http://stoptheclot.org/patient_stories/living_with_thrombosis.htm NATT is collecting stories that reveal the personal side of blood clots and clotting disorders. Too often, conditions are dehumanized through clinical terminology and research jargon. While such language is important and necessary in certain forums, a human story that describes one’s personal relationship to a condition is most accessible to the general public. en-us Mon, 22 Feb 2010 23:59:00 GMT Mon, 22 Feb 2010 23:59:00 GMT http://blogs.law.harvard.edu/tech/rss MS XML Notepad 2007 info@stoptheclot.org (Alan Brownstein) rq@bridgegrouponline.com (Richard Quattrocchi) 100 50 http://stoptheclot.org/patient_stories/living_with_thrombosis.htm http://www.stoptheclot.org/images/natt_logoart/256widetnatt.jpg http://stoptheclot.org/News/article111.htm David Henry discusses his experience with INR self testing. Wed, 11 Mar 2009 23:15:42 GMT http://stoptheclot.org/News/article111.htm Patient Story http://stoptheclot.org/News/article112.htm Reporter Jennifer Gray discusses her blood clot survival story. Sun, 05 Oct 2008 23:18:42 GMT http://stoptheclot.org/News/article112.htm Patient Story http://stoptheclot.org/News/article113.htm Pam Parianna discusses her blood clot survival story. Mon, 06 Oct 2008 23:18:42 GMT http://stoptheclot.org/News/article113.htm Patient Story http://stoptheclot.org/News/article121.htm A nurses personal blood clot survival story. Thu, 16 Oct 2008 11:10:42 GMT http://stoptheclot.org/News/article121.htm Patient Story http://stoptheclot.org/News/article122.htm Beverly Thao's blood clot survival story. Tue, 21 Oct 2008 11:10:42 GMT http://stoptheclot.org/News/article122.htm Patient Story http://stoptheclot.org/News/article123.htm Athletes' stories of blood clot survival and rehabilitation Wed, 22 Oct 2008 11:11:42 GMT http://stoptheclot.org/News/article123.htm Patient Story http://stoptheclot.org/News/article124.htm Jeanne Krull cyclist and athlete tells her story of surviing double pulmonary emboli caused by a blood clot. Wed, 22 Oct 2008 11:15:42 GMT http://stoptheclot.org/News/article124.htm Patient Story http://stoptheclot.org/News/article127.htm Cedric Bills relates an inspiring story of a person in the peak of physical condition suddenly being stricken with a life threatening health issue. Below is Cedric’s account, in his own words, of his battle to regain normalcy. Sat, 14 Mar 2009 09:50:42 GMT http://stoptheclot.org/News/article127.htm Patient Story http://stoptheclot.org/News/article128.htm Karen Kirchhoff relates in her own words her personal battle with deep vein thrombosis and pulmonary emboliism as well as her dicovery of the National Alliance for Thrombosis and Thrombohilia. Sat, 14 Mar 2009 09:54:42 GMT http://stoptheclot.org/News/article128.htm Patient Story http://stoptheclot.org/News/article129.htm Velton Wainwright Tudor’s Story expains in his own words his personal battle with deep vein thrombosis and pulmonary emboliism his treatment and recovery. Sat, 14 Mar 2009 09:54:42 GMT http://stoptheclot.org/News/article129.htm Patient Story http://stoptheclot.org/News/article131.htm Written in loving memory of Jessica Earley and her untimely death due to a blood clot. Sat, 14 Mar 2009 20:40:42 GMT http://stoptheclot.org/News/article131.htm Patient Story http://stoptheclot.org/News/article132.htm Lynn Levitt discusses her blood clot survival story. Sat, 14 Mar 2009 20:41:42 GMT http://stoptheclot.org/News/article132.htm Patient Story http://stoptheclot.org/News/article133.htm Kimberly Hennings of Colorado shares her and her sister’s story of pulmonary embolism. Kim developed multiple PE’s post-surgery in November 2007.  She later found out she carries prothrombin G20210A genetic thrombophilia, as do all of her family members except her mother. Sat, 14 Mar 2009 20:43:42 GMT http://stoptheclot.org/News/article133.htm Patient Story http://stoptheclot.org/News/article140.htm Lisa Boyd shares her story blood clot and child birth survival story. Sun, 15 Mar 2009 20:15:42 GMT http://stoptheclot.org/News/article140.htm Patient Story http://stoptheclot.org/News/article144.htm My Experience with Cerebral Venous Thrombosis - Blood clot survival story. Sun, 15 Mar 2009 20:24:42 GMT http://stoptheclot.org/News/article144.htm Patient Story http://stoptheclot.org/News/article149.htm Michelle Sirois's Blood Clot Story - surviving a blood clot caused by oral contraception. Sun, 15 Mar 2009 20:39:42 GMT http://stoptheclot.org/News/article149.htm Patient Story http://stoptheclot.org/News/article159.htm This is an in-depth analysis of the implications of the October 2008 “Never Event” decision by the Center for Medicare and Medicaid (CMS) to withhold reimbursement for any patient who develops a deep vein thrombosis (DVT) after hip or knee replacement. Since NATT is a patient led organization, it immediately expressed reservations about the zeal in such a “black and white” policy, since it overlooks the “grays” in the fact that clots may ensue when there is appropriate thromboprophylaxis given, or even withheld appropriately due to contraindication in certain patient populations. Thu, 19 Mar 2009 23:00:42 GMT http://stoptheclot.org/News/article159.htm Patient Story http://stoptheclot.org/News/article165.htm Jim Fenton's personal account of surviving a blood clot caused by antiphospholipid antibody syndrome. Thu, 16 Apr 2009 21:59:42 GMT http://stoptheclot.org/News/article165.htm Patient Story http://stoptheclot.org/News/article172.htm Harold Mitchell discusses his blood clot experience related to Antithrombin (AT)  Deficiency. Tue, 23 Jun 2009 13:22:42 GMT http://stoptheclot.org/News/article172.htm Patient Story http://stoptheclot.org/News/article173.htm Andy Morris tells his blood clot survival story. Mon, 27 Jul 2009 16:22:42 GMT http://stoptheclot.org/News/article173.htm Patient Story http://stoptheclot.org/News/article175.htm NATT recently received a patient story from a young woman in Mexico who prefers to stay anonymous, even as she was eager to share her experience.  The story underscores the challenge of accurate and timely diagnosis of clots going beyond the US, and the impact of the uncertainty resonates world wide.  To honor the author's wishes she is referred to as "Jane" in this article. Wed, 29 Jul 2009 14:10:42 GMT http://stoptheclot.org/News/article175.htm Patient Story http://stoptheclot.org/News/article176.htm My name is Jassmin Robinson and I am a 14 year old young lady from Ohio. I was correctly diagnosed with May Thurner syndrome on January 1, 2008.   Another name for this syndrome is iliac vein compression syndrome, because the left iliac vein in the groin is compressed by the right iliac artery. This increases the likelihood of a DVT in the left leg. Thu, 30 Jul 2009 16:10:42 GMT http://stoptheclot.org/News/article176.htm Patient Story http://stoptheclot.org/News/article180.htm David Bock was seriously injured when he slipped and fell in Upland, California on March 8, 2008, while visiting there from his home in Arizona.  He was rushed to the emergency room (ER) of the nearest hospital where the ER doctor diagnosed fractures of his left tibia and fibula in his lower left leg. (left ankle bimalleolar fracture).  He was in a great deal of pain, and was told that the fractures needed open reduction internal fixation surgical repair. Mon, 07 Sep 2009 20:07:42 GMT http://stoptheclot.org/News/article180.htm Patient Story http://stoptheclot.org/News/article184.htm Age 16. Slender. Non-smoker. At risk for a blood clot from birth control? Yes! Wed, 30 Sep 2009 15:18:42 GMT http://stoptheclot.org/News/article184.htm Patient Story http://stoptheclot.org/News/article185.htm Protein C Deficiency Leads to Deadly Clots that Almost Took This Otherwise Healthy 24 Year Old Sat, 17 Oct 2009 16:30:42 GMT http://stoptheclot.org/News/article185.htm Patient Story http://stoptheclot.org/News/article189.htm Minnesota Vikings Defensive End, Brian Robison, has agreed to be a spokesperson for NATT-MN. Sat, 31 Oct 2009 18:53:42 GMT http://stoptheclot.org/News/article189.htm Patient Story http://stoptheclot.org/News/article198.htm Carmen McArthur tells her blood clot story. Mon, 07 Dec 2009 16:00:00 GMT http://stoptheclot.org/News/article198.htm Patient Story http://stoptheclot.org/News/article199.htm Steve Hogman tells his blood clot survival story. Tue, 08 Dec 2009 20:15:00 GMT http://stoptheclot.org/News/article198.htm Patient Story http://stoptheclot.org/News/article200.htm Steve Hogman tells his blood clot survival story. Thu, 10 Dec 2009 21:55:00 GMT http://stoptheclot.org/News/article200.htm Patient Story http://stoptheclot.org/News/article201.htm My name is Kim Gronholz.  I am a 38 year old married mother of 3, an exercise "addict," a former high school English teacher, a school/church volunteer, a stay-at-home mom, and most pertinently, a DVT/PE survivor! Sat, 12 Dec 2009 21:31:00 GMT http://stoptheclot.org/News/article201.htm Patient Story http://stoptheclot.org/News/article202.htm My name is Kim Gronholz.  I am a 38 year old married mother of 3, an exercise "addict," a former high school English teacher, a school/church volunteer, a stay-at-home mom, and most pertinently, a DVT/PE survivor! Mon, 13 Dec 2009 02:31:00 GMT http://stoptheclot.org/News/article202.htm Patient Story http://stoptheclot.org/News/article204.htm Tom Hogan discusses why it is so important to advocate for youself before orthopedic surgery. Sat, 19 Dec 2009 16:31:00 GMT http://stoptheclot.org/News/article204.htm Patient Story http://stoptheclot.org/News/article205.htm Tim Allen tells his blood clot survival story. Sat, 19 Dec 2009 21:31:00 GMT http://stoptheclot.org/News/article205.htm Patient Story http://stoptheclot.org/News/article207.htm Hope Galley, mother, athlete and business leader tells her story of surviving cancer and deadly blood clot. Part of the NATT series on Cancer and Blood Clots Wed, 06 Jan 2010 18:31:00 GMT http://stoptheclot.org/News/article207.htm Patient Story http://stoptheclot.org/News/article208.htm Kelly Hogan tells her story of surviving a dealdy pulmonary emobolism caused by a blood clot in her leg - Deep Vein Thrombosis. Fri, 08 Jan 2010 19:12:00 GMT http://stoptheclot.org/News/article208.htm Patient Story http://stoptheclot.org/News/article209.htm Leah L. Wajdyk tells her story of surviving a dealdy pulmonary emobolism caused by a blood clot in her leg - Deep Vein Thrombosis. Sat, 09 Jan 2010 19:34:00 GMT http://stoptheclot.org/News/article209.htm Patient Story http://stoptheclot.org/News/article215.htm This is the story of a young woman who learned that blood clots can happen to people of all ages, and that women who choose to use hormone-based birth control for any reason should realize that the associated clotting risk is real, not just an empty warning. Mon, 22 Feb 2010 23:59:00 GMT http://stoptheclot.org/News/article215.htm Patient Story