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Johns Hopkins All Children’s Hospital Named Nation’s First Pediatric National Blood Clot Alliance VTE Center of Excellence™

A new national benchmark in pediatric venous thromboembolism (VTE) care St. Petersburg, FL – The National Blood Clot Alliance (NBCA)…

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Vein and Vascular Institute Named Nation’s First National Blood Clot Alliance Community DVT Excellence Center

FOR IMMEDIATE RELEASE Voorhees, NJ – The National Blood Clot Alliance (NBCA) is proud to announce the designation of Vein and…

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Advancing blood clot awareness, prevention, diagnosis & treatments to #stoptheclot. Submit your story @ link below ⬇️ Our podcast: Taking a Breath 🎙️

NBCA ADVOCACY NEWS: The Blake Burgess Blood Clot P

NBCA ADVOCACY NEWS: The Blake Burgess Blood Clot Prevention Act (HB 3644) passed the Oklahoma Senate committee 9-0. NINE to ZERO on April 8th.

Blake Burgess was 21 years old when a blood clot took his life. This bill — his legacy — would require Oklahoma hospitals to screen patients for VTE risk and train staff to respond.

Next stop: the full Senate floor. Then Governor Stitt’s desk.

In Oklahoma? Tell your Senator to #VoteYesForBlake https://www.stoptheclot.org/blake-burgess-blood-clot-bill/

We’re almost there. 💙 #BlakeBurgessBloodClotPrevention #StopTheClot #OklahomaBloodClotPrevention #HB3644 #VoteYesForBlake

She thought it was just a sinus headache—until i

She thought it was just a sinus headache—until it became something far more serious.

Stories like this are a powerful reminder that blood clots don’t always look the way we expect. Persistent symptoms, confusion, or sudden changes in your body are worth paying attention to—and advocating for.

At the National Blood Clot Alliance, we’re committed to sharing real patient experiences to help others recognize the signs and feel empowered to speak up.

➡️ Read Jenna’s full story and learn more at the link in our bio
➡️ Have a story of your own? We invite you to share it and help raise awareness

#StopTheClot #BloodClotAwareness #CVST #PatientAdvocacy #KnowTheSigns #WomensHealth
@jenna_m_walsh

Have you or a loved one been recently diagnosed wi

Have you or a loved one been recently diagnosed with a blood clot and struggling with the emotional/psychological impact?
You’re not alone—NBCA’s CLUES study found that **75% of patients reported feeling moderately anxious or depressed** after a blood clot diagnosis. Yet this is often the symptom nobody talks about.

Join us for our April PEP Talk: Navigating Emotional Trauma Post Blood Clot: The Symptom Nobody Mentioned

We’ll be joined by Dr. Leben Tefera, MD, Staff physician, Department of Cardiovascular Medicine at the Cleveland Clinic and member of NBCA’s Council of Emerging Researchers in Thrombosis, to shed light on the emotional and psychological experiences many people face after a clot — and why acknowledging them matters.

Date/Time: 🗓 April 14 at 7:00 pm ET
🔗 Register: https://bit.ly/AprilPEP2026

#bloodclots #pulmonaryembolism #medicalPTSD #healthanxiety #stoptheclot

💙 Thank you to everyone who showed up for Blood

💙 Thank you to everyone who showed up for Blood Clot Awareness Month and the 100K Reasons Challenge.

Whether you moved your body, tracked your miles, shared your story, or donated—you helped turn awareness into real impact.

We’re especially excited to recognize this year’s challenge leaders (bit.ly/100kfundraisers 👏). Behind every mile logged is a deeper why—honoring a loved one, sharing a personal experience, or helping prevent someone else from going through the same thing.

That’s what makes this community so powerful. This isn’t just about miles—it’s about meaning.

Because of you, more people will learn the signs, risks, and realities of blood clots.

💙 Thank you for being part of this movement to #StopTheClot

#BloodClotAwareness #BCAM2026 #100KReasonsChallenge2026 #StopTheClot

🌍 This World Health Day (April 7), we stand wit

🌍 This World Health Day (April 7), we stand with science.

Scientific research and collaboration have transformed how we prevent, diagnose, and treat blood clots—saving lives every day. From improved medications to additional treatment options and more personalized care, these advancements are only possible because of ongoing research and shared knowledge across the global health community.

At the National Blood Clot Alliance, we see the impact of science through the stories of patients, caregivers, clinicians, and researchers working together to Stop the Clot®.

This year’s theme—“Together for health. Stand with science”—is a reminder that progress doesn’t happen in isolation. It happens when we support research, listen to evidence, and work together to turn knowledge into action.

💙 Join us in standing with science—because it saves lives.

#WorldHealthDay #StandWithScience #StopTheClot #BloodClotAwareness #PublicHealth #Healthcare #VTE #DVT #PulmonaryEmbolism

National Public Health Week (April 6 - 12) reminds

National Public Health Week (April 6 - 12) reminds us:

Good health doesn’t just happen.
It takes action—from policymakers, healthcare professionals, communities, and individuals.

At the National Blood Clot Alliance, we see this every day.
Blood clots affect up to 900,000 Americans each year—and many are preventable.

That’s why this year’s theme, “Ready. Set. Action!”, matters. Because when it comes to blood clots, action can save lives.

This week, we’re sharing simple actions you can take to reduce your risk, recognize the signs, and advocate for your health.

👉 Start by knowing your risk: https://bit.ly/AssessYourClotRisk

#NPHW #ReadySetAction #StopTheClot #PublicHealth #nationalbloodclotalliance #nbca #bloodclot #pulmonaryembolism #NationalPublicHealthWeek

@americanpublichealth

Julia was told it probably wasn’t a blood clot.

Julia was told it probably wasn’t a blood clot.

After major abdominal surgery, she developed calf pain and shortness of breath—but because her symptoms seemed “mild,” her concerns were dismissed.

Weeks later, her symptoms worsened until she was short of breath from simply sitting in chair. Finally, a doctor directed her to the ER.

There, doctors discovered multiple large blood clots in both lungs, severe heart strain, and elevated cardiac markers. She required emergency treatment.

Her message: “We are not invincible… Don’t stop advocating for yourself!”

@juliabracewell
#StopTheClot #BloodClotAwareness #PulmonaryEmbolism #WomensHealth #BirthControl #PatientAdvocacy #ListenToYourBody

Chelsey had an idea—and turned it into impact.

Chelsey had an idea—and turned it into impact.

By creating and selling handmade resin lung keychains, she raised $684 to support blood clot awareness, education, and patient support.

The best part?

👉 Anyone can do this.

Whether it’s baking, running, crafting, or sharing your story—your fundraiser can help save lives.

🩸 Start your own fundraiser in minutes

🔗bit.ly/DIYfundraiser2026 (or link in bio)

#StopTheClot #BloodClotAwareness #Fundraiser #MakeAnImpact #bloodclotsurvivor #pulmonaryembolism

Have you or a loved one been recently diagnosed wi

Have you or a loved one been recently diagnosed with a blood clot and struggling with the emotional/psychological impact?

Join us for our April PEP Talk: Navigating Emotional Trauma Post Blood Clot: The Symptom Nobody Mentioned

We’ll be joined by Dr. Leben Tefera, MD, Staff physician, Department of Cardiovascular Medicine at the Cleveland Clinic and member of NBCA’s Council of Emerging Researchers in Thrombosis, to shed light on the emotional and psychological experiences many people face after a clot — and why acknowledging them matters.

Date/Time: 🗓 April 14 at 7:00 pm ET
🔗 Register: https://bit.ly/AprilPEP2026

#bloodclots #pulmonaryembolism #medicalPTSD #healthanxiety #stoptheclot

On Sunday, May 3, 2026, cyclists from around the w

On Sunday, May 3, 2026, cyclists from around the world will take on a once-a-year experience: riding 40 car-free miles through all five boroughs of New York City. Whether you’re a first-time rider or a seasoned cyclist, it’s an unforgettable way to see the city.

Ride with Team Stop the Clot—sport our signature red polka dots and help raise awareness about blood clots.

Don’t wait! A limited number of charity bibs are still available.
Learn more and register: [bit.ly/2026TDFiveBoroBikeTour](http://bit.ly/2026TDFiveBoroBikeTour)
(or find the link in our bio)

#StopTheClot #TDFiveBoroBikeTour #BikeNewYork #BloodClotAwareness #TeamStopTheClot #nationalbloodclotalliance @bikenewyork

Blood Clot Awareness Doesn’t End in March. Marc

Blood Clot Awareness Doesn’t End in March.

March may be over, but the risk of blood clots isn’t—and neither is the need for awareness.

During Blood Clot Awareness Month, thousands of you showed up: learning the signs, sharing resources, advocating for yourselves and others, and helping us reach more people than ever before.

But here’s the reality:

Blood clots can happen anytime, to anyone—and early recognition can save lives.

That’s why knowing the signs and symptoms—and feeling empowered to speak up when something doesn’t feel right—still matters every single day.

🩸 Learn the signs and symptoms: https://www.stoptheclot.org/learn_more/signs-and-symptoms-of-blood-clots/

📣 Keep sharing. You never know who might need to see this.

#stoptheclot #strongenoughtoask #bloodclots #bloodclotawarenessmonth #bcam2026 #vte #dvt #pe #deepveinthrombosis #pulmonaryembolism #bloodclotawareness #bloodcloteducation #knowthesigns

Be the first to hear about events like our monthly

Be the first to hear about events like our monthly PEP Talks, new blood clot awareness and education resources; updates on our advocacy initiatives, and more.

Subscribe to our email list and never miss a beat:
bit.ly/nbcaemail
(or find the link in our bio)

#nbca #nationalbloodclotalliance #stoptheclot

Carrie knew something wasn’t right. After weeks

Carrie knew something wasn’t right.

After weeks of severe pain, multiple ER visits, and being told it was “abdominal pain” or “possible pneumonia,” she trusted her instincts and pushed for answers.

“I believe I've got another pulmonary embolism.”

She was right.

Carrie was diagnosed with multiple blood clots in both lungs, partial lung collapse, and tissue damage. A survivor of a previous pulmonary embolism, she recognized the signs—and advocated for herself when no one else would.

Her message: “Trust your body & demand the proper treatment because your life depends on it.”

#StopTheClot #BloodClotAwareness #PulmonaryEmbolism #ClottingDisorder #FactorVLeiden #PatientAdvocacy #ListenToYourBody

🩸 A milestone worth noting: Our support group h

🩸 A milestone worth noting: Our support group has grown to 12,000 members.

While we’re proud of this community, we also recognize what that number represents—more individuals and families navigating the challenges of blood clots.

Behind that number are thousands of stories, questions, fears, and victories—and people who choose to show up for each other through it all.

If you’ve ever felt alone in your experience with a blood clot, this space exists for you. 💙

🔗Join us: https://www.facebook.com/groups/stoptheclot/

#StopTheClot #BloodClotAwareness #BloodClotSupport

Health outcomes shouldn’t depend on who you are

Health outcomes shouldn’t depend on who you are or where you live—but too often, they still do.

Some communities face higher risks, delayed diagnoses, and less access to care. This is in addition to the fact that blood clots are a leading cause of preventable hospital death in the United States.

That’s why April was designated National Minority Health Month by the U.S. Department of Health and Human Services.

Awareness is the first step. Action is what changes outcomes.

#NationalMinorityHealthMonth #HealthEquity #StopTheClot

Hazel thought she had the flu. But when she bent

Hazel thought she had the flu.

But when she bent over to take out the trash, she suddenly felt like “a ton of weights” were on her chest. Hours later, she drove herself to the ER, where a CT scan revealed a pulmonary embolism. She was immediately transferred to the ICU.

Hazel had experienced a blood clot before and has now been diagnosed with a clotting disorder. Today, she remains on lifelong blood thinners and continues to recover while navigating ongoing symptoms.

“I AM A WOMAN OF GREAT FAITH… MY FAITH IS BEING TESTED.”

Her message: don’t ignore symptoms. What feels minor could be life-threatening.

#StopTheClot #StopTheClotStory #BloodClotAwareness #PulmonaryEmbolism #ClottingDisorder #PatientStory #ListenToYourBody #WomensHealth

🩸 Blood Clot Awareness Month is almost over—b

🩸 Blood Clot Awareness Month is almost over—but this work must continue.

This March, together, we:
✔️ Reached millions through our Strong Enough to Ask campaign—including a national PSA from Senator Lisa Blunt Rochester
✔️ Supported 500+ newly diagnosed patients through our March PEP Talk
✔️ Mobilized advocates in all 50 states—sending nearly 700 messages to Congress
✔️ Met with 50+ congressional offices on Capitol Hill to push for change
✔️ Launched the Community DVT Excellence Program and designated the first site
✔️ Named the nation’s first Pediatric VTE Center of Excellence™
✔️ Reached communities nationwide through volunteer-led awareness efforts
✔️ Shared powerful patient and athlete stories to encourage self-advocacy
✔️ And so much more!

This is the impact of ONE month.

But blood clots don’t stop when March ends.
Every 6 minutes, someone in the U.S. dies from a blood clot.

If you’ve been touched by a blood clot…
If you believe this work matters…
If you’ve been thinking about giving...
This is the moment.

👉 Please consider making a donation today: bit.ly/GIVE2026 (link in bio)

#StopTheClot #StrongEnoughToAsk #BCAM2026 #BloodClots #VTE #DVT #PE

Have you or a loved one been recently diagnosed wi

Have you or a loved one been recently diagnosed with a blood clot and struggling with the emotional/psychological impact?

Join us for our April PEP Talk: Navigating Emotional Trauma Post Blood Clot: The Symptom Nobody Mentioned

PEP Talk hosts, Leslie Lake and Todd Robertson (both blood clot survivors), will be joined by Leben Tefera, MD, Staff physician, Department of Cardiovascular Medicine at the Cleveland Clinic and member of NBCA’s Council of Emerging Researchers in Thrombosis.

Together, they’ll shed light on the emotional and psychological experiences many people face after a clot — and why acknowledging them matters.

🗓 April 14 at 7:00 pm ET
🔗 Register: https://bit.ly/AprilPEP2026

#bloodclots #pulmonaryembolism #medicalPTSD #healthanxiety #stoptheclot

🩸 A first for pediatric blood clot care 🩸 C

🩸 A first for pediatric blood clot care 🩸

Children can develop blood clots—and too often, they’re underrecognized. That’s why this matters. 👇

The National Blood Clot Alliance has named Johns Hopkins All Children’s Hospital the nation’s first Pediatric VTE Center of Excellence™.

💡 What this means:

• Earlier recognition of blood clots
• Coordinated, expert care
• Better outcomes for children and families

💬 “The most important thing for us was to find someone who was knowledgeable and who truly cared. To find a team of experts who not only participated in clinical research, but who also really listened to our family — it has made all the difference for Luka.”

— Emanuelle, Luka’s mother

This is more than a designation—it’s a step forward in ensuring children receive the lifesaving care they deserve.

Read more: https://bit.ly/JHACHPediatricCOE(or link in bio)

hopkinsallchildrens

#StopTheClot #PediatricBloodClots #BCAM2026 #BloodClots #dvt

March is Blood Clot Awareness Month, making it the

March is Blood Clot Awareness Month, making it the perfect time to spotlight an often overlooked but life-threatening complication in cancer care: blood clots.

Volunteer President and Board Chair of the National Blood Clot Alliance, Leslie Lake, talks about the importance of awareness, prevention, and patient education around venous thromboembolism (VTE) on the NCODA Podcast (Network for Collaborative Oncology Development & Advancement).

Her powerful personal story and advocacy work highlight what every oncology team should know to improve patient outcomes and support.

Listen to the full episode, here: https://www.ncoda.org/resource/preventing-blood-clots-in-cancer-care/

@ncodaorg
#bloodclots #oncology #pulmonaryembolism #NBCA #nationalbloodclotalliance #NCODA

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