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Johns Hopkins All Children’s Hospital Named Nation’s First Pediatric National Blood Clot Alliance VTE Center of Excellence™

A new national benchmark in pediatric venous thromboembolism (VTE) care St. Petersburg, FL – The National Blood Clot Alliance (NBCA)…

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Vein and Vascular Institute Named Nation’s First National Blood Clot Alliance Community DVT Excellence Center

FOR IMMEDIATE RELEASE Voorhees, NJ – The National Blood Clot Alliance (NBCA) is proud to announce the designation of Vein and…

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Advancing blood clot awareness, prevention, diagnosis & treatments to #stoptheclot. Submit your story @ link below ⬇️ Our podcast: Taking a Breath 🎙️

🌍 This World Health Day (April 7), we stand wit

🌍 This World Health Day (April 7), we stand with science.

Scientific research and collaboration have transformed how we prevent, diagnose, and treat blood clots—saving lives every day. From improved medications to additional treatment options and more personalized care, these advancements are only possible because of ongoing research and shared knowledge across the global health community.

At the National Blood Clot Alliance, we see the impact of science through the stories of patients, caregivers, clinicians, and researchers working together to Stop the Clot®.

This year’s theme—“Together for health. Stand with science”—is a reminder that progress doesn’t happen in isolation. It happens when we support research, listen to evidence, and work together to turn knowledge into action.

💙 Join us in standing with science—because it saves lives.

#WorldHealthDay #StandWithScience #StopTheClot #BloodClotAwareness #PublicHealth #Healthcare #VTE #DVT #PulmonaryEmbolism

National Public Health Week (April 6 - 12) reminds

National Public Health Week (April 6 - 12) reminds us:

Good health doesn’t just happen.
It takes action—from policymakers, healthcare professionals, communities, and individuals.

At the National Blood Clot Alliance, we see this every day.
Blood clots affect up to 900,000 Americans each year—and many are preventable.

That’s why this year’s theme, “Ready. Set. Action!”, matters. Because when it comes to blood clots, action can save lives.

This week, we’re sharing simple actions you can take to reduce your risk, recognize the signs, and advocate for your health.

👉 Start by knowing your risk: https://bit.ly/AssessYourClotRisk

#NPHW #ReadySetAction #StopTheClot #PublicHealth #nationalbloodclotalliance #nbca #bloodclot #pulmonaryembolism #NationalPublicHealthWeek

@americanpublichealth

Julia was told it probably wasn’t a blood clot.

Julia was told it probably wasn’t a blood clot.

After major abdominal surgery, she developed calf pain and shortness of breath—but because her symptoms seemed “mild,” her concerns were dismissed.

Weeks later, her symptoms worsened until she was short of breath from simply sitting in chair. Finally, a doctor directed her to the ER.

There, doctors discovered multiple large blood clots in both lungs, severe heart strain, and elevated cardiac markers. She required emergency treatment.

Her message: “We are not invincible… Don’t stop advocating for yourself!”

@juliabracewell
#StopTheClot #BloodClotAwareness #PulmonaryEmbolism #WomensHealth #BirthControl #PatientAdvocacy #ListenToYourBody

Chelsey had an idea—and turned it into impact.

Chelsey had an idea—and turned it into impact.

By creating and selling handmade resin lung keychains, she raised $684 to support blood clot awareness, education, and patient support.

The best part?

👉 Anyone can do this.

Whether it’s baking, running, crafting, or sharing your story—your fundraiser can help save lives.

🩸 Start your own fundraiser in minutes

🔗bit.ly/DIYfundraiser2026 (or link in bio)

#StopTheClot #BloodClotAwareness #Fundraiser #MakeAnImpact #bloodclotsurvivor #pulmonaryembolism

Have you or a loved one been recently diagnosed wi

Have you or a loved one been recently diagnosed with a blood clot and struggling with the emotional/psychological impact?

Join us for our April PEP Talk: Navigating Emotional Trauma Post Blood Clot: The Symptom Nobody Mentioned

We’ll be joined by Dr. Leben Tefera, MD, Staff physician, Department of Cardiovascular Medicine at the Cleveland Clinic and member of NBCA’s Council of Emerging Researchers in Thrombosis, to shed light on the emotional and psychological experiences many people face after a clot — and why acknowledging them matters.

Date/Time: 🗓 April 14 at 7:00 pm ET
🔗 Register: https://bit.ly/AprilPEP2026

#bloodclots #pulmonaryembolism #medicalPTSD #healthanxiety #stoptheclot

On Sunday, May 3, 2026, cyclists from around the w

On Sunday, May 3, 2026, cyclists from around the world will take on a once-a-year experience: riding 40 car-free miles through all five boroughs of New York City. Whether you’re a first-time rider or a seasoned cyclist, it’s an unforgettable way to see the city.

Ride with Team Stop the Clot—sport our signature red polka dots and help raise awareness about blood clots.

Don’t wait! A limited number of charity bibs are still available.
Learn more and register: [bit.ly/2026TDFiveBoroBikeTour](http://bit.ly/2026TDFiveBoroBikeTour)
(or find the link in our bio)

#StopTheClot #TDFiveBoroBikeTour #BikeNewYork #BloodClotAwareness #TeamStopTheClot #nationalbloodclotalliance @bikenewyork

Blood Clot Awareness Doesn’t End in March. Marc

Blood Clot Awareness Doesn’t End in March.

March may be over, but the risk of blood clots isn’t—and neither is the need for awareness.

During Blood Clot Awareness Month, thousands of you showed up: learning the signs, sharing resources, advocating for yourselves and others, and helping us reach more people than ever before.

But here’s the reality:

Blood clots can happen anytime, to anyone—and early recognition can save lives.

That’s why knowing the signs and symptoms—and feeling empowered to speak up when something doesn’t feel right—still matters every single day.

🩸 Learn the signs and symptoms: https://www.stoptheclot.org/learn_more/signs-and-symptoms-of-blood-clots/

📣 Keep sharing. You never know who might need to see this.

#stoptheclot #strongenoughtoask #bloodclots #bloodclotawarenessmonth #bcam2026 #vte #dvt #pe #deepveinthrombosis #pulmonaryembolism #bloodclotawareness #bloodcloteducation #knowthesigns

Be the first to hear about events like our monthly

Be the first to hear about events like our monthly PEP Talks, new blood clot awareness and education resources; updates on our advocacy initiatives, and more.

Subscribe to our email list and never miss a beat:
bit.ly/nbcaemail
(or find the link in our bio)

#nbca #nationalbloodclotalliance #stoptheclot

Carrie knew something wasn’t right. After weeks

Carrie knew something wasn’t right.

After weeks of severe pain, multiple ER visits, and being told it was “abdominal pain” or “possible pneumonia,” she trusted her instincts and pushed for answers.

“I believe I've got another pulmonary embolism.”

She was right.

Carrie was diagnosed with multiple blood clots in both lungs, partial lung collapse, and tissue damage. A survivor of a previous pulmonary embolism, she recognized the signs—and advocated for herself when no one else would.

Her message: “Trust your body & demand the proper treatment because your life depends on it.”

#StopTheClot #BloodClotAwareness #PulmonaryEmbolism #ClottingDisorder #FactorVLeiden #PatientAdvocacy #ListenToYourBody

🩸 A milestone worth noting: Our support group h

🩸 A milestone worth noting: Our support group has grown to 12,000 members.

While we’re proud of this community, we also recognize what that number represents—more individuals and families navigating the challenges of blood clots.

Behind that number are thousands of stories, questions, fears, and victories—and people who choose to show up for each other through it all.

If you’ve ever felt alone in your experience with a blood clot, this space exists for you. 💙

🔗Join us: https://www.facebook.com/groups/stoptheclot/

#StopTheClot #BloodClotAwareness #BloodClotSupport

Health outcomes shouldn’t depend on who you are

Health outcomes shouldn’t depend on who you are or where you live—but too often, they still do.

Some communities face higher risks, delayed diagnoses, and less access to care. This is in addition to the fact that blood clots are a leading cause of preventable hospital death in the United States.

That’s why April was designated National Minority Health Month by the U.S. Department of Health and Human Services.

Awareness is the first step. Action is what changes outcomes.

#NationalMinorityHealthMonth #HealthEquity #StopTheClot

Hazel thought she had the flu. But when she bent

Hazel thought she had the flu.

But when she bent over to take out the trash, she suddenly felt like “a ton of weights” were on her chest. Hours later, she drove herself to the ER, where a CT scan revealed a pulmonary embolism. She was immediately transferred to the ICU.

Hazel had experienced a blood clot before and has now been diagnosed with a clotting disorder. Today, she remains on lifelong blood thinners and continues to recover while navigating ongoing symptoms.

“I AM A WOMAN OF GREAT FAITH… MY FAITH IS BEING TESTED.”

Her message: don’t ignore symptoms. What feels minor could be life-threatening.

#StopTheClot #StopTheClotStory #BloodClotAwareness #PulmonaryEmbolism #ClottingDisorder #PatientStory #ListenToYourBody #WomensHealth

🩸 Blood Clot Awareness Month is almost over—b

🩸 Blood Clot Awareness Month is almost over—but this work must continue.

This March, together, we:
✔️ Reached millions through our Strong Enough to Ask campaign—including a national PSA from Senator Lisa Blunt Rochester
✔️ Supported 500+ newly diagnosed patients through our March PEP Talk
✔️ Mobilized advocates in all 50 states—sending nearly 700 messages to Congress
✔️ Met with 50+ congressional offices on Capitol Hill to push for change
✔️ Launched the Community DVT Excellence Program and designated the first site
✔️ Named the nation’s first Pediatric VTE Center of Excellence™
✔️ Reached communities nationwide through volunteer-led awareness efforts
✔️ Shared powerful patient and athlete stories to encourage self-advocacy
✔️ And so much more!

This is the impact of ONE month.

But blood clots don’t stop when March ends.
Every 6 minutes, someone in the U.S. dies from a blood clot.

If you’ve been touched by a blood clot…
If you believe this work matters…
If you’ve been thinking about giving...
This is the moment.

👉 Please consider making a donation today: bit.ly/GIVE2026 (link in bio)

#StopTheClot #StrongEnoughToAsk #BCAM2026 #BloodClots #VTE #DVT #PE

Have you or a loved one been recently diagnosed wi

Have you or a loved one been recently diagnosed with a blood clot and struggling with the emotional/psychological impact?

Join us for our April PEP Talk: Navigating Emotional Trauma Post Blood Clot: The Symptom Nobody Mentioned

PEP Talk hosts, Leslie Lake and Todd Robertson (both blood clot survivors), will be joined by Leben Tefera, MD, Staff physician, Department of Cardiovascular Medicine at the Cleveland Clinic and member of NBCA’s Council of Emerging Researchers in Thrombosis.

Together, they’ll shed light on the emotional and psychological experiences many people face after a clot — and why acknowledging them matters.

🗓 April 14 at 7:00 pm ET
🔗 Register: https://bit.ly/AprilPEP2026

#bloodclots #pulmonaryembolism #medicalPTSD #healthanxiety #stoptheclot

🩸 A first for pediatric blood clot care 🩸 C

🩸 A first for pediatric blood clot care 🩸

Children can develop blood clots—and too often, they’re underrecognized. That’s why this matters. 👇

The National Blood Clot Alliance has named Johns Hopkins All Children’s Hospital the nation’s first Pediatric VTE Center of Excellence™.

💡 What this means:

• Earlier recognition of blood clots
• Coordinated, expert care
• Better outcomes for children and families

💬 “The most important thing for us was to find someone who was knowledgeable and who truly cared. To find a team of experts who not only participated in clinical research, but who also really listened to our family — it has made all the difference for Luka.”

— Emanuelle, Luka’s mother

This is more than a designation—it’s a step forward in ensuring children receive the lifesaving care they deserve.

Read more: https://bit.ly/JHACHPediatricCOE(or link in bio)

hopkinsallchildrens

#StopTheClot #PediatricBloodClots #BCAM2026 #BloodClots #dvt

March is Blood Clot Awareness Month, making it the

March is Blood Clot Awareness Month, making it the perfect time to spotlight an often overlooked but life-threatening complication in cancer care: blood clots.

Volunteer President and Board Chair of the National Blood Clot Alliance, Leslie Lake, talks about the importance of awareness, prevention, and patient education around venous thromboembolism (VTE) on the NCODA Podcast (Network for Collaborative Oncology Development & Advancement).

Her powerful personal story and advocacy work highlight what every oncology team should know to improve patient outcomes and support.

Listen to the full episode, here: https://www.ncoda.org/resource/preventing-blood-clots-in-cancer-care/

@ncodaorg
#bloodclots #oncology #pulmonaryembolism #NBCA #nationalbloodclotalliance #NCODA

Today, on National Doctors’ Day, we recognize th

Today, on National Doctors’ Day, we recognize the clinicians who go beyond treating conditions to truly *listen, learn, and partner* with patients.

“What drew me to NBCA was its unwavering commitment to placing patients at the center of everything it does,” said Dr. Rushad Patell, Chair of NBCA’s Council of Emerging Researchers in Thrombosis (CERT).

“The organization does more than raise awareness. It builds meaningful partnerships between patients, clinicians, and researchers. Since I began working with them, my own work has been truly enriched by perspectives I had not fully appreciated before.”

At NBCA, we believe better outcomes start with collaboration—and we are grateful to work alongside physicians who are committed to learning from and with the patients they serve.

Thank you for all that you do to help stop the clot. 🩸

Read the full article: https://www.rarediseaseadvisor.com/news/national-blood-clot-alliance-close-awareness-gaps-venous-thromboembolism/

#NationalDoctorsDay #StopTheClot #PatientCenteredCare #VTE #BloodClots

National Doctors' Day is celebrated annually on Ma

National Doctors' Day is celebrated annually on March 30 in the United States to recognize physicians' contributions to individual and community health.

Established officially in 1991, this day offers patients and healthcare organizations an opportunity to express gratitude for the dedication, care, and sacrifices of doctors.

On National Doctors’ Day, Tag a doctor who showed up when it mattered most, or drop a comment about your experience below.

#nationaldoctorsday #bloodclotawarenessmonth #BCAM2026 #stoptheclot #nationalbloodclotalliance #doctorswhocare

Lucy is a 3x DVT survivor. Her story started durin

Lucy is a 3x DVT survivor. Her story started during pregnancy, when warning signs were there, but attempts to get them looked into were to no avail.

After an emergency C-section, she had pain in her left leg and assumed it was related to the surgery. About a week later, it got so bad that no amount of raising it or pillows made her feel better — she was dragging her leg.

She didn’t know what a blood clot was, but she knew something was wrong.

At the hospital, she was diagnosed with a DVT, and later with Factor V Leiden and Factor II.

Her later clots didn’t look how you’d expect — no swelling, no redness, no severe pain. It just felt like she pulled a muscle.

Her message is clear: ALWAYS listen to your inner voice or intuition. Don’t wait — go directly to the emergency room.

Read her full story, here: https://www.stoptheclot.org/patient-stories/lucys-story-3/

#StopTheClot #BloodClotAwareness #DVT #FactorVLeiden #ClottingDisorder #WomensHealth #KnowYourRisk #BloodClots

Recording Available: Join us for an in-depth overv

Recording Available: Join us for an in-depth overview of the National Blood Clot Alliance (NBCA) VTE Centers of Excellence (COE) Program, featuring program VP, Erin VanDyke, PA-C, MPAS and interventional radiologist at NBCA’s inaugural COE, Michael Knox, M.D., FACR.
Venous thromboembolism (VTE) remains a leading cause of preventable hospital-related illness and death. This webinar will highlight the COE program’s standards and designation criteria, key components of high-performing VTE programs, and practical strategies for building sustainable, system-wide approaches to prevention, diagnosis, treatment, and follow-up care.
Designed for healthcare professionals and hospital administrators, this session will offer actionable guidance on strengthening VTE initiatives, improving quality and safety outcomes, positioning your organization as a leader in comprehensive thrombosis care, and how to become a VTE Center of Excellence.
🎥 Watch: YouTube @stoptheclot
https://www.youtube.com/watch?v=fcfk9-LEQTE

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