| 1 | May 16, 2009 10:24 PM | new clinical trials |
| 2 | May 17, 2009 11:03 PM | Make it more appealing, inviting, exciting |
| 3 | May 18, 2009 12:41 AM | 1. Better (more detailed) info on what is happening within specific chapters; 2. Webinars for patients, 3. Well-structured Q/A; 3. More newsletters on specific topics (Military and Blood Clots; psychological and social impact of having had a blood clots; cancer and blood clots; unusual clotting disorders); 4. More NATT brochures on specific topics (protein C deficiency; protein S deficiency; homozygous factor V Leiden;athletes and blood clots; INR home monitors); 5. a map of the U.S. depicting healthcare providers (hematologists) knowledgeable about clots and clotting disorders; 6. take everything that is good on www.fvleiden.org and have similar content on NATT's website ("First diagnosed - what you need to know"; medical alert bracelets with links how to buy them; etc); 7. A page for NATT-National and NATT chapters listing all subcommittees, describing what they do and what kind of volunteers they are looking for, so that people can kind-of sign up; 8. Picture and brief bio on all NATT staff members - National staff and chapter staff, so that it is not such an anonymous organization; 8. A "History of NATT" , describing NATT's first 5 years of existence (the ups and downs, challenges, progress), pictures included, so that one gets a better and more personal feeling of what NATT and its members are; 9. Full transparency about the finances, what gets done with money raised, so that people are willing to support NATT and know what gets done with their money; 10. Description on the individual chapter pages as to who the steering committee members are (pictures included), where and when they meet; what subcommittees they have and who leads them; contact info so that one can express interest to serve on a subcommittee; information about what happens with money donated within a chapter and how to earmark it for chapter purposes. Thank you for having asked. |
| 4 | May 18, 2009 3:21 AM | To see more up-to-date information about chapters and how to donate directly to them. |
| 5 | May 18, 2009 12:57 PM | more video and more places to ask a question (ie at the bottom of each page) and not loose my place on the page |
| 6 | May 18, 2009 1:06 PM | Too much written text. Need to make more user friendly, probably different pages for health care providers and patients. |
| 7 | May 18, 2009 9:11 PM | Different opening topic headers..i.e. education..patient info. |
| 8 | May 18, 2009 10:11 PM | more information on specific blood clotting disorders |
| 9 | May 19, 2009 2:38 PM | ------- |
| 10 | May 19, 2009 2:42 PM | more information about treatment |
| 11 | May 19, 2009 3:01 PM | more stories from people who have clotted, or who's children have had clots |
| 12 | May 19, 2009 3:22 PM | I can see it is well funded and perhaps too funded in the current year. I hope money is being saved for future years as the public and government interest will not always be there and the site will need funds in those eyears as well. It seems like there is a lot of money thrown at it right now. we can do a lot without money and with the gatherings. thank you for all you do. |
| 13 | May 19, 2009 3:29 PM | No suggesstions at this time |
| 14 | May 19, 2009 3:37 PM | A separate link for healthcare personnal. |
| 15 | May 19, 2009 5:22 PM | Maybe a bit more detail about Vitamin K foods, like a link to a more complete list of foods. I have bookmarked a couple of sources, such as about.com's calorie counter and nutritiondata.com. Mostly, though, I think the information provided here is pretty complete. |
| 16 | May 19, 2009 5:49 PM | a support group maybe |
| 17 | May 19, 2009 5:55 PM | Please find a way that I can forward certain sections to my children who also have thrombophilia. Thank you. |
| 18 | May 19, 2009 6:05 PM | Th blinking red arrow is horribly distracting and made me scroll down so I would not see it. There is a lot of info on the homepage. It is a bit too much. I would focus on keeping the important items above the fold and for sure lose that blinking red arrow. I would add a forum or a blog so that readers can get involved in the conversations. Users could get engaged in sharing with the patients stories |
| 19 | May 19, 2009 6:51 PM | more natural treatment options |
| 20 | May 19, 2009 6:56 PM | The site is a bit busy and sometimes without the search box it is hard to find things. Overall, I am happy with it. It would be nice to have Podcasts on more topics. |
| 21 | May 19, 2009 7:35 PM | keep up the great work |
| 22 | May 19, 2009 7:45 PM | blood testing for clotting factorsfor everyone getting surgery |
| 23 | May 19, 2009 9:38 PM | there is only a small visuallt difeference between regular text and links - links should be more distinct - yes, they become become more visible if you roll-over them....but why would you roll-over if you couldn't see they were links? just a minimal bold isn't enough. |
| 24 | May 20, 2009 1:03 AM | none |
| 25 | May 20, 2009 1:13 AM | Everything is fine! |
| 26 | May 20, 2009 1:34 AM | I would like to start a support group in Cleveland or help with a seminar. |
| 27 | May 20, 2009 2:02 AM | A Question & Answer Foram, where we ciuld pose questions of concers to a panel of experts in the field. |
| 28 | May 20, 2009 2:37 AM | More information on factor V lieden |
| 29 | May 20, 2009 5:07 AM | none |
| 30 | May 20, 2009 11:13 AM | technical information made easier for the lay person to understand. |
| 31 | May 20, 2009 2:25 PM | Changes: There is a lot of written information on the website. There can be more bullet point messages and less detailed paragraphs. Add: Visual aids are great tools. Webinars - Personal stories of volunteers. |
| 32 | May 20, 2009 6:36 PM | I think the home page should be shorter. It seems the organization is trying to put too much on the home page of things that are in other sections. The navigation is good so you don't seem to need all the news stories. |
| 33 | May 20, 2009 8:52 PM | you need more pictures |
| 34 | May 21, 2009 12:12 PM | not sure |
| 35 | May 21, 2009 1:19 PM | It needs to be more attractive. The upcoming events should be more prominent. |
| 36 | May 21, 2009 2:43 PM | I think NATT's message needs to be more clear. I think NATTs moto should be "Know your risk factors and get tested." |
| 37 | May 21, 2009 5:35 PM | More events promoting awareness |
| 38 | May 21, 2009 6:02 PM | I think it needs to be more interactive. Forums would be great - a better way to connect to the community. More updates about what the organization is doing, meeting recaps, ways to get involved, calls to action, etc. There are some other great health organization web sites that are wonderful - MS Society, etc. |
| 39 | May 21, 2009 8:56 PM | The NATT news feed should have the date news items were added, more links on the different educational pages to sites for more info on that specific topic, the typewriter picture on the home page seems out of date, maybe less info on the home page as you ahve to scroll to see it all use more links instead |
| 40 | May 22, 2009 1:17 AM | Good as is |
| 41 | May 22, 2009 1:34 AM | I would love to see a forum/blog for people to share personal stories and respond back and forth. |
| 42 | May 22, 2009 4:30 PM | Nothing |
| 43 | May 22, 2009 5:51 PM | I think the site has a good foundation and now needs to fill out information and links. There needs to be more in-depth information as well as personal experiences - video testimonials, etc. |
| 44 | May 23, 2009 12:01 PM | more international info Nictotine replacement therapy e.g. gum as a risk factor not just smoking more about this |
| 45 | May 23, 2009 6:01 PM | I would like to see more medical graphics for DVT and pulmonary embolism. A cutaway graphic would be nice. |
| 46 | May 24, 2009 3:59 PM | Nothing I can think of. |
| 47 | May 24, 2009 7:32 PM | Q,: Being on warferin for three years what specific tests are needed to get me off? More importantly is needed gallbladder surgery possible? Chateract surgery? More dangerous? |
| 48 | May 25, 2009 3:46 AM | Nothing |
| 49 | May 26, 2009 2:29 PM | I think it's well done. I think these sites fail when they are not maintained. |
| 50 | May 27, 2009 6:56 AM | The format needs work. It still looks amateurish-half of some pages are still blank. The Chapter information needs to be consistent and more uniform. Someone needs to make sure that the information (e.g. dates of Stop the Clot Forums) is correct and updated frequently. Some of the articles presented have some age on them: for instance, the article on Air Travel. While the information contained may still be valid, a reader who sees that the article is five years old may expect more recent information, lose confidence and stop reading. It may also color their perception of the website or organization, if they encounter other "dated" (in their eyes) information. |
| 51 | May 27, 2009 7:21 AM | many peple around the globe, includig health care provider are unable to attend the seminars and meetings being held by the NATT. Therefore I suggest to bring such events as live show or recorded ones through the internet. |
| 52 | May 27, 2009 11:44 PM | clinical trials info |
| 53 | Jun 5, 2009 4:29 PM | I had a PE recently with unusual signs and symptoms - I had Pain in my Left arm, shoulder and neck with pressure in my chest. I was diagnosed with a PE because of a very good PA in the ER and divine intervention. I don't see any of these symptoms listed on your site - I think it would be helpful if you could look into this and educate the people as well as physicians that sometimes the symptoms aren't written in stone - there are other signs and for the time it takes to do a lung CT - they can get an accurate diagnosis. Thank you! |
| 54 | Jun 5, 2009 5:44 PM | section for healthcare professionals |
| 55 | Jul 30, 2009 1:55 AM | it seems to cover what is needed |
| 56 | Aug 6, 2009 2:13 AM | Management of clotting before and after surgery, as Warfarin effect tapers off three days before and ramps up after restarting it. |
| 57 | Aug 21, 2009 2:21 AM | Other areas that are affected by the clotting disorders, especially when combined Factor V Leiden AND MTHFR disorders. I started with migraines, elevated to TIAs developing into periventricular white matter, and now with mild cognitive impairment (an early dementia condition). Currently being treated with Plavix, Metoprolol, Folgard RX (Folic, B6, B12), & Namenda) |
| 58 | Aug 22, 2009 2:50 PM | Please include a printable version of the information without all the ads and extraneous imformation. |
| 59 | Aug 24, 2009 5:42 AM | this default survey should be abolished |
| 60 | Aug 27, 2009 3:39 AM | Would like to see more info regarding Post Phlebetic Syndrome, and possible treatment or learning to deal with it. |
| 61 | Aug 28, 2009 6:47 PM | I wish more states would offer support groups for this issue here in az there is 0. |
| 62 | Sep 1, 2009 9:19 AM | Tretement of Disease |
| 63 | Sep 7, 2009 11:47 AM | More info about athletes diagnosed with DVT and local support info/events |
| 64 | Sep 13, 2009 5:50 PM | nothing |