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January e-Newsletter | The Year Ahead

As 2018 begins, NBCA extends its wishes to you for a very happy and healthy New Year. We are …

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IU Health Methodist Hospital Named Indiana’s First NBCA VTE Center of Excellence™

The National Blood Clot Alliance (NBCA) is proud to announce IU Health Methodist Hospital as Indiana’s first NBCA Venous Thromboembolism…

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Federal Cuts Eliminate Blood Clot Education Funding: NBCA Launches Emergency Fundraising Campaign

The National Blood Clot Alliance (NBCA) is calling on its community of survivors, families, and advocates to help fill a…

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Advancing blood clot awareness, prevention, diagnosis & treatments to #stoptheclot. Submit your story @ link below ⬇️ Our podcast: Taking a Breath 🎙️

💊As the fall semester kicks off, make sure you’re choosing birth control with your health in mind. Some options, like the pill, patch, or ring, contain estrogen, which can raise your risk of dangerous blood clots, especially if you:

• Smoke
• Carry extra weight
• Have a family history of clots
• Spend long stretches inactive (travel, recovery after surgery)

Safer alternatives exist, like condoms, the copper IUD, or progestin-only methods such as the over-the-counter Opill, that won’t increase clot risk.

If you or a family member has had blood clots, talk to your healthcare provider about the best options for you.

Take our women’s risk assessment and share it with your doctor: Link in bio.

#stoptheclot #bloodclots #birthcontrol #opill #bloodclotawareness #bloodclotprevention #knowyourrisk

Kara began estrogen-based birth control for hot fl

Kara began estrogen-based birth control for hot flashes but soon developed severe shortness of breath. Misdiagnosed with anxiety, she struggled for two days before an ER visit revealed multiple blood clots.👉 Read her full story and explore others: 🔗 in bio.

#StopTheClot #StopTheClotStory #BloodClots #FactorII

🎉 We've opened the Stop the Clot merch vault, a

🎉 We've opened the Stop the Clot merch vault, and we have our first winner! 🎉

To show our gratitude for everyone who has supported our summer fundraising campaign, we’re giving away Stop the Clot gear every week through September 30!

📣 Our first winner is Susan Day of Alpharetta, Georgia, who gets a never-before-seen NBCA boat bag. Congratulations!

You can enter TWO ways:

1️⃣ Donate: Every donation = 1 entry. Already donated? You’re in! Want better odds? Make another gift to boost your chances!

2️⃣ Share & Like: Share and like this post = 1 entry.

Giveaway Details:

Winners are announced every Thursday.

All donations support NBCA’s mission to raise awareness, provide patient support, and save lives.

Thanks to our matching campaign, your gift goes 2X s far through September 30. (It could go 3X as far if your employer has a matching gift program!)

Don't miss your chance to win Stop the Clot swag and make a meaningful impact.

👇 Let us know you entered by commenting below!

🔗 Donate: link in bio.

#StopTheClot #BloodClots #FundraisingFriday #BloodClotAwareness

Being diagnosed with a blood clot can upend your w

Being diagnosed with a blood clot can upend your world, leaving you with more questions than answers. That’s where we come in.

Join us Tuesday, September 9 at 7 p.m. ET for a special PEP Talk for people who are newly diagnosed or still learning about their condition. Our expert is nurse practitioner Diane Wirth, a member of our Medical and Scientific Advisory Board.

We’ll cover:

✔️ Blood Clots 101: What to expect after diagnosis and common challenges.

✔️ Self-care steps to manage your condition and lower risks.

✔️ How to navigate your healthcare journey with more confidence.

Whether you’re just starting recovery or helping a loved one, you’ll walk away with clarity and support.

We hope to see you! Register: 🔗 in bio.

#StopTheClot #BloodClots #VTE #NewDiagnosis #BloodClotAwareness

💗 Life after a blood clot can feel like unchart

💗 Life after a blood clot can feel like uncharted territory, but you don’t have to figure it out alone.

Our private Facebook support group is now 10,000 members strong — a community where survivors share their stories, exchange helpful tips, and lift each other up through every stage of recovery.

Whether you’re looking for answers, encouragement, or just someone who “gets it,” you’ll find it here.

Join us: 🔗 in bio.

#StopTheClot

Thank you to everyone who joined last night’s PE

Thank you to everyone who joined last night’s PEP Talk on aging and blood clots with Dr. Anna Parks, hematologist from the University of Utah.

In this clip, Dr. Parks explains the concept of “inflammaging,” the low-grade, chronic inflammation that tends to develop as we age.

It’s not the same as the intense inflammation that happens when fighting an infection or healing from an injury. Instead, it’s subtle and persistent, often going unnoticed. Over time, this background inflammation is thought to contribute to many health conditions, including blood clots.

🎥Watch the full recording and explore other PEP Talks: 🔗in bio

Join us for our next discussion on Sept. 9 at 7 p.m. on navigating a new blood clot diagnosis. Register: 🔗 in bio!

If you’ve benefited from our PEP Talks or other resources, please consider making a donation to our summer fundraising campaign. All federal funding for blood clot education and public health awareness has been eliminated, and we need help to fill this gap.

Your donation will be matched through Sept. 30. If your employer matches charitable donations (many do!) your donation can be tripled.

Thank you to all who have donated. Make a donation: 🔗 in bio

#StopTheClot #Inflammaging #PEPTalk #BloodClotWebinar #BloodClotEducation #BloodClotAwareness

🏅Countdown to race day! In November, Team Stop

🏅Countdown to race day! In November, Team Stop the Clot will hit the streets for 2025 TCS New York City Marathon and their training is in high gear.

Over the next three months, we’re introducing you to the inspiring runners who are clocking the miles, sharing their stories, and raising funds for NBCA.

🏃‍♂️ Meg Mottola of Medford, NY a blood clot survivor, explains why she is running:

“I am an avid athlete and have run and played soccer my whole life. I experienced a pulmonary embolism and as a result can no longer play soccer, but have always wanted to run a marathon. Running for Team Stop the Clot would be a great way to accomplish that all while raising awareness.”

Support Meg as she trains for the 2025 NYC Marathon with Team Stop the Clot! Leave an uplifting comment or donate: Link in bio.

#stoptheclot #teamstoptheclot #bloodclots #nycmarathon #bloodclotawareness #bloodclotprevention

Melissa, an editor at the Wall Street Journal, ign

Melissa, an editor at the Wall Street Journal, ignored stabbing chest pain and shortness of breath after surgery. When she finally went to the ER, doctors found massive blood clots in both lungs that could have killed her. Her story is a reminder: never ignore sudden, severe symptoms like chest pain, trouble breathing, or weakness. It could save your life.

Read the article: 🔗in bio.

#StopTheClot #BloodClots #PulmonaryEmbolism #BloodClotAwareness #WallStreetJournal

🌟 Summer fundraising campaign update 🌟 Than

🌟 Summer fundraising campaign update 🌟

Thanks to your generosity, we’ve raised nearly $60,000 toward our $200,000 goal for our summer campaign—$100,000 donations + $100,000 match. That's 30% of the way there!

Let’s keep the momentum going with $10 Tuesday. Just $10 can help us reach people with life-saving information about blood clots.

Your $10 will be doubled by NBCA President Leslie Lake, and could triple to $30 if your employer matches, too.

Small donations add up fast. Give $10 today and be part of something bigger!

Donate: 🔗in bio.

#StopTheClot #BloodClots #BloodClotAwareness #BloodClotFunding

HAPPENING TONIGHT: Our August PEP Talk on aging an

HAPPENING TONIGHT: Our August PEP Talk on aging and blood clots is tonight at 7 p.m. ET.

Learn why age is a risk factor for blood clots and steps can you take to reduce your risk.

We hope to see you! (If you can’t join the live event, register anyway to receive the recording in your inbox.)

Register: 🔗in bio.

#StopTheClot #BloodClots #VTE #PEPTalk #BloodClotWebinar #BloodClotAwareness #BloodClotEducation

HAPPENING TOMORROW: Join us Tuesday, Aug. 12 at 7

HAPPENING TOMORROW: Join us Tuesday, Aug. 12 at 7 p.m. ET for our PEP Talk on aging and blood clots.

As we get older, our bodies change in many ways, and our risk for blood clots increases as well. Why is age a risk factor for blood clots, and what steps can you take to reduce your risk?

We’ll explore the connection between age and blood clots, including insights into how the aging process can contribute to clot risk and the steps you can take to stay safe.

Our medical expert is Dr. Anna Parks, hematologist and faculty member at the University of Utah’s Division of Hematology and Center on Aging.

We hope to see you! (If you can’t join the live event, register anyway to receive the recording in your inbox.)

Register: 🔗in bio.

#StopTheClot #BloodClots #VTE #PEPTalk #BloodClotWebinar #BloodClotAwareness #BloodClotEducation

When you’re diagnosed with a blood clot, the rig

When you’re diagnosed with a blood clot, the right information can make all the difference.

That’s why NBCA created the New Patient Guide, a free, trusted resource to help patients and caregivers navigate recovery after DVT, PE, or CVST. Since 2022, it’s supported thousands of people navigate their recovery.

This summer, we’re raising funds to keep resources like this free and updated because no one should have to face a blood clot alone.

If this guide has helped you or someone you care about, now is the time to give back. Your donation will be matched, doubling your donation, through September 30. If your employer offers a donation match program, you can TRIPLE your impact.

Get the guide and pay it forward: Link in bio.

#StopTheClot #BloodClots #VTE #DVT #PE #CVST #BloodClotAwareness

Days after giving birth, Victoria collapsed in the

Days after giving birth, Victoria collapsed in the ER and was diagnosed with a pulmonary embolism. The experience left her with PTSD. 👉 Swipe through to read her full story.

More patient stories: 🔗in bio.

#StopTheClot #StopTheClotStory #BloodClots #PTSD #BloodClotAwareness

🧪 Clinical Trial Opportunity: Help Advance Bloo

🧪 Clinical Trial Opportunity: Help Advance Blood Clot Research

Researchers at the National Heart, Lung, and Blood Institute in Bethesda, MD are looking for participants to join a clinical trial studying how blood clots, inflammation, and vascular diseases develop and progress over time.

They're seeking:

✔️ People aged 5+ with a history of blood clots, autoimmune disease, or vascular disorders

✔️ Healthy family members of affected individuals

This study involves optional medical evaluations, imaging, and lab tests. Some visits may be done via telehealth.

Your participation could help unlock answers about how these diseases affect the heart, brain, and other organs and guide future treatments.

🔗 Learn more and see if you're eligible: Link in bio.

#StopTheClot #BloodClots #VTE #BloodClotResearch

🎉 We're opening the Stop the Clot merch vault!

🎉 We're opening the Stop the Clot merch vault! 🎉

To show our gratitude for everyone who has supported our summer fundraising campaign, we’re giving away Stop the Clot gear every week through September 30!

You can enter TWO ways:

1️⃣ Donate: Every donation = 1 entry. Already donated? You’re in! Want better odds? Make another gift to boost your chances!

2️⃣ Share & Like: Share and like this post = 1 entry.

Giveaway Details:

Winners are announced every Thursday. All donations support NBCA’s mission to raise awareness, provide patient support, and save lives.

Thanks to our matching campaign, your gift goes 2X s far through September 30. (It could go 3X as far if your employer has a matching gift program!)

Don't miss your chance to win Stop the Clot swag and make a meaningful impact.

👇 Let us know you entered by commenting below!

🎁 Donate now: Link in bio.

#StopTheClot #BloodClots #FundraisingFriday #BloodClotAwareness

At just 14, Madison had a blood clot that stretche

At just 14, Madison had a blood clot that stretched from her abdomen to her ankle. Diagnosed with May-Thurner syndrome, she endured multiple hospitalizations, surgery, and weeks of recovery all during hurricane season. 👉Swipe through to read her story.

Join us in October for our PEP Talk on blood clots in children to learn more about risk factors, signs to watch for, and how to advocate for the kids in your life: Link in bio.

#StopTheClot #BloodClots #PediatricVTE #PediatricBloodClots #BloodClotAwareness

“I never thought it could happen to my child,”

“I never thought it could happen to my child,” says Arshell, who tragically lost her daughter Leschel to a preventable blood clot. Turning heartbreak into purpose, Arshell now serves as an NBCA Thrombassador and secretary of our Board of Directors, working tirelessly to raise awareness and save lives.

This summer, she and her family will host the 5th Annual BBQ in Memory of Leschel at Commodore Barry Park in Brooklyn—sharing life-saving information about blood clots with their community.
One life lost is one too many. Your gift can help stop future tragedies by funding critical awareness and education. And right now, every donation made by 9/30 will be matched—doubling your impact.

Give in memory of Leschel and all those taken too soon by blood clots. Together, we can save lives.

🎁 Donate: Link in bio

#StopTheClot #BloodClots #PulmonaryEmbolism #BloodClotAwareness

🚨 Breaking News: Starting today, donations to t

🚨 Breaking News: Starting today, donations to the National Blood Clot Alliance can be tripled! 🚨

Federal funding cuts have eliminated key public health programs focused on blood clot awareness and education, leaving a gap the effort to prevent life-threatening blood clots—and the NBCA is stepping up to fill it.

NBCA President Leslie Lake is matching every donation through Sept. 30, and now, your gift can be matched again by your employer if your company offers matching donations (many do!)

This means your donation could go three times as far, supporting life-saving education, raising awareness, and providing support to individuals and families affected by blood clots.

✅ Make your donation today and check if your employer matches donations: Link in bio

#StopTheClot #BloodClots #BloodClotAwareness #BloodClotFunding

🏅Countdown to race day! In November, Team Stop

🏅Countdown to race day! In November, Team Stop the Clot will hit the streets for 2025 TCS New York City Marathon and their training is in high gear.

Over the next three months, we’re introducing you to the inspiring runners who are clocking the miles, sharing their stories, and raising funds for NBCA.

🏃‍♂️ Kim Brown of The Colony, TX is a three-time blood clot survivor who also has factor V Leiden and prothrombin gene mutation (factor II). She explains why she is running:

“Blood Clots. My demise, my fear, my downfall. My strength, my perseverance, my story. I was born with two genetic mutations that increase my risk. My story unfolded as I was about to enter my second year of graduate school for physical therapy. I was overcome with debilitating pain and could barely move. My PCP gave me pain medication, after I advocated against it. She said come back in two weeks if you still have pain.”

Fortunately, Kim remembered learning about blood clots in school and advocated for her care by going to the emergency room and getting an ultrasound. This was the first of several blood clots she would suffer in her lifetime.

🔗Support Kim as she trains for the 2025 NYC Marathon with Team Stop the Clot! Read her story and leave an encouraging comment or donate: Link in bio.

#stoptheclot #teamstoptheclot #bloodclots #nycmarathon #bloodclotawareness #bloodclotprevention

Happy National Health Center Week! 🎉 Join us a

Happy National Health Center Week! 🎉

Join us as we celebrate community health centers and their dedication to improving health outcomes and reducing disparities for vulnerable and underserved communities across the United States.

Did you know that certain populations are at higher risk for blood clots due to underlying health conditions and limited access to health care?

✅ People from lower socioeconomic backgrounds often face barriers to accessing healthcare, increasing their risk for untreated conditions that can lead to blood clots.

✅ Racial and ethnic minorities are more likely to experience health disparities, resulting in higher rates of blood clot-related complications.

Awareness and prevention are key! Health centers provide crucial services like screenings, education, and treatment to help bridge these gaps.

🔗Find a community health center in your area: Link in bio.

#StopTheClot #NationalHeathCenterWeek #HealthDisparities #HealthEquity #BloodClots #VTE

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