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National Blood Clot Alliance
PO Box 825687
Philadelphia, PA 19182-5687

Email: info@stoptheclot.org
Phone: 703.935.8845
Toll Free: 877.4.NO.CLOT

More Ways to Contact the National Blood Clot Alliance

Sign up for NBCA’s mailing list to receive news and updates concerning prevention, treatment, education and advocacy about blood clots and clotting disorders. Find out about NBCA-sponsored events and volunteer opportunities.

You can also connect with NBCA on Facebook, Twitter, Instagram and Pinterest.

Current News

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Apply for the Jennifer Luft Emerging VTE Clinician Research Award

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Advancing blood clot awareness, prevention, diagnosis & treatments to #stoptheclot. Submit your story @ link below ⬇️ Our podcast: Taking a Breath 🎙️

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We’re proud to share that the National Blood Clo

As told by Justin’s mother, Lauren:

“Justin’s experience with blood clots started as back pain after a hockey tournament. We went to the ER and were told it was spasms and to follow up with an orthopedic doctor.

Justin was diagnosed with a bulging disk and started physical therapy. In a month, we went to two ERs, an orthopedic specialist, two chiropractors, and a physical therapist to find answers.

By week four, we expressed concern to his strength coach because his legs felt tired, heavy, and swollen. He suggested pushing for another scan and blood work.

We took Justin to the hospital, where scans showed clots that began in his inferior vena cava vein in the abdomen and went down to the knees. He was admitted and started on heparin.

The next three days consisted of three surgeries. But after eight hours into the second surgery, his surgeon said that the clots turned into scar tissue and couldn’t be removed. But after eight more hours in the OR, they were able to remove the majority of the clots.

With no definitive reason why this happened, we went home on enoxaparin shots twice per day. He tested negative for genetic clotting disorders. It’s assumed that the clots were caused by dehydration and the long car ride, and turned into scar tissue because they were present for about four weeks. If a simple blood test been done, the clots would’ve been found earlier and wouldn’t have progressed.

Determined to return to the ice, his amazing hematologist agreed to learn from other doctors who work with athletes who have had clots. He looked at the whole child. Without hockey, Justin was susceptible to depression and anxiety; a return to normal life was imperative.

Justin returned to the ice three months later, on his 16th birthday. After his diagnosis, I found the National Blood Clot Alliance online. Advocating for your child and yourself is extremely important. Doctors told us he'd never play hockey again, but I knew there were alternatives because of NBCA’s website.

Find doctors who will listen. Justin’s clots progressed because he didn't fit the criteria. We are forever thankful to his coaches, doctors, and nurses who listened and saved him.”

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