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Johns Hopkins All Children’s Hospital Named Nation’s First Pediatric National Blood Clot Alliance VTE Center of Excellence™

A new national benchmark in pediatric venous thromboembolism (VTE) care St. Petersburg, FL – The National Blood Clot Alliance (NBCA)…

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Vein and Vascular Institute Named Nation’s First National Blood Clot Alliance Community DVT Excellence Center

FOR IMMEDIATE RELEASE Voorhees, NJ – The National Blood Clot Alliance (NBCA) is proud to announce the designation of Vein and…

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Advancing blood clot awareness, prevention, diagnosis & treatments to #stoptheclot. Submit your story @ link below ⬇️ Our podcast: Taking a Breath 🎙️

This Volunteer Appreciation Week, we’re honored

This Volunteer Appreciation Week, we’re honored to recognize Joe Cedrone.

Joe and his wife Diane suffered the unimaginable loss of their 36-year-old son Keith, to pulmonary emboli—multiple clots in his lungs.

In the face of this tragedy, Joe has turned his grief into purpose. He is riding his bike across the country—from California to Florida—to honor Keith’s memory and raise awareness and funds to help prevent others from experiencing this kind of loss.

As part of his journey, Joe is asking those who are able to consider donating just one penny per mile—$30—to support blood clot awareness and education.

“Keith was the kindest person you would ever want to meet. Not that he wasn’t tough (he was a black belt in karate), but he was soft spoken and always kind. He loved being with his family (his wife Kelly and 3 daughters Harper (now ten), Fiona (now 8), and Lorelai (now 7). He loved fishing, time at the beach, and following Boston sports teams.

It’s devastating to lose a child, even if that child is forever 36. The work done by the NBCA might save some other parents, wife, sister, or children from losing a loved one. Anything that brings the issue of research and care for the PE and thrombosis conditions to the forefront is time well spent.”

Thank you, Joe, for honoring Keith in such a meaningful way, and for using your journey to help protect others. We’re honored to recognize your dedication during Volunteer Appreciation Week.

Support Joe’s ride in memory of Keith: bit.ly/KeithCedrone

#stoptheclot #bloodclots #pulmonaryembolism #volunteerappreciationweek

Volunteer. Raise Awareness. Save Lives. This Volu

Volunteer. Raise Awareness. Save Lives.

This Volunteer Appreciation Week, we’re celebrating the incredible people who help us Stop the Clot®—and inviting you to join them.

There’s a role for everyone:
🏃‍♀️ Join Team Stop the Clot or start your own fundraiser
✨ Become a Thrombassador and share life-saving education in your community
🎤 Host a Lunch & Learn at your workplace
📣 Share your story or spread awareness on social media

Every action—big or small—helps prevent blood clots and save lives.
👉 Get started: stoptheclot.org/volunteer

#VolunteerAppreciationWeek #StopTheClot #PatientAdvocacy #BloodClotAwareness #BloodClotSurvivor #CommunityVolunteer #Thrombassador

Team Stop the Clot® will be proudly cheering on t

Team Stop the Clot® will be proudly cheering on two pulmonary embolism survivors at the Boston Marathon.

JT Lasker, an NBCA Board Member and Sage Canaday, Team Stop the Clot’s NYC Marathon Coach & professional runner, are both taking on Boston tomorrow.

Their stories are a powerful reminder that life after a blood clot is possible and that survivors can continue to pursue big goals, inspire others, and give back to the community.

Good luck to JT and Sage tomorrow—we’ll be cheering you on every step of the way!

#Boston130 #StopTheClot #BostonMarathon #TeamStopTheClot #PulmonaryEmbolism #PESurvivor #BloodClotAwareness #MarathonRunner

She nearly skipped the ER for a hair appointment.

She nearly skipped the ER for a hair appointment.

Thankfully, she didn’t.

What seemed like a muscle strain turned out to be a life-threatening DVT. Now she’s passionate about educating others because blood clots can happen even when symptoms don’t seem obvious.

Know the symptoms. Listen to your body.

Thank you so much for sharing your story Miranda.
@mmfitmomof3
#StopTheClot #BloodClots #DVT #PatientStory #BloodClotEducation

We’re so excited to share that Taking a Breath:

We’re so excited to share that Taking a Breath: A Stop the Clot Podcast has been nominated for the Quill Podcast Awards 2026 🎉

⏳ Only 2 days left to vote!

Now we need your help to get to the next level—your vote could make all the difference!

Submitting a nomination only takes a couple of minutes, and we’ve made it super easy:

👉 Go to the Quill Podcast Awards form: https://www.quillpodcasting.com/qpa/quill-podcast-awards#form

👉 Enter your email

👉 Select **“No”** when asked if you’re the contact for the podcast

👉 Scroll to #10 (Best Science & Medicine Podcast) and paste:

NBCA — https://open.spotify.com/show/0VoNBBPvh83NTd4zXAEULw

👉 Click submit!

Every nomination brings us one step closer, and we’re incredibly grateful for your support in helping amplify patient voices and lifesaving education.

#StopTheClot #PodcastAwards #QuillAwards #PatientVoices #BloodClotAwareness #TakingABreathPodcast

This National Volunteer Appreciation Week, we want

This National Volunteer Appreciation Week, we want to thank the incredible volunteers who power our mission every day.

From sharing personal stories, to supporting events and raising awareness about blood clots and clotting disorders—your impact is everywhere. Our volunteers are at the heart of everything we do.

Because of you, we are reaching more people, supporting more survivors, and saving lives.

Thank you for being part of this community and for helping us continue the fight to stop the clot.

👉Get involved: https://www.stoptheclot.org/volunteer/

#StopTheClot #VolunteerAppreciationWeek #NationalVolunteerAppreciationWeek #VolunteerAppreciation #BloodClotAwareness #ClottingDisorders #PatientAdvocacy #CommunitySupport

We’re so excited to share that Taking a Breath:

We’re so excited to share that Taking a Breath: A Stop the Clot Podcast has been nominated for the Quill Podcast Awards 2026 🎉

⏳ Only 4 days left to vote!

Now we need your help to get to the next level—your vote could make all the difference!

Submitting a nomination only takes a couple of minutes, and we’ve made it super easy:
👉 Go to the Quill Podcast Awards form: https://www.quillpodcasting.com/qpa/quill-podcast-awards#form
👉 Enter your email
👉 Select “No” when asked if you’re the contact for the podcast
👉 Scroll to #10 (Best Science & Medicine Podcast) and paste:

NBCA — https://open.spotify.com/show/0VoNBBPvh83NTd4zXAEULw

👉 Click submit!

Every nomination brings us one step closer, and we’re incredibly grateful for your support in helping amplify patient voices and lifesaving education.

#StopTheClot #PodcastAwards #QuillAwards #PatientVoices #BloodClotAwareness #TakingABreathPodcast

During pregnancy, Ebony was told she had pulled a

During pregnancy, Ebony was told she had pulled a muscle in her calf. She was sent home and told to take Tylenol, ice, and elevate her leg.

But the pain kept getting worse.

Eventually, Ebony could barely walk and needed a cane. When she sought another opinion, she was immediately sent to the ER and diagnosed with DVT.

Black Maternal Health Week exists because Black women face significantly higher risks during pregnancy and postpartum, including blood clots, preeclampsia, hemorrhage, and other serious complications. THey are also more likely to have their symptoms dismissed and are more than three times as likely to die from pregnancy-related causes than white women.

Ebony’s story is a reminder to trust your body, advocate for yourself, and keep pushing for answers when something does not feel right.

Read Ebony’s story: https://www.stoptheclot.org/patient-stories/ebonys-story/

#BlackMaternalHealthWeek #BlackMaternalHealth #StopTheClot #BloodClots #DVT #Pregnancy #Postpartum #MaternalHealth #MaternalMortality #PregnancyComplications #HealthEquity #WomensHealth

🎙️ Podcast Spotlight for Black Maternal Healt

🎙️ Podcast Spotlight for Black Maternal Health Week 🎙️

During Black Maternal Health Week, we’re resharing a powerful episode of Taking a Breath: A Stop the Clot—because stories like Shamony’s should never be overlooked.

In this episode, Omari Maynard shares the story of his life partner, Shamony Gibson, who tragically passed away just 13 days after giving birth due to a blood clot.

💔 Shamony knew the risks. Her family was informed. They followed medical guidance.

And still—this happened.

📊 The reality: Black women in the U.S. are 3–4x more likely to die from pregnancy-related causes than white women—and blood clots are a leading cause of maternal death.

Shamony’s story is a heartbreaking reminder that awareness alone isn’t enough. We need better recognition of symptoms, faster diagnosis, and equitable care.

In the face of unimaginable loss, Omari and Shamony’s mother founded the ARIAH Foundation to advocate for change.

🎧 Listen to this important conversation and help us continue advocating for change: https://www.stoptheclot.org/stop-the-clot-podcast/

#BlackMaternalHealthWeek #MaternalHealth #HealthEquity #BloodClots #StopTheClot

May PEP Talk What do women need to know about bloo

May PEP Talk
What do women need to know about blood clots—across every stage of life?

Join us for a special Women’s Health Month PEP Talk featuring a dynamic panel discussion on risk, prevention, and real-life decision-making. Olympic medalist and PE survivor Katie Hoff will share her journey from elite athlete to soon-to-be mother, including navigating anticoagulation, contraception, and IVF.

Register HERE: bit.ly/MayPEP2026

#stoptheclot #bloodclots #pulmonaryembolism

LAST CHANCE TO SIGN UP—registration deadline is

LAST CHANCE TO SIGN UP—registration deadline is April 22!

🚴 The National Blood Clot Alliance is a proud charity partner of the 2026 TD Five Boro Bike Tour, presented by Bike New York.

On Sunday, May 3, 2026, cyclists from around the world will take on a once-a-year experience: riding 40 car-free miles through all five boroughs of New York City. Whether you’re a first-time rider or a seasoned cyclist, it’s an unforgettable way to see the city.

Ride with Team Stop the Clot—sport our signature red polka dots and help raise awareness about blood clots.

Don’t wait! A limited number of charity bibs are still available.
Learn more and register: bit.ly/2026TDFiveBoroBikeTour
(or find the link in our bio)

#StopTheClot #TDFiveBoroBikeTour #BikeNewYork #BloodClotAwareness #TeamStopTheClot #nationalbloodclotalliance @bikenewyork

In this episode of Taking a Breath, Comedian Kelly

In this episode of Taking a Breath, Comedian Kelly MacFarland shares her experience as a blood clot survivor and how a simple request in an improv class could very well have been the thing that saved her life.

This conversation explores not just survival, but what it means to chart a path that will save countless lives to follow. Listeners will hear practical insights on recognizing warning signs, advocating for yourself in medical settings, and finding community on the journey to shaping the future of blood clot awareness.

Listen to the full episode wherever you get your podcasts.

Kelly MacFarland
https://www.kellymacfarland.com/
@kellymacfarland
#bloodclotsurvivor #pulmonaryembolism #stoptheclot #healthanxiety

🙏Thank you to everyone who joined our April PEP

🙏Thank you to everyone who joined our April PEP Talk on Navigating Emotional Trauma Post Blood Clot: The Symptom Nobody Mentioned.

This was our largest PEP Talk ever, with nearly 1,000 people registered—a powerful reminder of the critical importance of this topic, which is frequently overlooked.
📊 In our live poll, only 2.5% of attendees said their doctor talked with them about the potential mental health impact at diagnosis.

Yet we know from NBCA’s CLUES study that 75% of patients report feeling moderately anxious or depressed after a blood clot.

💔 The emotional impact is real.
💬 The conversation is often missing.

We were honored to be joined by Dr. Leben Tefera, MD and Karen Hurley, PhD to help bring this often-overlooked part of recovery into the open—and talk about what support can look like.

🎥 Watch the full recording here: bit.ly/april2026peptalk
or find the link in our bio.

#stoptheclot #bloodclots #dvt #pulmonaryembolism #nbca #bloodclotpatient #bloodclotsurvivor

🚨 NEW SPEAKER ANNOUNCEMENT – JOIN US TONIGHT

🚨 NEW SPEAKER ANNOUNCEMENT – JOIN US TONIGHT

Karen Hurley, PhD, Senior Clinical Health Psychologist at Cleveland Clinic, will be joining tonight’s PEP Talk panel. Together, we’ll explore the emotional impact of blood clot recovery—and what support can look like.

With 25+ years of experience helping patients navigate coping, resilience, and emotional recovery after medical trauma, Dr. Hurley brings a powerful and deeply needed perspective to this conversation.

For many blood clot survivors, recovery isn’t just physical—it can affect how you work, move, and show up in everyday life.

Yet the emotional toll is rarely talked about.

That’s exactly what we’re addressing in tonight’s session:

Navigating Emotional Trauma Post Blood Clot: The Symptom Nobody Mentioned

Dr. Hurley will join:

🩺 Leben Tefera, MD, – Vascular Medicine, Cleveland Clinic

🎙 Your PEP Talk hosts: Leslie Lake and Todd Robertson, both PE survivors

Together, we’ll explore the emotional and psychological realities after a clot—and what support can look like.

🗓 Tonight | April 14 at 7:00 pm ET

🔗 Register: https://bit.ly/AprilPEP2026

#StopTheClot #BloodClotAwareness #PulmonaryEmbolism #DVT #HealthAnxiety #MedicalPTSD #ChronicIllness #PatientSupport

FINAL DAYS TO REGISTER! 🚴 The National Blood C

FINAL DAYS TO REGISTER!

🚴 The National Blood Clot Alliance is a proud charity partner of the 2026 TD Five Boro Bike Tour, presented by Bike New York.

On Sunday, May 3, 2026, cyclists from around the world will take on a once-a-year experience: riding 40 car-free miles through all five boroughs of New York City. Whether you’re a first-time rider or a seasoned cyclist, it’s an unforgettable way to see the city.

Ride with Team Stop the Clot—sport our signature red polka dots and help raise awareness about blood clots.

Don’t wait! A limited number of charity bibs are still available.
Learn more and register: bit.ly/2026TDFiveBoroBikeTour
(or find the link in our bio)

#StopTheClot #TDFiveBoroBikeTour #BikeNewYork #BloodClotAwareness #TeamStopTheClot #nationalbloodclotalliance @bikenewyork

Have you or a loved one struggled to get back to “normal” after a blood clot?

It’s more common than people realize. The NBCA-led CLUES Study—the largest survey ever conducted on the mental health impact on blood clot survivors—found that 75% of patients reported feeling moderately anxious or depressed, and more than half reported problems with their usual daily activities after their diagnosis.

For many, recovery isn’t just physical—it can affect how you work, move, and show up in everyday life.

These challenges are often closely tied to the emotional impact of a blood clot—but that part of recovery is rarely talked about.

Join us for our April PEP Talk: Navigating Emotional Trauma Post Blood Clot: The Symptom Nobody Mentioned

We’ll be joined by Dr. Leben Tefera, MD, Staff Physician, Department of Cardiovascular Medicine at Cleveland Clinic and member of NBCA’s Council of Emerging Researchers in Thrombosis, to explore the emotional and psychological realities many people face after a clot—and why they matter.

🗓 April 14 at 7:00 pm ET

🔗 Register: https://bit.ly/AprilPEP2026

#StopTheClot #BloodClotAwareness #PulmonaryEmbolism #DVT #HealthAnxiety #MedicalPTSD #ChronicIllness #PatientSupport

Black Maternal Health Week (April 11–17) Black

Black Maternal Health Week (April 11–17)

Black Maternal Health Week reminds us that every mother deserves care that is Rooted in Justice & Joy.

But it’s important to acknowledge the reality:
Black women in the U.S. are significantly more likely to experience serious pregnancy-related complications—including dangerous blood clots like deep vein thrombosis (DVT) and pulmonary embolism (PE), which remain leading causes of maternal death.

Many of these outcomes are preventable—but too often, warning signs are missed or concerns are not heard.

At the National Blood Clot Alliance, we’re working to change that.
🩸 Raising awareness of blood clot risks during pregnancy and postpartum
🩸 Sharing signs and symptoms that should never be ignored
🩸 Amplifying Black voices and experiences

🔗 Learn more about blood clot risks during and after pregnancy: https://www.stoptheclot.org/spreadtheword/pregnancy/

#BMHW26 #BlackMaternalHealthWeek #RootedInJusticeAndJoy #StopTheClot #BloodClotAwareness #MaternalHealth #HealthEquity

Practice-changing research just announced at Socie

Practice-changing research just announced at Society of Interventional Radiology!

This morning, Suresh Vedantham, M.D. — Principal Investigator of the C-TRACT Trial and a valued member of NBCA’s Medical and Scientific Advisory Board (MASAB) — presented C-TRACT results and announced publication in the New England Journal of Medicine.

The C-TRACT trial brings new insight into the treatment of post-thrombotic syndrome—an area with significant impact on long-term patient outcomes.

We’re proud that NBCA is a co-author on this important work advancing patient-centered care.

🔗 Read the paper and explore the findings: https://bit.ly/NEMJ-CTRACT

#SIR2026 #SIR26TOR #StopTheClot #PostThromboticSyndrome #CTRACT
@sirspecialists @uwsomwwami

She thought it was just a cough. But within days,

She thought it was just a cough.

But within days, she was in the ICU fighting for her life with massive blood clots in both lungs.

Blood clots can escalate quickly—and symptoms like shortness of breath and fatigue shouldn’t be ignored.

At the National Blood Clot Alliance, we share real patient stories to raise awareness and help others recognize the signs.

➡️ Read her full story at the link in bio
➡️ Share your story to help others

#StopTheClot #BloodClotAwareness #PulmonaryEmbolism #KnowTheSigns #PatientAdvocacy

NBCA ADVOCACY NEWS: The Blake Burgess Blood Clot P

NBCA ADVOCACY NEWS: The Blake Burgess Blood Clot Prevention Act (HB 3644) passed the Oklahoma Senate committee 9-0. NINE to ZERO on April 8th.

Blake Burgess was 21 years old when a blood clot took his life. This bill — his legacy — would require Oklahoma hospitals to screen patients for VTE risk and train staff to respond.

Next stop: the full Senate floor. Then Governor Stitt’s desk.

In Oklahoma? Tell your Senator to #VoteYesForBlake https://www.stoptheclot.org/blake-burgess-blood-clot-bill/

We’re almost there. 💙 #BlakeBurgessBloodClotPrevention #StopTheClot #OklahomaBloodClotPrevention #HB3644 #VoteYesForBlake

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