An Overdue Diagnosis: Alysa’s Story

An Overdue Diagnosis: Alysa’s Story

In February of 2021, at 28 years old, I was diagnosed with a five and a half inch blood clot in my left vena cava. I was admitted to the hospital and the images revealed that the clot had been present and developing for more than a year and a half! I also underwent knee surgery one month prior to this diagnosis, which was one of the contributing factors to my blood clot. After an extensive hospital stay, I was prescribed Fragmin, a blood thinner, that I had to inject twice a day.

Since that initial hospital stay, I was eager to find more answers so I had several tests done and was finally diagnosed with a rare vascular disorder called May-Thurner Syndrome (MTS) as well as a narrowed vena cava birth defect that was misdiagnosed as a child.

Now I take much better care of my body through exercise, especially after learning about all of my risk factors that led up to my DVT. It was also helpful for me to read other patients’ stories on stoptheclot.org as I was learning how to live with my clot. Knowing others shared a similar experience that I could relate to was very helpful to my recovery.

My advice to others is make sure you are familiar with your own risk factors for blood clots and do not be afraid to ask for help. It’s okay to be vulnerable! We all need help sometimes.

The personal story is intended for informational purposes only. The National Blood Clot Alliance (NBCA) holds the rights to all content that appears on its website. The use by another organization or online group of any content on NBCA’s website, including patient stories that appear here, does not imply that NBCA is connected to these other organizations or groups or condones or endorses their work. Please contact info@stoptheclot.org with questions about this matter.