Recovery is Not Linear: Desiree’s Story
…all blood clots because this condition can happen to anyone regardless of age, gender, or health status. I especially want to raise awareness of CVST. Symptoms often mimic more benign…
Mamas Get Blood Clots Too: Justine’s story
…but after talking to my doctor I was convinced to get an MRI, where they found a blood clot in my brain (CVT or CVST). I have since been on…
I Had a Blood Clot in my Brain: Jacarra’s Story
…showed multiple blood clots in my brain, also known as cerebral venous sinus thrombosis (CVST). After a short hospital stay, I was prescribed anticoagulants (blood thinners) for six months and…
My Diagnosis Took Away the Excitement of My Pregnancy: Emmy’s Story
…not alone. However, my advice to others is: don’t Google! You only ever see the negative stories. Ask for support if you need it. Resources CVST Patient Stories Psychological Impact…
Johnson & Johnson COVID-19 Vaccine Updates
…will review this analysis. In these cases, a type of blood clot …
My Diagnosis Was Cortical Venous Thrombosis in the Vein of Labbe: Oscar’s Story
…that drains blood from the temporal lobe. (This is a a subset of cerebral venous sinus thrombosis, also known as CVST or CVT.) From research, it appears that CVT is…
If I Had Waited One More Day, I Wouldn’t Be Here: Heather’s Story
…we needed to find the root cause. I was diagnosed with an occluded clot in my brain, also known as cerebral venous sinus thrombosis, or CVST. I had to undergo…
Trusting My Body When It Was in Trouble: Katie’s Story
…This time with a limp left arm and a scan that revealed a subarachnoid hemorrhage due to a central venous sinus thrombosis, or CVST blood clot, rupturing a vessel in…
The Emotional Toll Has Been Challenging: Jenna’s Story
…cerebral venous sinus thrombosis, or CVST, which were blocking blood flow from my brain. By accident, the brain scan also saw the top portion of my lung where they found…
I Started Losing My Vision: Lydia’s Story
…(CVST) located in my superior sagittal sinus, right transverse, and sigmoid sinus. I also discovered I have factor II clotting disorder. That and hormonal birth control most likely contributed to…