Genetics of Blood Clots – Stop The Clot® Educational Support Meeting

Genetics of Blood Clots – Stop The Clot® Educational Support Meeting

Inver Grove Heights, MN, March 2, 2010 – On May 12, 2010 the Minnesota Chapter of the National Blood Clot Alliance (formerly National Alliance for Thrombosis & Thrombophilia) will host its monthly education forum from 6:00 pm – 7:30 pm at the Amherst Wilder Foundation – 451 Lexington Avenue, St. Paul, MN.
The topic is Understanding, Diagnosing, and Treating Paroxysmal Nocturnal Hemoglobinuria (PNH).  The presenter is Muhammad Shurafa, MD,  Hematologist, Van Elslander Cancer Center, Detroit, Michigan.

This meeting is open to patients, family members and healthcare providers.  Attendees will learn:

  • Signs and symptoms of PNH, which may vary greatly from patient to patient
  • Why having PNH puts you at risk for developing a blood clot
  • Where blood clots can occur in the body of someone who has PNH
  • Reasons why this rare disease may be overlooked in someone with an unexplained or unprovoked blood clot
  • What diagnostic and laboratory tests are helpful in diagnosing PNH
  • What treatments are available for this rare disease

The National Blood Clot Alliance provides patient education and professional training on the signs, symptoms and prevention of blood clots and clotting disorders. The mission of the National Blood Clot Alliance is to prevent, diagnose and treat thrombosis and thrombophilia through research, education, support and advocacy.  For additional information about clotting disorders or the activities of the NBCA-MN Chapter, contact Chris Pulkrabek by e-mail  cpulkrabek@stoptheclot.org or by telephone at 651-324-3169.

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