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January 2021 e-Newsletter

JANUARY E-NEWSLETTER: CONTINUING OUR WORK IN 2021

It’s a new year, but our mission remains the same. We’re looking forward to our …

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IU Health Methodist Hospital Named Indiana’s First NBCA VTE Center of Excellence™

The National Blood Clot Alliance (NBCA) is proud to announce IU Health Methodist Hospital as Indiana’s first NBCA Venous Thromboembolism…

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Federal Cuts Eliminate Blood Clot Education Funding: NBCA Launches Emergency Fundraising Campaign

The National Blood Clot Alliance (NBCA) is calling on its community of survivors, families, and advocates to help fill a…

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Advancing blood clot awareness, prevention, diagnosis & treatments to #stoptheclot. Submit your story @ link below ⬇️ Our podcast: Taking a Breath 🎙️

🚍 From churches in the South to hospitals and h

🚍 From churches in the South to hospitals and health centers nationwide, the Stop the Clot Bus Tour is rolling forward.

It began in March with visits to Black churches, where conversations about clot risks and symptoms saved lives. Now, we’re expanding that mission and taking lifesaving education to more communities across the country. Because when awareness hits the road, prevention takes hold. ❤️

Every stop helps to shine a light around blood clots, a leading cause of preventable death because risks and symptoms go unrecognized.

👉 Follow the journey. Join the movement. Save lives.

#StopTheClot #StopTheClotBusTour #StopTheClotSpreadTheWord

To show our gratitude for everyone who has support

To show our gratitude for everyone who has supported our summer fundraising campaign, we’re giving away Stop the Clot gear every week through September 30!

📣 Our second winner is David Adam of Clarence Center, NY, who gets a n NBCA beach towel. Congratulations!

You can enter TWO ways:

1️⃣ Donate: Every donation = 1 entry. Already donated? You’re in! Want better odds? Make another gift to boost your chances!

2️⃣ Share & Like: Share and like this post = 1 entry.

Giveaway Details:

Winners are announced every Friday.

All donations support NBCA’s mission to raise awareness, provide patient support, and save lives.

Thanks to our matching campaign, your gift goes 2X s far through September 30. (It could go 3X as far if your employer has a matching gift program!)

Don't miss your chance to win Stop the Clot swag and make a meaningful impact.

👇 Let us know you entered by commenting below!

🎁 Donate: Link in bio.

#StopTheClot #BloodClots #FundraisingFriday #BloodClotAwareness

Rhonda walked into the ER with what turned out to

Rhonda walked into the ER with what turned out to be textbook signs of DVT and PE. She was later diagnosed with May-Thurner syndrome and, after another clotting episode, received a venous stent in 2024.

👉 Her journey taught her two powerful lessons: advocate fiercely for your health, and keep living life without fear. You’re not a prisoner of this experience. Swipe through to read Rhonda’s full story and explore other stories: Link in bio.

#StopTheClot #StopTheClotStory #BloodClots #MayThurnerSyndrome

After a blood clot diagnosis, the path forward isn

After a blood clot diagnosis, the path forward isn’t always clear. That’s why our next PEP Talk is aimed at those who are newly diagnosed or still learning about their condition.

📅 Tuesday, Sept. 9 at 7 p.m. ET

👩‍⚕️ Featuring nurse practitioner Diane Wirth, a member of our Medical and Scientific Advisory Board

We’ll cover:

✔️ Blood Clots 101: What to expect after diagnosis

✔️ Self-care steps to manage your condition

✔️ How to navigate your healthcare journey with confidence

Whether you’re starting recovery or supporting a loved one, this session offers clarity and guidance.

👉 Save your spot: Link in bio.

#StopTheClot #BloodClots #VTE #NewDiagnosis #BloodClotAwareness

🎉 The Stop the Clot merch vault is open! 🎉

🎉 The Stop the Clot merch vault is open! 🎉

As a thank you for supporting our summer campaign, we’re giving away Stop the Clot gear every week through September 30. This week’s item is a beach towel!

Here’s how to enter:

1️⃣ Donate: Every donation = 1 entry. Already gave? You’re in! Want better odds? Another gift boosts your chances.

2️⃣ Share and Like: Spread the word and hit like = 1 entry.

✨ Winners announced every Friday!

Every donation powers NBCA’s mission to raise awareness, support patients, and save lives. Plus, your gift goes 2X as far with our matching campaign (and maybe 3X if your employer matches too!).

Don’t miss your chance to score Stop the Clot swag and make a difference.

🎁 Donate today: Link in bio.

#StopTheClot #BloodClots #FundraisingFriday #BloodClotAwareness

✨Because of you, hope is growing. This summer,

✨Because of you, hope is growing.

This summer, our community is stepping up to raise awareness and save lives. Thanks to your support, thousands of people are learning how to recognize and prevent blood clots — and patients are getting the resources and support they need.

Meet Laura, who recently shared:

“NBCA collectively embraces you. They just get it. From blood clot stories to resources you know you can count on, NBCA is a beacon of light.” 🌟

To everyone who donated, shared, or spoke up: this is the difference YOU make.

🔗 Haven’t joined in yet? There’s still time to DOUBLE your impact: Link in bio.

#StopTheClot #BloodClots #BloodClotAwareness #BloodClotFunding

🏅Countdown to race day! In November, Team Stop

🏅Countdown to race day! In November, Team Stop the Clot will hit the streets for 2025 TCS New York City Marathon and their training is in high gear.

Over the next couple months, we’re introducing you to the inspiring runners who are clocking the miles, sharing their stories, and raising funds for NBCA.

🏃‍♀️ Patrick Firth of Rockaway Park, NY shares why he’s running for Team Stop the Clot:

“In January of 2018, I suffered an unprovoked bilateral pulmonary embolism. I am forever grateful for the treatment I received, allowing me to have a speedy recovery and continue living a full life. The National Blood Clot Alliance is doing essential research in the prevention, treatment, and early detection of blood clot disorders to help people like myself live longer and healthier lives.”

Support Patrick as he trains for the 2025 NYC Marathon with Team Stop the Clot! Leave an uplifting comment or donate: Link in bio.

#stoptheclot #teamstoptheclot #bloodclots #nycmarathon #bloodclotawareness #bloodclotprevention

🚨 It’s $10 Tuesday! 🚨 ☕ What if you gav

🚨 It’s $10 Tuesday! 🚨

☕ What if you gave up your latte this week and used that $10 to help save lives?

✅ $10 provides 50 blood clot awareness cards that can be shared in doctors’ offices, community events, or hospitals.
✅ $10 provides 25 New Patient Guides to help patients and families navigate a blood clot diagnosis.
✅ $10 fuels outreach to at-risk communities, helping reduce delayed diagnosis and save lives.

✨ Thanks to our President’s $100,000 match, your $10 instantly becomes $20, doubling your impact.

That’s the power of skipping one small treat to make a BIG difference.

👉 Give $10 today: https://bit.ly/StopTheClotSummer2025

#StopTheClot #BloodClots #BloodClotAwareness #BloodClotFunding #10DollarTuesday #GiveBack #BloodClotSurvivor #CommunitySupport #DonorMatch

Today is National Patient Advocacy Day! Your voic

Today is National Patient Advocacy Day!

Your voice matters. Speaking up, asking questions, and knowing your options can change your health journey. Advocacy comes in many forms:

✔️ For yourself: Learn, question, and make informed choices.

✔️Through organizations: Groups like the National Blood Clot Alliance provide resources, education, and support to empower patients and caregivers to navigate complex health decisions.

✔️With professionals: Trained patient advocates can help navigate medical decisions, insurance, and treatment plans. Advocates are available through hospitals, nonprofits, and insurance plans, and some are board-certified for specialized expertise.

🔗Find a board-certified patient advocate near you: Link in bio.

#StopTheClot #BloodClots #VTE #PatientAdvocacy #NationalPatientAdvocacyDay

The latest pro athlete to be diagnosed with blood

The latest pro athlete to be diagnosed with blood clots is Zack Wheeler, star pitcher for the @Phillies.

Wheeler underwent a successful thrombolysis procedure to remove a blood clot in his right upper extremity on Monday morning at Thomas Jefferson University Hospital in Philadelphia.

Wheeler’s first symptom of deep vein thrombosis was reportedly a feeling of heaviness in his right shoulder on Friday, when he pitched five innings against the Nationals. The blood clot was discovered Saturday, and he was placed on a 15-day injured list.

Even though pro athletes often young and healthy, certain factors in sports can raise clot risk:

⚾ Dehydration from intense training

⚾Injuries or surgeries that limit movement

⚾Long travel to games or events

⚾ Repetitive motions that compress veins (like pitching or cycling)

The National Blood Clot Alliance wishes Zack a full and speedy recovery.

🔗More about athletes and blood clots: Link in bio.

A blood clot diagnosis can turn your world upside

A blood clot diagnosis can turn your world upside down. In fact, hematologist Dr. Anna Parks says the emotional toll can be as devastating as a cancer diagnosis.

That’s why every quarter we devote a PEP Talk to those who are newly diagnosed, offering clear information, trusted resources, and a supportive space to ask questions.

Join us Tuesday, Sept. 9 at 7 p.m. for our next session, and connect with more than 10,000 people who truly understand in our private Facebook support group. You don’t have to go through this alone.

Register for PEP Talk and join our support group at the link in bio.

#StopTheClot #BloodClots #VTE #NewDiagnosis #BloodClotAwareness

Jasmine’s knee pain was misdiagnosed until a CT

Jasmine’s knee pain was misdiagnosed until a CT scan revealed a pulmonary embolism likely linked to a bone infection. Several years later, she had another PE after Covid and now takes lifelong anticoagulants. Her advice: trust your instincts and push for answers. 👉 Read Jasmine's full story and explore others at the link in bio.

#StopTheClot #StopTheClotStory #BloodClots #PE

Today, on National Nonprofit Day, we invite you to

Today, on National Nonprofit Day, we invite you to join us in the fight against one of the most common yet preventable causes of death: blood clots.

Every year, 900,000 Americans are diagnosed, and 100,000 will die as a result. Together, we can change that.

The National Blood Clot Alliance (NBCA) is dedicated to raising awareness, advancing prevention, and ensuring everyone has access to life-saving information. Our mission is urgent: reduce lives lost to blood clots and provide essential support to those who need it most.

Right now, your impact can go even further. Through September 30, all donations to our summer fundraising campaign will be matched — and if your employer matches charitable gifts, your donation could be tripled.

Thank you to everyone who has already donated. If our work has touched your life in any way, please consider giving today. Your generosity can save lives.

Donate: 🔗in bio

On National Nonprofit Day, we want to hear from you: has NBCA made a difference in your life?

#StopTheClot #NationalNonprofitDay #NonprofitsGetItDone #BloodClots

💊As the fall semester kicks off, make sure you’re choosing birth control with your health in mind. Some options, like the pill, patch, or ring, contain estrogen, which can raise your risk of dangerous blood clots, especially if you:

• Smoke
• Carry extra weight
• Have a family history of clots
• Spend long stretches inactive (travel, recovery after surgery)

Safer alternatives exist, like condoms, the copper IUD, or progestin-only methods such as the over-the-counter Opill, that won’t increase clot risk.

If you or a family member has had blood clots, talk to your healthcare provider about the best options for you.

Take our women’s risk assessment and share it with your doctor: Link in bio.

#stoptheclot #bloodclots #birthcontrol #opill #bloodclotawareness #bloodclotprevention #knowyourrisk

Kara began estrogen-based birth control for hot fl

Kara began estrogen-based birth control for hot flashes but soon developed severe shortness of breath. Misdiagnosed with anxiety, she struggled for two days before an ER visit revealed multiple blood clots.👉 Read her full story and explore others: 🔗 in bio.

#StopTheClot #StopTheClotStory #BloodClots #FactorII

🎉 We've opened the Stop the Clot merch vault, a

🎉 We've opened the Stop the Clot merch vault, and we have our first winner! 🎉

To show our gratitude for everyone who has supported our summer fundraising campaign, we’re giving away Stop the Clot gear every week through September 30!

📣 Our first winner is Susan Day of Alpharetta, Georgia, who gets a never-before-seen NBCA boat bag. Congratulations!

You can enter TWO ways:

1️⃣ Donate: Every donation = 1 entry. Already donated? You’re in! Want better odds? Make another gift to boost your chances!

2️⃣ Share & Like: Share and like this post = 1 entry.

Giveaway Details:

Winners are announced every Thursday.

All donations support NBCA’s mission to raise awareness, provide patient support, and save lives.

Thanks to our matching campaign, your gift goes 2X s far through September 30. (It could go 3X as far if your employer has a matching gift program!)

Don't miss your chance to win Stop the Clot swag and make a meaningful impact.

👇 Let us know you entered by commenting below!

🔗 Donate: link in bio.

#StopTheClot #BloodClots #FundraisingFriday #BloodClotAwareness

Being diagnosed with a blood clot can upend your w

Being diagnosed with a blood clot can upend your world, leaving you with more questions than answers. That’s where we come in.

Join us Tuesday, September 9 at 7 p.m. ET for a special PEP Talk for people who are newly diagnosed or still learning about their condition. Our expert is nurse practitioner Diane Wirth, a member of our Medical and Scientific Advisory Board.

We’ll cover:

✔️ Blood Clots 101: What to expect after diagnosis and common challenges.

✔️ Self-care steps to manage your condition and lower risks.

✔️ How to navigate your healthcare journey with more confidence.

Whether you’re just starting recovery or helping a loved one, you’ll walk away with clarity and support.

We hope to see you! Register: 🔗 in bio.

#StopTheClot #BloodClots #VTE #NewDiagnosis #BloodClotAwareness

💗 Life after a blood clot can feel like unchart

💗 Life after a blood clot can feel like uncharted territory, but you don’t have to figure it out alone.

Our private Facebook support group is now 10,000 members strong — a community where survivors share their stories, exchange helpful tips, and lift each other up through every stage of recovery.

Whether you’re looking for answers, encouragement, or just someone who “gets it,” you’ll find it here.

Join us: 🔗 in bio.

#StopTheClot

Thank you to everyone who joined last night’s PE

Thank you to everyone who joined last night’s PEP Talk on aging and blood clots with Dr. Anna Parks, hematologist from the University of Utah.

In this clip, Dr. Parks explains the concept of “inflammaging,” the low-grade, chronic inflammation that tends to develop as we age.

It’s not the same as the intense inflammation that happens when fighting an infection or healing from an injury. Instead, it’s subtle and persistent, often going unnoticed. Over time, this background inflammation is thought to contribute to many health conditions, including blood clots.

🎥Watch the full recording and explore other PEP Talks: 🔗in bio

Join us for our next discussion on Sept. 9 at 7 p.m. on navigating a new blood clot diagnosis. Register: 🔗 in bio!

If you’ve benefited from our PEP Talks or other resources, please consider making a donation to our summer fundraising campaign. All federal funding for blood clot education and public health awareness has been eliminated, and we need help to fill this gap.

Your donation will be matched through Sept. 30. If your employer matches charitable donations (many do!) your donation can be tripled.

Thank you to all who have donated. Make a donation: 🔗 in bio

#StopTheClot #Inflammaging #PEPTalk #BloodClotWebinar #BloodClotEducation #BloodClotAwareness

🏅Countdown to race day! In November, Team Stop

🏅Countdown to race day! In November, Team Stop the Clot will hit the streets for 2025 TCS New York City Marathon and their training is in high gear.

Over the next three months, we’re introducing you to the inspiring runners who are clocking the miles, sharing their stories, and raising funds for NBCA.

🏃‍♂️ Meg Mottola of Medford, NY a blood clot survivor, explains why she is running:

“I am an avid athlete and have run and played soccer my whole life. I experienced a pulmonary embolism and as a result can no longer play soccer, but have always wanted to run a marathon. Running for Team Stop the Clot would be a great way to accomplish that all while raising awareness.”

Support Meg as she trains for the 2025 NYC Marathon with Team Stop the Clot! Leave an uplifting comment or donate: Link in bio.

#stoptheclot #teamstoptheclot #bloodclots #nycmarathon #bloodclotawareness #bloodclotprevention

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