The Emotional Toll Has Been Challenging: Jenna’s Story
…cerebral venous sinus thrombosis, or CVST, which were blocking blood flow from my brain. By accident, the brain scan also saw the top portion of my lung where they found…
I Started Losing My Vision: Lydia’s Story
…(CVST) located in my superior sagittal sinus, right transverse, and sigmoid sinus. I also discovered I have factor II clotting disorder. That and hormonal birth control most likely contributed to…
Volunteer Spotlight: Alison Sneag
…near fatal, yet uncommon, sagittal sinus thrombosis/cerebral venous sinus thrombosis (CVST), or a clot in the large vein of the brain. Interested in learning more about blood clots, Alison attended…
I Was Dismissed Twice at the ER: Erin’s Story
…I was diagnosed with cerebral venous sinus thrombosis (CVST), a blood clot in the brain, and was put on an IV blood thinner. The doctors were amazed I didn’t die…