The Pressure and Pain Were Unbearable: Autumn’s Story
…the pandemic and all. In terms of risk factors, I was taking estrogen-based birth control and I was also diagnosed with May-Thurner syndrome. Even four years later, I still have…
Two Blood Clots 20 Years Apart: Tim’s Story
…to look for underlying clotting disorders were done. It was discovered that I have factor V Leiden, post-thrombotic syndrome (PTS), and several occluded or blocked veins in my legs. Learning…
What Affects Me Most is the Anxiety: Jocelyn’s Story
…lungs. Doctors believed birth control was my only risk factor, but a year later I was diagnosed with May-Thurner Syndrome. Six months after that, I had a stent placed. I…
I Should’ve Trusted My Instincts: Kara’s Story
…vascular surgeon, because I was still feeling pain and heaviness in my leg after 4 months. The vascular surgeon diagnosed May-Thurner Syndrome, which is a compression of my iliac vein….
I Had No Idea Pregnancy and Childbirth Were Risk Factors: Bailey’s Story
…It’s been almost a year now, and I’ve been diagnosed with May-Thurner Syndrome (MTS). I will have a kink in my vein for the rest of my life, that will…
Take Pain and Swelling Seriously: Julie’s Story
…my subclavian vein by the artery and one in my lung as well (pulmonary embolism). I was also diagnosed with Paget-Schroetter syndrome, a type of venous thoracic outlet syndrome (TOS),…
I Had the Perfect Storm of Risk Factors: Aimee’s Story
…the abdomen crosses over and compresses the vein against the spine. This is called May-Thurner Syndrome (MTS). The compression of my vein caused a complete closure of the vein, stopping…
I Was Described as Neurotic: Caroline’s Story
…coming from a compressed iliac vein in the pelvic area (May-Thurner syndrome) so I’m now on DOAC lifelong. The heavy menstrual bleeding caused by rivaroxaban was making me anemic, so…
We Have to Keep on Living: Ayesha’s Story
…moved to my lungs (pulmonary embolism). After an emergency CT scan confirmed the PE, I was also told that I had a condition called May-Thurner syndrome and that the pregnancy…
The Hardest Parts are the Unknowns and ‘What-Ifs’
…admitted to the hospital for several days where additional tests were run, including two MRIs where we learned I also have May-Thurner syndrome. For my treatment plan, I was put…