National Blood Clot Alliance (NBCA) is posting a Support Group Leaders Guide @ www.stoptheclot.org. The guide provides step by step information about how a volunteer can set up and lead a support group for patients with venous blood clots. These groups support patients with deep vein thrombosis (DVT) and pulmonary embolism (PE).
Alan Brownstein, NBCA Chief Executive Officer, stresses that support groups allow patients with blood clotting disorders (thrombophilias) or DVT and PE to share their lived experience with blood clots, and derive emotional support from each other. He sees the guide as a valuable resource to anyone who wants to organize a support group.
Traci Wilkes Smith, NBCA Vice-President, adds, “As someone who survived a blood clot, I recognize how much I can learn from sharing my experience with other patients as well as benefitting from the comfort of such a connection.”