I Started Losing My Vision: Lydia’s Story

(CVST) located in my superior sagittal sinus, right transverse, and sigmoid sinus. I also discovered I have factor II clotting disorder. That and hormonal birth control most likely contributed to…

Volunteer Spotlight: Alison Sneag

…near fatal, yet uncommon, sagittal sinus thrombosis/cerebral venous sinus thrombosis (CVST), or a clot in the large vein of the brain. Interested in learning more about blood clots, Alison attended…

I Was Dismissed Twice at the ER: Erin’s Story

…I was diagnosed with cerebral venous sinus thrombosis (CVST), a blood clot in the brain, and was put on an IV blood thinner. The doctors were amazed I didn’t die…