http://stoptheclot.org/patient_stories/living_with_thrombosis.htm National Blood Clot Alliance is collecting stories that reveal the personal side of blood clots and clotting disorders. Too often, conditions are dehumanized through clinical terminology and research jargon. While such language is important and necessary in certain forums, a human story that describes one’s personal relationship to a condition is most accessible to the general public. en-us Sat, 28 Jan 2012 17:00:00 GMT Sat, 28 Jan 2012 17:00:00 GMT http://blogs.law.harvard.edu/tech/rss MS XML Notepad 2007 info@stoptheclot.org (Alan Brownstein) rq@bridgegrouponline.com (Richard Quattrocchi) 100 50 http://stoptheclot.org/patient_stories/living_with_thrombosis.htm http://www.stoptheclot.org/images/NBCA_logoart/256widetNBCA.jpg http://stoptheclot.org/News/article295.htm Geraldine Siquieros is a nurse who ignored PE symptoms in herself that she would respond to immediately in a patient.  Her experience taught her a lot. Sat, 28 Jan 2012 16:59:00 GMT http://stoptheclot.org/News/article295.htm Patient Story http://stoptheclot.org/News/article294.htm Nicole Sheldon had a DVT and PE for which there is still not explanation, especially given that she is young and healthy. She has learned not to sweat the small stuff, and appreciates the important things in life. Sun, 22 Jan 2012 17:15:00 GMT http://stoptheclot.org/News/article294.htm Patient Story http://stoptheclot.org/News/article293.htm Melanie Friedman wants to share her story and give some safe tips on avoiding travel-related clots Mon, 09 Jan 2012 18:35:00 GMT http://stoptheclot.org/News/article293.htm Patient Story http://stoptheclot.org/News/article292.htm Nick Sanders was one of those individuals that you could not forget. It wasn’t just that he was 6 feet 6 inches tall, had red hair and played football Mon, 02 Jan 2012 18:35:00 GMT http://stoptheclot.org/News/article292.htm Patient Story http://stoptheclot.org/News/article290.htm Caroline Elder tells the story of her son Garrett, and wants to promote awareness that blood clots are serious in children as well as adults Mon, 02 Jan 2012 16:00:00 GMT http://stoptheclot.org/News/article290.htm Patient Story http://stoptheclot.org/News/article289.htm Sharon Sullivan experienced a blood clot after surgery and c to alert others to the risks for and signs and symptoms of DVT/PE Tue, 20 Dec 2011 01:30:03 GMT http://stoptheclot.org/News/article289.htm Patient Story http://stoptheclot.org/News/article288.htm At age 26 in June 2006, I was diagnosed with a deep vein thrombosis (DVT) that extended from my ankle to my groin on my left side. Wed, 07 Dec 2011 05:44:03 GMT http://stoptheclot.org/News/article288.htm Patient Story http://stoptheclot.org/News/article285.htm Knee replacement surgery poses risk for blood clots. Discuss needed length of treatment with your doctor, since there are more than one set of clinical guidelines about the appropriate length of treatment with blood thinners to prevent blood clots post-surgery. Sun, 20 Nov 2011 17:51:03 GMT http://stoptheclot.org/News/article285.htm Patient Story http://stoptheclot.org/News/article281.htm I am the mother of Kyle Baca, who at age 14 was the victim of a “massive bilateral pulmonary embolism” (PE) on the morning of October 30, 2010. Mon, 07 Nov 2011 01:48:03 GMT http://stoptheclot.org/News/article281.htm Patient Story http://stoptheclot.org/News/article278.htm Cheryl Smith shares her blood clot story Fri, 28 Oct 2011 21:51:03 GMT http://stoptheclot.org/News/article278.htm Patient Story http://stoptheclot.org/News/article276.htm Anonymous patient tells her story about surviving a dangerous blood clot. Fri, 09 Sep 2011 21:50:03 GMT http://stoptheclot.org/News/article276.htm Patient Story http://stoptheclot.org/News/article273.htm Michael found out that he had Protein C Deficiency because he persisted in finding out what might have caused his blood clot. Tue, 06 Sep 2011 19:30:03 GMT http://stoptheclot.org/News/article273.htm Patient Story http://stoptheclot.org/News/article271.htm Carlos Ferro's story shows an example of a delay in diagnosis and a misdiagnosis of a pulmonary embolism. Sun, 28 Aug 2011 19:30:03 GMT http://stoptheclot.org/News/article271.htm Patient Story http://stoptheclot.org/News/article111.htm David Henry discusses his experience with INR self testing. Wed, 11 Mar 2009 23:15:42 GMT http://stoptheclot.org/News/article111.htm Patient Story http://stoptheclot.org/News/article112.htm Reporter Jennifer Gray discusses her blood clot survival story. Sun, 05 Oct 2008 23:18:42 GMT http://stoptheclot.org/News/article112.htm Patient Story http://stoptheclot.org/News/article113.htm Pam Parianna discusses her blood clot survival story. Mon, 06 Oct 2008 23:18:42 GMT http://stoptheclot.org/News/article113.htm Patient Story http://stoptheclot.org/News/article121.htm A nurses personal blood clot survival story. Thu, 16 Oct 2008 11:10:42 GMT http://stoptheclot.org/News/article121.htm Patient Story http://stoptheclot.org/News/article122.htm Beverly Thao's blood clot survival story. Tue, 21 Oct 2008 11:10:42 GMT http://stoptheclot.org/News/article122.htm Patient Story http://stoptheclot.org/News/article123.htm Athletes' stories of blood clot survival and rehabilitation Wed, 22 Oct 2008 11:11:42 GMT http://stoptheclot.org/News/article123.htm Patient Story http://stoptheclot.org/News/article124.htm Jeanne Krull cyclist and athlete tells her story of surviing double pulmonary emboli caused by a blood clot. Wed, 22 Oct 2008 11:15:42 GMT http://stoptheclot.org/News/article124.htm Patient Story http://stoptheclot.org/News/article127.htm Cedric Bills relates an inspiring story of a person in the peak of physical condition suddenly being stricken with a life threatening health issue. Below is Cedric’s account, in his own words, of his battle to regain normalcy. Sat, 14 Mar 2009 09:50:42 GMT http://stoptheclot.org/News/article127.htm Patient Story http://stoptheclot.org/News/article128.htm Karen Kirchhoff relates in her own words her personal battle with deep vein thrombosis and pulmonary emboliism as well as her dicovery of the National Alliance for Thrombosis and Thrombohilia. Sat, 14 Mar 2009 09:54:42 GMT http://stoptheclot.org/News/article128.htm Patient Story http://stoptheclot.org/News/article129.htm Velton Wainwright Tudor’s Story expains in his own words his personal battle with deep vein thrombosis and pulmonary emboliism his treatment and recovery. Sat, 14 Mar 2009 09:54:42 GMT http://stoptheclot.org/News/article129.htm Patient Story http://stoptheclot.org/News/article131.htm Written in loving memory of Jessica Earley and her untimely death due to a blood clot. Sat, 14 Mar 2009 20:40:42 GMT http://stoptheclot.org/News/article131.htm Patient Story http://stoptheclot.org/News/article132.htm Lynn Levitt discusses her blood clot survival story. Sat, 14 Mar 2009 20:41:42 GMT http://stoptheclot.org/News/article132.htm Patient Story http://stoptheclot.org/News/article133.htm Kimberly Hennings of Colorado shares her and her sister’s story of pulmonary embolism. Kim developed multiple PE’s post-surgery in November 2007.  She later found out she carries prothrombin G20210A genetic thrombophilia, as do all of her family members except her mother. Sat, 14 Mar 2009 20:43:42 GMT http://stoptheclot.org/News/article133.htm Patient Story http://stoptheclot.org/News/article140.htm Lisa Boyd shares her story blood clot and child birth survival story. Sun, 15 Mar 2009 20:15:42 GMT http://stoptheclot.org/News/article140.htm Patient Story http://stoptheclot.org/News/article144.htm My Experience with Cerebral Venous Thrombosis - Blood clot survival story. Sun, 15 Mar 2009 20:24:42 GMT http://stoptheclot.org/News/article144.htm Patient Story http://stoptheclot.org/News/article149.htm Michelle Sirois's Blood Clot Story - surviving a blood clot caused by oral contraception. Sun, 15 Mar 2009 20:39:42 GMT http://stoptheclot.org/News/article149.htm Patient Story http://stoptheclot.org/News/article159.htm This is an in-depth analysis of the implications of the October 2008 “Never Event” decision by the Center for Medicare and Medicaid (CMS) to withhold reimbursement for any patient who develops a deep vein thrombosis (DVT) after hip or knee replacement. Since NBCA is a patient led organization, it immediately expressed reservations about the zeal in such a “black and white” policy, since it overlooks the “grays” in the fact that clots may ensue when there is appropriate thromboprophylaxis given, or even withheld appropriately due to contraindication in certain patient populations. Thu, 19 Mar 2009 23:00:42 GMT http://stoptheclot.org/News/article159.htm Patient Story http://stoptheclot.org/News/article165.htm Jim Fenton's personal account of surviving a blood clot caused by antiphospholipid antibody syndrome. Thu, 16 Apr 2009 21:59:42 GMT http://stoptheclot.org/News/article165.htm Patient Story http://stoptheclot.org/News/article172.htm Harold Mitchell discusses his blood clot experience related to Antithrombin (AT)  Deficiency. Tue, 23 Jun 2009 13:22:42 GMT http://stoptheclot.org/News/article172.htm Patient Story http://stoptheclot.org/News/article173.htm Andy Morris tells his blood clot survival story. Mon, 27 Jul 2009 16:22:42 GMT http://stoptheclot.org/News/article173.htm Patient Story http://stoptheclot.org/News/article175.htm NBCA recently received a patient story from a young woman in Mexico who prefers to stay anonymous, even as she was eager to share her experience.  The story underscores the challenge of accurate and timely diagnosis of clots going beyond the US, and the impact of the uncertainty resonates world wide.  To honor the author's wishes she is referred to as "Jane" in this article. Wed, 29 Jul 2009 14:10:42 GMT http://stoptheclot.org/News/article175.htm Patient Story http://stoptheclot.org/News/article176.htm My name is Jassmin Robinson and I am a 14 year old young lady from Ohio. I was correctly diagnosed with May Thurner syndrome on January 1, 2008.   Another name for this syndrome is iliac vein compression syndrome, because the left iliac vein in the groin is compressed by the right iliac artery. This increases the likelihood of a DVT in the left leg. Thu, 30 Jul 2009 16:10:42 GMT http://stoptheclot.org/News/article176.htm Patient Story http://stoptheclot.org/News/article180.htm David Bock was seriously injured when he slipped and fell in Upland, California on March 8, 2008, while visiting there from his home in Arizona.  He was rushed to the emergency room (ER) of the nearest hospital where the ER doctor diagnosed fractures of his left tibia and fibula in his lower left leg. (left ankle bimalleolar fracture).  He was in a great deal of pain, and was told that the fractures needed open reduction internal fixation surgical repair. Mon, 07 Sep 2009 20:07:42 GMT http://stoptheclot.org/News/article180.htm Patient Story http://stoptheclot.org/News/article184.htm Age 16. Slender. Non-smoker. At risk for a blood clot from birth control? Yes! Wed, 30 Sep 2009 15:18:42 GMT http://stoptheclot.org/News/article184.htm Patient Story http://stoptheclot.org/News/article185.htm Protein C Deficiency Leads to Deadly Clots that Almost Took This Otherwise Healthy 24 Year Old Sat, 17 Oct 2009 16:30:42 GMT http://stoptheclot.org/News/article185.htm Patient Story http://stoptheclot.org/News/article189.htm Minnesota Vikings Defensive End, Brian Robison, has agreed to be a spokesperson for NBCA-MN. Sat, 31 Oct 2009 18:53:42 GMT http://stoptheclot.org/News/article189.htm Patient Story http://stoptheclot.org/News/article198.htm Carmen McArthur tells her blood clot story. Mon, 07 Dec 2009 16:00:00 GMT http://stoptheclot.org/News/article198.htm Patient Story http://stoptheclot.org/News/article199.htm Steve Hogman tells his blood clot survival story. Tue, 08 Dec 2009 20:15:00 GMT http://stoptheclot.org/News/article199.htm Patient Story http://stoptheclot.org/News/article200.htm Steve Hogman tells his blood clot survival story. Thu, 10 Dec 2009 21:55:00 GMT http://stoptheclot.org/News/article200.htm Patient Story http://stoptheclot.org/News/article201.htm My name is Kim Gronholz.  I am a 38 year old married mother of 3, an exercise "addict," a former high school English teacher, a school/church volunteer, a stay-at-home mom, and most pertinently, a DVT/PE survivor! Sat, 12 Dec 2009 21:31:00 GMT http://stoptheclot.org/News/article201.htm Patient Story http://stoptheclot.org/News/article202.htm My name is Kim Gronholz.  I am a 38 year old married mother of 3, an exercise "addict," a former high school English teacher, a school/church volunteer, a stay-at-home mom, and most pertinently, a DVT/PE survivor! Sun, 13 Dec 2009 02:31:00 GMT http://stoptheclot.org/News/article202.htm Patient Story http://stoptheclot.org/News/article204.htm Tom Hogan discusses why it is so important to advocate for youself before orthopedic surgery. Sat, 19 Dec 2009 16:31:00 GMT http://stoptheclot.org/News/article204.htm Patient Story http://stoptheclot.org/News/article205.htm Tim Allen tells his blood clot survival story. Sat, 19 Dec 2009 21:31:00 GMT http://stoptheclot.org/News/article205.htm Patient Story http://stoptheclot.org/News/article207.htm Hope Galley, mother, athlete and business leader tells her story of surviving cancer and deadly blood clot. Part of the NBCA series on Cancer and Blood Clots Wed, 06 Jan 2010 18:31:00 GMT http://stoptheclot.org/News/article207.htm Patient Story http://stoptheclot.org/News/article208.htm Kelly Hogan tells her story of surviving a dealdy pulmonary emobolism caused by a blood clot in her leg - Deep Vein Thrombosis. Fri, 08 Jan 2010 19:12:00 GMT http://stoptheclot.org/News/article208.htm Patient Story http://stoptheclot.org/News/article209.htm Leah L. Wajdyk tells her story of surviving a dealdy pulmonary emobolism caused by a blood clot in her leg - Deep Vein Thrombosis. Sat, 09 Jan 2010 19:34:00 GMT http://stoptheclot.org/News/article209.htm Patient Story http://stoptheclot.org/News/article215.htm This is the story of a young woman who learned that blood clots can happen to people of all ages, and that women who choose to use hormone-based birth control for any reason should realize that the associated clotting risk is real, not just an empty warning. Mon, 22 Feb 2010 23:59:00 GMT http://stoptheclot.org/News/article215.htm Patient Story http://stoptheclot.org/News/article224.htm Sara Golieb wants to alert people to the reality that blood clots can occur in younger people, and that use of birth control pills increases risk. Mon, 10 May 2010 14:50:00 GMT http://stoptheclot.org/News/article224.htm Patient Story http://stoptheclot.org/News/article231.htm Caitlin Augustine suffered through three DVTs caused by Factor V Lieden and almost died as a result. Read this 22 year old's amazing story about her fight to live and now join her in the fight to Stop the Clot. Sat, 14 Aug 2010 19:00:00 GMT http://stoptheclot.org/News/article231.htm Patient Story http://stoptheclot.org/News/article238.htm Compression stockings are a key part of DVT treatment, and prevention of complications such as post-thrombotic syndrome, even if they seem as if they are doing “nothing.” Sun, 22 Aug 2010 01:15:00 GMT http://stoptheclot.org/News/article238.htm Patient Story http://stoptheclot.org/News/article239.htm Pregnancy makes blood more likely to clot (“hypercoaguable”), especially toward the end Family history of blood clots is significant in terms of individual risk. Hormonal based birth control increases risk for blood clots. Theresa Boland tells her story. Mon, 06 Sep 2010 17:55:00 GMT http://stoptheclot.org/News/article239.htm Patient Story http://stoptheclot.org/News/article240.htm It is with great sadness that we learned that David Henry passed away on August 25th after a yearlong battle with cancer.  David was elected to the NBCA Board in 2008 and served as Treasurer. Fri, 17 Sep 2010 03:55:00 GMT http://stoptheclot.org/News/article240.htm Patient Story http://stoptheclot.org/News/article241.htm George’s persistence helped save his life after his first pulmonary embolism was misdiagnosed and his initial DVT was not treated. Tue, 21 Sep 2010 13:30:00 GMT http://stoptheclot.org/News/article241.htm Patient Story http://stoptheclot.org/News/article244.htm Elaine Richard's Patient Story. I will be on blood thinners for life and the specialists do not foresee that the clot will ever dissolve.  My kidney function is good for now, but I need to check it regularly. Sun, 24 Oct 2010 20:30:02 GMT http://stoptheclot.org/News/article244.htm Patient Story http://stoptheclot.org/News/article246.htm Desirre McClurg is a young woman who lived through major blood clots with extensive treatment, and wants to share her story, and what she describes as the “new normal” her life now is. Sun, 31 Oct 2010 23:55:02 GMT http://stoptheclot.org/News/article246.htm Patient Story http://stoptheclot.org/News/article247.htm No one expected that a blood clot would end her dream, and it seemed beyond belief that Anna died on May 20th, 2010 from a pulmonary embolism (PE) due to an undiagnosed deep vein thrombosis (DVT), a month after her 23rd birthday. Tue, 30 Nov 2010 23:55:02 GMT http://stoptheclot.org/News/article247.htm Patient Story http://stoptheclot.org/News/article251.htm Kristine Hinterkopf experienced a blood clot after hip surgery. Read her personal story. Thu, 03 Feb 2011 23:31:02 GMT http://stoptheclot.org/News/article251.htm Patient Story http://stoptheclot.org/News/article255.htm Kelly Nobles inpirational story about her determination to not let DVT rule her life. Mon, 07 Mar 2011 23:31:02 GMT http://stoptheclot.org/News/article255.htm Patient Story http://stoptheclot.org/News/article257.htm Laura Feuerborn's Patient Story Sun, 10 Apr 2011 18:00:02 GMT http://stoptheclot.org/News/article257.htm Patient Story http://stoptheclot.org/News/article259.htm I am a 56+year old male.  I have occasional asthma, primarily exercised induced. If I notice asthma symptoms while working out, I can usually push through them and finish the work-out, although I do use a bronchodilator when I need to. Sun, 10 Apr 2011 19:01:04 GMT http://stoptheclot.org/News/article259.htm Patient Story http://stoptheclot.org/News/article261.htm Pamela Lynn tells her story of survival with DVT/PE Sun, 01 May 2011 18:01:03 GMT http://stoptheclot.org/News/article261.htm Patient Story http://stoptheclot.org/News/article262.htm Kara King tells her story of survival with DVT/PE Sun, 01 May 2011 18:05:03 GMT http://stoptheclot.org/News/article262.htm Patient Story http://stoptheclot.org/News/article266.htm Cassie Sheffield and her birth family were affected by blood clots, and discovered that the family has a genetic blood clotting disorder, Antithrombin (AT) III deficiency, that carries a high risk for blood clots.  Cassie not only developed multiple pulmonary emboli in her teenage years, she learned that her mother and two brothers had AT deficiency, and her baby son Noah was born with blood clots. Despite illness and tragic loss, Cassie sees herself as a survivor with perspective on life. Mon, 30 May 2011 23:26:03 GMT http://stoptheclot.org/News/article266.htm Patient Story http://stoptheclot.org/News/article268.htm  I was diagnosed with a deep vein thrombosis (DVT) in my right leg four years ago when I was 19 years old.  It started when I noticed pain in my right leg.  At that time, I had not even heard of DVT or its symptoms. I play soccer, so I thought it was just a muscle spasm Mon, 06 Jun 2011 19:26:03 GMT http://stoptheclot.org/News/article268.htm Patient Story