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June 2019

JUNE E-NEWSLETTER | SHARE INFORMATION & HELP SAVE LIVES

Blood clots can and do affect anyone regardless of gender, age, ethnicity, or race. On average, …

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Heather Beissel

Meet the Recepients of the 2024 NBCA Community Thrombassador Awards

On January 18, 2025, NBCA Community Thrombassadors – a network of patients and caregivers trained to spread blood clot education,…

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Jen's Stuff - 2024-03-12T121846.894

Influence Change: Join the NBCA Advocacy Institute

To put an end to the 100,000 deaths each year to blood clots, the National Blood Clot Alliance is accelerating…

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Advancing blood clot awareness, prevention, diagnosis, and successful treatments to #stoptheclot.

Getting back to exercise after a blood clot? You'r

Getting back to exercise after a blood clot? You're not alone!

Recovery can feel overwhelming, but movement is key to staying healthy. Our 100,000 Reasons Challenge in March is a great way to ease back into activity safely while honoring the 100,000 lives lost to blood clots each year.

During this Challenge, we’re tracking active minutes. That means you can participate by moving any way you wish: using gym equipment like the rowing machine, elliptical, or weights; walking your dog; doing yoga, Pilates, or barre; or even dancing.

No matter how you stay active, every bit of physical activity counts toward recovery and prevention, says Dr. Jean Connors, hematologist at Brigham and Women’s Hospital in Boston.

Sign up now at the link in bio and take the first step back to health while making a meaningful difference.

#stoptheclot #BloodClotAwarenessMonth2025 #100KReasonsChallenge #100KReasonsChallenge2025 #RaceToStopTheClot #bloodclotawareness #bloodclotpatient #bloodclotsurvivor #movetostoptheclot

Swipe through to read about Lauren, who was a heal

Swipe through to read about Lauren, who was a healthy college senior until a sudden back pain led to an unexpected diagnosis: a pulmonary embolism and DVT. She's sharing her journey to remind others to listen to their bodies and advocate for their health.

Read more patient stories at the link in bio.

#stoptheclot #bloodclots #vte #birthcontrol #estrogen #knowyourrisk #pulmonaryembolism #deepveinthrombosis #pe #dvt #bloodclotsurvivor #bloodclotawareness #bloodcloteducation

🔴 PEP Talk: Medical Procedures & Blood Clots 🔴

If you're on a blood thinner or have a history of blood clots, you may have questions about how medical procedures—including joint injections, endoscopies, cyst removal, and dental work—affect your bleeding risk.

Join us Tuesday, Feb. 11 at 7 p.m. ET for our patient-led discussion featuring our clinical guest, Dr. Jacob Cogan of the University of Minnesota.

📅 Tuesday, Feb. 11 at 7 p.m. ET

🔗 Register at the link in bio.

P.S.: If you can’t attend the live event, register to receive the recording in your inbox.

#stoptheclot #bloodclots #vte #peptalk #livewebinar #bloodclotwebinar #bleedingrisks #knowyourrisk #bloodclotsurvivor #bloodclotawareness #bloodcloteducation

Blood clots are a public health crisis—yet aware

Blood clots are a public health crisis—yet awareness remains dangerously low. Every year in the U.S.:

🔴 900,000 people are affected by blood clots (DVT/PE).

⚠️ 100,000 lives are lost—more than breast cancer, HIV, and car crashes combined.

Despite these staggering numbers, many people don’t know the signs and symptoms of blood clots until it’s too late.

Advocating for national awareness and federal funding for blood clots is a complex process that requires efforts at the federal, state, and local levels. That’s why we need YOUR help!

Here are two powerful ways you can get involved:

1. Advocate for Federal Funding – Your voice can make a significant impact. Help secure critical funding by reaching out to your local Congressional representatives and pushing for support for blood clot prevention and education funding. A huge thank you to all who have already submitted requests—let’s keep the momentum going! More at the link in bio.

2. Submit a Request for a State Proclamation – Advocate for your state to declare March as Blood Clot Awareness Month and raise awareness right where you live. Proclamations have already been confirmed in Georgia, South Carolina, New Mexico, and Texas —but we need to keep this going!

Remember, these proclamations are valid for only one year, so they must be requested and renewed annually in each state. We need your help to ensure every state is involved! ✅ Email advocacy@stoptheclot.org to connect with us on steps to take to get BCAM recognized in your state.

Too many lives are being lost unnecessarily from this silent killer. By making blood clot awareness a priority at the state and federal levels, we can drive education, encourage early detection, and save lives.

#stoptheclot #BloodClotAwarenessMonth #BCAM2025 #bloodclotawareness #bloodcloteducation #bloodclotprevention #stateresolutions

Tilly was repeatedly misdiagnosed with nerve damag

Tilly was repeatedly misdiagnosed with nerve damage when she first sought medical attention for the symptoms she was experiencing. Swipe through to read her story and the message she has for other blood clot survivors.

Read more patient stories at the link in bio.

#stoptheclot #stoptheclotstory #bloodclots #mts #maythurnersyndrome #chronicdvt #deepveinthrombosis #dvt #misdiagnosed #bloodclotsurvivor #bloodclotawareness

Did you know that 1 in 5 blood clots are due to ca

Did you know that 1 in 5 blood clots are due to cancer and some of its treatments?

Today is World Cancer Day, a day to unite the world in the fight against cancer under the same banner.

This year’s theme is “United by Unique” which places patients and people at the center of care and their stories at the heart of the conversation.

At the link in bio, learn more about how to protect your health during cancer treatments and listen to episodes of our podcast related to cancer and blood clots.

#stoptheclot #worldcancerday #cancerawareness #sharetostoptheclot #cancer #cancerandbloodclots #cancersucks #bloodclots #bloodclotprevention #bloodclotawareness #knowyourrisk #stoptheclotspreadtheword

@trey_smith of the Kansas City @Chiefs reflects on

@trey_smith of the Kansas City @Chiefs reflects on his 2018 blood clot diagnosis.

As he gears up for his third consecutive Super Bowl this weekend, join us as we rally behind Trey, wishing him good luck and saying “thank you” for being an advocate and voice for those who have suffered from blood clots and their loved ones. Knowledge is power!

Join our community of blood clot survivors, loved ones, and advocates in our 100,000 Reasons Challenge in remembrance of the 100,000 Americans who lose their lives annually to blood clots. Learn more about the Challenge and sign up at the link in bio. (bit.ly/100kReasons2025)

#stoptheclot #bloodclots #dvt #pulmonaryembolism #deepveinthrombosis #bloodclotsurvivor #treysmith #kansascitychiefs #nfl #SuperBowlLIX #chiefskingdom #NBCAandTrey #MovetoStoptheClot #BCAM #BloodclotAwarenessMonth #BCAM2025

👉 Swipe left to follow Donna's journey: from a

👉 Swipe left to follow Donna's journey: from a slip and fall on ice, through three days in the ICU, to coping with lingering PTSD—and how finding NBCA has been a crucial part of her healing.

More patient stories at the link in bio.

#stoptheclot #stoptheclotstory #bloodclots #vte #antiphosopholipidsyndrome #aps #pulmonaryembolism #pe #bloodclotsurvivor #bloodclotpatient #bloodclotawareness #swipeleft

🚶‍♀️🏃‍♂️March is Blood Clot Awar

🚶‍♀️🏃‍♂️March is Blood Clot Awareness Month—let’s move for a lifesaving cause!

Sign up for the 5th Annual 100,000 Reasons Challenge, a 31-day movement challenge honoring the 100,000 lives lost to blood clots each year. Every step, mile, and effort helps raise awareness and prevent future tragedies.

How it works:

✔️ Choose any activity—walk, run, bike, swim, or move your way.

✔️ Set personal movement and fundraising goals.

✔️ Raise awareness and support life-saving education and research.

The challenge kicks off March 1—but you can set up your page and start fundraising any time. Let’s make every move count!

👉 At the link in bio, sign up to secure early registration pricing! (bit.ly/100kReasons2025)

#stoptheclot #BloodClotAwarenessMonth2025 #100KReasonsChallenge #100KReasonsChallenge2025 #RaceToStopTheClot #bloodclotawareness #bloodclotpatient #bloodclotsurvivor

Shannon’s father, Marcus, was diagnosed with duo

Shannon’s father, Marcus, was diagnosed with duodenal cancer in April 2024 and underwent chemotherapy. Months later, he developed a PE and DVT, but was misdiagnosed, and died from cardiac arrest. Through her grief, Shannon discovered that cancer patients face heightened risks blood clots—risks that are often overlooked. This story serves as a powerful reminder of the need for greater awareness and advocacy.

If you or a loved one have undergone cancer treatment, were you told of the increased risk for blood clots?

Learn more about how cancer and blood clots can intersect at the link in bio.

#stoptheclot #bloodclots #CAT #cancerassociatedthrombosis #cancerandbloodclots #cardiacarrest #pulmonaryembolism #pe #deepveinthrombosis #dvt #fatalpe #bloodclotawareness #bloodcloteducation

In the latest issue of Endovascular Today, NBCA Vo

In the latest issue of Endovascular Today, NBCA Volunteer President Leslie Lake discusses patient advocacy and collaboration with Dr. Suresh Vedantham, a member of NBCA’s Medical and Scientific Advisory Board.

The discussion explores the unique collaboration between this patient-led organization and physicians, highlighting the importance of cross-education, where patients and clinicians learn from each other across various NBCA programs to improve patient care and outcomes.

Lake explains how NBCA’s clinically-backed resources, including the New Patient Resource Guide and monthly PEP Talk webinars, help to address gaps in patient care.

“Being a patient gives you a very different perspective versus that of a clinician,” said Lake, who is a pulmonary embolism survivor herself. “We engage our patient community to truly understand their experience and where gaps in care may have occurred, and we answer their questions in a nonclinical way so they can be more easily understood.”

Read the article to gain insights into how patient-driven advocacy and physician collaboration are transforming blood clot care and improving outcomes for patients nationwide at the link in bio.

#stoptheclot #endovasculartoday #bloodclotpatientcare #bloodclots #patientadvocacy #bloodclotsurvivor #bloodclotpatient #pulmonaryembolism #deepvein thrombosis #vte

If you're at risk for blood clots or currently tak

If you're at risk for blood clots or currently take anticoagulants, even routine procedures like colonoscopies, skin biopsies, or gynecological procedures such as IUD insertion or removal, may come with added considerations. Understanding how to navigate these situations is crucial for your safety and peace of mind.

We’ll guide you through the essentials of prepping for medical procedures while managing clotting risks and medications during our February PEP Talk.

You'll gain valuable insights into how common procedures can impact your risk, practical tips for managing anticoagulation and other medications, and key questions to discuss with your healthcare team.

📅 Reserve your spot today at the link in bio!

#stoptheclot #bloodclots #vte #knowyourrisk #bloodclotsurvivor #bloodclotpatient #anticoagulants #peptalk #bloodclotwebinar #bloodclotrisk

Autumn shares how leg pain, initially dismissed as

Autumn shares how leg pain, initially dismissed as a cramp, led to a life-threatening pulmonary embolism. Her journey highlights the dangers of blood clots linked to birth control and immobility, the importance of recognizing symptoms, and the need for quick action.

Read more patient stories at the link in bio.

#stoptheclot #stoptheclotstory #vte #bloodclots #pulmonaryembolism #pe #pesurvivor #dvt #deepveinthrombosis #birthcontrol #bloodclotsurvivor #bloodclotpatient #bloodclotawareness

Attention, NBCA community! Are you (or someone yo

Attention, NBCA community!

Are you (or someone you know) an early-career scientist or clinical researcher passionate about advancing thrombosis research? The 2025 Jennifer Luft Emerging VTE Clinician Research Award is now accepting applications!

This $20,000 award supports individuals dedicated to improving the understanding and treatment of Venous Thromboembolism (VTE).

Applicants may be working in basic, translational, clinical, epidemiologic, bioengineering sciences, or any other field, but must be currently working on or planning a patient-oriented VTE project (e.g., studies of shared decision making, access to care, quality of life, health disparities, etc.).

The award is named in memory of Jennifer Luft, who suffered from pulmonary emboli in 2012 at age 23, resulting in an anoxic brain injury that left her unable to walk or talk. Jennifer’s family lovingly cared for her until her death in 2022. Inspired by her resilience, NBCA established this award in 2023 to honor Jennifer’s legacy.

Apply by Friday, February 28, 2025 at 11 p.m. ET. Head to the link in bio for more information about eligibility and to submit your application.

#stoptheclot #bloodclots #vteresearch #vteclinician #bloodclotresearch #jenniferluft
#pulmonaryembolism #pe #patientorientedresearch #emergingclinicians #emergingvteclinicians

Becoming a parent is life-changing, but for Kyra,

Becoming a parent is life-changing, but for Kyra, it also brought unexpected challenges when severe symptoms after childbirth were dismissed until it was almost too late. Her story sheds light on the risks of blood clots during pregnancy and postpartum, the importance of genetic testing, and the need for greater awareness.

Read more stories at the link in bio.

#stoptheclot #stoptheclotstory #bloodclots #vte #dvst #pregnancy #postpartum #fourthrimester #factorvleiden #FVL #proteinsdeficiency #bloodclotsurvivor #bloodclotawareness

Did you know there is little federal funding for b

Did you know there is little federal funding for blood clot education and awareness efforts in the United States? The National Blood Clot Alliance is on a mission to change that, and we need your help.

We are urging Congress to unlock funding for an expansion of educational and awareness programs to reach more people with life-saving information about blood clots.

It takes a village to raise awareness about this bipartisan issue. Getting involved is easy. Type in your address at the link below to share your story with your local representatives. Let your voice be heard!

👉 Take action at the link in bio (bit.ly/ClotAdvocate2025)

#stoptheclot #bloodclots #advocacy #calltoaction #contactyourreps #bloodclotadvocacy #bloodcloteducation #bloodclotfunding #bloodclotawareness #bloodclotprevention

NBCA Thrombassador program manager, blood clot sur

NBCA Thrombassador program manager, blood clot survivor, and proud U.S. Navy veteran Stephanie Martinez is raising blood clot awareness this weekend at the @CityofJax Veterans' Stand Down Resource Day.

Did you know that military personnel and veterans are at an increased risk for blood clots?

Several factors contribute to this elevated risk, including:

1. Injuries and surgeries: Combat-related injuries, surgeries, and prolonged immobility during recovery can increase clotting risk. These events often result in damage to blood vessels or periods of immobility, both of which are key risk factors.

2. Immobilization and long travel: Veterans often endure long travel times or may experience periods of restricted mobility, which are known to increase the risk of clots.

3. High levels of physical and emotional stress: Stress and conditions like post-traumatic stress disorder (PTSD), which is more common among veterans, can contribute to inflammation, which raises the risk for blood clots.

4. Underlying health conditions: Higher rates of hypertension, diabetes, and other cardiovascular issues in the veteran population can compound clotting risk.

Increased awareness among veterans and their healthcare providers is critical, as early detection and intervention are essential in preventing serious complications from blood clots. Awareness saves lives!

#stoptheclot #bloodclots #vte #veterans #thrombassador #bloodclotawareness #bloodcloteducation
@vanfsg @cityofjax

If you're at risk for blood clots or take anticoag

If you're at risk for blood clots or take anticoagulants, even routine procedures like dental work may require special considerations. Our February PEP Talk is here to help you prepare and stay safe.

Gain insights into how common procedures affect clotting risks, guidance on managing anticoagulation and medications, questions to ask your healthcare team and more.

This session will help you approach medical care with peace of mind.

📅 Secure your spot at the link in bio (https://bit.ly/Feb2025PEPTalk)

#stoptheclot #bloodclots #vte #dentalwork #medicalprocedures #knowyourrisk #bloodclotsurvivor #bloodclotpatient #anticoagulants #peptalk #bloodclotwebinar #bloodclotrisk

🎙️ New Episode Alert! 🎙️ Season 2, Epis

🎙️ New Episode Alert! 🎙️

Season 2, Episode 5 of Taking a Breath: A Stop the Clot podcast is now available on all major podcast platforms.

In this episode, listeners hear from Dave Hall, morning news anchor of Fox 5 Las Vegas. After tearing his Achilles tendon while playing pickleball in 2023, he developed a life-threatening saddle pulmonary embolism. Fortunately, he was treated with mechanical thrombectomy, providing immediate relief.

At his wife’s encouragement, he spoke about his blood clot experience during his newscast. To his surprise, the response he received from viewers was the was more significant than any story he had reported in his 30-plus years in the news business.

Thank you, Dave, for sharing your story and spreading life-saving awareness!

Listen at the link in bio or wherever you get your podcasts.

#stoptheclot #takingabreath #bloodclots #bloodclotpodcast #pe #pulmonaryembolism #bloodclotawareness #bloodclotsurvivor #davehall #mechanicalthrombectomy #thrombectomy

Despite following her medical team's instructions,

Despite following her medical team's instructions, Emily faced an unexpected challenge after hip surgery. Her story is a powerful reminder of why awareness and prompt action are so important.

👉Swipe through to read Emily's full story, and leave a comment if you can relate to this experience.

Read more patient stories at the link in bio.

#stoptheclot #bloodclots #pulmonaryembolism #pe #pesurvivor #hipsurgery #athlete #pulmonaryinfarction #bloodclotsurvivor #bloodclotawareness

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