This Experience Cracked my Heart Open: Diane’s Story
…fatigue became a common occurrence. I’m now one-year post-CVST, still healing but optimistic and thankful I’m still here. I later tested positive for factor II prothrombin G20210A gene mutation, which…
I’m Living My Days to the Fullest: Elizabeth’s Story
…system in my brain, known as cerebral venous sinus thrombosis (CVST), which caused a stroke. I’d had a headache for six days and thought it was a migraine from stress….
World Thrombosis Day (October 13)
World Thrombosis Day shines a spotlight on blood clots—deep …
They Didn’t Believe My Pain: Meagan’s Story
…bleed” and transferred me to a larger hospital. There, we found that it was not a brain bleed but cerebral venous sinus thrombosis (CVST). I had multiple large clusters of…
The Last Thing I Remember Was Trying to Say, ‘Help me:’ Heather’s Story
…More precisely, I had CVST, or cerebral venous sinuous thrombosis. A blood thinner was immediately administered. After a few weeks of inpatient care, I was discharged and thrust into a…
Recovery is Not Linear: Desiree’s Story
…all blood clots because this condition can happen to anyone regardless of age, gender, or health status. I especially want to raise awareness of CVST. Symptoms often mimic more benign…
Mamas Get Blood Clots Too: Justine’s story
…but after talking to my doctor I was convinced to get an MRI, where they found a blood clot in my brain (CVT or CVST). I have since been on…
Never Ignore What Your Body Is Telling You: Annastasia’s Story
…had another seizure early the next morning. After being transferred to another hospital, I was diagnosed with cerebral venous sinus thrombosis (CVST)— a blood clot in my brain. I had…
I Had a Blood Clot in my Brain: Jacarra’s Story
…showed multiple blood clots in my brain, also known as cerebral venous sinus thrombosis (CVST). After a short hospital stay, I was prescribed anticoagulants (blood thinners) for six months and…
My Diagnosis Took Away the Excitement of My Pregnancy: Emmy’s Story
…not alone. However, my advice to others is: don’t Google! You only ever see the negative stories. Ask for support if you need it. Resources CVST Patient Stories Psychological Impact…