on my vein ultrasound in October.. that was the initial he pain. Cardio doc put me on Listinopril for blood pressure. that included a diuretic .
    That first day i took it my blood pressure was 113/20.Never has it been that low. I felt like I lost 5 lbs of water.
    However, After a week I began having extreme challenges that have become worse..left leg only.
    Back leg behind knee. .I though it was I just need more exercise. So I started walking more.. but that doesn’t seem to help.

    I am really frustrated with this.After reading this and searching . It makes sense.I have told my doc. I dont want to go back to the vascular doc…because he didnt find anything. I am sure with this consistent pain. and WHY WOULD I START HAVING THE PAIN AFTER STARTING THE NEW MEDICATION?
    Thank you for any help. I dont know where to go with this and i hate ER. I have no family here. and single mom of 2 one with a disability.. so going to ER is the last thing .

  54. Melanie
    Melanie Posted on June 11, 2016 at 6:00 pm

    I’ve been taking the pill for 6 months and I now have a pain in my leg the calf. It also aches I’ve had it for 3 weeks when I walk it goes away but when I wake up in the morning I’m in pain limping plus if I press the area it hurts thanks to this site I’m up the hospital first thing in the morning.

  55. Dee
    Dee Posted on June 29, 2016 at 2:25 am

    So sorry for the loss of your daughter. I just had surgery Jan 2015 for laminectomoy with decompression. I told my surgeon I was having
    Lot of calf, ankle, top and bottom foot pains. He prescribed an anti- inflammatory as he said it was due to inflammation. I have been taking them for almost two months now and I still get the pains. I do find some relief when I wrap a pad for arches around middle of foot, elevate legs under knees after the cramps and fatigue goes away.
    Now I am wondering if it could be a blood clot in my legs. I started getting the calf cramps after my first surgery in 2004 but the frequency is getting more and more now. I am a bit over weight and I do get winded from walking distances. I also have heart palpitations and I am a smoker.

  56. Joann
    Joann Posted on July 4, 2016 at 12:52 am

    I am 45, I have had both knees scoped. Afterwards I developed a DVT. This was in 2010. I have very bad pain behind my left knee. Unbearable at times. I have been to the ER and complained to them and told them I wanted to be checked for clots. They have dismissed me saying what I describe doesn’t sound like a clot. I am told I need total knee replacement bi-lateral . Also told I have bakers cyst. I do take an aspirin every day. The thought that I may have clots scares me very much. How can I make them check me? I don’t have insurance at the moment. I’m in the middle of filing for disability and haven’t been able to work.

  57. Justin J
    Justin J Posted on July 11, 2016 at 6:25 am

    My condolences to you and your family on the loss of your daughter.

    From what I’ve read, my story is similar to many of you on this page. I had microfracture surgery on my lentire knee 5 years ago. 4 weeks later I developed severe chest pain and difficulty breathing. After a few days the pain was unbearable and had my then fiancee take me to the ER. I ended up being diagnosed with a cloth from my ankle to my pelvis. 4 pieces of which had broken off and became pe’s in both lungs. I was in the hospital for 1 week and on bloodthinners for 8 months.

    Since then I haven’t had a recurrence, luckily. The experience has left me traumatized as sometimes I feel similar chest paid and go to the er where cts have been negative. This has happened 4 times in the last 2 years and is causing a strainin the relationship with my wife.

    Over the last 3-5 days I’ve been having pain in my left leg in my calf, thigh, and groin. It’s been fairly constant but no redness, swelling, etc. Guess it’s time to go to the doc.

  58. Danny
    Danny Posted on July 12, 2016 at 2:53 am

    I’m a man at age 55. June ok last year I went into the hospital and came home 2 weeks later. Was home 2 days and left leg went ice cold. Had blood clot behind the left knee and in left gron. I had one brack apart and went to brain and had a stroke. I have hard time remembering things. I can’t remember a lot of the tast now. I make knots all the time now and have to use spell check all the time for just simple words. I thank Jesus everyday that I wake up and letting me to live. Thank you to my Doctor and nurses in my home town and the oklahoma heart hospital also.

  59. Dawn Koch
    Dawn Koch Posted on September 9, 2016 at 12:14 am

    I’m so sorry for the loss of your daughter.
    I am experiencing severe pain in my leg behind my knee.
    Had some major heart racing one evening that was so scary.
    Now that I’ve read all these posts, I know I need to get to the Dr.
    My husband actually just got out of the hospital with DVT of his arm.
    I have no swelling but on and off again pain… I pray it will be ok..

  60. Katie
    Katie Posted on September 10, 2016 at 9:29 pm

    Sorry for your loss. I have been experiencing calf pain in my right leg when i walk should i go to my doctor ?

  61. Natasha Davis
    Natasha Davis Posted on September 17, 2016 at 8:16 am

    I’m 57, I have been suffering from severe pain in my left calf for over 6 months. Sometimes I couldn’t walk. It would leave me totally immobilized. Recently the pain has been traveling up to my knee. I use to think it was cramps. Now it comes just about everyday. The pain is so severe that it wakes me up at night. After reading the articles on this website I will definitely be having a conversation with my Dr. Monday. Thank you very much for bringing awareness to individuals like myself. I kept telling my daughter something wasn’t right. I went from walking 5 miles a day/ 45 minutes cardio daily to nothing at all. I just couldn’t believe I had no energy at all. Totally exhausted from doing nothing. Now I can’t walk or exercise because the pain has becomes unbearable .