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December 2019

DECEMBER E-NEWSLETTER | SEASON’S GREETINGS FROM NBCA

This past year gave way to many shining moments for the National Blood Clot Alliance (NBCA), as …

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IU Health Methodist Hospital Named Indiana’s First NBCA VTE Center of Excellence™

The National Blood Clot Alliance (NBCA) is proud to announce IU Health Methodist Hospital as Indiana’s first NBCA Venous Thromboembolism…

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Federal Cuts Eliminate Blood Clot Education Funding: NBCA Launches Emergency Fundraising Campaign

The National Blood Clot Alliance (NBCA) is calling on its community of survivors, families, and advocates to help fill a…

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Advancing blood clot awareness, prevention, diagnosis & treatments to #stoptheclot. Submit your story @ link below ⬇️ Our podcast: Taking a Breath 🎙️

Melissa, an editor at the Wall Street Journal, ign

Melissa, an editor at the Wall Street Journal, ignored stabbing chest pain and shortness of breath after surgery. When she finally went to the ER, doctors found massive blood clots in both lungs that could have killed her. Her story is a reminder: never ignore sudden, severe symptoms like chest pain, trouble breathing, or weakness. It could save your life.

Read the article: 🔗in bio.

#StopTheClot #BloodClots #PulmonaryEmbolism #BloodClotAwareness #WallStreetJournal

🌟 Summer fundraising campaign update 🌟 Than

🌟 Summer fundraising campaign update 🌟

Thanks to your generosity, we’ve raised nearly $60,000 toward our $200,000 goal for our summer campaign—$100,000 donations + $100,000 match. That's 30% of the way there!

Let’s keep the momentum going with $10 Tuesday. Just $10 can help us reach people with life-saving information about blood clots.

Your $10 will be doubled by NBCA President Leslie Lake, and could triple to $30 if your employer matches, too.

Small donations add up fast. Give $10 today and be part of something bigger!

Donate: 🔗in bio.

#StopTheClot #BloodClots #BloodClotAwareness #BloodClotFunding

HAPPENING TONIGHT: Our August PEP Talk on aging an

HAPPENING TONIGHT: Our August PEP Talk on aging and blood clots is tonight at 7 p.m. ET.

Learn why age is a risk factor for blood clots and steps can you take to reduce your risk.

We hope to see you! (If you can’t join the live event, register anyway to receive the recording in your inbox.)

Register: 🔗in bio.

#StopTheClot #BloodClots #VTE #PEPTalk #BloodClotWebinar #BloodClotAwareness #BloodClotEducation

HAPPENING TOMORROW: Join us Tuesday, Aug. 12 at 7

HAPPENING TOMORROW: Join us Tuesday, Aug. 12 at 7 p.m. ET for our PEP Talk on aging and blood clots.

As we get older, our bodies change in many ways, and our risk for blood clots increases as well. Why is age a risk factor for blood clots, and what steps can you take to reduce your risk?

We’ll explore the connection between age and blood clots, including insights into how the aging process can contribute to clot risk and the steps you can take to stay safe.

Our medical expert is Dr. Anna Parks, hematologist and faculty member at the University of Utah’s Division of Hematology and Center on Aging.

We hope to see you! (If you can’t join the live event, register anyway to receive the recording in your inbox.)

Register: 🔗in bio.

#StopTheClot #BloodClots #VTE #PEPTalk #BloodClotWebinar #BloodClotAwareness #BloodClotEducation

When you’re diagnosed with a blood clot, the rig

When you’re diagnosed with a blood clot, the right information can make all the difference.

That’s why NBCA created the New Patient Guide, a free, trusted resource to help patients and caregivers navigate recovery after DVT, PE, or CVST. Since 2022, it’s supported thousands of people navigate their recovery.

This summer, we’re raising funds to keep resources like this free and updated because no one should have to face a blood clot alone.

If this guide has helped you or someone you care about, now is the time to give back. Your donation will be matched, doubling your donation, through September 30. If your employer offers a donation match program, you can TRIPLE your impact.

Get the guide and pay it forward: Link in bio.

#StopTheClot #BloodClots #VTE #DVT #PE #CVST #BloodClotAwareness

Days after giving birth, Victoria collapsed in the

Days after giving birth, Victoria collapsed in the ER and was diagnosed with a pulmonary embolism. The experience left her with PTSD. 👉 Swipe through to read her full story.

More patient stories: 🔗in bio.

#StopTheClot #StopTheClotStory #BloodClots #PTSD #BloodClotAwareness

🧪 Clinical Trial Opportunity: Help Advance Bloo

🧪 Clinical Trial Opportunity: Help Advance Blood Clot Research

Researchers at the National Heart, Lung, and Blood Institute in Bethesda, MD are looking for participants to join a clinical trial studying how blood clots, inflammation, and vascular diseases develop and progress over time.

They're seeking:

✔️ People aged 5+ with a history of blood clots, autoimmune disease, or vascular disorders

✔️ Healthy family members of affected individuals

This study involves optional medical evaluations, imaging, and lab tests. Some visits may be done via telehealth.

Your participation could help unlock answers about how these diseases affect the heart, brain, and other organs and guide future treatments.

🔗 Learn more and see if you're eligible: Link in bio.

#StopTheClot #BloodClots #VTE #BloodClotResearch

🎉 We're opening the Stop the Clot merch vault!

🎉 We're opening the Stop the Clot merch vault! 🎉

To show our gratitude for everyone who has supported our summer fundraising campaign, we’re giving away Stop the Clot gear every week through September 30!

You can enter TWO ways:

1️⃣ Donate: Every donation = 1 entry. Already donated? You’re in! Want better odds? Make another gift to boost your chances!

2️⃣ Share & Like: Share and like this post = 1 entry.

Giveaway Details:

Winners are announced every Thursday. All donations support NBCA’s mission to raise awareness, provide patient support, and save lives.

Thanks to our matching campaign, your gift goes 2X s far through September 30. (It could go 3X as far if your employer has a matching gift program!)

Don't miss your chance to win Stop the Clot swag and make a meaningful impact.

👇 Let us know you entered by commenting below!

🎁 Donate now: Link in bio.

#StopTheClot #BloodClots #FundraisingFriday #BloodClotAwareness

At just 14, Madison had a blood clot that stretche

At just 14, Madison had a blood clot that stretched from her abdomen to her ankle. Diagnosed with May-Thurner syndrome, she endured multiple hospitalizations, surgery, and weeks of recovery all during hurricane season. 👉Swipe through to read her story.

Join us in October for our PEP Talk on blood clots in children to learn more about risk factors, signs to watch for, and how to advocate for the kids in your life: Link in bio.

#StopTheClot #BloodClots #PediatricVTE #PediatricBloodClots #BloodClotAwareness

“I never thought it could happen to my child,”

“I never thought it could happen to my child,” says Arshell, who tragically lost her daughter Leschel to a preventable blood clot. Turning heartbreak into purpose, Arshell now serves as an NBCA Thrombassador and secretary of our Board of Directors, working tirelessly to raise awareness and save lives.

This summer, she and her family will host the 5th Annual BBQ in Memory of Leschel at Commodore Barry Park in Brooklyn—sharing life-saving information about blood clots with their community.
One life lost is one too many. Your gift can help stop future tragedies by funding critical awareness and education. And right now, every donation made by 9/30 will be matched—doubling your impact.

Give in memory of Leschel and all those taken too soon by blood clots. Together, we can save lives.

🎁 Donate: Link in bio

#StopTheClot #BloodClots #PulmonaryEmbolism #BloodClotAwareness

🚨 Breaking News: Starting today, donations to t

🚨 Breaking News: Starting today, donations to the National Blood Clot Alliance can be tripled! 🚨

Federal funding cuts have eliminated key public health programs focused on blood clot awareness and education, leaving a gap the effort to prevent life-threatening blood clots—and the NBCA is stepping up to fill it.

NBCA President Leslie Lake is matching every donation through Sept. 30, and now, your gift can be matched again by your employer if your company offers matching donations (many do!)

This means your donation could go three times as far, supporting life-saving education, raising awareness, and providing support to individuals and families affected by blood clots.

✅ Make your donation today and check if your employer matches donations: Link in bio

#StopTheClot #BloodClots #BloodClotAwareness #BloodClotFunding

🏅Countdown to race day! In November, Team Stop

🏅Countdown to race day! In November, Team Stop the Clot will hit the streets for 2025 TCS New York City Marathon and their training is in high gear.

Over the next three months, we’re introducing you to the inspiring runners who are clocking the miles, sharing their stories, and raising funds for NBCA.

🏃‍♂️ Kim Brown of The Colony, TX is a three-time blood clot survivor who also has factor V Leiden and prothrombin gene mutation (factor II). She explains why she is running:

“Blood Clots. My demise, my fear, my downfall. My strength, my perseverance, my story. I was born with two genetic mutations that increase my risk. My story unfolded as I was about to enter my second year of graduate school for physical therapy. I was overcome with debilitating pain and could barely move. My PCP gave me pain medication, after I advocated against it. She said come back in two weeks if you still have pain.”

Fortunately, Kim remembered learning about blood clots in school and advocated for her care by going to the emergency room and getting an ultrasound. This was the first of several blood clots she would suffer in her lifetime.

🔗Support Kim as she trains for the 2025 NYC Marathon with Team Stop the Clot! Read her story and leave an encouraging comment or donate: Link in bio.

#stoptheclot #teamstoptheclot #bloodclots #nycmarathon #bloodclotawareness #bloodclotprevention

Happy National Health Center Week! 🎉 Join us a

Happy National Health Center Week! 🎉

Join us as we celebrate community health centers and their dedication to improving health outcomes and reducing disparities for vulnerable and underserved communities across the United States.

Did you know that certain populations are at higher risk for blood clots due to underlying health conditions and limited access to health care?

✅ People from lower socioeconomic backgrounds often face barriers to accessing healthcare, increasing their risk for untreated conditions that can lead to blood clots.

✅ Racial and ethnic minorities are more likely to experience health disparities, resulting in higher rates of blood clot-related complications.

Awareness and prevention are key! Health centers provide crucial services like screenings, education, and treatment to help bridge these gaps.

🔗Find a community health center in your area: Link in bio.

#StopTheClot #NationalHeathCenterWeek #HealthDisparities #HealthEquity #BloodClots #VTE

After a long flight, Misty brushed off leg pain an

After a long flight, Misty brushed off leg pain and breathlessness, until a friend urged her to get checked. It was DVT and bilateral PE.

Now living with post-thrombotic syndrome, she shares a simple message: take travel risks seriously and know the signs.

More stories at the link in bio.

#StopTheClot #StopTheClotStory #BloodClots #PostThromboticSyndrome #MayThurnerSyndrome #BloodClotAwareness

🌟 Shout out to our incredible Thrombassador Cha

🌟 Shout out to our incredible Thrombassador Charita Brittenum! 🌟

As a survivor herself and having tragically lost her daughter Sydney to a blood clot, she channels her experience into advocacy that truly makes a difference.

Recently, Charita has been making waves with several radio interviews, including her session on Atlanta's @praise1025. Her efforts are vital in spreading awareness and educating communities about the risks of blood clots.

Thrombassadors like Charita are the heartbeat of our mission. Let's show Charita some love for her incredible work!

#StopTheClot @TheREALCharita

Today is Global Lung Cancer Day. Did you know that

Today is Global Lung Cancer Day. Did you know that people with cancer are 4–7 times more likely to develop blood clots?

Here’s why:

- Cancer can make blood clot more easily.
- Lung tumors can press on or block blood vessels.
- Treatments like chemo, surgery, or long hospital stays can slow blood flow and trigger clots.

If you or a loved one has cancer, it’s important to know the signs and symptoms of blood clots such as, deep vein thrombosis (including leg pain and swelling) and pulmonary embolism (including sudden shortness of breath, rapid heart rate, and chest pain).

Seek medical attention immediately if any symptoms develop.

Learn more: 🔗 in bio.

#StopTheClot #GlobalLungCancerDay #LungCancer #BloodClots #VTE #BloodClotAwareness

🌟 We're making incredible progress together!

🌟 We're making incredible progress together!

Thanks to your generosity, we've already raised nearly $52,000 toward our $200,000 goal for our summer campaign—$100,000 donations + $100,000 match. That's over 25% of the way there!

🙏 Thank you to everyone who has donated so far. Your support enables us to continue vital education and resources for preventing and treating blood clots.

Haven't donated yet? Now is the perfect time to make a difference. Every donation before Sept. 30 will be matched by NBCA's President Leslie Lake, doubling your impact!

➡️ Donate at the link in bio and help us reach our goa!

#StopTheClot #BloodClots #BloodClotAwareness #BloodClotFunding

Days after spraining her ankle, an ultrasound reve

Days after spraining her ankle, an ultrasound revealed that Alexis had a chronic, unprovoked DVT unrelated to her sprain.

With no known risk factors, the diagnosis was a shock. Now on anticoagulants indefinitely, Alexia hopes her story reaches other young people who may feel alone after an unprovoked blood clot diagnosis.

👉Read Alexia’s full story and other stories at the 🔗 in bio.

Have you experienced an unprovoked DVT? Tell us about it in the comments.

#StopTheClot #BloodClots #VTE #DVT #DeepVeinThrombosis #BloodClotAwareness

Do you take Eliquis and struggle with the cost? Th

Do you take Eliquis and struggle with the cost? There’s some news that may help.

Starting September 8, Bristol-Myers Squibb and Pfizer will begin selling Eliquis (apixaban) directly to patients at a discounted price.

If you’re uninsured or underinsured, you’ll be able to purchase a 30-day supply for $346 (a discounted rate of more than 40% less than the current list price) through the Eliquis 360 Support website. The medication will be shipped directly to your home.

This new option is designed to make Eliquis more affordable for those who pay the full cost out of pocket. If you currently have insurance coverage, this likely won’t change your copay or coverage, but it may be worth exploring if you’re struggling to afford your medication.

🔗For more information or to see if you qualify: Link in bio.

#StopTheClot #Eliquis #Apixaban #BloodThinner #Anticoagulant #PrescriptonDrugCosts

🏅Countdown to race day! In November, Team Stop

🏅Countdown to race day! In November, Team Stop the Clot will hit the streets for 2025 TCS New York City Marathon and their training is in high gear.

Over the next three months, we’re introducing you to the inspiring runners who are clocking the miles, sharing their stories, and raising funds for NBCA.

🏃‍♂️ Jessica Bredin of Boston, MA explains why she is running:

“My father was the most amazing man and the best dad anyone could ever ask for. I knew that since his passing from a PE in 2015 that I would always continue to keep his name around. It’s an honor to be running the New York Marathon in his memory for an organization that does so much to bring awareness to this serious cause. I also wish to follow in the footsteps of my two aunts, Ann McAvinn and Mary Argilagos, who ran for team Stop the Clot in 2018.”

Support Jessica as she trains for the 2025 NYC Marathon with Team Stop the Clot! Leave an encouraging comment or donate to his fundraising effort: 🔗in bio!

@nycmarathon #stoptheclot #teamstoptheclot #bloodclots #nycmarathon #bloodclotawareness #bloodclotprevention

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