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My name is CaitCaitlin-and-parentslin Augustine; I’m 22 years old and lucky to be alive.  I have already suffered through three DVTs, a life threatening condition.  Today, I made it my mission to raise awareness of this deadly health risk – one that causes over 100,000 deaths a year.

The first time I ever heard of blood clots or DVTs I was only 19.  Following a tonsillectomy, a routine procedure with few risks, I noticed what felt like a pulled gluteal muscle.  Over the next 2 weeks the pain intensified and moved into my lower abdomen.  Because of the severe pain, my doctor finally decided to schedule an emergency CAT scan. It was a DVT – deep vein thrombosis.

After admission into the hospital my family was told that I probably would not survive.  The CAT scan revealed a DVT so long that it ran from behind my knee, up my leg, through my abdomen and stopped just below the main vein to my heart.  At this time, I was also diagnosed with Factor V Leiden, a common clotting disorder. Once this was discovered, a majority of family members on my father’s side tested positive as well, including both my dad and my sister.

I did survive and I am grateful every day for my second chance on life.  Since that time, I had two additional DVTs and identified another clotting disorder called lupus anticoagulant.  Due to my medical history, I must remain on blood thinners for the rest of my life.

It has been difficult at times living with these clotting disorders, but I’m proud to say I recently graduated from college, began an internship and enjoy volunteering and advocating with the National Blood Clot Alliance – an organization whose mission is something I truly believe in.

I’m so glad I found a way to fight back.  By sharing my story and raising awareness, I hope to prevent others from having to experience what I did.  In order for us to spread the word, I ask that you help in our effort to raise funds for the National Blood Clot Alliance.  Through your support, which is 100% tax deductible, you will help NBCA continue to alert and educate the public and healthcare providers about this silent killer.

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Author: admin

5 Responses to "Caitlin Augustine’s Blood Clot Story"

  1. Karlee
    Karlee Posted on July 16, 2013 at 7:18 pm

    Caitlin,

    Thank you for sharing your story! I too am a multiple time clot survivor! I got my first DVT from groin to ankle in my leg and PEs in both lungs days before my 23rd birthday. Making it through the weekend to see 23 was more than was expected of me. I am now 25 and recovering from my second DVT. I have no Factor V, genetic disposition, or any other explanation as to why I am getting clots, but I’m getting them. Not knowing why I get them and knowing I was going to deal with this for the rest of my life was both difficult, but I found it really challenging to have not too many people to relate to, especially younger people. It was great to read about someone having something in common even though its a bond you hope not to have with anyone. I appreciate your story and your advocating for awareness!

    Thanks,
    Karlee

    • Dave hale
      Dave hale Posted on December 18, 2013 at 9:25 pm

      Caitlin,sorry to hear of your problems and hope that things are going well for you now,I am from the UK and I am 64 years old,I had my first dot and pe in 2006 after which I had a test which confirmed that I had the anti thrombin 3 clotting disorder ,I asked about my chances of having another episode,they said that they did not expect that to happen,guess what 2years to the day I had a repeat episode which means that I am on warfarin for life,one of the best things I have invested in is the coagucheck meter which is a lifesaver,I am able to self test which puts my mind at ease,as you mentioned about family being tested ,it seems so common worldwide.This illness has long been associated with long travel,I never realised how many ladies have contacted it through birth control pills,I hope that things go well for you and always remain positive.

    • andy
      andy Posted on November 13, 2014 at 5:54 am

      Karlee,
      Which leg was your DVT located? if it was your right leg you may have something called May Thurner syndrome. It can only be detected by MRI..most doctors don’t think to check for it. Most of the time they look for something wrong genetically such as factor v Leyden.

      • andy
        andy Posted on November 13, 2014 at 5:55 am

        *******your left leg. If your left leg it could possibly be may Thurner.

  2. joe
    joe Posted on July 7, 2014 at 10:08 pm

    its sad that nobody ever hears of this disease that is affecting young & older people I have the 2gene mutation I was on cuma & then on warf. now am on this new drug call xarelto so far so good I do get this shortness of breath & I get really anxious but I am going forward & I hope that you are too I wish you all well & may god get somebody to discover a cure for this disease