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Achieving Trust: NBCA Earns Candid’s Platinum Seal of Transparency

One of the most important attributes for a nonprofit organization is the ability to prove its trustworthiness to the people…

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Historic Win: Florida Approves First-in-the-Nation Blood Clot Tracking System

Today marks a major milestone in blood clot awareness and prevention efforts: The Florida House and Senate have officially passed…

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Advancing blood clot awareness, prevention, diagnosis, and successful treatments to #stoptheclot.

Thank you to everyone who joined last evening’s

Thank you to everyone who joined last evening’s May PEP Talk on women and blood clots with Dr. Anna Parks, hematologist at the University of Utah.

In this clip, Dr. Parks discusses options for hormone replacement therapy for women who have a history of blood clots.

🔗 Watch the full recording now at the link in bio and make sure to subscribe to our YouTube channel so you’re the first to know when new content drops!

📅 Mark your calendar: Our next PEP Talk on June 10 at 7 p.m. is tailored for people who are new to blood clots — those who have been recently diagnosed with blood clots or the loved one of someone with a new diagnosis. Don’t miss it! Register at the 🔗 in bio.

(Please note: PEP Talks are for educational purposes only and do not replace medical advice. Always consult your healthcare provider.)

#StopTheClot #BloodClots #WomenAndBloodClots #KnowYourRisk #PEPTalk #MedicalGaslighting #BloodClotAwareness #BloodClotWebinar

💔Karlie was just 17 when she developed pain in

💔Karlie was just 17 when she developed pain in her leg that resulted in a fatal pulmonary embolism.

Karlie had PCOS (polycystic ovary syndrome), a condition that increases a woman’s risk for blood clots by 1.5 to 2 times. She also took hormonal birth control, a combination that can significantly increase the risk for blood clots.

Her story is a heartbreaking reminder that blood clots can affect anyone, at any age. This Women’s Health Month, we honor Karlie by raising awareness so that other young women can recognize the signs and know their risk.

🔗 Use our assessment checklist to determine your risk for blood clots at the link in bio.

#StopTheClot #StopTheClotStory #BloodClots #DeepVeinThrombosis #DVT #PulmonaryEmbolism #PE #FatalPE #BloodClotAwareness #BloodClotFatality

🌟We’re honored to share that NBCA has earned

🌟We’re honored to share that NBCA has earned Candid’s Platinum Seal of Transparency — the highest level of recognition for nonprofit transparency and accountability.

This seal demonstrates our commitment to sharing clear, up-to-date information about our mission, impact, goals, and finances.

Fewer than one percent of U.S.-based nonprofits has achieved the Platinum Seal in 2025, making this a significant honor.

“This shows our supporters that their contributions are making a difference,” said Tarin Patrikis, deputy director of NBCA.

“We hope that this will inspire new supporters who are looking to donate to a trustworthy organization committed to saving lives and improving public health.”

🔗Read more and support our work with a donation at the link in bio!

#StopTheClot #BloodClots #VTE #CandidPlatinumSeal #NonprofitExcellence

Just days after giving birth, Heather developed a

Just days after giving birth, Heather developed a severe headache that turned out to be a blood clot in her brain, or CVST. Misdiagnosed at first, she suffered a seizure before doctors finally discovered the clot. Later, she survived multiple pulmonary emboli after surgery.

Heather’s experience shows how easily clot symptoms can be overlooked, especially during postpartum recovery.

Now an NBCA Thrombassador, Heather joins us TONIGHT for our PEP Talk on women and blood clots to share her story and help others better understand clot risks, symptoms, and life after diagnosis. Don’t miss it! 🔗 Register at the link in bio.

#StopTheClot #StopTheClotStory #BloodClots #CVST #PulmonaryEmbolism #PE #Postpartum #FourthTrimester #BloodClotAwareness

HAPPENING TONIGHT: Women face risks when it comes

HAPPENING TONIGHT: Women face risks when it comes to blood clots, especially during pregnancy, postpartum, or when using hormonal birth control or hormone replacement therapy.

Join us TONIGHT for our May PEP Talk on women and blood clots. We’ll cover what every woman should know about blood clot risks, symptoms, prevention, and treatment, with insights from Dr. Anna Parks, hematologist at the University of Utah and a member of NBCA’s Council of Emerging Researchers in Thrombosis.

🔗 Register at the link in bio.

#StopTheClot #BloodClots #WomenAndBloodClots #KnowYourRisk #PEPTalk #MedicalGaslighting #BloodClotAwareness #BloodClotWebinar

Taylor thought her worsening back and leg pain was

Taylor thought her worsening back and leg pain was just a back injury. As a nurse, she knew the signs and symptoms of blood clots, but she was worried about overreacting and delayed seeking help. 👉 Swipe through to read Taylor’s full story.

📅 Join us TOMORROW for our PEP Talk on women and blood clots to hear more about risk factors, symptoms, and the importance of early action.

🔗 Register at the link in bio.

#StopTheClot #StopTheClotStory #BloodClots #FactorVLeiden #FVL #MayThurnerSyndrome #MTS #DVT #DeepVeinThrombosis #PE #PulmonaryEmbolism #BloodClotAwareness

Today is International Heavy Menstrual Bleeding Da

Today is International Heavy Menstrual Bleeding Day, a time to raise awareness about a condition that too often goes unspoken.

For women on blood thinners after a blood clot, nearly 3 out of 4 experience heavy menstrual bleeding, according to a 2024 study led by Dr. Anna Parks, hematologist at the University of Utah and a member of NBCA’s Council of Emerging Researchers in Thrombosis.

Even more concerning, 86% say it negatively affects their quality of life.

Heavy menstrual bleeding is more than an inconvenience, it’s a real medical issue that can impact physical, emotional, and social well-being.

If you’re on anticoagulation and experiencing heavy periods, you’re not alone, and you deserve care and support.

Dr. Anna Parks is our medical expert for our May 13 PEP Talk on women and blood clots. Join us to learn more and hear expert advice. 🔗 Register at the link in bio.

#StopTheClot #BloodClots #InternationalHeavyMenstrualBleedingDay #HMB #Anticoagulants #BloodThinners #BloodClotAwareness

🌷Happy Mother’s Day to all the moms, moms-to-

🌷Happy Mother’s Day to all the moms, moms-to-be, and incredible women in our lives!

As we celebrate motherhood, we also want to shine a light on the often-overlooked challenges some women face, including the risk of blood clots during pregnancy and postpartum.

Did you know the risk of a blood clot is highest in the weeks following childbirth? Knowing your family history and understanding risk factors like surgery or hospitalization can help protect your health during this critical time.

This Mother’s Day, let’s honor moms not just with flowers, but with awareness and action.

Join us for our Women’s Health Month PEP Talk on May 13, where we’ll dive into blood clot risks for women, medical gaslighting, mental health, hormonal risks, and more.

Register at the 🔗 in bio.

#StopTheClot #MothersDay #BloodClots #PEPTalk #KnowYourRisk #PEPTalk

After giving birth via emergency C-section, Annast

After giving birth via emergency C-section, Annastasia developed a severe headache that was dismissed as normal post-epidural pain. Days later, she collapsed and was diagnosed with a blood clot in her brain (CVST) that caused a major stroke. 👉Swipe though to read the full story.

Annastasia's experience highlights an issue we’ll cover at our Women’s Health Month PEP Talk on May 13: the danger of medical gaslighting, especially when women’s symptoms are downplayed or overlooked. 🔗Register at the link in bio.

#StopTheClot #StopTheClotStory #BloodClots #CVST #BrainBloodClot #Pregnancy #BloodClotAwareness

☀️There’s no denying that Florida is making

☀️There’s no denying that Florida is making significant strides in protecting people from life-threatening blood clots.

With the Emily Adkins Family Protection Act, Florida is the first state in the nation to pass a measure aimed at tracking the impact of blood clots on residents. The legislation awaits Gov. Ron DeSantis’ signature to officially become Florida law.

This will lead to valuable data that will shape research and policy for many decades to come, saving lives in Florida and around the world.

Florida is also home to Ascension Sacred Heart in Pensacola, the most recent hospital to achieve the NBCA VTE Center of Excellence™ designation, adding to the growing network of institutions that set the standard for VTE care.

Thanks to the Sunshine State’s commitment to blood clot education, early detection, and prevention, the vision behind the Emily Adkins Family Protection Act is already coming to fruition.

“The Emily Adkins Family Protection Act is a powerful validation of the work so many of us have dedicated ourselves to in VTE prevention and care,” said Dr. Rohit Amin, Interventional Cardiologist and Co-Director of the PE/DVT Team at Ascension Sacred Heart Pensacola.

We’re also excited to celebrate an upcoming Center of Excellence designation in Northern Florida next week — stay tuned!

🔗Learn more about the Emily Adkins Family Protection Act, our Centers of Excellence, and how Florida is leading the way: stoptheclot.org/news

#StopTheClot #BloodClots #VTE #EmilyAdkins #BloodClotLegislation #FloridaLegislation #CentersOfExcellence #BloodClotPrevention #BloodClotAwareness

After knee surgery while on the combined pill, Jul

After knee surgery while on the combined pill, Julia developed a DVT that led to a life-threatening PE. She ignored early warning signs until she suddenly struggled to breathe and was rushed to the hospital.

Along with her physical recovery, Julia faced the mental health impact of her experience, including PTSD, but she came through with a new appreciation for life. 👉 Swipe through to read her story.

If you’ve experienced a blood clot, did it change how you view life? Tell us in the comments.

Join our May PEP Talk on women and blood clots on Tuesday, May 13. Register at the 🔗 in bio.

#StopTheClot #StopTheClotStory #BloodClots #APS #DVT #DeepVeinThrombosis #PE #PulmonaryEmbolism #BloodClotAwareness #PTSD

If you’re a woman who has experienced blood clot

If you’re a woman who has experienced blood clots or has a family history of blood clots, you won’t want to miss our special Women’s Health Month PEP Talk on Tuesday, May 13 at 7 p.m. ET.

We’ll be discussing a range of important topics, including medical gaslighting; the mental health impact of a blood clot diagnosis; managing side effects such as heavy menstrual bleeding on anticoagulants; the safety of hormonal birth control and hormone replacement therapy for individuals with a personal or family history of blood clots; and much more.

Dr. Anna Parks, assistant professor at the University of Utah Division of Hematology and a member of NBCA’s Council of Emerging Researchers in Thrombosis, will serve as our medical expert.

Join us for this informative discussion, and bring your questions!

🔗Register: Link in bio.

#StopTheClot #BloodClots #WomenAndBloodClots #KnowYourRisk #PEPTalk #MedicalGaslighting #BloodClotAwareness #BloodClotWebinar

Today is National Nurses Day, and we’re honoring

Today is National Nurses Day, and we’re honoring the hardworking and knowledgeable nurses who help prevent, recognize, and treat blood clots every day.

At NBCA, we’re grateful for the nurses who provide critical education, advocate for patients, and save lives through early detection and care. Thank you for all you do to support those impacted by blood clots.

Has a nurse made a positive impact in your life? Tell us in the comments!

#StopTheClot #BloodClots #NationalNursesWeek #NursesRock #BloodClotAwareness #BloodClotPrevention

Did you know that a blood clot can cause a stroke?

Did you know that a blood clot can cause a stroke?

May is National Stroke Awareness Month, and not all strokes are the same. Cerebral venous sinus thrombosis (CVST) is a rare type of stroke — accounting for approximately 0.5 to 1 percent of all strokes worldwide — caused by a blood clot in the brain’s venous sinuses, which prevents blood from draining out of the brain.

CVST can happen at any age, although they’re most prevalent in women under 50 years old. CVST is commonly linked to estrogen exposure from birth control, pregnancy, postpartum, and hormone therapy.

Symptoms can develop gradually over days or appear suddenly. They may vary depending on where the clot forms and how much pressure builds in the brain. Here are the key symptoms of CVST:

- Severe headache (this is the most common symptom, often worsening over time or different from a typical headache)
- Blurred or double vision
- Seizures
- Weakness or numbness (especially on one side of the body)
- Difficulty speaking or understanding speech
- Confusion or trouble thinking clearly
- Nausea and vomiting
- Loss of consciousness

If you’ve experienced CVST, you’re not alone. Read the stories of others who have also endured this condition at the link in bio.

#StopTheClot #BloodClots #NationalStrokeAwarenessMonth #WomensHealthMonth #CVST #BrainClot #BloodClotAwareness

Faith’s life was just beginning. At 18, she was

Faith’s life was just beginning. At 18, she was misdiagnosed despite chest pain, shortness of breath, and passing out. Days later, a pulmonary embolism took her life. Her sister Heather shares their story to raise awareness: Blood clots can happen at any age. Know the signs. 👉Swipe through to read her story.

🔗 More stories: Link in bio.

#StopTheClot #StopTheClotStory #BloodClots #Athlete #BloodClotAwareness #BloodClotFatality #FatalPE

🚴And they’re off! Good luck to our cyclists a

🚴And they’re off! Good luck to our cyclists as they take on the TD Five Boro Bike Tour in New York City today!

Show some love to these blood clot survivors and advocates as they pedal 40 miles through the city, representing Team Stop the Clot in our signature red polka dots. This incredible team has raised $12,523 to support NBCA’s mission!

P.S. May is #NationalBikeMonth! With approval from your doctor, bicycling might be a great way to get back into exercise following a blood clot diagnosis.

@BikeNewYork #TDFiveBoroBikeTour #StopTheClot

A blood clot diagnosis doesn’t just affect your

A blood clot diagnosis doesn’t just affect your body—it can take a toll on your mental health, too.

Many survivors face anxiety, depression, and feelings of isolation after their diagnosis. If that’s you, please know you’re not alone.

During Mental Health Awareness Month, we want to remind you that support is available. NBCA’s private Facebook group is a welcoming, judgment-free space where blood clot survivors come together to share, listen, and support one another.

Let’s lift each other up. Join us at the 🔗 in bio.

#stoptheclot #mentalhealthawarenessmonth #mentalhealthmatters #bloodclots #bloodclotawareness #anxiety #depression #healthanxiety

At just 17, Abby thought her leg pain was nothing

At just 17, Abby thought her leg pain was nothing serious—until she nearly passed out and learned she had multiple blood clots in her leg and lungs. Now Abby is sharing her story to raise awareness. Know your risk. It could save your life. Swipe through 👉to read her story.

🔗More stories at the link in bio.

#StopTheClot #StopTheClotStory #BloodClots #FactorVLeiden #Prothrombin #Athlete #BirthControl #BloodClotAwareness
@abbysnoke

Volunteer Spotlight: Elizabeth “Lizzie” Devane

Volunteer Spotlight: Elizabeth “Lizzie” Devaney

In just a few months as an NBCA Thrombassador, Lizzie has already made an incredible impact, reaching over one million people with her passionate advocacy for blood clot awareness.

Her journey with blood clots began in 2022, when she had a minimally-invasive procedure to treat varicose veins. That triggered deep vein thrombosis, which was initially misdiagnosed, and eventually led to a saddle pulmonary embolism.

Lizzie completed Thrombassador training in October 2024 and wasted no time getting to work, securing interviews with four major newspapers, where she shared her personal blood clot story and spread critical information about the signs and risks of blood clots.

She has been an active presence in patient support groups, offering advice and empathy to others.

During Blood Clot Awareness Month, Lizzie was a social media powerhouse, posting daily educational content across her platforms.

Lizzie, we couldn’t be prouder to have you as part of our community. Keep up the amazing work!

Read her story at the 🔗 in bio.

@croi_nutrition #stoptheclot #bloodclots #vte #volunteer #bloodclotvolunteer #volunteerofthemonth #bloodclotawareness #bloodcloteducation #pulmonaryembolism

May is Women’s Health Month — a time to put a

May is Women’s Health Month — a time to put a spotlight on the fact that blood clot risks tied to estrogen-based birth control, pregnancy, postpartum recovery, and hormone therapy impact millions of women every year.

The National Blood Clot Alliance is raising awareness with our Women’s Health Month Toolkit (🔗 in bio) designed to help our partners and advocates spread life-saving awareness all month long.

📣 Calling all health care professionals and advocacy groups: Use our toolkit to educate, empower, and elevate the conversation around women and blood clots.

🫶 And to the women impacted by blood clots — your stories matter. Your voice can save lives.

Let’s work together to protect women’s health this month and every month.

📅 Don’t miss our May 13 PEP Talk: Women and Blood Clots. Register at the 🔗 in bio.

#StopTheClot #BloodClots #WomensHealthMonth #BloodClotAwareness #PEPTalk #WomensHealth #BloodClotWebinar

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