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NBCA Video Series – Our Genes Our Stories

Stop The Clot Forum – October 2008 – Minneapolis

Learn how the Genetic Information Non discrimination Act protects you and your family. Now available on iTunes, click here to download to your iPhone or iPod.

Our Genes, Our Stories – Matt Bower – Genetic Testing Part 1 of 6

Learn when to test. Thrombophilia and the practice of genetics, Ancient history-recognition of X-linked inheritance, Non-directiveness adopted as a guiding philosophy in response to eugenics, Until 1970s primarily practiced by basic scientists, New technologies, Carrier Testing, Prenatal Diagnosis, Predictive Testing (Slide 17)

Visit NBCA’s You Tube Channel. Click here.

The video production for these programs was done by REM Video & Event Company, St. Louis Park, Minnesota.

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Advancing blood clot awareness, prevention, diagnosis, and successful treatments to #stoptheclot. Submit your story @ link below. ⬇️

🎶 Volunteers Who Rock! 🎶 At the National Bl

🎶 Volunteers Who Rock! 🎶

At the National Blood Clot Alliance (NBCA), our volunteers are making a difference in fun and innovative ways! One of our incredible Thrombassador volunteers, Jill Cowley, is hosting a music festival next month to help support our mission. Talk about a note-worthy event! 🎸✨

This festival isn’t just about great music; it’s about coming together to spread vital awareness about the risks, signs and symptoms of blood clots in memory of Jill's cousin, Chandra, who passed away from a pulmonary embolism. We love seeing how our volunteers come up with such creative and meaningful ways to spread the word and give back.

#StopTheClot #RememberChandra #Thrombassador #DVT #PE #BloodClots #BloodClotAwareness #VolunteerForChange #MusicForAwareness #NBCA #BloodClotAwareness #VolunteerInspiration #RockOnForClots #CreativeImpact

From music festivals to lemonade stands, you can make an impact no matter your passion.
Have an idea? You could be the next volunteer to take action and make a difference! 🙌

If you’re in the upstate New York area, join us for an unforgettable day of music, food, and fun—all for a great cause! 🎤🎉

📍 Location: Dominick’s Tavern, Oswego, NY
📅 Date: Saturday, June 21
⏰ Time: 2:00 PM ET

💬 How could help bring important blood clot education to YOUR community? Drop a comment below and let us know how you might get involved! Let’s work together to reduce the impact of blood clots—one community at a time.

👶Pregnancy brings big changes, including the in

👶Pregnancy brings big changes, including the increased risk for blood clots.

Did you know? Women are four times more likely to develop a blood clot during pregnancy. After giving birth, that risk spikes dramatically: up to 100 times higher in the first week after delivery, and remains about 20 times higher in the three-month postpartum period.

While this increased clotting risk helps prevent excessive bleeding during childbirth, it can also lead to dangerous complications if left unrecognized.

This Women’s Health Month, know the signs. Ask about your family history and talk to your doctor about your risks. 🔗Learn more at the link in bio.

#StopTheClot #WomensHealthMonth #BloodClots #Pregnancy #Postpartum #FourthTrimester #KnowYourRisk #PulmonaryEmbolism #BloodClotAwareness

🌟 Empowering Communities with Blood Clot Educat

🌟 Empowering Communities with Blood Clot Education & Awareness 🌟

At the National Blood Clot Alliance (NBCA), we are committed to strengthening community health through blood clot education and awareness. Our work wouldn’t be possible without community partners like the Brooklyn Community District 2 and dedicated volunteers like Arshell Brooks-Harris—an NBCA Thrombassador and Board Member who will be representing us tomorrow at Brooklyn CB2’s Fourth Annual Health Fair, “Living Well, Living Strong.”

If you’re in the Brooklyn area, come meet Arshell and learn more about NBCA’s blood clot resources—plus a panel discussion on maternal health, health screenings, fitness classes, healthy food, music, dancing, kids' activities, and much more! The event is FREE and open to the public.

📍 Location: Fort Greene Park Conservancy, Brooklyn, NY
📅 Date: Saturday, May 17
⏰ Time: 12 to 4 PM ET
🔗More Info: https://bit.ly/CB2Event2025

💬 How could help bring important blood clot education to YOUR community? Drop a comment below and let us know how you might get involved! Let’s work together to reduce the impact of blood clots—one community at a time.

#BloodClotAwareness #NBCA #Thrombassador #CommunityHealth #LivingWellLivingStrong #BrooklynHealthFair #VTE #ThrombosisPrevention #StopTheClot @bkcb02

After a tough hike, Chana assumed her lingering ca

After a tough hike, Chana assumed her lingering calf pain was just a muscle strain. But days later, the pain worsened.

She was diagnosed with a DVT in her lower leg, likely caused by a combination of estrogen-based contraception and reduced blood flow from the injury. She faced complications that required two blood transfusions.

Chana’s advice: before starting estrogen birth control, talk to your doctor about your clotting risk, your treatment goals, and safer alternatives if needed.

👉 Swipe through to read Chana’s full story.

🔗More patient stories at the link in bio.

#StopTheClot #StopTheClotStory #BloodClots #DVT #Estrogen #DeepVeinThrombosis #BloodClotAwareness #FamilyPlanning #BirthControl

Choosing birth control options isn’t just a pers

Choosing birth control options isn’t just a personal decision, it also involves important medical considerations.

Hormonal methods containing estrogen, including the pill, patch, or ring, increase clotting factors in the body. This mimics pregnancy and raises the risk for blood clots.

While the overall risk is low, it’s higher if you have a personal or family history of clots, are over 35, smoke, or have a clotting disorder.

This Women’s Health Month, talk to your doctor about your risk and the safest birth control options for you. Knowing your risk could save your life.

🔗 Use the risk assessment checklist at the link in bio.

#StopTheClot #BloodClots #BirthControl #KnowYourRisk #BloodClotAwareness #Estrogen #WomensHealthMonth

Fantastic News from NBCA! 🎉 Just in time for N

Fantastic News from NBCA! 🎉

Just in time for National Hospital Week (May 11–17), we’re thrilled to announce that two AdventHealth hospitals in Northeast Florida have been named NBCA Venous Thromboembolism (VTE) Centers of Excellence.™

AdventHealth Palm Coast and AdventHealth Palm Coast Parkway are the first in the AdventHealth system — and the first in Northeast Florida — to earn this prestigious designation for their outstanding, patient-centered approach to the prevention, diagnosis, and treatment of blood clots.

“I am immensely proud of the work we have done in VTE treatment and intervention, and very grateful for the recognition that this COE represents,” said Dr. Arkadiy Kheyfits, interventional radiologist at both hospitals. “I believe AdventHealth Palm Coast and Palm Coast Parkway are leaders in this space, and I am excited to continue improving our care and prevention pathways.”

Congratulations to both hospitals, and thank you to all healthcare professionals going above and beyond to improve patient outcomes this week and every week.

📣 We will be announcing yet another VTE Centers of Excellence designation next week, and this time the institution is located in the Midwest. Any guesses? Tell us in the comments!

Learn more about NBCA’s VTE Centers of Excellence: stoptheclot.org/nbca-vte-centers-of-excellence

@adventhealth @adventhealthefl

#StopTheClot #BloodClots #VTE #VTECentersOfExcellence #CentersOfExcellence #COE #HospitalExcellence #BloodClotAwareness

Thank you to everyone who joined last evening’s

Thank you to everyone who joined last evening’s May PEP Talk on women and blood clots with Dr. Anna Parks, hematologist at the University of Utah.

In this clip, Dr. Parks discusses options for hormone replacement therapy for women who have a history of blood clots.

🔗 Watch the full recording now at the link in bio and make sure to subscribe to our YouTube channel so you’re the first to know when new content drops!

📅 Mark your calendar: Our next PEP Talk on June 10 at 7 p.m. is tailored for people who are new to blood clots — those who have been recently diagnosed with blood clots or the loved one of someone with a new diagnosis. Don’t miss it! Register at the 🔗 in bio.

(Please note: PEP Talks are for educational purposes only and do not replace medical advice. Always consult your healthcare provider.)

#StopTheClot #BloodClots #WomenAndBloodClots #KnowYourRisk #PEPTalk #MedicalGaslighting #BloodClotAwareness #BloodClotWebinar

💔Karlie was just 17 when she developed pain in

💔Karlie was just 17 when she developed pain in her leg that resulted in a fatal pulmonary embolism.

Karlie had PCOS (polycystic ovary syndrome), a condition that increases a woman’s risk for blood clots by 1.5 to 2 times. She also took hormonal birth control, a combination that can significantly increase the risk for blood clots.

Her story is a heartbreaking reminder that blood clots can affect anyone, at any age. This Women’s Health Month, we honor Karlie by raising awareness so that other young women can recognize the signs and know their risk.

🔗 Use our assessment checklist to determine your risk for blood clots at the link in bio.

#StopTheClot #StopTheClotStory #BloodClots #DeepVeinThrombosis #DVT #PulmonaryEmbolism #PE #FatalPE #BloodClotAwareness #BloodClotFatality

🌟We’re honored to share that NBCA has earned

🌟We’re honored to share that NBCA has earned Candid’s Platinum Seal of Transparency — the highest level of recognition for nonprofit transparency and accountability.

This seal demonstrates our commitment to sharing clear, up-to-date information about our mission, impact, goals, and finances.

Fewer than one percent of U.S.-based nonprofits has achieved the Platinum Seal in 2025, making this a significant honor.

“This shows our supporters that their contributions are making a difference,” said Tarin Patrikis, deputy director of NBCA.

“We hope that this will inspire new supporters who are looking to donate to a trustworthy organization committed to saving lives and improving public health.”

🔗Read more and support our work with a donation at the link in bio!

#StopTheClot #BloodClots #VTE #CandidPlatinumSeal #NonprofitExcellence

Just days after giving birth, Heather developed a

Just days after giving birth, Heather developed a severe headache that turned out to be a blood clot in her brain, or CVST. Misdiagnosed at first, she suffered a seizure before doctors finally discovered the clot. Later, she survived multiple pulmonary emboli after surgery.

Heather’s experience shows how easily clot symptoms can be overlooked, especially during postpartum recovery.

Now an NBCA Thrombassador, Heather joins us TONIGHT for our PEP Talk on women and blood clots to share her story and help others better understand clot risks, symptoms, and life after diagnosis. Don’t miss it! 🔗 Register at the link in bio.

#StopTheClot #StopTheClotStory #BloodClots #CVST #PulmonaryEmbolism #PE #Postpartum #FourthTrimester #BloodClotAwareness

HAPPENING TONIGHT: Women face risks when it comes

HAPPENING TONIGHT: Women face risks when it comes to blood clots, especially during pregnancy, postpartum, or when using hormonal birth control or hormone replacement therapy.

Join us TONIGHT for our May PEP Talk on women and blood clots. We’ll cover what every woman should know about blood clot risks, symptoms, prevention, and treatment, with insights from Dr. Anna Parks, hematologist at the University of Utah and a member of NBCA’s Council of Emerging Researchers in Thrombosis.

🔗 Register at the link in bio.

#StopTheClot #BloodClots #WomenAndBloodClots #KnowYourRisk #PEPTalk #MedicalGaslighting #BloodClotAwareness #BloodClotWebinar

Taylor thought her worsening back and leg pain was

Taylor thought her worsening back and leg pain was just a back injury. As a nurse, she knew the signs and symptoms of blood clots, but she was worried about overreacting and delayed seeking help. 👉 Swipe through to read Taylor’s full story.

📅 Join us TOMORROW for our PEP Talk on women and blood clots to hear more about risk factors, symptoms, and the importance of early action.

🔗 Register at the link in bio.

#StopTheClot #StopTheClotStory #BloodClots #FactorVLeiden #FVL #MayThurnerSyndrome #MTS #DVT #DeepVeinThrombosis #PE #PulmonaryEmbolism #BloodClotAwareness

Today is International Heavy Menstrual Bleeding Da

Today is International Heavy Menstrual Bleeding Day, a time to raise awareness about a condition that too often goes unspoken.

For women on blood thinners after a blood clot, nearly 3 out of 4 experience heavy menstrual bleeding, according to a 2024 study led by Dr. Anna Parks, hematologist at the University of Utah and a member of NBCA’s Council of Emerging Researchers in Thrombosis.

Even more concerning, 86% say it negatively affects their quality of life.

Heavy menstrual bleeding is more than an inconvenience, it’s a real medical issue that can impact physical, emotional, and social well-being.

If you’re on anticoagulation and experiencing heavy periods, you’re not alone, and you deserve care and support.

Dr. Anna Parks is our medical expert for our May 13 PEP Talk on women and blood clots. Join us to learn more and hear expert advice. 🔗 Register at the link in bio.

#StopTheClot #BloodClots #InternationalHeavyMenstrualBleedingDay #HMB #Anticoagulants #BloodThinners #BloodClotAwareness

🌷Happy Mother’s Day to all the moms, moms-to-

🌷Happy Mother’s Day to all the moms, moms-to-be, and incredible women in our lives!

As we celebrate motherhood, we also want to shine a light on the often-overlooked challenges some women face, including the risk of blood clots during pregnancy and postpartum.

Did you know the risk of a blood clot is highest in the weeks following childbirth? Knowing your family history and understanding risk factors like surgery or hospitalization can help protect your health during this critical time.

This Mother’s Day, let’s honor moms not just with flowers, but with awareness and action.

Join us for our Women’s Health Month PEP Talk on May 13, where we’ll dive into blood clot risks for women, medical gaslighting, mental health, hormonal risks, and more.

Register at the 🔗 in bio.

#StopTheClot #MothersDay #BloodClots #PEPTalk #KnowYourRisk #PEPTalk

After giving birth via emergency C-section, Annast

After giving birth via emergency C-section, Annastasia developed a severe headache that was dismissed as normal post-epidural pain. Days later, she collapsed and was diagnosed with a blood clot in her brain (CVST) that caused a major stroke. 👉Swipe though to read the full story.

Annastasia's experience highlights an issue we’ll cover at our Women’s Health Month PEP Talk on May 13: the danger of medical gaslighting, especially when women’s symptoms are downplayed or overlooked. 🔗Register at the link in bio.

#StopTheClot #StopTheClotStory #BloodClots #CVST #BrainBloodClot #Pregnancy #BloodClotAwareness

☀️There’s no denying that Florida is making

☀️There’s no denying that Florida is making significant strides in protecting people from life-threatening blood clots.

With the Emily Adkins Family Protection Act, Florida is the first state in the nation to pass a measure aimed at tracking the impact of blood clots on residents. The legislation awaits Gov. Ron DeSantis’ signature to officially become Florida law.

This will lead to valuable data that will shape research and policy for many decades to come, saving lives in Florida and around the world.

Florida is also home to Ascension Sacred Heart in Pensacola, the most recent hospital to achieve the NBCA VTE Center of Excellence™ designation, adding to the growing network of institutions that set the standard for VTE care.

Thanks to the Sunshine State’s commitment to blood clot education, early detection, and prevention, the vision behind the Emily Adkins Family Protection Act is already coming to fruition.

“The Emily Adkins Family Protection Act is a powerful validation of the work so many of us have dedicated ourselves to in VTE prevention and care,” said Dr. Rohit Amin, Interventional Cardiologist and Co-Director of the PE/DVT Team at Ascension Sacred Heart Pensacola.

We’re also excited to celebrate an upcoming Center of Excellence designation in Northern Florida next week — stay tuned!

🔗Learn more about the Emily Adkins Family Protection Act, our Centers of Excellence, and how Florida is leading the way: stoptheclot.org/news

#StopTheClot #BloodClots #VTE #EmilyAdkins #BloodClotLegislation #FloridaLegislation #CentersOfExcellence #BloodClotPrevention #BloodClotAwareness

After knee surgery while on the combined pill, Jul

After knee surgery while on the combined pill, Julia developed a DVT that led to a life-threatening PE. She ignored early warning signs until she suddenly struggled to breathe and was rushed to the hospital.

Along with her physical recovery, Julia faced the mental health impact of her experience, including PTSD, but she came through with a new appreciation for life. 👉 Swipe through to read her story.

If you’ve experienced a blood clot, did it change how you view life? Tell us in the comments.

Join our May PEP Talk on women and blood clots on Tuesday, May 13. Register at the 🔗 in bio.

#StopTheClot #StopTheClotStory #BloodClots #APS #DVT #DeepVeinThrombosis #PE #PulmonaryEmbolism #BloodClotAwareness #PTSD

If you’re a woman who has experienced blood clot

If you’re a woman who has experienced blood clots or has a family history of blood clots, you won’t want to miss our special Women’s Health Month PEP Talk on Tuesday, May 13 at 7 p.m. ET.

We’ll be discussing a range of important topics, including medical gaslighting; the mental health impact of a blood clot diagnosis; managing side effects such as heavy menstrual bleeding on anticoagulants; the safety of hormonal birth control and hormone replacement therapy for individuals with a personal or family history of blood clots; and much more.

Dr. Anna Parks, assistant professor at the University of Utah Division of Hematology and a member of NBCA’s Council of Emerging Researchers in Thrombosis, will serve as our medical expert.

Join us for this informative discussion, and bring your questions!

🔗Register: Link in bio.

#StopTheClot #BloodClots #WomenAndBloodClots #KnowYourRisk #PEPTalk #MedicalGaslighting #BloodClotAwareness #BloodClotWebinar

Today is National Nurses Day, and we’re honoring

Today is National Nurses Day, and we’re honoring the hardworking and knowledgeable nurses who help prevent, recognize, and treat blood clots every day.

At NBCA, we’re grateful for the nurses who provide critical education, advocate for patients, and save lives through early detection and care. Thank you for all you do to support those impacted by blood clots.

Has a nurse made a positive impact in your life? Tell us in the comments!

#StopTheClot #BloodClots #NationalNursesWeek #NursesRock #BloodClotAwareness #BloodClotPrevention

Did you know that a blood clot can cause a stroke?

Did you know that a blood clot can cause a stroke?

May is National Stroke Awareness Month, and not all strokes are the same. Cerebral venous sinus thrombosis (CVST) is a rare type of stroke — accounting for approximately 0.5 to 1 percent of all strokes worldwide — caused by a blood clot in the brain’s venous sinuses, which prevents blood from draining out of the brain.

CVST can happen at any age, although they’re most prevalent in women under 50 years old. CVST is commonly linked to estrogen exposure from birth control, pregnancy, postpartum, and hormone therapy.

Symptoms can develop gradually over days or appear suddenly. They may vary depending on where the clot forms and how much pressure builds in the brain. Here are the key symptoms of CVST:

- Severe headache (this is the most common symptom, often worsening over time or different from a typical headache)
- Blurred or double vision
- Seizures
- Weakness or numbness (especially on one side of the body)
- Difficulty speaking or understanding speech
- Confusion or trouble thinking clearly
- Nausea and vomiting
- Loss of consciousness

If you’ve experienced CVST, you’re not alone. Read the stories of others who have also endured this condition at the link in bio.

#StopTheClot #BloodClots #NationalStrokeAwarenessMonth #WomensHealthMonth #CVST #BrainClot #BloodClotAwareness

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