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Take Our Survey

We are embarking on an important project to build patient education for the prevention of venous thromboembolism (VTE). This project has been funded by the Patient Centered Outcomes Research Institute (PCORI), approved by the Johns Hopkins Medicine Institutional Review Board and is in collaboration with the National Blood Clot Alliance (NBCA).

The purpose of this study is to identify and prioritize topics of importance to patients and their families regarding VTE prevention that may be used to better educate hospitalized patients.

This project will comprise of a series of up to 5 Web-based surveys. In this first survey, we will ask some information about your background (Web link below). Your input in this assessment is very important, but is also completely voluntary. We estimate that each survey should take less than 10 minutes to complete.

https://www.surveymonkey.com/s/ZPC9JHX

Thank you very much for your participation and your continued support.

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Help us prioritize educational topics of importance to patients & families for #DVT #PE #VTE prevention #PCORI #NBCA http://goo.gl/7ck3b1

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Pro Runner Sage Canaday Named Coach of Team Stop the Clot® for 2025 NYC Marathon

The National Blood Clot Alliance (NBCA) is thrilled to welcome professional runner and pulmonary embolism survivor Sage Canaday as Coach…

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MyMichigan Medical Center-Midland

NBCA Designates a Michigan Hospital as First DVT Center of Excellence™ in the U.S.

NBCA is honored to announce MyMichigan Medical Center Midland as the first hospital in the U.S. to be designated a…

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Advancing blood clot awareness, prevention, diagnosis & treatments to #stoptheclot. Submit your story @ link below ⬇️ Our podcast: Taking a Breath 🎙️

Compression socks: love them or hate them, they ca

Compression socks: love them or hate them, they can make a big difference after a blood clot, but only if you use them correctly.

Join us for a live PEP Talk on Monday, July 8 at 7 p.m. ET as Dr. Suman Wasan of UNC Chapel Hill returns to discuss compression and answer your questions, including:

🧦 How tight is too tight?
🛌 Should you wear them to bed?
💬 What if they cause pain or bruising?

This is NBCA’s most-attended PEP Talk topic for a reason! Don’t miss the chance to learn what works, what doesn’t, and how to get relief.

🔗Register at the link in bio.

#stoptheclot #bloodclots #compression #compressionsocks #bloodclotprevention #deepveinthrombosis #dvt #bloodclotawareness #bloodcloteducation #compressionhumor

Did you know that when you travel, there is an eas

Did you know that when you travel, there is an easy way to communicate that you have a history of blood clots and take blood thinners in the event of an emergency?

The American College of Emergency Physicians advises people to wear medical ID jewelry if they have experienced blood clots, or if they take blood thinners, which can pose bleeding risks.

Many online sellers offer inexpensive, customizable medical ID bracelets, silicone wristbands like the ones pictured here, and necklaces.

The alert should include your major medical conditions, such as a history of pulmonary emboli (PE), medications you’re currently taking, such as your anticoagulant, and the name and phone number of an emergency contact.

Do you wear medical ID jewelry when you travel? Show us a photo or tell us in the comments!

🔗 More safe travel tips for blood clot patients: Link in bio.

#stoptheclot #bloodclots #travelsafety #medicalalert #medicalalertband #bloodthinners #anticoagulants #bloodthinnerbracelet

Shytasia was at work when she experienced sensory

Shytasia was at work when she experienced sensory impairment. At the hospital, while struggling to breathe, her symptoms were initially dismissed until fellow patients insisted she be seen. Doctors found a life-threatening pulmonary embolism.

Now, Shytasia is focused on healing, self-advocacy, and living every moment with purpose.

👉 Swipe through to read Shytasia’s full story.

🔗 Read more patient stories: Link in bio.

#StopTheClot #StopTheClotStory #BloodClots #PulmonaryEmbolism #BloodClotAwareness

As the summer season kicks off and travel plans ta

As the summer season kicks off and travel plans take flight, let’s talk about compression! Wearing compression socks can help blood clot patients improve circulation, reduce swelling, and enhance daily comfort. But did you know that not all types of compression are created equal?

Choosing the right type of compression involves understanding your specific needs and the differences in compression levels, design, material, fit, and quality.

Come as you are to our next PEP Talk on Tuesday, July 8 at 7 p.m. ET, where we’ll be discussing all things compression with Dr. Suman Wasan, Clinical Professor of Medicine at the University of North Carolina at Chapel Hill.

You won’t want to miss this one! 🔗 Register: Link in bio.

#stoptheclot #bloodclots #compression #compressionsocks #bloodclotprevention #deepveinthrombosis #dvt #bloodclotawareness #bloodcloteducation

🏅Countdown to race day! In November, Team Stop

🏅Countdown to race day! In November, Team Stop the Clot will hit the streets for 2025 TCS New York City Marathon and their training is in high gear.

Over the next four months, we’re introducing you to the inspiring runners who are clocking the miles, sharing their stories, and raising funds for NBCA.

🏃‍♀️ Lydia Benjamin of Irvine, CA shares why she’s running for Team Stop the Clot:

“In 2024, I lost my dad to a blood clot. After retiring in April 2024, he began biking 100 miles a week. I picked up running in 2023, so we bonded over our progress and Strava achievements. In June 2024, my dad shattered pelvis in a bike accident. The surgery to repair his hip and pelvis was successful, but after being bedridden due to orthostatic hypotension, he passed away 12 days later due to multiple blood clots in his lungs. Team Stop the Clot provides the opportunity to do something my dad would be unbelievably proud of.”

Let’s support Lydia as she trains for the marathon! Leave a comment to help cheer her on. 🔗Learn more: Link in bio.

#stoptheclot #teamstoptheclot #bloodclots #nycmarathon #bloodclotawareness #bloodclotprevention

We’re thrilled to welcome pro runner and pulmona

We’re thrilled to welcome pro runner and pulmonary embolism survivor Sage Canaday as coach of Team Stop the Clot for the 2025 TCS NYC Marathon!

With top finishes at Boston and NYC and as co-founder of the training program Higher Running, Sage brings elite experience and personal passion to this role.

After surviving a bilateral PE in 2021, Sage is now guiding 18 runners virtually — many of them survivors — as they train, heal, and raise lifesaving awareness.

“Serving as coach for Team Stop the Clot is a profound honor,” Sage says. “I run not only for personal achievement but for those who can’t, for those in recovery, and for the memory of those we’ve lost.”

We’re so excited to have him on the team! Learn more: Link in bio.

@nyrr
#StopTheClot #TSCNYCMarathon #NYCMarathon #SageCanaday #PESurvivor

Diane was working from home when she noticed stran

Diane was working from home when she noticed strange typing errors, walked into a cabinet, and collapsed. She ended up in the ICU, diagnosed with a cerebral venous sinus thrombosis (CVST), a rare and serious type of blood clot in the brain.

Diane later learned she has factor II prothrombin gene mutation, a risk factor for clots. A year later, she’s still healing but grateful for a second chance.

👉 Swipe through for Diane’s full story and read more patient stories at the link in bio.

#StopTheClot #StopTheClotStory #CVST #BloodClots #VTE #BrainBloodClot #BloodClotAwareness

Join us Tuesday, July 8 at 7 p.m. ET for a PEP Tal

Join us Tuesday, July 8 at 7 p.m. ET for a PEP Talk on compression—back by popular demand!

We’re excited to welcome Dr. Suman Wasan of the University of North Carolina at Chapel Hill for her third annual PEP Talk on compression. With more than 500 people joining us last summer, this has become our most popular PEP Talk topic.

If you’re dealing with pain, swelling, or discomfort after a blood clot, or just curious about how compression works, this is your chance to hear directly from an expert, get the latest guidance, and ask questions.

Whether you’re newly diagnosed or navigating life after a clot, this conversation is for you.

🔗Register: Link in bio.

#stoptheclot #bloodclots #compression #compressionsocks #deepveinthrombosis #dvt #bloodclotawareness #bloodcloteducation

It’s a wrap on our National Hydration Day giveaw

It’s a wrap on our National Hydration Day giveaway, and we have our winners! 🎉

Congratulations to Tracy, Colleen, and Katelyn, who will each receive a 32oz. stainless steel NBCA water bottle to help them stay hydrated and #StopTheHot this summer!

If you’d like to purchase one, just visit our online store.

Even though the giveaway is over, the message remains: Staying hydrated is an important step in reducing your risk for blood clots. Drink up and stay safe! 💧

#stoptheclot #stopthehot #nationalhydrationday #bloodclots #stayhydrated #bloodclotprevention #bloodcloteducation #bloodclotawareness #drinkmorewater

We’re honored to spotlight Arshell Brooks‑Harr $We’re honored to spotlight Arshell Brooks‑Harris, NBCA’s dedicated Board Secretary, and her husband Andre Harris, whose tireless support has strengthened our mission in countless ways. Based in New York City, Arshell became involved with NBCA after her eldest daughter, Leschel, died of a pulmonary embolism in 2020 following a fractured ankle. Since then, Arshell and Andre have become a powerhouse duo in the fight against blood clots. They both serve as NBCA Thrombassadors, engaging directly with their local community to share Leschel’s story and educate others about clot risks and symptoms. Their work goes far beyond their local community, though. For example, in March, they took part in NBCA’s advocacy efforts on Capitol Hill and met with Congressional offices about increasing funding for blood clot awareness and education. The following day, they started a month-long, 1,650-mile trip bringing life-saving information about blood clots to predominantly Black communities across the Southern U.S. Now, Arshell and Andre are preparing for their annual summer barbecue and awareness event in memory of Leschel. “Before Leschel’s passing, I didn’t know a PE could be fatal,” Arshell says. “Now, every event, every connection, is to honor her legacy and protect others.” Thank you, Arshell and Andre, for your heartfelt dedication and advocacy.$

Today is National PTSD Awareness Day — a reminde

Today is National PTSD Awareness Day — a reminder that trauma isn’t always visible.

Many blood clot survivors face lasting psychological effects, but mental health is often left out of the recovery conversation.

In 2021, NBCA conducted the largest-ever survey on the emotional impact of blood clots. The CLUES study (Critical Look at Understanding the Emotional Suffering of Blood Clot Survivors) gathered insights from more than 3,300 survivors, highlighting the urgent need to support both body and mind.

Let’s change the way we talk about recovery. Learn more and explore resources: 🔗 in bio.

#stoptheclot #bloodclots #nationalptsdday #ptsd #posttraumaticstressdisorder #mentalhealth #mentalhealthmatters #bloodclotsurvivor

Connie was active and healthy when pelvic pain and

Connie was active and healthy when pelvic pain and fatigue led to a life-threatening diagnosis: a massive DVT, multiple PEs, and May-Thurner syndrome just weeks after switching to estrogen-based birth control.

Now on blood thinners, she’s navigating a tough recovery and anxiety, but she’s grateful for the support helping her move forward.

🔗More stories: Link in bio.

#StopTheClot #StopTheClotStory #PulmonaryEmbolism #DeepVeinThrombosis #MayThurnerSyndrome

🏅Countdown to race day! In November, Team Stop

🏅Countdown to race day! In November, Team Stop the Clot will hit the streets for 2025 TCS New York City Marathon and their training is in high gear.

Over the next five months, we’re introducing you to the inspiring runners who are clocking the miles, sharing their stories, and raising funds for NBCA.

🏃‍♀️ Kelly Moon of West Point, Iowa shares why she’s running for Team Stop the Clot:

“After my mother’s death from a PE, the National Blood Clot Alliance has helped me turn my anxiety, anger, and tragedy into hope, strength, and perseverance. My goal for completing this marathon is to use my newly founded hope, strength, and perseverance to help save lives by spreading blood clot awareness.”

🔗Support Kelly’s fundraiser for NBCA at the link in bio.

#stoptheclot #teamstoptheclot #bloodclots #nycmarathon #bloodclotawareness #bloodclotprevention

We're thrilled to welcome Gerald “Gerry” Tracy

We're thrilled to welcome Gerald “Gerry” Tracy, JD, MPH, to NBCA’s Board of Directors!

A public health attorney, VTE, and longtime advocate, Gerry brings decades of experience in healthcare innovation and a deeply personal commitment to preventing blood clots.

After losing multiple family members to blood clots and facing his own diagnosis, Gerry became a powerful force for change, advocating for research, awareness, and better care for families like his.

We're honored to have his voice and leadership guiding our work. Welcome, Gerry!

Read Gerry’s story: 🔗in bio.

#StopTheClot #VTE #NBCABoard #BloodClotAdvocacy #BloodClots

🥵 It’s National Hydration Day! Not only that,

🥵 It’s National Hydration Day! Not only that, parts of the country are experiencing sweltering temperatures, so it’s a perfect time to talk about the role fluids play in blood clot prevention.

When we don't consume enough fluids, our blood can become more prone to clotting. Dehydration reduces the volume of water in our blood, making it easier for platelets and other blood cells to stick together and form clots.

To help promote hydration and #StopTheHot, we’re giving away three of our 32oz. stainless steel NBCA water bottles!

🔗Just go to the link in bio, enter your name and email between now and 11:59 p.m. on Thursday, June 26 for a chance to win.

#stoptheclot #stopthehot #nationalhydrationday #bloodclots #stayhydrated #bloodclotprevention

💗We've officially hit 10,000 members in our blo

💗We've officially hit 10,000 members in our blood clot support group, a bittersweet milestone.

In just a few short years, this community has become a lifeline for thousands affected by blood clots. Every member represents a story—of survival, loss, and strength—and a reminder of how urgently awareness and prevention are still needed.

As Todd Robertson, the group’s admin, shares:

“While it warms my heart to see so many people finding comfort and connection, it also reminds me of the work still ahead when it comes to prevention. As a seven-time blood clot survivor myself, I know how important these connections are. NBCA has been a lifeline for me, just as it’s been for countless others.”

This isn’t just a number. It’s 10,000 people lifting each other up, every single day.

If you're one of them, we’d love to hear from you. Share in the comments how this group has helped you feel seen, supported, or understood.

🔗If you haven’t joined yet, we’d love to have you: bit.ly/BloodClotSupportGroup (link in bio)

#StopTheClot #BloodClots #VTE #BloodClotSupportGroup #BloodClotRecovery

Just weeks after getting married, Kassandra tragic

Just weeks after getting married, Kassandra tragically passed away due to a blood clot following routine knee surgery.

Despite following all recovery instructions and being aware of blood clot risks, her condition progressed quickly, and she didn’t make it to the hospital.

Blood clots can happen to anyone, even young, healthy people, and they can become life-threatening in minutes.

Sending our condolences to Danny and everyone who knew Kassandra.

@midwest_meditations_

#StopTheClot #StopTheClotStory #BloodClots #DVT #DeepVeinThrombosis #PE #PulmonaryEmbolism #BloodClotFatality #OrthopedicSurgery #KneeSurgery

After days of unexplained leg pain and shortness o

After days of unexplained leg pain and shortness of breath, Karla was misdiagnosed with a muscle cramp and told to get a massage. Days later at a second hospital, she was diagnosed with a PE caused by a DVT in her calf.

The source: supplemental estrogen prescribed for perimenopausal symptoms.

Karla’s story underscores the importance of listening to your body and pushing for answers. It could make all the difference.

More stories: Link in bio.

#StopTheClot #StopTheClotStory #PulmonaryEmbolism #DeepVeinThrombosis #Estrogen

🧦 Compression socks are having a moment! As hi

🧦 Compression socks are having a moment!

As highlighted in Business Insider, more Millennials and Gen Zers are using compression wear to support circulation, ease soreness, and stay proactive about their health.

For people with a history of DVT, compression socks can also be an important tool for managing symptoms like pain and swelling.

Want to learn more about how and when to use compression?

🗓️ Join our next PEP Talk on Tuesday, July 8 at 7 p.m. ET with Dr. Suman Wasan of @UNC.

We’ll cover the latest in compression therapy and answer your questions. Don’t miss it! Register and read the @BusinessInsider piece at the link in bio.

#stoptheclot #bloodclots #compression #compressionsocks #deepveinthrombosis #dvt #bloodclotawareness #bloodcloteducation

Karen D. Adams, who coordinates health equity prog

Karen D. Adams, who coordinates health equity programs at the National Blood Clot Alliance, was featured in Pride Magazine NC for sharing her journey surviving multiple pulmonary emboli.

“I turned my pain into purpose,” she said, describing how her near-death experience led her to advocacy.

Blood clot risk is disproportionately higher in Black Americans—up to 60% more—and Karen is working to close that gap through education and outreach.

She’s leading efforts like NBCA’s Stop the Clot B.L.A.C.K. Church Bus Tour—Black Lives Advocating for Clot Knowledge—which brought life-saving information directly to underserved communities throughout the South during March for Blood Clot Awareness Month.

“We were able to reach and teach so many people,” she said of the Charlotte stop, where volunteers literally saved a life.

Stay tuned for more details as NBCA continues its work to empower and protect those most at risk.

This Juneteenth, we honor the freedom to live fully, and the right to health education that helps make that possible.

#stoptheclot #juneteenth #freedomday #bloodclotawareness #pridencmagazine #healthinequities #healthdisparities

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