Antiphospholipid syndrome (APS) is a complex and often misunderstood autoimmune condition. If you have been diagnosed with APS, we invite you to participate in a confidential research survey that explores how APS impacts mental health, pain, fatigue, and overall quality of life.
Study Objective: To better understand the psychosocial and quality-of-life challenges faced by individuals living with APS. This includes examining issues like depression, fatigue, sleep disturbance, pain interference, and the ability to participate in social activities.
Why participate?
Your voice matters. This study aims to highlight the everyday struggles and unmet needs of APS patients. Your input can help improve support systems, shape patient-centered care, and guide future research efforts.
Who can participate?
Anyone over 18 who has been diagnosed with APS is eligible to take part in this study.
How long will it take?
The survey takes approximately 10–15 minutes to complete.
Get started:
Privacy: All responses are completely anonymous. No identifying information will be collected. Data will be securely stored, accessible only to the study team. While findings may be shared in publications, no individual data will ever be disclosed.
Principal investigator: Dr. Shruti Chaturvedi (Johns Hopkins University)
Contact for additional information: 410-614-9604 or schatur3@jhmi.edu.
Johns Hopkins IRB application number IRB00517218.
