The Last Thing I Remember Was Trying to Say, ‘Help me:’ Heather’s Story
…More precisely, I had CVST, or cerebral venous sinuous thrombosis. A blood thinner was immediately administered. After a few weeks of inpatient care, I was discharged and thrust into a…
Recovery is Not Linear: Desiree’s Story
…all blood clots because this condition can happen to anyone regardless of age, gender, or health status. I especially want to raise awareness of CVST. Symptoms often mimic more benign…
Mamas Get Blood Clots Too: Justine’s story
…but after talking to my doctor I was convinced to get an MRI, where they found a blood clot in my brain (CVT or CVST). I have since been on…
Never Ignore What Your Body Is Telling You: Annastasia’s Story
…had another seizure early the next morning. After being transferred to another hospital, I was diagnosed with cerebral venous sinus thrombosis (CVST)— a blood clot in my brain. I had…
I Had a Blood Clot in my Brain: Jacarra’s Story
…showed multiple blood clots in my brain, also known as cerebral venous sinus thrombosis (CVST). After a short hospital stay, I was prescribed anticoagulants (blood thinners) for six months and…
My Diagnosis Took Away the Excitement of My Pregnancy: Emmy’s Story
…not alone. However, my advice to others is: don’t Google! You only ever see the negative stories. Ask for support if you need it. Resources CVST Patient Stories Psychological Impact…
Johnson & Johnson COVID-19 Vaccine Updates
…will review this analysis. In these cases, a type of blood clot …
My Diagnosis Was Cortical Venous Thrombosis in the Vein of Labbe: Oscar’s Story
…that drains blood from the temporal lobe. (This is a a subset of cerebral venous sinus thrombosis, also known as CVST or CVT.) From research, it appears that CVT is…
If I Had Waited One More Day, I Wouldn’t Be Here: Heather’s Story
…we needed to find the root cause. I was diagnosed with an occluded clot in my brain, also known as cerebral venous sinus thrombosis, or CVST. I had to undergo…
Trusting My Body When It Was in Trouble: Katie’s Story
…This time with a limp left arm and a scan that revealed a subarachnoid hemorrhage due to a central venous sinus thrombosis, or CVST blood clot, rupturing a vessel in…