A patient-led advocacy organization that includes many of the nation's foremost experts on blood clots and blood clotting disorders.
The National Alliance for Thrombosis and Thrombophilia is a patient-led advocacy organization providing patient education and professional training on the signs, symptoms and prevention of blood clots and clotting disorders. NATT combines the unique perspectives of health care providers, individuals afflicted with clotting disorders and community leaders who are passionate about this health care crisis. NATT’s Medical and Scientific Advisory Board includes nationally recognized experts on thrombosis and thrombophilia.
NATT is working closely with the Centers for Disease Control (CDC), thrombophilia centers, anticoagulation clinics, hemophilia treatment centers and the National Hemophilia Foundation on its Stop-the-Clot™ Education Project, whose components include:
Although the organization is growing quickly and establishing regional chapters, it has retained its grassroots character; NATT board members and volunteers are like part of an extended family. Our founding members were patients and medical professionals attending a thrombosis and thrombophilia workshop at The Centers for Disease Control in 2003. Sharing a common concern, they resolved to build a national organization to advocate for – and to educate and support -- those afflicted with clotting disorders.
See for yourself. Each board member has been touched personally by blood clots, DVTs, pulmonary embolism or such genetic variants as the factor V Leiden gene mutation.
Our Mission
The mission of the National Alliance for Thrombosis and Thrombophilia is to prevent, diagnose and treat thrombosis and thrombophilia through research, education, support and advocacy.
Our Objectives
Even though specialized knowledge about thrombosis and thrombophilia has mushroomed in the past decade, many health care providers at the front line of diagnosis still lack access to it. This means many of their patients don’t get timely and accurate diagnosis. Resources for care exist that should be better used. The National Alliance for Thrombosis and Thrombophilia addresses major treatment issues to:
Prevent
thrombosis and its
complications.
Reduce
death and illness related to
thrombosis.
Assist in establishing guidelines for
prevention, treatment, and management of blood clots.
Promote funding for and establishment
of comprehensive thrombophilia programs to allow every patient access to
thrombosis specialists within a reasonable distance where patients live.
Promote and assist scientists with
research efforts relating to all aspects of thrombosis and thrombophilia.
Encourage activities to
increase the number of specialists in thrombosis and thrombophilia, such as
endowing training fellowships.
Initiate and promote
educational activities for the medical and patient community, and for the
public. Create a network of self-funded local chapters to improve the quality of
life for patients/families through appropriate support.
Help NATT Meet Its Goals and Objectives! Donate Today.
Help Us Fight This Silent Killer - Help Us Stop the Clot™
Roland Varga, Races to Raise Awareness and Funds
“Clot Buster” Roland Varga, a triathlete from Columbus, OH, raced 300 miles last summer to raise awareness about blood
clots and blood clotting disorders. Along the way, he raised funds
through pledges, auctions, raffles and sales of trademarked NATT polka
dot jerseys and NATT wristbands. In 2008, Roland will race his first
marathon, carrying the polka dots and spreading the word.
You can read more about Roland at
http://clot-buster-triathlete.blogspot.com/ and, more importantly,
you can help him reach his goal of 26.2 miles by donating at
http://www.active.com/donate/NATTClotBuster. Contact the “Clot
Buster” at polka40@hotmail.com
to purchase your NATT wristband.
