My Pain Was Ignored For Almost a Year: Caitlin’s Story
…II prothrombin gene mutation (heterozygous), antiphospholipid syndrome, and post-thrombotic syndrome. However, by the time of these referrals, the damage had already been done. I had permanent weakness in my leg,…
Thrombotic Storm – a Rare, but Serious Unknown Blood Clot Disorder
…condition or situation that predisposes a person to blood clots …
Understanding Post-Thrombotic Syndrome
Up to 40 percent of people diagnosed with deep vein thrombosis or …
MASAB Memo, September 2017
MASAB Medical Memo #2, September 2017 Should we keep the pressure …
Put Your Health First: Elaine’s Story
…threats, leading to a higher risk of clotting. An antibody associated with Sjögren’s syndrome was detected that may be another contributing factor to the clot formation. However, my rheumatologist is…
The Hospital Was Baffled By My Symptoms: Tyler’s Story
…had any blood disorders that would cause this, and I was wrongly diagnosed with antiphospholipid syndrome. After then taking it in to my own hands and getting a second opinion,…
I’m a Nurse, But Being on This Side is Different: Jennifer’s Story
…the same if I was admitted to the hospital. Months later, I was diagnosed with antiphospholipid syndrome, received an iliac stent, and was diagnosed with femoral neuropathy due to the…
Life is a Gift and it’s Fragile: Cara’s Story
…common genetic mutation called Factor II (or prothrombin). I had also been taking estrogen-containing birth control without knowing my risk factors. Ultimately, I was also diagnosed with antiphospholipid syndrome, which…
Shared Decision-Making Guide for Thrombophilia Testing
…Acquired as the result of a specific cause, such as injury, …
Don’t Ignore Symptoms of a Blood Clot: Marvin’s Story
…and I was diagnosed with a blood clot in my leg (deep vein thrombosis) and spent five days in the hospital. Testing showed that I have antiphospholipid syndrome (APS) as…