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Home / Share Your Loved One’s Blood Clot Story

Share Your Loved One’s Blood Clot Story

About 100,000 Americans die every year from blood clots, and their lives deserve to be remembered and celebrated. If you have a loved one who has experienced a fatal pulmonary embolism, we would be honored to share their story.

Questions? Contact tpatrikis@stoptheclot.org

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Current News

Aerial view of Saint Francis Hospital in Tulsa, Oklahoma, showing the hospital campus with multiple medical buildings, a glass-front patient tower, landscaped grounds, and the main entrance.

Saint Francis Hospital Named Oklahoma’s First National Blood Clot Alliance VTE Center of Excellence™

Tulsa, Oklahoma — The National Blood Clot Alliance (NBCA) is proud to announce the designation of Saint Francis Hospital as…

Get the full story »

group of advocates gathered around Governor Kevin Stitt's desk for bill signing

NATIONAL BLOOD CLOT ALLIANCE APPLAUDS OKLAHOMA GOV. STITT SIGNING BLAKE BURGESS BLOOD CLOT PREVENTION ACT INTO STATE LAW

Oklahoma Second State in a Year to Take Action Against Preventable Blood Clot Deaths with Bipartisan Legislation; NBCA Calls on…

Get the full story »

Get more news »

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stoptheclot

Advancing blood clot awareness, prevention, diagnosis & treatments to #stoptheclot. Submit your story @ link below ⬇️ Our podcast: Taking a Breath 🎙️

Meet Carson Gunter — a Team Stop the Clot® Runner

Meet Carson Gunter — a Team Stop the Clot® Runner taking on the 2026 NYC Marathon with serious heart. ❤️🏃 Carson started running in 6th grade, ran his first full marathon his senior year, and never looked back.

Last year he ran the Chicago Marathon in honor of his late Uncle Steve — and this year, he's lacing up again for his Uncle Jimmy, a blood clot survivor who inspires him every single day. 💪

”My Uncle Jimmy has survived a few health issues including a blood clot. He inspires me everyday to keep on pushing and to never give up! I want to run this race for him.”

Carson's goal is to raise $5,000–$10,000 for NBCA. Every dollar helps raise awareness, advance education, and fund life-saving patient programs. Show Carson some love and help him cross that finish line — donate to his NBCA fundraiser today. 🎽🗽

🔗bit.ly/Carson-TeamStopTheClot

#StopTheClot #TeamStopTheClot #NYCMarathon #NYCMarathon2026 #BloodClotAwareness #RunForAReason #NationalBloodClotAlliance #NBCA #MarathonRunning #RunnerSpotlight

📣 If you or someone you love has ever been told "y

📣 If you or someone you love has ever been told "you have a blood clot" — this is for you.

Those four words can stop you in your tracks. What does this mean for my health? Will this happen again? What do I take, and for how long? Am I going to be okay?

We hear you. And we want to help you find answers.

Join us for PEP Talk — Patients Educating Patients — a free online event where people who've been in your shoes, alongside leading medical experts, walk you through what life after a blood clot diagnosis actually looks like.

Here's what's on the agenda:
🩺 Understanding your diagnosis and what comes next
💊 Managing your medications with confidence
📋 Navigating follow-up care
🔍 Finding resources you can actually trust
🤝 Connecting with a community that truly understands

Whether you were diagnosed yesterday, have been living with a clot condition for years, or you're showing up for someone you love — there's a seat at the table for you.

📅 Tuesday, June 9 | 7 p.m. ET
💻 Free. Online.

Can't make it live? Register anyway — we'll send the full recording directly to you.

👇 Save your spot:
🔗 https://bit.ly/June2026PEPTalk
(Or tap the link in our bio!)

#StopTheClot #PEPTalk #BloodClot #VTE #DVT #PulmonaryEmbolism #NewDiagnosis #BloodClotAwareness #BloodClotSurvivor

A major milestone for patients in Oklahoma and bey

A major milestone for patients in Oklahoma and beyond!

The National Blood Clot Alliance is proud to recognize Saint Francis Hospital as Oklahoma’s first VTE Center of Excellence™.

Blood clots—including deep vein thrombosis (DVT) and pulmonary embolism (PE)—affect up to 900,000 Americans each year and can have life-changing or even life-threatening consequences. Patients deserve coordinated, evidence-based care at every step of their journey, from prevention and diagnosis to treatment, education, and long-term follow-up.

As Oklahoma’s largest hospital and the 11th largest hospital in the United States, Saint Francis Hospital is helping set a new standard for comprehensive blood clot care. Through multidisciplinary collaboration, quality improvement initiatives, patient education, and a commitment to excellence, Saint Francis has earned its place among a growing national network of healthcare organizations dedicated to improving outcomes for people affected by blood clots.

For patients and families, designations like this mean access to healthcare teams that are working together to deliver the highest quality care and continuously improve the patient experience.

Please join us in congratulating the entire Saint Francis team on this important achievement and their commitment to improving the lives of patients across Oklahoma and beyond. 👏

@saintfrancistulsa
#StopTheClot #BloodClotAwareness #VTE #DVT #PulmonaryEmbolism #PatientCare #HealthcareExcellence #Tulsa #Oklahoma

⚠️ When Lindsey Brown finally arrived at urgent ca

⚠️ When Lindsey Brown finally arrived at urgent care she was in so much pain she could hardly speak. She was diagnosed with a “classic migraine,” though she had no history of migraines. Lindsey told the urgent care team about her traumatic delivery, the 1000ML of blood loss, and emergency C-section. She was sent home without any imaging.

🩸 Days later, Lindsey woke up vomiting with tingling in her left arm. She trusted her gut and drove back to the hospital where her daughter was born. The ER there ordered imaging immediately. The results: complete obstruction of her center sinus — a life-threatening blood clot in her brain (CVST). She was rushed to the Neuro ICU and transported by ambulance to a specialty hospital.

🧠 Doctors found a cluster of clots on the right side of her brain and a DVT in her right jugular. She narrowly avoided brain surgery. A year later new clots formed while on medication — she has been on lifelong warfarin ever since.

Lindsey's story is a reminder that postpartum headaches and neurological symptoms should never be dismissed, and that trusting your instincts can save your life.

💙 "No one knows your body as best as you."
👉 bit.ly/YourBloodClotStories
(see link in bio “Patient Stories”)
@swissms62
#stoptheclot #patientstories #bloodclots #CVST #emergencyCSection

June is Men's Health Month — and we're talking abo

June is Men's Health Month — and we're talking about something that doesn't get nearly enough attention: blood clots in men. 🩸

Many people don't realize that men face a higher overall risk of blood clots than women, and after age 50, that risk becomes even greater.

Men are also more likely to experience a recurrent blood clot after a first event.

Yet blood clots in men remain widely under-discussed.

This month, we're shining a light on the fathers, brothers, sons, partners, friends, and survivors whose stories deserve to be heard.

Have you or a man you love been affected by a blood clot?

Share your story this month. Your experience could help raise awareness and save lives. https://www.stoptheclot.org/patient-stories/

#MensHealthMonth #stoptheclot #BloodClotAwareness #DVT #KnowYourRisk #MensHealth #womenandbloodclots

🚴 This Men's Health Month, Wajahat’s story is a po

🚴 This Men's Health Month, Wajahat’s story is a powerful reminder that blood clots can happen to anyone — and that trusting your instincts can save your life!

After a bike accident left him with a head injury and a strange numbness in his thigh, Wajahat kept telling his doctor that something was wrong. He was reassured that his symptoms were related to the accident, given painkillers, and sent home.

🩸 It was only when his entire leg swelled from groin to feet that Wajahat pushed for an ultrasound test. The result: extensive DVT from his pelvic area all the way down his leg.

Many men are taught to push through pain or assume symptoms will go away on their own. Wajahat's experience is an important reminder to listen to your body, ask questions, and advocate for yourself when something doesn't feel right.

His advice: "Always go with your gut feeling.”

#stoptheclot #menandbloodclots #MensHealthMonth2026 #dvt #pulmonaryembolism

💙 "Like any grieving father, I would do anything t

💙 "Like any grieving father, I would do anything to switch places with our MerBear."

Patrick lost his daughter Meredith to a pulmonary embolism caused by estrogen-based oral contraceptives. She was diagnosed after passing out at school — seven days later she was gone.

🩸 In the years that followed, Patrick became an NBCA Thrombassador, dedicating himself to the awareness that he believe could have saved her.

This Women's Health Month, Patrick shares this story because very few women know the blood clot risks of estrogen birth control — and that gap in knowledge is costing lives.

Read their full story, here: 👉 https://www.stoptheclot.org/patient-stories/patrick-and-meredith/

#womenandbloodclots #WomensHealthMonth26 #womenwelove #stoptheclot

Women’s Health Month may be coming to a close — bu

Women’s Health Month may be coming to a close — but these stories stay with us.

The mothers.
The daughters.
The survivors.
The women who were told “it’s probably nothing.”
The families forever changed by a blood clot.

This month, women across the country helped shine a light on a health issue that too often goes unrecognized until it’s too late.

And because of that, more people now know the signs.
More women know the risks.
More families know how to advocate for themselves and the people they love.

Awareness saves lives.
And this movement is only growing.

Thank you for standing with us this Women’s Health Month. 💙

See you in June. And July. And every month after that.

#StopTheClot #WomensHealthMonth #WomensHealth #BloodClotAwareness

🧠 A severe headache isn’t always “just a headache.

🧠 A severe headache isn’t always “just a headache.”

During Women’s Health Month, the National Blood Clot Alliance is shining a light on a rare but serious type of blood clot called Cerebral Venous Sinus Thrombosis (CVST) — a clot that forms in the veins that drain blood from the brain.

CVST occurs more often in women and can be associated with risk factors like:
• Hormonal birth control
• Pregnancy and the postpartum period
• Certain clotting disorders
• Chronic inflammatory conditions

Symptoms can develop over hours or days and may include:
⚠️ Severe headache
⚠️ Vision changes
⚠️ Seizures
⚠️ Weakness or numbness
⚠️ Difficulty speaking
⚠️ Confusion

Because CVST symptoms can sometimes mimic migraine or other neurological conditions, delays in diagnosis can happen — making awareness especially important.

💙 That’s why NBCA has launched a new educational resource to help patients and families better understand:
✔️ Signs and symptoms
✔️ Risk factors
✔️ Diagnosis and treatment
✔️ Recovery and long-term outlook

🔗 Learn more and explore the new CVST resource: https://www.stoptheclot.org/cerebral-venous-sinus-thrombosis-cvst/

#WomensHealthMonth #CVST #BloodClotAwareness #StopTheClot #WomensHealth #StrokeAwareness #PatientEducation

💙 This Women's Health Month, LaKeitha is sharing h

💙 This Women's Health Month, LaKeitha is sharing her mother Gwendolyn's story — because a week of difficulty breathing should never have been dismissed.

🩸 For a week, Gwendolyn struggled to breathe. She saw a doctor. Blood clots were never considered. One night her husband, fearing the worst, rushed her to the hospital. She was admitted due to ongoing breathing issues — and passed shortly after.

Doctors later determined a DVT had traveled from her leg to her lungs, causing a fatal pulmonary embolism.
⚠️ "Get checked and make sure your concerns are taken seriously."

Gwendolyn's story is a painful reminder that persistent breathing difficulty must be thoroughly evaluated — and that patients and families must advocate loudly when something feels wrong.

💙 Read Gwendolyn’s full story (and others): https://www.stoptheclot.org/patient-stories/gwendolyns-story/

#stoptheclotstory #womenandbloodclots #WomensHealthMonth26 #womenwelove #stoptheclot

As we reflect on an unforgettable 11 days travelin

As we reflect on an unforgettable 11 days traveling across Mississippi for the Mississippi Blood Clot Awareness Bus Tour, one moment from Greenville has stayed especially close to our hearts.

We were deeply honored when Greenville Mayor Errick Simmons officially proclaimed May 24 as Blood Clot Awareness Day in Greenville, Mississippi!

And in a local news segment, Greenville Health Council Coordinator and 3-time blood clot survivor Remelda Lewis shared:
”Blood clots can be prevented. And thank God for this organization coming to the Delta to help spread awareness!”

Moments like this are why we do this work.

Everywhere we went across Mississippi, people told us how grateful they were that we came. Many shared that they had never received this kind of blood clot education before — and asked when we would be coming back.

That meant everything to us.

Over and over throughout the tour, we were reminded how powerful it is when communities come together — survivors sharing their stories, local leaders showing up, conversations happening openly about prevention and risk factors, and people realizing they are not alone.

Awareness creates connection.
Connection builds momentum.
And momentum can save lives.

Thank you to Mayor Simmons, Remelda Lewis, and the entire Greenville community for welcoming us so warmly and helping carry this mission forward.

And Mississippi — we heard you. We’ll be back. ❤️
More reflections from our journey across Mississippi — coming next week.

#StopTheClot #BloodClotAwareness #MississippiBloodClotAwarenessBusTour #GreenvilleMS #PublicHealth #CommunityHealth

💙 This Women's Health Month, Rachel is sharing her

💙 This Women's Health Month, Rachel is sharing her sister Lauren's story — because Lauren never got the chance to tell it herself.

🩸 Lauren was 32 years old and 39 weeks pregnant — days from her due date — when she felt short of breath. Her doctor wasn't too concerned because she had no family history of clotting disorders. Pregnancy was her only known risk factor. But it was enough.

Lauren went into cardiac arrest. Her son was delivered via emergency C-section, born without a pulse. By a miracle, he survived. Lauren did not. She had endured too much brain damage from oxygen loss and her family made the devastating decision to remove her from life support.

⚠️ "I never knew pregnancy could be so risky."

This Women's Health Month, Rachel shares Lauren's story so that every pregnant woman — and every doctor — understands that pregnancy alone is a significant blood clot risk factor. Shortness of breath should never be dismissed.

💙 Read Lauren’s full story (and others): https://www.stoptheclot.org/patient-stories/rachel-and-laurens-story/

#stoptheclotstory #womenandbloodclots #WomensHealthMonth26 #womenwelove #stoptheclot

Heavier periods on blood thinners? You're not alon

Heavier periods on blood thinners? You're not alone!

For many women, anticoagulants can impact their menstrual cycle in ways they were never fully prepared for. From heavier bleeding to fatigue, clots, and anxiety around what’s “normal,” these experiences deserve more attention and support.

On Global Menstrual Hygiene Day, and during Women’s Health Month, we’re helping break the silence with a NEW free educational resource: Your Period on Blood Thinners.

Inside the guide:
🩸 What changes may be expected while on anticoagulants
🩸 Signs and symptoms that shouldn’t be ignored
🩸 Tips for tracking and managing your cycle
🩸 Questions to ask your healthcare team
🩸 Resources and support for women navigating blood clots and periods

Download the free guide here: 👉 bit.ly/PeriodResource
(or link in bio)

#WomensHealthMonth26 #womenandbloodclots #stoptheclot #womenwelove #MenstrualHygieneDay

May is Women's Health Month — and this message fro

May is Women's Health Month — and this message from Sarah Wassenaar is one every woman needs to hear.

Sarah lost her 23-year-old daughter Anna to a pulmonary embolism. A perfect storm of birth control pills and travel. She had no clue anything serious was brewing.

Sarah's message to women everywhere: know your family history. Know the signs and symptoms. Know your risk factors. Because whether you're on oral contraceptives, trying to get pregnant, or on hormone replacement therapy — blood clots can affect women at every stage of life.

“So many women don't realize that the signs and symptoms they're having are because of a pill they're taking or a family history that they have.”

Don't wait until it's too late. 🎗️
Watch the full episode on YouTube: https://linktw.in/QnQvOs

@sarawassenaar
#StopTheClot #WomensHealthMonth #BloodClotAwareness #KnowYourRisk

🚨 Just diagnosed with a blood clot? This one's for

🚨 Just diagnosed with a blood clot? This one's for you.

A new blood clot diagnosis can leave you feeling scared, confused, and full of questions — and that's completely normal. But you don't have to figure it out alone.

💬 Join us for our next PEP Talk ("Patients Educating Patients"), where real patients and experts come together to help you understand what comes next.

Here's what we'll cover:
🩺 What to expect after a blood clot diagnosis
💊 How to navigate your medications
📋 What follow-up care looks like
🔍 Where to find reliable, trustworthy resources
🤝 How to connect with a community that truly gets it

📅 Tuesday, June 9 | 7 p.m. ET
💻 Free. Online. Open to all.

Whether you were just diagnosed, have been managing a clot condition for a while, or are supporting a loved one through it — this event was made for you.

👇 Secure your spot now:
🔗 https://bit.ly/June2026PEPTalk (Or tap the link in our bio!)

Can't join live? No problem — register anyway and we'll send the full recording straight to your inbox.

You are not alone. We've got you. 💙

#StopTheClot #PEPTalk #BloodClot #VTE #NewDiagnosis #BloodClotAwareness #PulmonaryEmbolism #DVT #PatientEducation #BloodClotSurvivor #YouAreNotAlone

💔 "I will never forget standing there in the rain,

💔 "I will never forget standing there in the rain, holding one red rose and watching my sister being driven away in a hearse."

This Women's Health Month, Katie's sister shares the story of a loss that should never have happened — and a warning every pregnant woman deserves to hear. 🩸 Katie M. Projansky was 36 years old and 7 weeks pregnant when she died on June 7, 2009 from a pulmonary embolism.

For weeks, her severe leg pain had been dismissed, misdiagnosed, and undertreated. When her pregnancy was discovered, no one told her that pregnancy dramatically increases blood clot risk — or that her leg pain could be a sign of a DVT.

Women face unique clot risks throughout their lives, including pregnancy, postpartum recovery, hormone therapy, surgery, travel, and decisions around family planning.

This Women’s Health Month, we’re working to protect more women through education, awareness, advocacy, and life-saving resources.

💙 Read Katie’s full story and learn more about clotting disorders: https://www.stoptheclot.org/patient-stories/katies-story-6/

#stoptheclotstory #womenandbloodclots #WomensHealthMonth26 #womenwelove #stoptheclot

🇺🇸 Happy Memorial Day from the National Blood Clot

🇺🇸 Happy Memorial Day from the National Blood Clot Alliance.

Today, we honor and remember the brave men and women who made the ultimate sacrifice in service to our country. We are deeply grateful for their courage and sacrifice.

As Memorial Day also marks the unofficial start of summer travel season, it’s important to remember that long periods of sitting during road trips and flights can increase the risk of blood clots. Move often, hydrate, and know the signs.

Because the people who love you need you to make it home safe. ❤️
🔗 Learn more at stoptheclot.org

#StopTheClot #MemorialDay #KnowYourRisk #BloodClotAwareness #BloodClotAwareness #TravelSafety

🏃‍♀️ With less than 6 months until the 2026 TCS Ne $🏃‍♀️ With less than 6 months until the 2026 TCS New York City Marathon, training for Team Stop the Clot® is officially in full swing! Over the coming months, we'll be introducing you to the remarkable individuals taking on 26.2 iconic miles in support of the National Blood Clot Alliance. Meet Isabelle. A runner, a survivor, and now a marathoner carrying a story that began with a broken ankle and nearly ended with something far worse. What started as a simple ankle fracture turned into an extensive DVT — a blood clot that changed everything. Isabelle went from running and training to being unable to walk, her leg swollen and heavy, her world suddenly uncertain. When she first sought help, she was sent home without a scan and told she didn't appear to have a blood clot. She did. What followed were months of anticoagulants, compression socks, endless medical appointments, and post-thrombotic pain. "There were days I cried out of frustration and others where I was just grateful to still be here." But little by little, Isabelle rebuilt. After her diagnosis, she ran 2.7 km. "It wasn't fast. It wasn't perfect. But it was everything." Now Isabelle is taking on 26.2 miles through the streets of New York City — turning every step into a statement. She knows what it means to fight to get back on your feet. And she knows that for too many people, a blood clot comes without warning, without answers, and without a second chance. "This journey taught me that healing isn't linear — it's a marathon of resilience." 💙 We are incredibly grateful to Isabelle and every member of Team Stop the Clot® for turning their miles into awareness, advocacy, and hope for others impacted by blood clots. Support Isabelle's journey and fundraising efforts here: 🔗 https://bit.ly/Isabelle-TeamStopTheClot #TeamStopTheClot #TCSNYCMarathon #StopTheClot #BloodClotAwareness #DVT #RunForACause #MarathonTraining$

💔 "I would trade places with you." Those are the $💔 "I would trade places with you." Those are the words of Arshell Brooks-Harris, who lost her daughter Leschel in 2020 to a pulmonary embolism following a fractured ankle. Leschel's legs were swollen and discolored. The signs were there. But by the time the call came, it was too late. Arshell carries one mission forward: making sure no other family has to experience the same heartbreak. "We can't bury any more women." This Women's Health Month, we honor every mother, daughter, sister, and friend lost to blood clots — and recommit ourselves to better awareness, earlier recognition, and prevention. Know the signs. Trust your instincts. Be your own advocate. 🔗 This Women's Health Month, share this post with a woman you love and dedicate a gift in her honor: 👉 stoptheclot.org/whm2026donate/ #StopTheClot #WomensHealthMonth #BloodClotAwareness #PulmonaryEmbolism #KnowYourRisk #HealthEquity #DVT #Advocacy$

🩸 "Maybe a young girl will wake up tomorrow to cre

🩸 "Maybe a young girl will wake up tomorrow to create a lifetime of memories. Maybe a mother won't have to choose between a cardboard box or a maple casket for her beloved daughter."

Ashleigh was 18 years old, just 150 hours from finishing cosmetology school, when she died from a pulmonary embolism over Memorial Day weekend in 2010.

⚠️ She later was found to have an undiagnosed prothrombin gene mutation. She had also been taking birth control pills — a combination that can increase blood clot risk.

After Ashleigh’s death, her father, brother, sister, and grandmother were also found to carry the same mutation.

Her mother shares Ashleigh’s story in the hope that it helps another family ask questions, understand their risk, and recognize the signs before it’s too late.

💙 Read Ashleigh’s full story and learn more about clotting disorders: https://www.stoptheclot.org/patient-stories/ashleighs-story/

#stoptheclotstory #womenandbloodclots #WomensHealthMonth26 #womenwelove #stoptheclot

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NBCA provides the information and materials on this site for general information purposes only. You should not rely on the information provided as a substitute for actual professional medical advice, care, or treatment. This site is not designed to and does not provide medical advice, professional diagnosis, opinion, treatment, or services to you or any individual. If you believe you have a medical emergency, call 911 immediately.