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April 2021

April e-Newsletter: Spring Forward with NBCA

Join the National Blood Clot Alliance as we spring forward this April with news, information, …

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Charitable Giving is Changing in 2026 What Every Donor Should Know

Charitable Giving Is Changing in 2026: What Every Donor Should Know

Starting in 2026, new federal tax rules will affect how charitable giving is treated — and when you choose to…

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National Blood Clot Alliance (NBCA) Announces Key Medical Leadership Updates to Advance Global Mission Against Venous Thromboembolism

NBCA Announces Key Medical Leadership Updates to Advance Global Mission Against Venous Thromboembolism The National Blood Clot Alliance (NBCA) today…

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Advancing blood clot awareness, prevention, diagnosis & treatments to #stoptheclot. Submit your story @ link below ⬇️ Our podcast: Taking a Breath 🎙️

HAPPENING TONIGHT: Join our November PEP Talk at 7

HAPPENING TONIGHT: Join our November PEP Talk at 7 p.m. ET to learn about thrombophilia testing while on blood thinners — what it is, when to do it, and how it can guide your care.

Get expert insight from Dr. Dana Angelini and hear from patients who’ve been through the process.

💻 Register: Link in bio.

#StopTheClot #PEPTalk #ThrombophiliaTesting #BloodClots #BloodClottingDisorderTesting

🎖️ This Veteran’s Day, we honor those who h

🎖️ This Veteran’s Day, we honor those who have served — and continue to serve — our country with courage and sacrifice.
As we salute our heroes, we’re also raising awareness about an important health issue affecting many in the military and veteran community: blood clots.

Military personnel and veterans face a higher risk for developing blood clots due to factors like:

1️⃣ Injuries and surgeries: Combat-related trauma, surgical recovery, and long periods of immobility can damage blood vessels and increase clotting risk.

2️⃣ Prolonged immobility and travel: Extended flights, deployments, or recovery periods with limited movement can all contribute to clot formation.

3️⃣ High stress levels: Physical strain and emotional stress, including post-traumatic stress disorder (PTSD), may cause inflammation that elevates clotting risk.

4️⃣ Underlying health conditions: Veterans have higher rates of hypertension, diabetes, or other cardiovascular conditions that can further increase risk.

🩸 Recognizing the signs — leg pain or swelling, chest pain, or shortness of breath — can lead to faster diagnosis and lifesaving treatment.

Today and every day, we honor our veterans by protecting their health and spreading awareness that saves lives.

🔗 Learn about the signs and symptoms of blood clots: Link in bio.

#StopTheClot #VeteransDay #BloodClotAwareness #VeteransAndBloodClots #VeteransBloodClotRIsk

🚲 The National Blood Clot Alliance is thrilled

🚲 The National Blood Clot Alliance is thrilled to return as an official charity partner of the 2026 TD Five Boro Bike Tour, hosted by Bike New York!

On Sunday, May 3, 2026, cyclists from around the world will roll through all five boroughs of New York City — 40 miles, zero cars, and one unforgettable ride. Whether you’re a seasoned rider or a first-timer, there’s no better way to experience NYC.

By joining Team Stop the Clot for this event, you’ll be part of the most supportive and spirited charity teams around, wearing our signature red polka dots and raising awareness about blood clots while supporting NBCA’s life-saving mission.

NBCA has 20 guaranteed entries for this year’s event. Each participant is required to raise $1,500 before the event.

🚲 Learn more and register: Link in bio!

#StopTheClot #TDFiveBoroBikeTour #BikeNewYork #BloodClotAwareness #TeamStopTheClot

🏒 Today we’re thinking of @Penguins forward @

🏒 Today we’re thinking of @Penguins forward @FilipHallander, who was recently diagnosed with a blood clot in his leg and is expected to be sidelined for at least three months.

Although pro athletes are often young and healthy, the physical demands of sports can raise clot risk:

• Dehydration from intense training

• Injuries or surgeries that limit movement

• Long travel to games or events

• Repetitive motions that compress veins (like pitching or cycling)

Knowing the signs, including sudden arm or leg pain and swelling or unexplained shortness of breath, can save lives.

The National Blood Clot Alliance wishes Filip a full and speedy recovery.

🔗 Read more about athletes and blood clots: Link in bio

🔗 Read more about Hallander: Link in bio

#StopTheClot #DVT #PittsburghPenguins

HAPPENING TOMORROW: Why do blood clots happen and

HAPPENING TOMORROW: Why do blood clots happen and can testing reveal the cause?

Join our next PEP Talk TOMORROW at 7 p.m. ET to learn when and how to test, especially while taking a blood thinner

We’ll cover:

✅ What thrombophilia testing involves and what it looks for

✅ Who may benefit from testing (and who may not)

✅ How timing and anticoagulants can affect results

✅ What results could mean for treatment length, pregnancy, and family testing

✅ What to do if your medical team doesn’t recommend testing

✅ How to move forward after receiving your results

Gain clarity on when thrombophilia testing makes sense and how it can inform future decisions about your care. Register: Link in bio!

#StopTheClot #PEPTalk #ThrombophiliaTesting #BloodClots #BloodClottingDisorderTesting

👉 “In February 2025, while at work, I started

👉 “In February 2025, while at work, I started developing a terrible headache, fever, chills, and body aches. I assumed I was coming down with the flu. I spent a day in bed watching TV and resting. Two days later, the flu-like symptoms subsided, but I developed stiffness and pain in my neck. Within 24 hours, that pain moved from my neck to my arms, and then to my legs. Something felt off, so I went to the ER.

My platelets were high, but the doctors sent me home with a diagnosis of “post-viral inflammation.” I left feeling anxious and uneasy, with a strong sense that something was seriously wrong. The next morning, I went back to the ER—again, I was sent home, and my platelets were even higher. On day three, I returned. Sent home. Day four, the same thing. Each time, my anxiety grew stronger. I just couldn’t shake the feeling that something was being missed.

While waiting hours in the ER (15 to 18 hours each visit), I started researching my symptoms and examining my lab results—I have a small medical background—and kept asking if they were checking for blood clots. I was told I wasn’t at risk and to stop Googling. No one, not even my parents or my husband, took me seriously.

On day five, I went back to the ER again. After waiting 18 hours, a doctor came in, and I told him I wasn’t leaving until they ran a D-dimer test. He finally agreed. Within an hour, he returned and told me it was positive. I was immediately taken for a CT scan, which revealed a bilateral pulmonary embolism (PE).

That week, I saved my own life.

I still don’t have answers. I’m on blood thinners and following up with a hematologist, but no one can tell me why it happened. I continue to advocate for myself and keep searching for answers.

I struggle with health trauma and daily anxiety. Every ache and pain sends me into a spiral of fear. I’m terrified to stop blood thinners or even catch a cold, because I don’t know what caused this to happen.

Listen to your gut no matter what friends, family or professionals say. If you don’t feel right in your body, advocate for yourself!”

🔗 More stories: Link in bio.

#StopTheClot #StopTheClotStory #PulmonaryEmbolism #BloodClotAwareness

🩸 Your story could save a life. Telling your b

🩸 Your story could save a life.

Telling your blood clot story is an act of courage, empathy, and healing. Many survivors find that sharing their experience helps them process what they’ve been through while also helping others recognize the signs, seek help sooner, and find hope and understanding as they begin their own recovery.

Because blood clot symptoms often mimic other conditions, diagnosis is sometimes delayed. Your story could be the reason someone recognizes the signs sooner and gets the help they need.

Whether you were misdiagnosed at first, faced a long recovery, or are still navigating life after a clot, your story matters. 💬

Be an advocate for awareness — your story is your strength.

👉 Share your experience: Link in bio!

#StopTheClot #StopTheClotStory #BloodClotStory #Storytelling

❤️🩸 “I’m 30 years old and have a compli

❤️🩸 “I’m 30 years old and have a complicated medical history. As a teenager, I was diagnosed with fibromyalgia and Ehlers-Danlos syndrome, and today I manage more than 20 different health conditions.

On April 20, 2021, I felt severe pain in my left leg. It was swollen, purple, and hot to the touch. I called my doctor, who told me to go to the ER right away because it could be a blood clot.

I remember thinking, ‘I’m only 25 — how could I have a blood clot?’ But tests confirmed it: I had a deep vein thrombosis (DVT) in my left leg, and scans showed blood clots in both lungs (pulmonary embolisms). I was shocked and scared.

Because the ER wasn’t connected to a hospital, I was transferred by ambulance and started on a blood thinner through an IV. I spent a day there and was sent home on medication called rivaroxaban. Later testing showed I have a genetic condition called factor V Leiden, which makes blood clots more likely. Some of my relatives had it too and sadly died from clots.

Six months later, I developed more clots in both legs. I spent six days in the hospital and learned that the first medication hadn’t worked for me. My doctors switched me to warfarin, another blood thinner that requires regular testing to make sure it’s working safely.

Because I couldn’t easily leave home, my mom helped me advocate to get blood tests done at home. Insurance approved it, and now I use a small device to test my blood by pricking my finger—just like someone checking their blood sugar.

No matter how young or healthy you think you are, blood clots can happen to anyone—especially if you have a condition like factor V Leiden. I never thought it could happen to me, but it did. And I hope my story reminds others to listen to their bodies and speak up if something doesn’t feel right.”

👉 Patient’s Guide to INR Testing: Link in bio.

👉 More stories: Link in bio.

#StopTheClot #StopTheClotStory #FactorVLeiden #BloodClots #DVT #PE #BloodClotAwareness

In response to our recent post, so many of you sha

In response to our recent post, so many of you shared your experiences with blood clotting disorder testing — also called thrombophilia testing — and no two stories were the same.

➡️ One person learned she had a prothrombin gene mutation after five miscarriages and was later diagnosed with antiphospholipid syndrome.

➡️ Another experienced a clot during military training that was initially dismissed as a muscle strain. Testing later showed she is positive for factor V Leiden.

➡️ Some learned about their inherited risk after multiple pulmonary emboli and now worry about whether their children could have inherited the same condition.

➡️ Others have faced repeated clots without a clear answer despite extensive testing.

These stories show just how complex thrombophilia testing can be and why communication, timing, and access to care are so important.

Join us for our next PEP Talk, Thrombophilia Testing While on Blood Thinners, on Tuesday, November 11 at 7 p.m. ET to learn more about who should get tested, when, and why. Plus, your rights and options if you’re interested in testing that isn’t routinely recommended.

💻 Register: Link in bio.

#StopTheClot #PEPTalk #ThrombophiliaTesting #BloodClots

💡 A Smarter Way to Give This Year-End As you p

💡 A Smarter Way to Give This Year-End

As you plan your charitable giving for the year, consider a smarter way to make a difference — by donating appreciated stock to the National Blood Clot Alliance (NBCA).

When you donate stock instead of cash, you can:

✅ Avoid paying capital gains tax
✅ Receive a charitable deduction for the full market value
✅ Make a greater impact without spending more

It’s simple, secure, and your stock gift supports NBCA’s mission to save lives through education, awareness, and advocacy for the millions affected by blood clots each year.

✨ Give smarter. Save more. Stop the Clot.

Donate Stock Today ➡️ Link in bio.

#YearEndGiving #SmartGiving #Philanthropy #FinancialPlanning #StockDonations #StopTheClot #BloodClotAwareness

🩸 Our October Newsletter is live!

This month’s issue features:

• Our Shared Decision-Making Guide to help patients and providers navigate thrombophilia testing, plus details on our November PEP Talk on this topic

• Stories of two mothers turning loss into action to raise blood clot awareness and save lives

• New ways to support NBCA and strengthen our mission

• Research opportunities, and so much more!

Don’t miss the latest blood clot news, including updates in awareness, research, advocacy, treatment, and community impact.

💌 Read the October issue and subscribe for future updates: Link in bio!

#StopTheClot #BloodClots #NBCA #BloodClotNewsletter #BloodClotAwareness

🏅 #TeamStopTheClot Conquers the 2025 @NYCMarath

🏅 #TeamStopTheClot Conquers the 2025 @NYCMarathon!

After months of dedicated training and fundraising to support NBCA’s mission, Team Stop the Clot runners took on—and conquered—the TCS New York City Marathon on Sunday!

It was a thrill watching our runners fly by in our signature red and white polka dots. Together, they not only crossed the finish line but also raised more than $120,000 to advance blood clot awareness, education, and patient support. We couldn’t be prouder!

A heartfelt thank you to every runner, donor, and supporter who made this possible. Your dedication fuels NBCA’s life-saving work to educate, support, and empower those affected by or at risk for blood clots.

Special thanks to pulmonary embolism survivor and professional runner @SageCanaday for coaching our team to success, and to @HOKA for hosting our first-ever pre-marathon shakeout run and providing some awesome swag bags!

👀 Interested in joining Team Stop the Clot for the 2026 TCS New York City Marathon? Be the first to know when applications open: Link in bio!

#TeamStopTheClot #StopTheClot #NBCA #NYRR #TCSNYCMarathon #RunForLife #BloodClotAwareness #HOKA

Thinking about thrombophilia testing while taking

Thinking about thrombophilia testing while taking a blood thinner? You’re not alone. It’s one of the most common questions patients ask.

Join us for our next PEP Talk to learn what thrombophilia testing really means and how timing, medication, and results can shape your care. Our medical expert, Dr. Dana Angelini, will cover:

✅ Who might be tested: Factors your healthcare provider may consider
✅ When testing is done: Certain blood thinners can affect results, so timing matters
✅ Why testing is ordered: To understand inherited risks and guide prevention or treatment decisions
✅ How results may impact care: From medication choices to long-term management plans

We’ll also discuss how to protect yourself and your family if you’ve tested positive, what to know about your rights and options if you’re interested in testing that isn’t routinely recommended, and hear from patients about their experiences.

Understanding thrombophilia testing isn’t just about lab work — it’s about making informed choices for your long-term care and peace of mind.

📅 Tuesday, November 11
🕖 7 p.m. ET
💻 Register: Link in bio.

#StopTheClot #PEPTalk #ThrombophiliaTesting #BloodClots

🩸 Thinking about thrombophilia testing while on

🩸 Thinking about thrombophilia testing while on a blood thinner? It’s not always straightforward.

Testing can offer valuable insights into long-term clotting risk, help identify inherited conditions that may affect family members, and guide future care decisions, such as how long to stay on anticoagulation or how to manage pregnancy or surgery.

But timing matters. Results are often less accurate while on blood thinners, and for many people, testing won’t change their treatment plan. It can also cause unnecessary worry or add unexpected costs.

We hope you’ll join us for our November PEP Talk to learn when thrombophilia testing is useful and when it may not be.

📅 Tuesday, November 11
🕖 7 p.m. ET
💻 Register: Link in bio.

#StopTheClot #PEPTalk #ThrombophiliaTesting #BloodClots

“I’m a 63-year-old man and have experienced tw

“I’m a 63-year-old man and have experienced two instances of blood clots (deep vein thrombosis, or DVTs) in my left calf. The first happened in 2018, shortly after being diagnosed with stage one lung cancer. I had surgery to remove the lower part of my left lung and followed regular scans for five years before being declared cancer-free.

For a while, I was in great shape and exercised regularly. But over the past few years, life got busy — I was working a lot, earning my master’s degree in Information Systems Management, and teaching my first class on Microsoft Apps. During that time, I gained about 50 pounds.

Earlier this year, I started swimming again, about 1.5 miles three times a week, to safely lose weight. I had dropped 10 pounds when I noticed pain in my calf. I assumed it was a muscle strain from swimming, but the swelling got worse. I was admitted to the hospital and treated for another DVT. I spent four days on a blood thinner while doctors monitored me for potential clots in my heart or lungs.

A CT scan showed some enlarged lymph nodes in my chest, so I followed up with both oncology and cardiology. Thankfully, my PET scan came back negative, and a later scan showed the lymph nodes were normal, so I canceled the biopsy. I’ll continue to get yearly CT scans because of mild emphysema and a small lung nodule my doctors are watching.

Now, I’m back to exercising and focusing on my health again. I still have some swelling in my lower leg, but it’s improving. I have a cardiac angiogram scheduled soon, and I’m continuing on apixaban permanently. I actually discovered this group while watching a YouTube video about blood clots, and I’m grateful to have found a community that understands what this journey is like.”

More stories: Link in bio.

#StopTheClot #StopTheClotStory #BloodClots #DeepVeinThrombosis #Cancer

It’s race day! 🗽🏃‍♀️🏃‍♂️ A

It’s race day! 🗽🏃‍♀️🏃‍♂️

After months of training and fundraising, the members of #TeamStopTheClot are proudly wearing their red and white polka dots and hitting the streets of New York City for the @nycmarathon!

Each runner has a personal connection to our mission, inspired by their own experience or that of someone they love. Today, they’re running 26.2 miles to raise awareness about blood clot risks, signs, and symptoms, and to support those affected.

Send your cheers and encouragement in the comments! If you’re in New York, join our Stop the Clot cheer zone at 91st Street and 1st Avenue in Manhattan!

🏃 Not all members of #TeamStopTheClot are runni

🏃 Not all members of #TeamStopTheClot are running today — some are helping keep runners safe!

We’re proud to recognize Dr. Caroline Cromwell of @themountsianihospital and NBCA Medical and Scientific Advisory Board member who is volunteering as one of the @nycmarathon's on-site physicians along the marathon course today.

Dr. Cromwell and her fellow medical volunteers play a vital role in ensuring runners stay safe and healthy throughout the race, all the way to the finish line!

Thank you, Dr. Cromwell, for your dedication to both the athlete and patient communities. Good luck, runners!

#StopTheClot #NBCA #NYRR #TCSNYCMarathon #RunForLife #BloodClotAwareness

🏁 Race Day Spotlight: Tatyana McFadden, PE Surv

🏁 Race Day Spotlight: Tatyana McFadden, PE Survivor + Champion Athlete

Today, as runners and wheelchair racers take on the @nycmarathon, we’re cheering for @TatyanaMcFaddenUSA — Paralympic legend, five-time NYC Marathon champion, and pulmonary embolism survivor — as she competes once again in the wheelchair division.

Tatyana joined NBCA’s Taking a Breath podcast to share her powerful story and how she’s using her platform to raise awareness about blood clots in athletes. Her determination is an inspiration to our #TeamStopTheClot members and to everyone affected by blood clots.

👏 Join us in wishing Tatyana and all our Team Stop the Clot athletes strength, speed, and safety today!

🎧 Listen to Tatyana’s story on Season 1, Episode 2 of our podcast: Link in bio!

#TeamStopTheClot #StopTheClot #NBCA #NYRR #TCSNYCMarathon #RunForLife #BloodClotAwareness

You tested positive for thrombophilia. Now what? 🤔

Join the National Blood Clot Alliance for our November PEP Talk with Dr. Dana Angelini of the @ClevelandClinic to learn what comes next after a positive test for a blood clotting disorder.

We’ll talk about what your results mean, how to protect yourself and your family, and how to make informed decisions about your care.

Not sure if you should be tested? You’ll also learn why clinicians don’t always recommend testing, hear patient perspectives, and explore how shared decision-making helps you and your care team decide what’s best for you.

📅 Tuesday, November 11
🕖 7 p.m. ET
💻 Register: Link in bio!

Get the facts — whether you’ve tested positive, are considering testing, or simply want to understand your rights and risks when it comes to thrombophilia.

#StopTheClot #PEPTalk #ThrombophiliaTesting #BloodClots

🎃 This Halloween, here are five truly frighteni

🎃 This Halloween, here are five truly frightening facts about blood clots. They’re more common and deadly than most people realize:

1️⃣ 900,000 Americans are diagnosed every year

2️⃣ Blood clots kill more than HIV, breast cancer and car accidents combined

3️⃣ Fewer than 6% of Americans know what blood clots are

4️⃣ One person dies of a blood clot every six minutes in the U.S.

5️⃣ Blood clots kill 100,000 people in the U.S. every year

Knowledge saves lives. Don’t just share ghost stories today, share awareness. 🩸

#StopTheClot #BloodClotAwareness #Halloween

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