Share Your Blood Clot Story: Blood Clots & Me

NBCA is collecting stories that reveal the personal side of blood clots and clotting disorders.  Too often, conditions are dehumanized through clinical terminology and research jargon.  While such language is important and necessary in certain forums, a human story that describes one’s personal relationship to a condition is most accessible to the general public.

You want to reach the public and healthcare providers and help them understand more about living with blood clots and/or clotting disorders.  We want to help you reach your goal!

Send us your original stories (following the guidelines below).  We will help you polish your writing with the help of an editor.  Once complete, you can choose to have your story published in one of our upcoming newsletters, or have it posted on our website, www.stoptheclot.org.  If you choose, you can change your name or other identifying information to protect your confidentiality; just let us know your desire to do so.

Guidelines for writing your story:

  1. Your story should be about your personal experience with blood clots or clotting disorders.  This does not mean that you must have either condition—it may affect your child, partner, friend, parent sibling or another person close to you.
  2. Please aim to make 2-3 key points through your story; it is up to you to convey the message you want to tell.
  3. Please keep your story under 750 words.  You are certainly welcome to share your story in fewer words.
  4. Please write a clear beginning, middle and end.  Everyone’s beginning, middle and end will be different, so define it for yourself.
  5. Please include any risk factors you may have had. Were you on hormonal birth control (the pill, nuvaring, etc)? Had you taken any long trips lately? Has anyone else in your family had a blood clot? Did you recently have surgery or give birth?
  6. Has this illness changed you?
  7. What have you learned since the illness came into your life?
  8. If you had a clotting disorder, have your family members been tested? If so, did they test positive?
  9. Do you look at your life differently now than before you or your family member or friend were diagnosed?
  10. If you were to give advice to others, what would it be?
  11. Do your best. Our editor will help refine your story–without losing your voice.
  12. Please tell us how you would like your story shared (in a newsletter, on the website, or editor’s choice).  Please also let us know if you would like us to contact you about opportunities to present your story in other forums (i.e. public speaking).
  13. Please include your contact information: Name, Address, Phone Number and E-mail address (if applicable). We won’t share your information. We would really appreciate your sharing a photo.

Once you submit your story, please check your email. We be contacting you to follow-up on your story. Thank you!

Send your story to us by email at PatientStories@stoptheclot.org.