Living with Blood Clots and Clotting Disorders
Blood clots and genetic predispositions to clotting disorders can have serious lifelong consequences for patients… and for their families and friends.
Collected here are the stories of those living with Thrombophilia. Click on the links below to read personal stories about coping with these conditions.
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Eric
Vignando’s story about a fatal DVT after surgery underscores the
importance of post surgical blood thinner treatment. Knee replacement
surgery poses risk for blood clots. Discuss needed length of treatment with
your doctor, since there are more than one set of clinical guidelines about
the appropriate length of treatment with blood thinners to prevent blood
clots post-surgery. Read Eric's story
as told by Sophie Lambert.
Leah
L. Wajdyk's Deep Vein Thrombosis / Pulmonary Embolism Patient Story.
This patient injured her knee while getting on an airplane at the start of a
business trip. She developed a deep vein thrombosis post-operatively that
was not detected until she could not breathe and went to the Emergency Room,
where a pulmonary embolism was diagnosed and treated. She feels lucky to be
alive and thrilled to have a successful pregnancy and a healthy son in the
aftermath. Read Leah's story.
Beverly Porter is a patient who sought care for some typical symptoms of a DVT. Her condition was misdiagnosed and a pulmonary embolism occurred during the time she was being treated for the wrong problem, and was therefore fortunate to survive. Read Beverly's story.
Jane's Story - This patient story is from a young woman in Mexico who prefers to stay anonymous, even as she was eager to share her experience. The story underscores the challenge of accurate and timely diagnosis of clots going beyond the US, and the impact of the uncertainty resonates world wide. To honor the author's wishes she is referred to as "Jane" in this article. Read Jane's story
Michelle Sirois survived a bilateral pulmonary embolism caused by blood clot. Read Michelle's story.
Velton Wainwright Tudor’s Story - In October of 1993, when I was 47, my left leg started swelling from my hip to my toes and I started experiencing trouble breathing. My leg felt so tight, that I couldn’t bend my knee, so I contacted an orthopedic practice who then referred me to an internal medicine physician, Dr. D... Read the rest of Velton's story.
Laura Zain, from Livonia, Michigan shares her story, "A Journey with Kyle" about her son, age 17, who survived a blood clot to his brain. He was later found to have extremely elevated homocysteine levels.- Read Laura's story.
More Patient Stories
