Increasing Awareness of Factor V Leiden: Elizabeth Varga’s Story
I discovered that I was heterozygous for the factor V Leiden mutation in June of 2000 after my mother tested positive during a workup for superficial thrombophlebitis. My primary care…
My Blood Clot Experience as a Professional Fireman: Pat’s Story
…circulation. My doctors and I did some family research and found out I have a rare blood mutation, and a DVT with the largest baker’s cyst in my left leg….
I Developed a Blood Clot While on an Anticoagulant: Linda’s Story
…body. Know the symptoms and risks. You could save your life or the life of a loved one. Resources MTHFR Mutation Resources Psychological Impact of Blood Clots Know Your Risk…
I Never Thought it Could Happen to Me: Mariah’s Story
…days for testing and observation. I was immediately prescribed Coumadin® (Blood thinner or anti-clotting medication) and compression stockings. I found out that I have the Factor V Leiden mutation (a…
About Us
…have been touched personally by blood clots, or such genetic …
Variants of the Virus that Causes COVID-19
Vaccination against COVID-19 is now made all the more important due …
Keep Finding Joy in Little Things: Arielle’s Story
…mutation. My endometriosis surgery, birth control usage and long flight are also believed to be factors that contributed to my clots. These experiences have made me more grateful for breath….
I Felt Like I was Crying Wolf: Anya’s Story
…The results are still inconclusive despite knowing about the estrogen in my birth control. This led to discussions about a potential genetic mutation. Yet, I was simply told I would…
A Constant Headache Was a Sign of Something Serious: Marjorie’s Story
…V Leiden heterozygous mutation. I was fine, except I suffered from migraines. My migraines were so bad that I couldn’t walk straight, and I would lose vision in my right…
I Almost Left the ER: Lucy’s Story
…OB/GYN. who tested me. I tested positive for FVL and have the factor II mutation. I made my parents get tested. Both of them have clotting disorders. I now know…