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July 2020

JULY E-NEWSLETTER | STAYING ACTIVE TO PREVENT BLOOD CLOTS

Blood clots can affect people of all ages, but they become increasingly common as people age, …

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IU Health Methodist Hospital Named Indiana’s First NBCA VTE Center of Excellence™

The National Blood Clot Alliance (NBCA) is proud to announce IU Health Methodist Hospital as Indiana’s first NBCA Venous Thromboembolism…

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Federal Cuts Eliminate Blood Clot Education Funding: NBCA Launches Emergency Fundraising Campaign

The National Blood Clot Alliance (NBCA) is calling on its community of survivors, families, and advocates to help fill a…

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Advancing blood clot awareness, prevention, diagnosis & treatments to #stoptheclot. Submit your story @ link below ⬇️ Our podcast: Taking a Breath 🎙️

Days after a C-section, Carlie felt breathless an

Days after a C-section, Carlie felt breathless and couldn’t lie flat. A CT scan revealed bilateral pulmonary emboli, likely linked to pregnancy/C-section, with type 1 diabetes adding risk. Her message: don’t dismiss postpartum symptoms. If something feels off, get checked.

More stories: 🔗 in bio.

#StopTheClot

If you’ve had a blood clot, what symptoms did yo

If you’ve had a blood clot, what symptoms did you experience? Were you misdiagnosed at first?

Because blood clot symptoms often mimic other conditions, there are often delays in diagnosis. Sharing your story can help others know when to seek life-saving treatment as well as offer much-needed comfort.

Be an advocate for awareness — your story is your strength!

🔗 Share your story: Link in bio.

#StopTheClot

Meghan survived two pulmonary emboli in four years

Meghan survived two pulmonary emboli in four years. The first was linked to birth control, the second was triggered by travel. She’s using her journey to remind others: never ignore symptoms, and if a doctor tells you to “just deal with it,” find one who will listen.

🔗 More stories: Link in bio.

#StopTheClot

🏅Countdown to race day! In November, Team Stop

🏅Countdown to race day! In November, Team Stop the Clot will hit the streets for the 2025 @nycmarathon and their training is in high gear.

Over the next couple months, we’re introducing you to the inspiring runners who are clocking the miles, sharing their stories, and raising funds for NBCA.

🏃‍♀️ Cameron Park of Charlotte, NC shares why he’s running for Team Stop the Clot:

“In 2023, my sister and I ran the NYC Marathon on Team Stop the Clot, raising over $9,000 to support their mission. This cause has personal significance for us. We both have factor V Leiden and we ran in honor of our grandfather, who passed away from a blood clot. I am excited to once again have the chance to fundraise and run for Team Stop the Clot in 2025."

Leave an uplifting comment or donate: Link in bio

#stoptheclot #teamstoptheclot #bloodclots #nycmarathon #bloodclotawareness #bloodclotprevention

To show our gratitude for everyone who has support

To show our gratitude for everyone who has supported our summer fundraising campaign, we’re giving away Stop the Clot gear every week through September 30!

📣 Our third winner is Joel Blackstock of Birmingham, AL, who gets a n NBCA backpack. Congratulations!

You can enter TWO ways:

1️⃣ Donate: Every donation = 1 entry. Already donated? You’re in! Want better odds? Make another gift to boost your chances!

2️⃣ Share & Like: Share and like this post = 1 entry.

Giveaway Details:

Winners are announced every Friday.

All donations support NBCA’s mission to raise awareness, provide patient support, and save lives.

Thanks to our matching campaign, your gift goes 2X s far through September 30. (It could go 3X as far if your employer has a matching gift program!)

Don't miss your chance to win Stop the Clot swag and make a meaningful impact.

👇 Let us know you entered by commenting below!

🎁 Donate: Link in bio!

Blood clots can affect anyone—but hospitalized p

Blood clots can affect anyone—but hospitalized patients face a significantly higher risk due to factors like surgery, immobility, and underlying conditions—and early recognition can save lives.

That’s why we spent the day connecting with clinicians, staff, and community members at Hillcrest South today to share practical tips on prevention, early signs, and timely treatment.

A huge thank you to the Hillcrest team for welcoming our #StopTheClotBusTour and prioritizing patient safety!

🚍 Tomorrow, we continue this mission at INTEGRIS Health Baptist Medical Center in Oklahoma City—because when awareness hits the road, prevention takes hold.

#StopTheClot #VTEAwareness #PatientSafety #PreventionSavesLives #BloodClotAwareness #PatientEducation #CommunityHealth #StopTheClotSpreadTheWord @hillcresthealthcaresystem @integrishealth

The National Blood Clot Alliance was honor to spen

The National Blood Clot Alliance was honor to spend the day at the Oklahoma Heart Institute and Hillcrest Medical Center spreading blood clot awareness with our #StopTheClotBusTour. A huge thank you to the team @hillcresthealthcaresystem for welcoming us and helping us reach patients, families, staff, and visitors with life-saving blood clot information and resources.
It’s been a great reminder that awareness starts with conversation—every interaction is an opportunity to share insights, spark questions, and help others understand the risks, signs, and prevention of blood clots.
Excited to kick off day 2 today at Hillcrest South Campus, continuing our mission and connecting with more healthcare professionals, patients, and community members to provide meaningful education. #stoptheclot #bloodclotawareness #vte #dvt #communityawareness

Phillies pitcher Zack Wheeler was recently diagnos

Phillies pitcher Zack Wheeler was recently diagnosed with deep vein thrombosis (DVT) in his throwing arm, a complication of thoracic outlet syndrome (TOS).

After undergoing a procedure to dissolve the blood clot, the Phillies announced he will need thoracic outlet decompression surgery, which often involves rib removal to relieve pressure.

TOS occurs when nerves or blood vessels between the collarbone and first rib are compressed, leading to pain, numbness, tingling, swelling, or discoloration in the arm. Athletes in sports with repeated overhead movements, like baseball, are especially at risk.

🔗 Learn more about thoracic outlet syndrome, blood clots, and athletes from Dr. Caroline Cromwell of our Medical and Scientific Advisory Board at the link in bio.

#StopTheClot #TOS #ThoracicOutletSyndrome #ZackWheeler

The Stop the Clot, Spread the Word Bus Tour is on

The Stop the Clot, Spread the Word Bus Tour is on the Move!

Yesterday, the Stop the Clot Bus Tour rolled into Tulsa, Oklahoma, visiting St. Francis Hospital to raise awareness and share life-saving information about blood clots.

Every stop is one step closer to breaking the silence around blood clots — a silent killer that takes too many lives simply because the risks, signs, and symptoms go unrecognized. Every conversation, every story, every life touched brings us closer to prevention.

A huge thank you to Shelly Sanders and the entire team at St. Francis Hospital for welcoming us and championing this mission. Together, we’re spreading the word—and saving lives.

Next stop… Oklahoma City! Because when awareness hits the road, prevention takes hold.

👉 Follow along at #StoptheClotSpreadtheWord #StopTheClotBusTour @saintfrancistulsa

Saru’s first blood clot went undiagnosed. Two ye

Saru’s first blood clot went undiagnosed. Two years later, in severe pain, she was diagnosed with a DVT. Despite treatment, new clots kept forming, leaving her worried about the future.

Read Saru’s full story and explore others: Link in bio.

#StopTheClot #StopTheClotStory #BloodClots

🚍 From churches in the South to hospitals and h

🚍 From churches in the South to hospitals and health centers nationwide, the Stop the Clot Bus Tour is rolling forward.

It began in March with visits to Black churches, where conversations about clot risks and symptoms saved lives. Now, we’re expanding that mission and taking lifesaving education to more communities across the country. Because when awareness hits the road, prevention takes hold. ❤️

Every stop helps to shine a light around blood clots, a leading cause of preventable death because risks and symptoms go unrecognized.

👉 Follow the journey. Join the movement. Save lives.

#StopTheClot #StopTheClotBusTour #StopTheClotSpreadTheWord

To show our gratitude for everyone who has support

To show our gratitude for everyone who has supported our summer fundraising campaign, we’re giving away Stop the Clot gear every week through September 30!

📣 Our second winner is David Adam of Clarence Center, NY, who gets a n NBCA beach towel. Congratulations!

You can enter TWO ways:

1️⃣ Donate: Every donation = 1 entry. Already donated? You’re in! Want better odds? Make another gift to boost your chances!

2️⃣ Share & Like: Share and like this post = 1 entry.

Giveaway Details:

Winners are announced every Friday.

All donations support NBCA’s mission to raise awareness, provide patient support, and save lives.

Thanks to our matching campaign, your gift goes 2X s far through September 30. (It could go 3X as far if your employer has a matching gift program!)

Don't miss your chance to win Stop the Clot swag and make a meaningful impact.

👇 Let us know you entered by commenting below!

🎁 Donate: Link in bio.

#StopTheClot #BloodClots #FundraisingFriday #BloodClotAwareness

Rhonda walked into the ER with what turned out to

Rhonda walked into the ER with what turned out to be textbook signs of DVT and PE. She was later diagnosed with May-Thurner syndrome and, after another clotting episode, received a venous stent in 2024.

👉 Her journey taught her two powerful lessons: advocate fiercely for your health, and keep living life without fear. You’re not a prisoner of this experience. Swipe through to read Rhonda’s full story and explore other stories: Link in bio.

#StopTheClot #StopTheClotStory #BloodClots #MayThurnerSyndrome

After a blood clot diagnosis, the path forward isn

After a blood clot diagnosis, the path forward isn’t always clear. That’s why our next PEP Talk is aimed at those who are newly diagnosed or still learning about their condition.

📅 Tuesday, Sept. 9 at 7 p.m. ET

👩‍⚕️ Featuring nurse practitioner Diane Wirth, a member of our Medical and Scientific Advisory Board

We’ll cover:

✔️ Blood Clots 101: What to expect after diagnosis

✔️ Self-care steps to manage your condition

✔️ How to navigate your healthcare journey with confidence

Whether you’re starting recovery or supporting a loved one, this session offers clarity and guidance.

👉 Save your spot: Link in bio.

#StopTheClot #BloodClots #VTE #NewDiagnosis #BloodClotAwareness

🎉 The Stop the Clot merch vault is open! 🎉

🎉 The Stop the Clot merch vault is open! 🎉

As a thank you for supporting our summer campaign, we’re giving away Stop the Clot gear every week through September 30. This week’s item is a beach towel!

Here’s how to enter:

1️⃣ Donate: Every donation = 1 entry. Already gave? You’re in! Want better odds? Another gift boosts your chances.

2️⃣ Share and Like: Spread the word and hit like = 1 entry.

✨ Winners announced every Friday!

Every donation powers NBCA’s mission to raise awareness, support patients, and save lives. Plus, your gift goes 2X as far with our matching campaign (and maybe 3X if your employer matches too!).

Don’t miss your chance to score Stop the Clot swag and make a difference.

🎁 Donate today: Link in bio.

#StopTheClot #BloodClots #FundraisingFriday #BloodClotAwareness

✨Because of you, hope is growing. This summer,

✨Because of you, hope is growing.

This summer, our community is stepping up to raise awareness and save lives. Thanks to your support, thousands of people are learning how to recognize and prevent blood clots — and patients are getting the resources and support they need.

Meet Laura, who recently shared:

“NBCA collectively embraces you. They just get it. From blood clot stories to resources you know you can count on, NBCA is a beacon of light.” 🌟

To everyone who donated, shared, or spoke up: this is the difference YOU make.

🔗 Haven’t joined in yet? There’s still time to DOUBLE your impact: Link in bio.

#StopTheClot #BloodClots #BloodClotAwareness #BloodClotFunding

🏅Countdown to race day! In November, Team Stop

🏅Countdown to race day! In November, Team Stop the Clot will hit the streets for 2025 TCS New York City Marathon and their training is in high gear.

Over the next couple months, we’re introducing you to the inspiring runners who are clocking the miles, sharing their stories, and raising funds for NBCA.

🏃‍♀️ Patrick Firth of Rockaway Park, NY shares why he’s running for Team Stop the Clot:

“In January of 2018, I suffered an unprovoked bilateral pulmonary embolism. I am forever grateful for the treatment I received, allowing me to have a speedy recovery and continue living a full life. The National Blood Clot Alliance is doing essential research in the prevention, treatment, and early detection of blood clot disorders to help people like myself live longer and healthier lives.”

Support Patrick as he trains for the 2025 NYC Marathon with Team Stop the Clot! Leave an uplifting comment or donate: Link in bio.

#stoptheclot #teamstoptheclot #bloodclots #nycmarathon #bloodclotawareness #bloodclotprevention

🚨 It’s $10 Tuesday! 🚨 ☕ What if you gav

🚨 It’s $10 Tuesday! 🚨

☕ What if you gave up your latte this week and used that $10 to help save lives?

✅ $10 provides 50 blood clot awareness cards that can be shared in doctors’ offices, community events, or hospitals.
✅ $10 provides 25 New Patient Guides to help patients and families navigate a blood clot diagnosis.
✅ $10 fuels outreach to at-risk communities, helping reduce delayed diagnosis and save lives.

✨ Thanks to our President’s $100,000 match, your $10 instantly becomes $20, doubling your impact.

That’s the power of skipping one small treat to make a BIG difference.

👉 Give $10 today: https://bit.ly/StopTheClotSummer2025

#StopTheClot #BloodClots #BloodClotAwareness #BloodClotFunding #10DollarTuesday #GiveBack #BloodClotSurvivor #CommunitySupport #DonorMatch

Today is National Patient Advocacy Day! Your voic

Today is National Patient Advocacy Day!

Your voice matters. Speaking up, asking questions, and knowing your options can change your health journey. Advocacy comes in many forms:

✔️ For yourself: Learn, question, and make informed choices.

✔️Through organizations: Groups like the National Blood Clot Alliance provide resources, education, and support to empower patients and caregivers to navigate complex health decisions.

✔️With professionals: Trained patient advocates can help navigate medical decisions, insurance, and treatment plans. Advocates are available through hospitals, nonprofits, and insurance plans, and some are board-certified for specialized expertise.

🔗Find a board-certified patient advocate near you: Link in bio.

#StopTheClot #BloodClots #VTE #PatientAdvocacy #NationalPatientAdvocacyDay

The latest pro athlete to be diagnosed with blood

The latest pro athlete to be diagnosed with blood clots is Zack Wheeler, star pitcher for the @Phillies.

Wheeler underwent a successful thrombolysis procedure to remove a blood clot in his right upper extremity on Monday morning at Thomas Jefferson University Hospital in Philadelphia.

Wheeler’s first symptom of deep vein thrombosis was reportedly a feeling of heaviness in his right shoulder on Friday, when he pitched five innings against the Nationals. The blood clot was discovered Saturday, and he was placed on a 15-day injured list.

Even though pro athletes often young and healthy, certain factors in sports can raise clot risk:

⚾ Dehydration from intense training

⚾Injuries or surgeries that limit movement

⚾Long travel to games or events

⚾ Repetitive motions that compress veins (like pitching or cycling)

The National Blood Clot Alliance wishes Zack a full and speedy recovery.

🔗More about athletes and blood clots: Link in bio.

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