Today, I’m Blessed to Have My Health: Kimberly’s Story
I started having superficial clots (SVTs) in the early 1990s, which was attributed to birth control. Genetic testing was not available at that time. I joined a list serve (email…
My Pain Was Ignored For Almost a Year: Caitlin’s Story
…other risk factors included being overweight and taking estrogen-based birth control. Due to this experience, I was unable to work and unable to walk without aids, causing me to suffer…
Never Let Embarrassment Stop You From Getting Help: Briar’s Story
…being nothing, but going saved my life. Your health is far more important than worrying about what others might think. Resources Birth Control Factor V Leiden Know Your Risk …
Don’t Dismiss Pain: Stephanie’s Story
…two injections daily for almost a year throughout pregnancy and the weeks after. My advice to others is: Don’t dismiss pain. Resources Signs and Symptoms Factor V Leiden Birth Control…
My Risk Factors Were a Perfect Storm: Presley’s Story
…factor II, I had broken my leg, had surgery (which left me non-weight-bearing for six weeks), was on estrogen-based birth control, and was dehydrated. I would say no matter your…
I’m a Nurse and I Missed The Signs: Rachael’s Story
…months. I also stopped estrogen-based oral birth control. Four weeks after my diagnosis, I tested positive for factor V Leiden (heterozygous). If my DVT had been caught earlier, I might…
This Experience Changed the Course of My Life: Libby’s Story
…In the ER my D-dimer came back and was crazy elevated, and I finally got a diagnosis of bilateral PEs, and birth control was thought to be the cause. A…
Take Pain and Swelling Seriously: Julie’s Story
…where the subclavian vein is compressed, leading to blood clot formation. Estrogen-based birth control increased my risk. Unfortunately, the recommended treatment to reduce the long-term risk of more clots was…
Leg Pain Was Mistaken For an Injury: Karlie and Celina’s Story
…it was from a blood clot until the autopsy. She had been on birth control, and that created a DVT, which ultimately led to a pulmonary embolism and her death….
I’ve Learned How to Advocate For Myself: Melisa’s Story
…My DVT is believed to be triggered by estrogen-based birth control. I was also diagnosed with May-Thurner syndrome. Through this experience, I have learned to advocate for myself. It’s made…