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Home / Share Your Loved One’s Blood Clot Story

Share Your Loved One’s Blood Clot Story

About 100,000 Americans die every year from blood clots, and their lives deserve to be remembered and celebrated. If you have a loved one who has experienced a fatal pulmonary embolism, we would be honored to share their story.

Questions? Contact jlawson@stoptheclot.org

Loved One's Story Submission Form

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Current News

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stoptheclot

Advancing blood clot awareness, prevention, diagnosis & treatments to #stoptheclot. Submit your story @ link below ⬇️ Our podcast: Taking a Breath 🎙️

We want to make our community aware that Andexxa

We want to make our community aware that Andexxa — the medication used in emergencies to reverse the effects of blood thinners apixaban (Eliquis) and rivaroxaban (Xarelto) — will be discontinued on December 22, 2025.

Emergency teams will still have options. The primary alternative will be 4-factor prothrombin complex concentrates (PCCs), which are already widely used in hospitals when rapid reversal is needed.

Reversal medications are used only in rare, urgent situations. Someone taking a blood thinner might need reversal if they experience life-threatening bleeding, are seriously injured, or require emergency surgery where the medication would make bleeding unsafe. In these cases, quickly counteracting the blood thinner helps doctors control bleeding and stabilize the patient.

We know medication changes can raise questions or concerns. Please remember:

1. Your current anticoagulant medication is not changing.
2. This update only affects the availability of Andexxa as a reversal agent.
3. In an emergency, PCCs remain an effective option.

If you have questions about your personal treatment plan, it’s always best to talk with your healthcare provider.

#StopTheClot

If you think you may have a blood clot, getting to

If you think you may have a blood clot, getting to the ER quickly can save your life. Knowing what to expect — and how to advocate for yourself — can make a critical difference once you arrive.

Our latest resource, written by Dr. Jeffrey Kline of @waynestate and NBCA’s Medical and Scientific Advisory Board, breaks down the warning signs of DVT and PE, what to tell the ER team, what tests you may receive, and the questions to ask before heading home.

👉 Learn how to recognize symptoms, push for timely evaluation, and navigate the ER with confidence. Read the full guide: Link in bio.

#StopTheClot #MedicalMemos #BloodClotCare #ER #PatientAdvocacy

Ultrasound is one of the most accurate and lifesav

Ultrasound is one of the most accurate and lifesaving tools for detecting dangerous clots early, yet many patients never receive one. Why? Symptoms get dismissed. Risk factors are overlooked. And many people don’t realize they can — and should — advocate for this critical scan.

Kick off the new year with our first PEP Talk of 2026 on January 13 featuring Julie Cardoso, CEO of Universal Ultrasound. She’ll explain how ultrasounds find clots, what technicians look for, and how to advocate for timely imaging.

If you’ve had leg pain or swelling, a history of clots, increased risk, or want to be a more informed advocate, this session is for you.

👉 Date and time: Tuesday, Jan. 13, 2026 at 7 p.m. ET

🔗 Register: Link in bio.

@julie.at.umm
@universalultrasound
@uu_diagnostics

#StopTheClot #PEPTalk #BloodClotWebinar #Ultrasound

Every quarter, we take it back to the very importa

Every quarter, we take it back to the very important basics!

In this clip from last night's PEP Talk for newly diagnosed patients, clinician Diane Wirth explains what blood clots are and the connection between deep vein thrombosis and pulmonary embolism.

🎙️ Watch the full recording to learn more: Link in bio.

Join us for our next PEP Talk on Tuesday, Jan. 13 at 7 p.m. on how ultrasound can be used to detect DVT. Register: Link in bio.

➡️ Please consider sharing this post to help spread lifesaving information.

#StopTheClot #BloodClots #VTE #DVT #PE #BloodClotAwareness

🎙️ New Episode Alert! 🎙️ Season 3, Epis

🎙️ New Episode Alert! 🎙️

Season 3, Episode 4 of Taking a Breath: A Stop the Clot Podcast is now live on all major podcast platforms.

Yesterday, we shared a short video featuring Dan Walsh — blood clot survivor and NBCA Board Member — whose “simple back pain” was first misdiagnosed as a pulled muscle, but ultimately became what he now recalls as the back pain that saved his life.

Today, Dan opens up even more.

In this new episode, he shares the deeper parts of his journey:

- The self-advocacy he had to learn overnight
- The hours of late-night research just to understand what had happened
- The fear and mental health struggles that followed
- The long, winding path from trauma → recovery → purpose

Thank you, Dan, for your courage and commitment to helping others recognize the signs sooner and find the support they need throughout their recovery.

👉 Listen to his full conversation on our website or wherever you get your podcasts: Link in bio

#StopTheClot #BloodClotPodcast #BloodClotSurvivor #BloodClotAwareness

Sometimes a single story changes everything. What

Sometimes a single story changes everything.

What Dan Walsh thought was a simple pulled muscle turned out to be a silent, deadly blood clot. Hours after being sent home from urgent care, he was fighting for his life.

Dan survived — but he knows many families aren’t as lucky.

That’s why he’s paying it forward:

💛 Sharing his story

💛 Raising awareness

💛 Helping others recognize symptoms before it’s too late

His story is a powerful reminder of how quickly life can change and how lifesaving it can be when awareness reaches the right person at the right time.

NBCA is here for moments like these. Through education, support, and community, we’re here to help people find answers in their most vulnerable moments, and to prevent future tragedies.

🎥 Watch Dan’s story: Link in bio.

❤️ If Dan’s journey moves you, please consider supporting our work. Your gift helps us reach more families with the awareness and resources that save lives.

#StopTheClot #BloodClotAwareness #CharitableGiving #BloodClotAdvocacy

🎄 December is here — the busiest and most gen

🎄 December is here — the busiest and most generous time of the year!

📌 If you plan to itemize, gifts made by December 31 allow you to take full advantage of the current deduction rules.

📌 If you take the standard deduction, a new charitable deduction will be available starting in 2026.

No matter when you choose to give, your support saves lives.

Learn more → Link in bio.

#StopTheClot #YearEndGiving #SmartGiving #Philanthropy #FinancialPlanning #BloodClotAwareness #FederalTaxRules

🚨 HAPPENING TONIGHT: Our December PEP Talk for

🚨 HAPPENING TONIGHT: Our December PEP Talk for newly diagnosed blood clot patients starts at 7 p.m. ET.

Clinical expert Diane Wirth returns to share her expertise on the basics of blood clots, recovery, blood thinners, follow-up care, and more.

Can’t join live? Register anyway and we’ll send the recording straight to your inbox.

🔗 Register: Link in bio

#StopTheClot #PEPTalk #BloodClots #BloodClotAwareness #NewBloodClotDiagnosis

HAPPENING TOMORROW: Join us for our next PEP Talk

HAPPENING TOMORROW: Join us for our next PEP Talk on Tuesday, Dec. 9 at 7 p.m. ET for a foundational-level session for people who are new to navigating life after a blood clot. We’ll cover key topics like blood thinners, recovery, follow-up care, and returning to daily life.

Plus, we’ll walk through some of the most important questions to ask your doctor after a clot, like:

✔️ How long will I be on a blood thinner?

✔️ When can I start exercising again?

✔️ How are DVT and PE connected?

Whether you were diagnosed days, weeks, or months ago, this conversation can help you feel more confident at your next appointment and more in control of your care.

🔗 Register now: Link in bio.

👉 Can’t join the live event? Register anyway to get the recording sent straight to your inbox.

#StopTheClot #PEPTalk #BloodClots #BloodClotAwareness #NewBloodClotDiagnosis

“I ran my first 5K in years the Sunday before al

“I ran my first 5K in years the Sunday before all this happened. During the race, I injured my right knee. On Monday, I went to the doctor and was told to try rest, ice, compression, and elevation, and to use crutches for a few days.

The first day on crutches wasn’t bad, but by day three I was getting out of breath just hopping from my desk to the bathroom — maybe 100 feet.

By Saturday, I still felt off, but figured I was just out of shape and needed to get back to the gym once my knee healed. On Sunday, I was moving a little better but still didn’t feel right. That afternoon, I took my husband to get a haircut and collapsed on the floor.

He rushed me to the ER, where they quickly diagnosed me with a massive saddle pulmonary embolism and a DVT in my right leg. After a thrombectomy and three days in the MICU on heparin, I was sent home on apixaban for six months.

I’m still in the early stages of treatment, still learning, and honestly still terrified that it could happen again, or that I could die and leave my daughter without me.

What I do know is this: I’m not taking my life for granted anymore.”

👉 More stories: Link in bio.

#StopTheClot #StopTheClotStory #BloodClots #BloodClotAwareness

❤️‍🩹 A blood clot diagnosis can feel over

❤️‍🩹 A blood clot diagnosis can feel overwhelming, but support is available. Our next PEP Talk on Tuesday, Dec. 9 at 7 p.m. ET is for people who are newly diagnosed and their loved ones who are looking for guidance, clarity, and support.

We’ll cover Blood Clots 101, what to expect after a diagnosis, common challenges, and steps you can take to manage your health. You’ll also learn how to navigate medications and follow-up care, and where to find reliable resources and a supportive community.

Have questions you want answered during the session? Email PEPquestions@stoptheclot.org or include them when you register at the link in bio.

👉 Can't make the live event? Register anyway to get the recording sent straight to your inbox.

#StopTheClot #BloodClots #VTE #NewDiagnosis #BloodClotAwareness

❤️‍🩹 NBCA’s PEP Talks change lives. Jus

❤️‍🩹 NBCA’s PEP Talks change lives. Just recently, a newly diagnosed patient shared how a PEP Talk helped them realize their clotting disorder testing was done too early, prompting a second opinion that brought clarity and peace of mind. That’s the power of getting the right information at the right time.

Clinical expert Diane Wirth returns Tuesday, Dec. 9 at 7 p.m. ET for our quarterly session designed for patients who are newly diagnosed or still learning about their condition.

Can’t join live? Register anyway and we’ll send the recording straight to your inbox.

Register: 🔗 in bio!

#StopTheClot #BloodClots #VTE #NewDiagnosis #BloodClotAwareness

The National Blood Clot Alliance (NBCA) is attendi

The National Blood Clot Alliance (NBCA) is attending the American Society of Hematology’s 67th Annual Meeting and Expo (#ASH25) today through December 9 in Orlando, FL!

NBCA has also been selected for an Oral Presentation — an extremely competitive distinction awarded to only a small percentage of abstract submissions each year, and even fewer nonprofit organizations.

Our presentation will highlight insights from the B.L.A.C.K. (Black Lives Advocating for Clot Knowledge) Church Bus Tour, a first-of-its-kind community-based initiative created to address critical health disparities by partnering with Black faith communities across the southeastern United States.

Post-event surveys showed significant increases in knowledge about blood clot risks, symptoms, and treatment — and 100% of attendees said they planned to share what they learned with others. These outcomes demonstrate the power of culturally tailored, community-driven outreach to close gaps in blood clot awareness and save lives.

We’re honored to bring this work to the clinical community — and to elevate how community partnerships can meaningfully address blood clot health disparities. Follow along with @stoptheclot on X for updates from the conference and #ASH25 scientific sessions.

🔗 Read the research: Link in bio.

#StopTheClot #HealthEquity #VTEAwareness #ASH25

A blood clot diagnosis can turn your world upside

A blood clot diagnosis can turn your world upside down. In fact, hematologist Dr. Anna Parks says the emotional toll can feel as devastating as a cancer diagnosis.

That’s why every quarter we devote a PEP Talk to those who are newly diagnosed, offering clear information, trusted resources, and a supportive space to ask questions.

Join us Tuesday, Dec. 9 at 7 p.m. for our next session, and connect with more than 12,000 people who truly understand in our private Facebook support group. You don’t have to go through this alone.

Register for the PEP Talk and join our support group at the link in bio.

#StopTheClot #BloodClots #VTE #NewDiagnosis #BloodClotAwareness

“I’m 27, and my story isn't about being young;

“I’m 27, and my story isn't about being young; it’s about blood that doesn't flow. My history is a sequence of crises.

Two weeks postpartum, IVF hormones and an emergency C-section created the perfect storm. I was struck by shortness of breath, chest pain, and neck pain. Rushed to the hospital, they found a pulmonary embolism (PE). This life-threatening event led to the discovery that I had large, recurring blood clots in several veins in my left shoulder, arm, and neck.

We tried everything: endless anticoagulation and a series of procedures where doctors used special tools and medications to try to dissolve and physically remove the clots. My genetic panels were frustratingly normal. Then the doctors realized I was being provoked by a mechanical problem.

The culprit: thoracic outlet syndrome (TOS). My first rib was physically crushing the vein.

A month ago, the rib was removed. The surgeons found that my vein was extremely damaged and surrounded by thick scar tissue. It was so blocked that blood still has to use my body’s natural “detours” instead of flowing normally through the main vein. They did their best to repair my main vein, but the trauma was profound.

I’m still figuring out how to trust my body, especially since the flow still relies on those detours. The rib that was causing the mechanical block is gone, but the emotional burden from the IVF, the C-section, and life-threatening blood clots is intense.

When your body is telling you something is wrong, trust that something is wrong. Keep pushing for answers.”

More stories: Link in bio.

#StopTheClot #StopTheClotStory #ThoracicOutletSyndrome #BloodClots

📚 Did you know that NBCA offers a no-cost onlin

📚 Did you know that NBCA offers a no-cost online VTE continuing education course for healthcare professionals?

Developed in partnership with @cdcgov — and recently renewed — this course provides essential, up-to-date training on how to recognize, prevent, and manage deep vein thrombosis (DVT) and pulmonary embolism (PE).

Whether you’re a physician, nurse, PA, pharmacist, or other health professional, you can earn 1.75 CE credits while strengthening your understanding of VTE risk factors, diagnosis, treatment, and long-term management.

If you care for patients at risk of blood clots, this course is an accessible, evidence-based way to stay current and support better patient outcomes.

Start learning: Link in bio

#StopTheClot #ContinuingEducation #VTEEducation #BloodClotEducation

💛 Back by popular demand! 💛 Clinical guest

💛 Back by popular demand! 💛

Clinical guest Diane Wirth joins us for another PEP Talk on Tuesday, Dec. 9 at 7 p.m. ET for patients who are newly diagnosed with a blood clot or are still learning about their condition.

She will answer some of the most common questions people have after a blood clot — from how long recovery takes to what “feeling normal again” really looks like.

If you or someone you love is newly diagnosed with DVT, PE, or another clotting condition, this session is designed to give you clear, trustworthy guidance during a confusing time.

📅 Next PEP Talk: Tuesday, Dec. 9 at 7 p.m. ET

👉 Register: Link in bio.

👀 If you can't make the live event, register anyway to get the recording sent straight to your inbox.

#StopTheClot #PEPTalk #BloodClots #VTE #BloodClotPatient #BloodClotSupportGroup #BloodClotAwareness #BloodClotWebinar

Happy Thank You Wednesday! Yesterday, you showed

Happy Thank You Wednesday!

Yesterday, you showed up with generosity, heart and commitment to saving lives.

Because of you, the ripple continues:

✨ Someone will recognize a warning sign.

✨ A caregiver will know the right questions to ask.

✨ A newly diagnosed patient will feel less alone at 2 a.m.

Thank you for being part of this community and for pushing this mission forward. We’re grateful for you today and every day.

Your ripple matters more than you know. 💛

#StopTheClot #GivingTuesday #ThankYouWednesday #BloodClotAwareness

💛 The ripple is growing. This Giving Tuesday,

💛 The ripple is growing.

This Giving Tuesday, your generosity is already helping save lives.

We’re close to our goal — but the next few hours matter.

When a patient finds NBCA at 2 a.m., searching for answers and support…

When a caregiver understands what questions to ask…

When a story helps someone recognize a warning sign and get help in time…

That’s the ripple *you* create.

If everyone who turned to NBCA for information or support this year contributed even a small amount, imagine the reach we could create together — and the number of people who would be safer because this community exists.

Your gift powers:

✨ Lifesaving education

✨ Support for patients + families

✨ Better diagnosis + prevention

✨ Answers during frightening moments

There’s still time to change someone’s story.

👉 Donate: Link in bio💛

If you’ve already donated today, thank you! Sharing this post helps the ripple reach even farther.

#StopTheClot #GivingTuesday #GivingTuesday2025 #GlobalGenerosity #BloodClotAwareness

If you’ve already donated to NBCA for Giving Tue

If you’ve already donated to NBCA for Giving Tuesday, thank you — your generosity truly makes a difference. 💛

Now, help inspire the next person.

Share your UNselfie and show the world why blood clot awareness matters to you — whether it’s for your own health, someone you love, or a story that changed the way you see blood clots.

Here’s how to join in:

✨ Make a sign that says why you’re supporting blood clot awareness (or download the unselfie template: Link in bio.

✨ Take a picture of yourself holding it

✨ Post it on social media and tag us @stoptheclot with #UNselfie and #GivingTuesday

We’ll be resharing your UNselfies throughout the day to remind others of the real people behind this movement.

If you haven’t donated yet, there’s still time — and your UNselfie can spark someone else’s gift, too.

Donate Now: Link in bio.

#StopTheClot #GivingTuesday #GivingTuesday2025 #GlobalGenerosity #BloodClotAwareness

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NBCA provides the information and materials on this site for general information purposes only. You should not rely on the information provided as a substitute for actual professional medical advice, care, or treatment. This site is not designed to and does not provide medical advice, professional diagnosis, opinion, treatment, or services to you or any individual. If you believe you have a medical emergency, call 911 immediately.