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NBCA Video Series – Our Genes Our Stories

Stop The Clot Forum – October 2008 – Minneapolis

Learn how the Genetic Information Non discrimination Act protects you and your family. Now available on iTunes, click here to download to your iPhone or iPod.

Our Genes, Our Stories – Matt Bower – Genetic Testing Part 1 of 6

Learn when to test. Thrombophilia and the practice of genetics, Ancient history-recognition of X-linked inheritance, Non-directiveness adopted as a guiding philosophy in response to eugenics, Until 1970s primarily practiced by basic scientists, New technologies, Carrier Testing, Prenatal Diagnosis, Predictive Testing (Slide 17)

Visit NBCA’s You Tube Channel. Click here.

The video production for these programs was done by REM Video & Event Company, St. Louis Park, Minnesota.

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NBCA Designates a Michigan Hospital as First DVT Center of Excellence™ in the U.S.

NBCA is honored to announce MyMichigan Medical Center Midland as the first hospital in the U.S. to be designated a…

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Advent COEs

NBCA Designates Two AdventHealth Hospitals as Centers of Excellence™

The National Blood Clot Alliance (NBCA) is pleased to announce the designation of AdventHealth Palm Coast and AdventHealth Palm Coast…

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Advancing blood clot awareness, prevention, diagnosis & treatments to #stoptheclot. Submit your story @ link below ⬇️ Our podcast: Taking a Breath 🎙️

HAPPENING TOMORROW: Join us for our June PEP Talk

HAPPENING TOMORROW: Join us for our June PEP Talk on Tuesday, June 10 at 7 p.m. ET, for a foundational-level session for people who are navigating life after a DVT or PE. We’ll cover key topics like blood thinners, recovery, follow-up care, and returning to daily life.

Plus, we’ll walk through some of the most important questions to ask your doctor after a clot, like:

✔️ How long will I be on a blood thinner?

✔️ When can I start exercising again?

✔️ How are DVT and PE connected?

Whether you were diagnosed days or months ago, this conversation can help you feel more confident at your next appointment and more in control of your care.

🔗 Register now: Link in bio.

#StopTheClot #BloodClots #VTE #PEPTalk #BloodClotPatient #BloodClotSupportGroup #BloodClotAwareness #BloodClotWebinar

After surviving blood clots twice, Maarib used his

After surviving blood clots twice, Maarib used his experience to drive change.

Despite having his symptoms dismissed, he trusted his instincts, and got the care he needed. Today, he’s leading his country’s first thrombosis awareness initiative and empowering others to speak up and listen to their bodies.

🗣️ Has your own health experience inspired you to take charge and lead change? Leave a comment to share how you’ve used your voice to make a difference!

🔗 More stories at the link in bio.

#StopTheClot #StopTheClotStory #BloodClots #DVT #PE #MensHealthMonth

Seven years ago, NBCA President Leslie Lake’s li

Seven years ago, NBCA President Leslie Lake’s life changed in an instant when a blood clot in her lungs nearly took it. She was simply walking home from the dry cleaner when she suddenly couldn’t breathe.

Today marks Leslie’s 7th clotiversary, and we’re honoring her journey from survivor to fierce advocate.

In a recent interview with AARP, Leslie opened up about her frightening experience and the lack of support she faced after diagnosis, which ultimately led her to NBCA.

“I was given a second chance,” Leslie said. “Now I want to pay that forward. If sharing my story helps save even one life, it’s worth it.”

We’re grateful to AARP for helping spread awareness about blood clots, especially in people over 50, who face higher risk.

🔗Watch Leslie’s story at the link in bio.

#StoptheClot #StopTheClotStory #BloodClots #AARP #BloodClotStory #PulmonaryEmbolismStory #BloodClotSurvivor #BloodClotPatient #BloodClotAwareness

Tilly struggled mentally and physically after bein

Tilly struggled mentally and physically after being diagnosed with deep vein thrombosis and May-Thurner syndrome at 19.

To process her experience and spread much-needed awareness, Tilly created a short documentary that tells the story of Kari, another DVT survivor, and we are thrilled to share it.

“This is a story about being believed and about being seen and about finding the people who will hold you up, no matter what is running through your veins,” Tilly says in the video.

🔗 Read Tilly’s story and watch her video at the link in bio.

@till__b__

#StopTheClot #BloodClots #DVT #DeepVeinThrombosis #DVTVideo #DVTDocumentary

🏳️‍🌈 This Pride Month, we're spotlightin

🏳️‍🌈 This Pride Month, we're spotlighting Katherine’s story, a powerful reminder of the importance of knowing and managing blood clot risks for transgender women.

When calf pain turned out to be a sign of a life-threatening pulmonary embolism (PE), Katherine was forced to pause her hormone therapy journey for seven painful months. But with the support of her care team, she eventually found a way to safely resume HRT while continuing anticoagulation treatment.

Her message: Don’t ignore the signs of a blood clot. Pain, swelling, and shortness of breath are symptoms you should never brush off—no matter where you are in your journey.

#StopTheClot #BloodClots #DVT #GAHT #HRT #Transgender #PrideMonth

Have you been recently diagnosed with a blood clot

Have you been recently diagnosed with a blood clot? It’s normal to have a lot of questions. Understanding your condition, treatment, and what to expect during recovery can make a big difference as you move forward.

Here are three actions that can provide support for newly diagnosed blood clot patients (all links are in our bio!)

👉 Join our blood clot support group on Facebook.

👉 Download our New Patient Resource Guide.

👉 Register for our next PEP Talk on Tuesday, June 10 for new blood clot patients.

This PEP Talk an extension of both the support group and the New Patient Resource Guide, designed for people just starting their journey.

We’ll cover the basics of DVT and PE, what life on a blood thinner can look like, how to get back to exercise, and much more.

If you or someone you love has been newly diagnosed, we hope you’ll join us.

P.S.: If you can’t attend the live session, register anyway to receive the recording in your inbox the next day!

#StopTheClot #BloodClots #VTE #PEPTalk #BloodClotPatient #BloodClotSupportGroup #BloodClotAwareness #BloodClotWebinar

🏃‍♂️ This Global Running Day, we’re cel

🏃‍♂️ This Global Running Day, we’re celebrating movement, resilience, and the power of listening to your body.

Professional runner @sagecanaday was sidelined by a pulmonary embolism that changed the course of his training and his life.

On our podcast, Taking a Breath, he opens up about his diagnosis, recovery, and what it means to return to the sport he loves with a new perspective.

🎧 Listen at the link in bio or wherever you get your podcasts.

#stoptheclot #globalrunningday #runforacause #runningcommunity #nyrr # #nycmarathon #bloodclotprevention #bloodclotawareness #fundraising

🏅Countdown to race day! In November, Team Stop

🏅Countdown to race day! In November, Team Stop the Clot will hit the streets for 2025 TCS New York City Marathon and their training is in high gear. Over the next five months, we’re introducing you to the inspiring runners who are clocking the miles, sharing their stories, and raising funds for NBCA.

🏃‍♀️Today is Global Running Day, and Annalei Davis of New York shares why she’s running the New York City Marathon:

“My dad was my best friend and role model. He gave me my sense of humor and love for life and was truly the kindest and most empathetic person I've ever known. He was passionate about so many things — cooking, baking, woodworking, gardening, amateur radio, stamp collecting, coin collecting, music, travel, the list goes on! My mom, sister, and I miss him dearly every day. I couldn't be more excited to run 26.2 miles in his honor and help fundraise for such an amazing cause.”

🔗 Support Annalei’s NBCA fundraiser: Link in bio!

#stoptheclot #teamstoptheclot #globalrunningday #bloodclots #nycmarathon #bloodclotawareness #charityrace #fundraising #bloodclotprevention

🏃Happy Global Running Day! Today, we're celebr

🩸 Thank you to @Fla_Pol for highlighting NBCA’s VTE Centers of Excellence. The designations of @AdventHealth Palm Coast & Palm Coast Parkway mark vital progress in improving care for patients with life-threatening blood clots.

📰 Read more: https://floridapolitics.com/archives/740913-diagnosis-for-6-2-25-checking-the-pulse-of-florida-health-care-news-and-policy/

#StopTheClot #BloodClots #VTE #VTECentersOfExcellence #CentersOfExcellence #COE #HospitalExcellence #BloodClotAwareness

Did you know that antiphospholipid syndrome (APS)

Did you know that antiphospholipid syndrome (APS) is an autoimmune disorder that significantly increases the risk of blood clots?

June is APS Awareness Month, and NBCA stands in solidarity with the 1 in 2,000 individuals living with this condition.

APS happens when the immune system mistakenly produces antibodies that attack normal proteins in the blood. This can trigger serious complications like deep vein thrombosis (DVT), stroke, heart attack, and pregnancy loss.

🔗At the link in bio, watch our PEP Talk webinar on autoimmune conditions and blood clots and access APS resources.

#stoptheclot #bloodclots #aps #antiphospholipidsyndrome #apsawarenessmonth #bloodclotawareness #raredisease #knowyourrisk

After winning a tennis tournament, William suddenl

After winning a tennis tournament, William suddenly couldn’t walk. A clot in his leg led to a diagnosis of factor V Leiden and a painful year battling post-thrombotic syndrome.

With persistence, faith, and finally the right treatment, William recovered. Today, he’s back on the court and grateful to be alive.

June is Men’s Health Month, a time to raise awareness about preventable health issues and encourage early detection and treatment. Read more patient stories from men at the 🔗in bio!

#StopTheClot #StopTheClotStory #BloodClots #DVT #Athlete #FactorVLeiden #MensHealthMonth

Today is National Cancer Survivors Day, a moment t

Today is National Cancer Survivors Day, a moment to honor the strength of survivors and raise awareness about the complications they continue to face, including blood clots.

People with cancer are up to 7 times more likely to develop a blood clot, and for many, the risk doesn’t end when treatment does. Blood clots remain one of the leading causes of death in cancer patients—even among survivors.

In two episodes of our Taking a Breath podcast, survivors Mark Lewis (Episode 10, Season 1,**)** and Michael Philbin (Episode 3, Season 2) share their personal experiences with cancer and life-threatening blood clots. Their stories are a powerful reminder of why awareness matters.

🎧 Listen via the link in bio.

NBCA is proud to be at the ASCO Annual Meeting in Chicago (May 31–June 3), continuing the conversation about cancer and clots and advocating for improved education and prevention.

#StopTheClot #BloodClots #VTE #CancerAssociatedThrombosis #ASCO25 @ASCO

People with cancer are up to 7 times more likely t

People with cancer are up to 7 times more likely to develop a blood clot—a life-threatening complication that’s the second leading cause of death in cancer patients.

Karen, a colorectal cancer survivor and blood clot advocate, will be at the American Society of Clinical Oncology (ASCO) Annual Meeting in Chicago from May 31 – June 3, sharing her story to raise awareness about the link between cancer and blood clots.

On Cancer Survivors Day (June 1), and every day, Karen is using her voice to help others survive not just cancer, but its hidden risks.

Stop by booth #130000 to meet Karen and learn how NBCA is working to protect patients through education and advocacy.

🔗Read more cancer and blood clot survivor stories at the link in bio.

#StopTheClot #BloodClots #VTE #CancerAssociatedThrombosis #ASCO25 @ASCO

🚭 Today is World No Tobacco Day — a reminder

🚭 Today is World No Tobacco Day — a reminder that quitting smoking isn’t just good for your lungs and heart. It can also protect you from dangerous blood clots.

Smoking damages blood vessels, increases clotting factors, and raises your risk for deep vein thrombosis (DVT), pulmonary embolism (PE), heart attack, and stroke.

If you smoke, quitting is one of the most powerful steps you can take to protect your health.

➡️ Assess your risk for blood clots: Link in bio.

#StopTheClot #BloodClots #VTE #WorldNoTobaccoDay #BloodClotPrevention #KnowYourRisk

Kamisha developed her first DVT at age 15. Since t

Kamisha developed her first DVT at age 15. Since then, she’s lost track of how many blood clots she’s experienced — despite taking anticoagulants and having zero known risk factors.

After her most serious clotting incident in 2016 in which she was diagnosed with heparin-induced thrombocytopenia (HIT), she’s raising awareness of the signs and symptoms of blood clots and urging everyone to listen to their body.

🔗More stories at the link in bio.

#StopTheClot #StopTheClotStory #DVT #PE #CTEPH #HIT #BloodClotAwareness

Did you know that people undergoing treatment for

Did you know that people undergoing treatment for cancer are at an increased risk for developing blood clots? If you’ve been diagnosed with cancer, it’s important to understand your risk and speak with your doctor about blood clot prevention.

🔗Download our checklist for blood clot risk at the link in bio.

NBCA will be spotlighting the connection between cancer and blood clots at the American Society of Clinical Oncology’s annual conference in Chicago from May 30-June 3.

If you’re attending #ASCO25, stop by and see us at patient advocacy booth 13000!

#StopTheClot #ASCO2025 #Cancer #CancerSucks #BloodClots #CancerAssociatedThrombosis #ClinicalOncology

🩸 New research shows pulmonary embolism in chil

🩸 New research shows pulmonary embolism in children may be far more common than previously believed.

A multi-center study led by Dr. Jeffrey Kline of Wayne State University and NBCA’s Medical and Scientific Advisory Board found that up to 6.3% of symptomatic pediatric ER patients were diagnosed with blood clots in the lungs, a rate similar to adults.

This groundbreaking work challenges the long-standing belief that PE is rare in kids, and could help improve early diagnosis while reducing unnecessary radiation exposure.

Published in the American Journal of Respiratory and Critical Care Medicine, the study is the first of its kind and signals the need for updated guidelines in pediatric clot care.

🔗 Full story: Link in bio.

🔗 NBCA resources on children and blood clots: Link in bio.

#StopTheClot #BloodClots #VTE #VTEInChildren #BloodClotsAndChildren #PediatricVTE

🩸 Finding your way forward after a blood clot d

🩸 Finding your way forward after a blood clot diagnosis can feel overwhelming, but guidance is here.

Join us on June 10 at 7 p.m. ET for a special PEP Talk for those newly diagnosed with DVT, PE, or other clotting conditions and their loved ones.

We’ll cover what to expect during your recovery, how to navigate treatment, and where to find the support you need, all in a safe, understanding space.

📅 When: Tuesday, June 10 at 7 p.m. ET
🔗Register: bit.ly/June2025PEPTalk (link in bio!)

#StopTheClot #BloodClots #VTE #PEPTalk #BloodClotPatient #BloodClotSupportGroup #BloodClotAwareness #BloodClotWebinar

At just 7 years old, Jason developed a blood clot

At just 7 years old, Jason developed a blood clot in his brain following a neck injury during a soccer game. Despite multiple ER visits, the clot went undiagnosed for months.

By the time it was found, Jason was already living with quadriplegia.

As National Stroke Awareness Month comes to a close, Jason’s mom Faye shares their story to raise awareness about how blood clots in children are often missed, and how an early diagnosis can change everything.

🔗More about blood clots and children at the link in bio.

#StopTheClot #StopTheClotStory #BloodClots #NationalStrokeAwarenessMonth #BloodClotAwareness #BasilarArteryThrombosis

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